Question: do cafe au lait spots always mean neurofibromatosis?
Answer: A: Not necessarily — there's no connection between the number of café-au-lait spots and the severity of NF1. Q: If my child has many café-au-lait spots, does that mean that she'll develop many neurofibromas? A: No, all factors of NF1 are independent: Many spots don't mean many neurofibromas.