Source: https://prc.coh.org/palliative%20care%20prev%20eol%20new.asp
Timestamp: 2019-04-25 06:53:37+00:00

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This section includes publications related to palliative care and other resources such as the End-of-Life Nursing Education Consortium (ELNEC).
Ferrell, B., Paterson, C., Hughes, M., Chung, V., Koczywas, M., Smith, T. (2017). Characteristics of participants enrolled onto a randomized controlled trial of palliative care for patients on phase 1 studies. Journal of Palliative Medicine, Vol 20(12): 1338-1344.
Huong, N., Cuyegkeng, T., Phung, T., Karisa, J., Borneman, T., Macias, M., Ruel, N., Ferrell, B. (2017). Integration of a Palliative Care Intervention into Community Practice for Lung Cancer: AStudy Protocol and Lessons Learned with Implementation. Journal of Palliative Medicine, Vol 20(12): 1327-1337. ahead of print.
Sun V, Ruel N, Chung V, Singh G, Leong L, Fakih M, Fong Y, Ferrell B. (2016). Pilot Study of an Interdisciplinary Supportive Care Planning Intervention in Pancreatic Cancer. Support Care Cancer, 24(8): 3417–3424. Published online 2016 March 17. doi: 10.1007/s00520-016-3155-9.
Ferrell B, Sun V, Hurria A, Cristea M, Raz D, Kim J, Reckamp K, Williams AC, Borneman T, Uman G, Koczywas M. (2015). Interdisciplinary Palliative Care for Patients with Lung Cancer. Journal of Pain and Symptom Management, 50(6):758-767.
Del Ferraro, D., Ferrell, B., Van Zyl, K., Freeman, B., & Klein, L. (2014). Improving palliative cancer care. Journal of the Advanced Practitioner in Oncology, 5(5), 331-338.
Borneman, T., Irish, T., Sidhu, R., Koczywas, M., & Cristea, M. (2014). Death awareness, feelings of uncertainty, and hope in advanced lung cancer patients: Can they coexist. International Journal of Palliative Nursing, 20(6), 271-277.
Jones, B., Phillips, F., Anderson Head, B., Hedlund, S., Kalisiak, A., Zebrack, B., Kilburn, L., & Otis-Green, S. (2014). Enhancing collaborative leadership in palliative social work in oncology. Journal of Social Work in End-of-Life & Palliative Care, 10(4), 309-321. DOI: 10.1080/15524256.2014.975319.
Malloy, P., Paice, J., Coyle, N., Coyne, P., Smith, T., & Ferrell, B. (2014). Promoting palliative care worldwide through international nursing education. Journal of Transcultural Nursing, 25(4), 410-417.
Otis-Green, S., Sidhu, R. K., Del Ferraro, C., Ferrell, B. (2014). Integrating social work into palliative care for lung cancer patients and families: A multidimensional approach. Journal of Psychosocial Oncology, 32(4), 431-446.
Ferrell, B., Otis-Green, S., Baird, P., & Garcia, A. (2014). Nurses’ responses to requests for forgiveness at the end of life. Journal of Pain and Symptom Management, 46(2), 631-641.
Koczywas M, Cristea M, Thomas J, McCarty C, Borneman T, Del Ferraro C, Sun V, Uman G, Ferrell B. (2013).Interdisciplinary palliative care intervention in metastatic non-small-cell lung cancer. Clinical Lung Cancer. 14(6), 736-744. DOI:10.1016/j.cllc.2013.06.008.
Otis-Green, S., Wakabayashi, M. T., Morgan, R., Hakim, A., Ferrell, B., Sun, V., Yang, E. & Grant, M. (2013).Palliative care opportunities for women with advanced ovarian cancer associated with intraperitoneal chemotherapy. Journal of Palliative Medicine, 16(1), 44-53. DOI: 10.1089/jpm.2012.0174.
Freeman, B. (2013). CARES: An acronym organized tool for the care of the dying. Journal of Hospice & Palliative Nursing, 15(3), 147-153.
Grant, M., Wiencek, C., Virani, R., Uman, G., Munevar, C., Malloy, P., & Ferrell, B. (2013). End-of-life care education in acute and critical care: The California ELNEC project. American Association of Critical-Care Nurses, 24(2), 121-128.
Otis-Green, S., Yang, E., & Lynne, L. (2103). ACE Project – Advocating for clinical excellence: Creating change in the delivery of palliative care. Omega, 67 (1-2), 5-19.
Cooke, L., Grant, M., Gemmill, R. (2012). Discharge needs of allogeneic transplantation recipients. Clinical Journal of Oncology Nursing, 16(4), E142-E149. DOI: 10.1188/12.CJON.E142-E149.
Williams, A. C., Grant, M., Tiep, B., & Hayter, J. (2012). Dyspnea management in early-stage lung cancer. Journal of Hospice & Palliative Nursing, 14(5), 332-340. DOI: 10.1097/NJH.0b013e318258043a.
Smith, T., Temin, S., Alesi, E., Abernethy, A., Balboni, T., Basch, E., Ferrell, B. R., Loscalzo, M., Meier, D., Paice, J., Peppercorn, J., Somerfield, M., Stovall, E., & Von Roenn, J. (2012). American Society of Clinical Oncology provisional clinical opinion: The integration of palliative care into standard oncology care. Journal of Clinical Oncology, 30(8), 880-887. DOI: 10.1200/JCO.2011.38.5161.
Del Ferraro, C., Grant, M., Koczywas, M., & Dorr-Uyemura, L. A. (2012). Management of anorexia-cachexia in late-stage lung cancer patients. Journal of Hospice & Palliative Nursing, 14(6), 397-402.
Ferrell, B. R. (2011). Advancing the psychosocial care of patients with cancer at life’s end: A global nursing response.Oncology Nursing Forum, 38(5), E335-E340. DOI: 10.1188/11.ONF.E335-E340.
Cooke, L. D., Gemmill, R., & Grant, M. L. (2011). Creating a palliative educational session for hematopoietic stem cell translantation recipients at relapse. Clinical Journal of Oncology Nursing, 15(4), 411-417.
Ferrell, B. R., Koczywas, M., Grannis, F., Harrington, A., (2011). Palliative care in lung cancer. Surgical Clinics of North America, 91(2), 403-417. DOI: 10.1016/j.suc.2010.12.003.
Paice, J. A., Erickson-Hurt, C., Ferrell, B. R., Coyle, N., Coyne, P. J., Long. C. O., Mazanec, P., Malloy, P., & Smith, T. J. (2011). Providing pain and palliative care education internationally. The Journal of Supportive Oncology, 9(4), 129-133.
Wiencek, C. A., Ferrell, B. R., & Jackson, M. (2011). The meaning of our work: Caring for the critically ill patient with cancer. AACN Advanced Critical Care, 4(22), 397-407. DOI: 10.1097/NCI.0b013e318232c6ef.
Ferrell, B. R., Virani, R., Paice, J. A., Malloy, P., & Dahlin, C. (2010). Statewide efforts to improve palliative care in critical care settings. Critical Care Nurse, 30(6), 40-45. DOI: 10.4037/ccn2010248.
Ferrell, B. R., Virani, R., Malloy, P., Kelly, K. (2010). The preparation of oncology nurses in palliative care. Seminars in Oncology Nursing, 26(4), 259-265.
Ferrell, B. R. (2010). Palliative care research: nursing response to emergent society needs. Nursing Science Quarterly, 23(3), 221-225. DOI: 10.1177/0894318410371842.
Abernethy, A. P., Aziz, N. M., Basch, E., Bull, J., Cleeland, C. S., Currow, D. C., Fairclough, D., Hanson, L., Hauser, J., Ko, D., Lloyd, L, Morrison, R. S., Otis-Green, S., et al. (2010). Special Report: A strategy to advance the evidence base in palliative medicine: Formation of a palliative care research cooperative group. Journal of Palliative Medicine, 12(13), 1407-1413. DOI: 10.1089/jpm.2010.0261.
Levit, L., Smith, A., Benz, E., Ferrell, B. R. (2010). Ensuring quality cancer care through the oncology workforce.Journal of Oncology Practice, 6(1), 7-11. DOI: 10.1200/JOP.091067.
Ferrell, B. R., Virani, R., Jacobs, H. H., Malloy, P., & Kelly, K. (2010). Arts and humanities in palliative nursing education. Journal of Pain Symptom Management, 39(5), 941-945.
Ferrell, B. R., Virani, R., Paice, J. A., Coyle, N., & Coyne, P. (2010). Evaluation of palliative care nursing education seminars. European Journal of Oncology Nursing, 14(1), 74-79. DOI: 10.1016/j.ejon.2009.08.004.
Grant, M., & Sun, V. (2010). Advances in quality of life at the end of life. Seminars in Oncology Nursing, 26(1), 26-35. DOI: 10.1016/j.soncn.2009.11.005.
Paice, J. A., Ferrell, B. R., Coyle, N., Coyne, P., & Smith, T. (2010). Living and dying in East Africa: Implementing the End-of-Life Nursing Education Consortium curriculum in Tanzania. Clinical Journal of Oncology Nursing, 14(2), 161-166.
Grant, M., Elk, R., Ferrell, B. R., Morrison, R. S. & von Gunten, C. F. (2009). Current status of palliative care-clinical implementation, education, and research. CA A Cancer Journal for Clinicians, 59(5), 327-335.
Lange, J., Shea, J., Grossman, S., Wallace, M., Ferrell, B. R. (2009). Validation of the end-of-life nursing education consortium knowledge assessment Test (ELNEC-KAT): An abbreviated version. Journal of Hospice and Palliative Nursing, 11(5), 284-290. DOI: 10.1097/NJH.0b013e3181b4cc54.
Jacobs, H. H., Ferrell, B. R., Virani, R., & Malloy, P. (2009). Appraisal of the Pediatric End-of-Life Nursing Education Consortium training program. Journal of Pediatric Nursing, 24(3), 216-221. DOI:10.1016/j.pedn.2008.03.001.
O' Mara, A. M., St. Germain, D., Ferrell, B. R., & Borneman, T. (2009). Challenges to and lessons learned from conducting palliative care research. Journal of Pain and Symptom Management, 37(3), 387-394.
Otis-Green, S., Ferrell, B. R., Spolum, M., Uman, G., Mullan, P., Baird, P., Grant, M. (2009). An overview of the ACE project ~ Advocating for clinical excellence: Transdisciplinary palliative care education. Journal of Cancer Education, 24(2), 120-126. DOI: 10.1080/08858190902854616.
Altilio, T., Otis-Green, S., & Dahlin, C. M. (2008). Applying the National Quality Forum Preferred Practices for Palliative and Hospice Care: A social work perspective. Journal of Social Work in End Life Palliative Care, 4(1), 3-16. DOI: 10.1080/15524250802071999.
Ferrell, B. R., Levy, M. H., & Paice, J. (2008). Managing pain from advanced cancer in the palliative care setting.Clinical Journal of Oncology Nursing, 12(4), 575-581. DOI: 10.1188/08.CJON.575-581.
Otis-Green, S., Lucas, S., Spolum. M., Ferrell, B. R.., & Grant, M. (2008). Promoting excellence in pain management and palliative care for social workers. Journal of Social Work in End-of-Life and Palliative Care, 4(2), 120-134.
Borneman, T., Koczywas, M., Cristea, M., Reckamp, K., Sun, V. & Ferrell, B. R. (2008). An interdisciplinary care approach for integration of palliative care in lung cancer. Clinical Lung Cancer. 9(6), 352-360.
Sun, V., Ferrell, B. R., Juarez, G., Wagman, L. D., Yen, Y. & Chung, V. (2008). Symptoms concern and quality of life in hepatobiliary cancers. Oncology Nursing Forum, 32(3), 1-8. DOI: 10.1188/08.ONF.E45-E52.
Virani, R., Malloy, P., Ferrell, B. R., & Kelly, K. (2008). Statewide efforts in promoting palliative care. Journal of Palliative Medicine, 11(7), 991-996. DOI: 10.1089/jpm.2007.0291.
Kelly, K., Ersek, M., Virani, R., Malloy, P., & Ferrell, B. R. (2008). End-of-Life Nursing Education Consortium Geriatric Training Program: Improving palliative care in community geriatric care settings. Journal of Gerontological Nursing, 34(5), 28-35. DOI: 10.3928/00989134-20080501-06.
Altilio, T., Gardia, G., Otis-Green, S. (2008). Social work practice in palliative and end-of-life care: A report from the summit. Journal of Social Work in End-of-Life and Palliative Care, 3(4), 68-86.
Lorenz, K. A., Lynn, J., Dy, S. M., Shugarman, L. R., Wilkinson, A., Mularski, R. A., Morton, S. C., Hughes, R. G., Hilton, L. K., Maglione, M., Rhodes, S. L., Rolon, C, Sun, V. C., et al. (2008). Evidence for improving palliative care at the end of life: A systematic review. Annals of Internal Medicine, 148(2), 147-159.
Malloy, P., Paice, J., Virani, R., Ferrell, B. R., & Bednash, G. P. (2008). End-of-life nursing education consortium: 5 years of educating graduate nursing faculty in excellent palliative care. Journal of Professional Nursing, 24(6), 352-357. DOI: 10.1097/01.NJH.0000319163.35596.59.
Malloy, P., Virani, R., Kelly, K., Jacobs, H. H., & Ferrell, B. R. (2008). Seven years and 50 courses later: End-of-life nursing education consortium continues commitment to provide excellent palliative care education. Journal of Hospice and Palliative Nursing, 10(4), 233-239. DOI:10.1097/01.NJH.0000319163.35596.59.
Virani, R., Malloy, P., Ferrell, B. R., & Kelly, K. (2008). Statewide efforts in promoting palliative care. Journal of Palliative Medicine, 11(7), 991-996. DOI:10.1089/jpm.2007.0291.
Paice, J. A., Ferrell, B. R., Coyle, N., Coyne, P., & Callaway, M. (2007). Global efforts to improve palliative care: The international end-of-life nursing education consortium training program. Journal of Advanced Nursing, 61(2), 173-180. DOI: 10.1111/j.1365-2648.2007.04475.x.
Altilio, T., Gardia, G., & Otis-Green, S. (2007). Social work practice in palliative and end-of-life care: A report from the summit. Journal of Social Work in End-of-Life and Palliative Care, 3(4), 68-86.
Ferrell, B. R., Dahlin, C., Campbell, M., Paice, J., Malloy, P, Virani, R. (2007). End-of-life nursing education consortium (ELNEC) training programs: Improving palliative care in critical care. Critical Care Nursing Quarterly, 30(3), 206-212.
Podnos, Y., Borneman, T., Koczywas, M., Uman, G., & Ferrell, B. R. (2007). Symptom concerns and resource utilization in patients with lung cancer. Journal of Palliative Medicine, 10(4), 899-903.
Coyne, P., Paice, J., Ferrell, B. R., Malloy, P., Virani, R., & Fennimore, L. (2007). Oncology end-of-life nursing education consortium training program: Improving palliative care in cancer. Oncology Nursing Forum, 34(4), 801-807. DOI: 10.1188/07.ONF.801-807.
Ferrell, B. R., Connor, S. R., Cordes, A., Dahlin, C. M., Fine, P. G., Hutton, N., et. al. (2007). The national agenda for quality palliative care: The National Consensus Project and the National Quality Forum. Journal of Pain and Symptom Management, 33 (6), 737-744.
Grant, M., Hanson, J., Mullan, P., Spolum, M., & Ferrell, B. R. (2007). Disseminating end-of-life education to cancer centers: Overview of program and of evaluation. Journal of Cancer Education, 22, 140-148.
Fineberg, I. C., Grant, M., Aziz, N. M., Payne, R., Kagawa-Singer, M., Dunn, G. P. (2007). Prospective integration of cultural consideration in biomedical research for patients with advanced cancer: Recommendations from an international conference on malignant bowel obstruction in palliative care. Journal of Pain Symptom Management, 34(1 Suppl), S28-39. DOI: 10.1016/j.jpainsymman.2007.04.009.
Malloy, P., Sumner, E., Virani, R., & Ferrell, B. R. (2007). End-of-life nursing education consortium for pediatric palliative care (ELNEC-PPC). MCN The American Journal of Maternal Child Nursing, 32(5), 298-302; quiz 303-294. DOI: 10.1097/01.NMC.0000288000.87629.de.
Duensing, L. & Otis-Green, S., (Eds), (2007). The impact of culture on pain management, The Pain Practitioner: Special Edition, 17(2), Summer.
Mularski, R. A., Dy, S. M., Shugarman, L. R., Wilkinson, A. M., Lynn, J., Shekelle, P. G., Morton, S. C., Sun, V. C., et al. (2007). A systematic review of measures of end-of-life care and its outcomes. Health Services Research, 42(5), 1848-1870.
Ferrell, B. R., Virani, R., & Malloy, P. (2006). Evaluation of the end-of-life nursing education consortium project in the USA. International Journal of Palliative Nursing, 12(6), 269-276.
Ferrell, B. R. (2006). Understanding the moral distress of nurses witnessing medically futile care. Oncology Nursing Forum, 33(5), 922-930. DOI:10.1188/06.ONF.922-930.
Malloy, P., Ferrell, B. R., Virani, R., Wilson, K., & Uman, G. (2006). Palliative care education for pediatric nurses. Pediatric Nursing, 32(6), 555-561.
Malloy, P., Ferrell, B. R., Virani, R., Uman, G., Rhome, A. M., Whitlatch, B., & Bednash, G. (2006). Evaluation of end-of-life nursing education for continuing education and clinical staff development educators. Journal for Nurses in Staff Development, 22(1), 31-36.
Paice, J.A., Ferrell, B.R., Virani, R., Grant, M., Malloy, P., & Rhome, A. (2006). Graduate nursing education regarding end-of-life care. Nursing Outlook, 54(1), 46-52. DOI: 10.1016/j.outlook.2005.04.003.
Paice, J. A., Ferrell, B. R., Virani, R., Grant, M., Malloy, P., & Rhome, A. (2006). Appraisal of the graduate end-of-life nursing education consortium training program. Journal of Palliative Medicine, 9(2), 353-360. DOI:10.1089/jpm.2006.9.353.
Altilio, T. & Otis-Green, S. (2006). “Res ipsa loquitur”…It speaks for itself…Social work values, pain, and palliative care. Journal of Social Work in End-of-Life & Palliative Care, 1(4), 3-6. DOI: 10.1300/J457v01n04_02.
Ferrell, B. R. (2005). Overview of the domains of variables relevant to end-of-life care. Journal of Palliative Medicine, 8, (Suppl 1), S22-29. DOI:10.1089/jpm.2005.8.s-22.
Ersek, M., & Ferrell, B. R. (2005). Palliative care nursing education: Opportunities for gerontological nurses. Journal of Gerontological Nursing, 31(7), 45-51.
Ersek, M., Grant, M. M., & Kraybill, B. M. (2005). Enhancing end-of-life care in nursing homes: Palliative Care Educational Resource Team (PERT) program. Journal of Palliative Medicine, 8(3), 556-566. DOI: 10.1089/jpm.2005.8.556.
Ferrell, B. R., Virani, R., Grant, M., Rhome, A., et al. (2005). Evaluation of the end-of-life nursing education consortium undergraduate faculty training program. Journal of Palliative Medicine, 8 (1), 107-114. DOI: 10.1089/jpm.2005.8.107.
Sherman, D., Matzo, M., Pitorak, E., Ferrell, B. R., & Malloy, P. (2005). Preparation and care at the time of death: Content of the ELNEC curriculum and teaching strategies. Journal for Nurses in Staff Development, 21(3), 93-100.
Lorenz, K., Lynn, J., Morton, S., Dy, S., Shugarman, L,. Wilkinson, A, Mularski, R., Sun, V. et al. (2005).Methodological approaches for a systematic review of end-of-life care. Journal of Palliative Medicine, 8(Suppl 1), S4-11.
Ferrell, B. R. (2004). Palliative care research: The need to construct paradigms. Journal of Palliative Medicine, 7(3), 408-410.
Ferrell, B. R. (2004). Palliative care: An essential aspect of quality cancer care. Surgical Oncology Clinics of North America, 13(3), 401-411, vii. DOI: 10.1016/j.soc.2004.03.003.
Sherman, D., Matzo, M., Coyne, P., Ferrell, B. R., & Penn, B. (2004). Teaching symptom management in end-of-life care: The didactic content and teaching strategies based on the end-of-life nursing education curriculum. Journal for Nurses in Staff Development, 20(3), 103-115.
Krouse, R. S., Rosenfeld, K. E., Grant, M., Aziz, N., Byock, I., Sloan, J. (2004). Palliative care research: Issues and opportunities. Cancer Epidemiology Biomarkers & Prevention, 13(3), 337-339.
Lorenz, K., Lynn, J., Morton, S. C., Dy, S., Mularski, R., Shugarman, L., Sun, V., et al. (2004). End-of-life care and outcomes. AHRQ Evidence Report Technology Assessment (Summary) (110), 1-6.
Mason, D., Coyle, N., & Ferrell, B. R. (2004). Why isn't all care 'palliative care'?: Care that’s based on need rather than prognosis. American Journal of Nursing, 104(11), 11. DOI: 00000446-200411000-00001 [pii].
Matzo, M. L., Sherman, D. W., Nelson-Marten, P., Rhome, A., & Grant, M. (2004). Ethical and legal issues in end-of-life care: Content of the End-of-Life Nursing Education Consortium curriculum and teaching strategies. Journal for Nurses in Staff Development, 20(2), 59-66; Quiz 67-68.
Sherman, D. W., Matzo, M. L., Paice, J. A., McLaughlin, M., & Virani, R. (2004). Learning pain assessment and management: A goal of the End-of-Life Nursing Education Consortium. The Journal of Continuing Education in Nursing, 35(3), 107-120; Quiz 141-142. DOI: 10.3928/0022-0124-20040501-07.
Dubois, M. Y., Fine, P. G., Fischberg, D., Ferrell, B. R., & Taylor, M. L. (2003). Pain management at the end of life: Often a difficult call. Pain Medicine, 4(1), 81-84. DOI: 10.1046/j.1526-4637.2003.t01-1-03009.x.
Matzo, M. L., Sherman, D. W., Lo, K., Egan, K. A., Grant, M., & Rhome, A. (2003). Strategies for teaching loss, grief, and bereavement. Nurse Educator, 28(2), 71-76.
Ferrell, B. R. & Borneman, T. (2002). Community implementation of home care palliative care education. Cancer Practice, 10(1), 20-27. DOI: 10.1046/j.1523 5394.2002.101003.x.
Ferrell, B. R., Virani, R., Grant, M., Coyne, P., & Uman, G. (2000). Beyond the supreme court decision: Nursing perspectives on end-of-life care. Oncology Nursing Forum, 27(3), 445-455.
Ferrell, B. R., Grant, M., & Virani, R. (2001). Nurses urged to address improved end-of-life care in textbooks. Oncology Nursing Forum, 28(9), 1349.
- Ferrell, B. R., Coyle, N., & Paice, J., (2015). NY: Oxford University Press.
- Ferrell, B. R., & Coyle, N. (2008). NY: Oxford University Press.
ISBN #: 0195333128. Please check the Oxford University Press: Medicine & Health section for more books.
- A comprehensive national education program to improve end-of-life care by nurses.
- A collection of instruments currently in use by City of Hope Investigators to assess staff knowledge and needs to improve end-of-life care. Curriculum Survey for Nursing Schools; Clinical Nurse Survey; Home Care/Hospice Agencies; Home Care Nurses and HHAs; Knowledge Assessment for Nurses; Knowledge Assessment for HHA’s; Chart Audit Tool; Case Analysis Form.
- This survey was designed based on the National Consensus Project for Quality Palliative Care guidelines and used at the City of Hope as a tool for assessing quality care. Users are invited to adapt and use it in their own institutions to assess the quality of care provided and to measure the institution’s performance in comparison with national guidelines.

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