Source: https://b-ok.org/book/593351/3798f1
Timestamp: 2019-04-19 02:38:32+00:00

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Univ. of Pittsburgh, PA. Provides a comprehensive treatment of intervention approaches to dementia and caregiving. Reviews the existing knowledge about dementia caregiving and provides a conceptual framework for organizing caregiver interventions of all types. Includes the design of an intervention study, and more. For psychiatrists and gerontologists.
the impact of disabling late life disease on patients and their families.
including Journal of the American Medical Association, Annals of Behavioral Medicine, the Journals of Gerontology, and Psychology and Aging.
Copyright © 2000 by Springer Publishing Company, Inc.
in family caregiving / Richard Schulz, editor.
caregiving studies published in the last 20 years.
demonstration programs by numerous private foundations.
the future of caregiving and caregiving intervention research.
is widely dispersed, fragmented, and generally not easily accessible.
direction for the future development of this critical area.
of working closely together as a research team and as a writing group.
Cheng, & Neumann, in press).
population of both dementia and nondementia caregivers.
are likely to affect the course and care of people with dementia.
further elaboration in this volume.
responsibilities prematurely (Schulz & Quittner, 1998).
caregiving on the use of these medications (Schulz et al., 1995).
findings based on physical health outcomes are less conclusive.
doctor's appointments. In terms of medication use, Schulz et al.
found increased medication use among caregivers and Burton et al.
caregiving and health care utilization (Schulz et al., 1995).
virus (Glaser & Kiecolt-Glaser, 1997; Kiecolt-Glaser et al., 1996).
al., 1997; Schulz et al., 1997).
Majerovitz, 1995; Moritz et al., 1992; Schulz et al., 1995).
who are exposed to higher levels of stress (Vitaliano, Schulz, KiecoltGlaser, & Grant, 1997).
mechanisms accounting for symptom reporting, health care utilization, and disease processes may differ from each other.
adults, although it is not restricted to caregiving by older adults.
used (Schnlz et al., 1997).
another is a normative and pervasive aspect of human interactions.
fewer hours of actual care.
performance of tasks that may be physically demanding or unpleasant and disruptive of other social and family roles.
feel they have no other alternative (Schulz & Quittner, 1998).
different studies have used widely variant definitions of caregiving.
the extent and impact of family caregiving.
Philadelphia) that have all adopted a common measurement battery.
caregiving tasks (Bourgeois, Schulz, & Burgio, 1996).
solicited except in one site where only women were recruited.
A National Survey on Family Caregiving in the U.S.
hands-on care to round-the clock personal care.
friend who is aged 50 or older to help take care of themselves."
for outside services, or visiting regularly to see how they are doing.
on the amount, frequency, duration, or place of care.
PREVALENCE OF FAMILY CAREGIVING IN THE U.S.
the impact of caregiving on dementia versus nondementia caregivers.
nondementia caregivers in terms of burden or depression (Cattanach & Tebes, 1991; Draper, Poulos, Cole, Poulos, & Ehrlich, 1992).
differences between dementia and nondementia caregivers.
households nationwide that met these criteria in the past 12 months.
over five million households providing care for someone with dementia or related symptoms.
shown to be important predictors of perceived stress and burden.
to be spouses versus adult children (7.2% v. 3.1% spouses; 48.9% v.
Note: Values in parentheses are standard deviations.
10.9% of the nondementia caregivers).
and help with continence or diapers.
average of 7.07 v. 5.73 tasks performed by each group respectively).
by dementia caregivers versus 1.36 tasks performed by nondementia caregivers).
show variability based on caregiver role and other mediating factors.
financial strain as well as interference with other activities.
Note. Values in parentheses are standard deviations.
managing finances; grocery shopping; housework; preparing meals; transportation; arranging services.
family conflict (M = 1.55 v. M = 1.34).
caregiving (22.3% v. 12.6%), although such caregivers were in the minority.
dementia caregivers reported feeling burdened (15.2% v. 10.6%).
and many reported feeling positively about their caregiving responsibilities.
care but also to the size and composition of the caregiving network.
are usually the next source of informal care, also for both groups.
has also been reported (Gill, Hinrichsen, & DiGiuseppe, 1998).
the importance of proximity or coresidence in the provision of care.
culture, and/or ethnicity on the dementia caregiving experience.
non-White caregivers received more instrumental support from others than did White caregivers.
institutionalize a care recipient with a dementing illness (Hinrichsen & Ramirez, 1992).
caregiving network influences the organization and provision of care.
Campbell, 1994; Hatch, 1991; Cox & Monk, 1990).
no threshold at which secondary caregivers are involved, but involvement was more likely when a high frequency of care was needed.
or willingness of family members to provide care to a disabled elder.
to ensure the well-being of both care recipient and caregiver.
(Tennstedt, Crawford, & McKinlay, 1993b; Tennstedt et al., 1996).
primary caregiver's sense of personal competence or caregiving mastery was related to nonuse of services to which they had been referred.
of impact (e.g., personal, social, or health impacts).
more subtle within group differences ignored.
time, and assess both positive as well as negative caregiver ovitcomes.
research advances and challenges involved in designing and evaluating the effectiveness of caregiver interventions.
support services, both types and amount.
informal care typically predominates in these mixed care arrangements (Tennstedt, Sullivan, McKinlay, & D'Agostino, 1990; Tennstedt et al., 1993b, 1996).
this transition as loss of an important role.
factor to the degree of ADL/IADL impairment in establishing eligibility for services.
DC: Supt. of Docs., U.S. Government Printing Office.
modified Andersen Framework. The Gerontologist, 32, 33-43.
for publication to Psychology and Aging.
Beck, A.T., Ward, C.H., Mendelson, M., Mock, J., & Erbaugh, J. (1961).
spouse caregivers' assessment and response to a contextual stressor.
Journal of Gerontology: Psychological Sciences, 53B, P155-P164.
Mental and Physical Health Outcomes. Manuscript in preparation.
process, and outcomes. The International Journal of Aging and Human Development.
by race? The Gerontologist, 35, 744-752.
Burton, L.C., NewsomJ.T., Schulz, R., Hirsch, C.H., & German, P.S. (1997).
Preventative health behaviors among spousal caregivers. Preventative Medicine, 26, 162-169.
among caregivers to heart transplant recipients. Social Science and Medicine, 42, 599-608.
United States. The Gerontologist, 23, 597-604.
to dementia patients: The utilization of community services. The Gerontologist, 27, 209-214.
of Gerontology: Social Sciences, 46, S1-S8.
an informal helper network. Journal of Gerontology, 41, 94—100.
Journal of Public Health, 87, 2002-2007.
Journal of Geriatric Psychiatry, 12, 1168-1173.
Innovations in Practice Service and Delivery Across the Lifespan. New York: Oxford.
Journal of Alzheimer's Disease, May/June, pp. 33-40.
provided to poor and frail older people. The Gerontologist, 37, 169-181.
Diaper, B.M., Poulos, C.J., Cole, A.D., Poulos, R.G., & Ehrlick, F. (1992).
A comparison of caregivers for elderly stroke and dementia victims.
Journal of the American Geriatrics Society, 40, 896-901.
depressive disorders in adult children caring for demented parents.
Psychology and Aging, 6, 467-473.
parents. Journal of Gerontology: Social Sciences, 46, S259-S269.
Fredriksen, K.I. (1996). Gender differences in employment and the informal care of adults. Journal of Women and Aging, 8, 35-53.
United States General Accounting Office, Health, Education, and Human Services Division.
with formal service use by family members of patients with dementia.
The Journal of Applied Gerontology, 17, 38-52.
caregivers and noncaregivers. Psychology and Aging, 10, 540-552.
not to use services. American Journal of Alzheimer's Disease, 11, 29-38.
illness. British Journal of Social and Clinical Psychology, 6, 278-296.
and White women. Research on Aging, 13, 144—170.
caregiving by adult women. Research on Aging, 18, 349-370.
Hinrichsen, G.A., & Ramirez, M. (1992). Black and White dementia caregivers: A comparison of their adaptation, adjustment, and service utilization.
caregivers in two disease groups. Journal of Gerontology: Psychological Sciences, 53B, P73-P85.
Policies for gender justice. Thousand Oaks, CA: Sage.
Horowitz, A. (1985a). Family caregiving to the frail elderly. In M.P. Lawton & G. Maddox (Eds.), Annual review of geriatrics and gerontology (pp.
Irwin, M., Hauger, R., Patterson, T., Semple, S., Ziegler, M., & Grant, I.
functioning in older family caregivers: The role of regular physical activity. Annals of Behavioral Medicine, 19, 91-100.
and determinants, 30th meeting of the International Institute of Sociology, Paris, France.
Lawton, M.P., Rajagopal, D., Brody, E., & Kleban, M.H. (1992). The dynamics of caregiving for a demented elder among Black and White families.
Journal of Gerontology: Social Sciences, 47, S156-S164.
Alzheimer's disease patients, Health Affairs.
Li, L.W., Seltzer, M.M., & Greenberg, J.S. (1997). Social support and depressive symptoms: Differential patterns in wife and daughter caregivers.
Journal of Gerontology: Social Sciences, 52B, S200-S211.
for disabled elderly persons. The policy Implications Inquiry, 27, 61-72.
and predictors. Family Relations, 45, 27-36.
impacts of providing informal care to dependent elders and their consequences for the care recipients. Journal of Aging and Health, 7, 497-528.
No. AG03869. Boston: Boston University.
older persons. Journal of Gerontology: Social Sciences, 49, S14-S24.
functioning. Journal of Gerontology: Social Sciences, 44, S17-S27.
of Medical Psychology, 63, 161-171.
Mui, A. (1995). Perceived health and functional status among spouse caregivers of frail older persons. Journal of Aging and Health, 7, 283-300.
Persons. (1997). Family caregiving in the US: Findings from a national survey.
Final Report. Bethesda, MD: National Alliance for Caregiving.
of age and severity of stress. Psychotherapy and Psychosomatics, 66, 199-207.
Paveza, G.J., Mensah, E., Cohen, D., Williams, S., & Jankowski, L. (1998).
Costs of community-based long-term care services to the cognitively impaired aged. Journal of Mental Health and Aging, 4, 69-82.
networks of older adults. Research on Aging, 19, 333-361.
utilization of home health services. Journal of Aging and Health, 7, 233-253.
Gerontology: Psychological Sciences, 50B, P247-P256.
Redinbaugh, E.M., MacCullum, R.C., & Kiecolt-Glaser, J.K. (1995). Recurrent syndromal depression in caregivers. Psychology in Aging, 10, 358-368.
Alzheimer's disease. The Gerontologist, 38, 224-230.
overview. Seminars in Speech and Language, 15, 185-193.
and physical morbidity effects of dementia caregiving: Prevalence, correlates, and causes. The Gerontologist, 35, 771-791.
overview and future directions. Health Psychology, 17, 107-111.
Shanas, E. (1979). The family as a social support system in old age. Gerontologist, 19, 169-174.
decline among spousal caregivers. Annals of Behavioral Medicine, 19, 101109.
within sibling networks. Research on Aging, 14, 313—330.
elderly: A national profile. The Gerontologist, 27, 616-626.
caregivers of impaired elders. Journal of Aging and Health, 4, 58-76.
receipt of informal care. Journal of (Gerontology: Social Sciences, 53, S1-S10.
pattern of community care: Is coresidence more important than caregiver relationship? Journal of Gerontology: Social Sciences, 48, S74—S83.
long-term care services for informal care. The Milbank Quarterly, 71, 601624.
elders: The role of secondary caregivers. The Gerontologist, 29, 677-683.
people? Journal of Aging and Health, 2, 439-461.
in caregivers of Alzheimer's care recipients: Psychobehavioral predictors.
Psychology and Aging, 11, 155-163.
Vitaliano, P.P., Scanlan, J.M., Krenz, C., Schwartz, R.S., & Marcovina, S.M.
(1996). Psychological distress, caregiving, and metabolic variables. Journal of Gerontology: Psychological Sciences, 5IB, P290-P299.
go from here? Annals of Behavioral Medicine, 19, 117-123.
and relationship aspects of caregiving strain. The Gerontologist, 29, 660666.
attempt to predict the impact of caregiving at the individual level.
for the patient and caregiver.
this question from multiple perspectives.
external (such as praise) or intrapsychic (such as avoiding guilt).
guilt experienced by the caregiver.
by a theory of helping that is based on purely altruistic motivation.
distress among caregivers (Cantor, 1983; Horowitz, 1985).
whether the two motives differentially affect caregiver well-being.
when cognitive function is debilitated.
problem (see Brickman et al., 1982: Thompson & Pitts, 1992).
is lower when the family caregiver is a daughter than in other caregiving relationships (Moen, Robison, & Fields, 1994).
some underlying characteristics about the nature of human beings.
members, evolutionary psychology and sociobiology suggest that personality characteristics or patterns of adaptive behavior such as empathy to the distress of others may be generally adaptive (Wilson, 1998).
or strength of the individual, family, and community (Axelrod, 1984).
explanations remain important in explaining late life caregiving.
medical care, even for treatable conditions, for frail older adults.
death of older adults who are no longer productive.
like caregiving at the individual level.
Another related theoretical framework is found in crisis theory.
new equilibrium as quickly as possible.
only to the patient but to all other members of the family system.
normal family patterns of interaction (Singer, 1983).
families who cannot expand their social networks again after bereavement.

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