Patent ID: 8036915

Claim:
A method for collecting and managing patient data, the method comprising: collecting patient data by the following steps: generating sets of fillable forms using a computer for recording respective historical and clinical information regarding a respective medical condition affecting each of a plurality of authorized patients at a plurality of different unaffiliated participating sites, wherein each set of fillable forms for a plurality of authorized patients having the respective medical condition contains the same queries and answer keys to enable standardized answers to at least some of the queries from the authorized patients and participating physicians; each set of fillable forms is filled in by one of the plurality of authorized patients and that patient's participating physician using the following steps: presenting one portion of the set of editable forms to the authorized patient; the authorized patient fills in the first portion of the set of fillable forms; presenting another portion of the set of fillable forms to the authorized patient's participating physician; and the participating physician fills in the another portion of the set of editable forms, wherein information entered by the participating physician includes dosage and start and end dates for each biologic agent used by the authorized patient; and managing patient data by the following steps: generating a database using a computer comprising the information entered by authorized patients and participating physicians according to the patient data collecting step; and analyzing the information in the database to provide desired outputs for access by authorized users, wherein the information in the database is usable by authorized users for researching at least the respective medical condition, researching treatments for at least the respective medical condition, obtaining clinical evidence for the effectiveness and toxicity of drugs or treatments of at least the respective medical condition, selecting treatments for at least one of the authorized patients, evaluating treatments, or facilitating more informed patient management by the physician.