edithatogo/rareburden-open-sources

Rare Burden Commons open-source intake

This dataset contains source artifacts that have been assessed as suitable for public redistribution, with release identity and provenance recorded in the repository source-acquisition assessment.

Contents

• data/world-bank/2026-09-05/: World Bank WDI population indicator SP.POP.TOTL, with metadata and attribution.

• data/aihw/2026-02-18/: five AIHW ACM 42 respiratory workbooks.

• data/who-un/2026-09-05/: UN WPP 2024 compact demographic indicators and WHO GHE 2021 country DALYs for 2000.

• data/who-mortality/2026-09-05/: WHO Mortality Database raw archives, documentation and per-file provenance manifest.

• data/mondo/v2026-09-01/mondo-rare.owl: Mondo rare-disease ontology, release v2026-09-01.

• data/orphadata/july-2026/en_product9_prev.xml: Orphadata English epidemiology release, dated 23 June 2026 and containing 6,728 records.

Attribution and terms

This is a mixed-source collection, not a single CC BY 4.0 dataset. Each source retains its own licence, attribution, limitations and third-party notices. See the README beside each source snapshot. AIHW uses CC BY 4.0 subject to exclusions; World Bank data uses CC BY 4.0 with additional source terms; UN WPP uses CC BY 3.0 IGO. WHO files retain WHO data terms and recorded project-owner redistribution approval, with no implied commercial permission. No source publisher endorses this archive. Public raw snapshots are the medallion system's source layer, not validated Silver or Gold outputs.

Mondo is provided under the Creative Commons Attribution 4.0 International licence. Retain attribution and indicate changes when adapting the artifact. See https://mondo.monarchinitiative.org/pages/download/ and https://creativecommons.org/licenses/by/4.0/.

Orphadata states that its files are available under CC BY 4.0. See https://sciences.orphadata.com/epidemiology/.

This upload is a source artifact, not a claim that all downstream analyses or derived outputs are approved, validated, or released.

Access, versioning and use — 27 October 2026

Public repository with anonymous access. Public availability does not itself establish source reuse permission or completeness.

The tabular viewer is intentionally disabled for this archive, evidence, plan or metadata-only product. Use the documented files and manifests directly; no compatible complete table release is asserted.

The asset inventory was checked at revision ec51c04d3af04fc0cdb0b15b3fafa7948b2ab048. Counts/status in source receipts apply to those editions and runs, not all upstream sources. Snapshots, candidates, fixtures and metadata-only products must not be represented as complete released datasets or clinically/operationally validated products.

Start with data/who-mortality/2026-09-05/manifest.json, data/world-bank/2026-09-05/world-bank-population-metadata.json, data/world-bank/2026-09-05/world-bank-population.json.

For reproducible use, record this repository identifier, pinned revision and relevant manifest/object hashes, plus the upstream source and required attribution. Use hf_hub_download with an explicit revision and repo_type="dataset" for individual assets; verify published checksums before transformation. Code licences do not override source-document, base-model or third-party rights. Where a dataset-wide licence is not established, license: other means inspect the recorded source terms and do not assume a new grant.

Report metadata or integrity concerns through this repository's Community tab or its identified source-project tracker, with revision/path/hash. Do not disclose sensitive payloads or private access details publicly. This metadata maintenance does not authorise model deployment, new data release, medical decisions or source-rights changes.