Talk:Visual snow syndrome

message: Hello everyone,
I added a link to my website www.visualsnowsyndrome.com on the Visual Snow page, but it was taken down as being an inappropriate external link. I don't believe that it is inappropriate. Fair enough I own the website, but i'm not trying to sell a product or gain fame or whatever. I set it up for the sole purpose of spreading the word about the condition so that patients (and their family/doctors) can understand their own symptoms. I gain nothing from this. I can honestly say it's the most comprehensive website about VS, and it is based heavily on peer-reviewed literature. I think the link to it should be allowed on the wiki page so that patients can have access to detailed information about the condition.
If someone can give me a reasonable explanation as to why it would be inappropriate, I would be willing to hear it.
Many thanks
Davin96 (talk) 08:11, 4 August 2017 (UTC)
replies: text: The addition of an unreliable personal website violates WP:EL (especially WP:ELNO #2, #4 and #11). My apologies for not answering sooner, but the guideline is very clear about this (and I was hoping someone else would chime in). Please do not promote your personal website here - wether it's commercial or non-commercial is irrelevant. If you disagree, feel free to ask for additional advice at Wikipedia:External links/Noticeboard. I'll also post a short notice at Wikipedia talk:WikiProject Medicine to draw more attention to this question. GermanJoe (talk) 00:38, 23 August 2017 (UTC)

text: While I'm not an official participant of the WikiProject, I noticed the note.  I agree that such links should be avoided (GermanJoe already linked to the guideline).  Thanks, —PaleoNeonate – 01:15, 23 August 2017 (UTC)
replies: text: agree w/ above editors--Ozzie10aaaa (talk) 14:51, 23 August 2017 (UTC)
thread_title:  Adding a link to www.visualsnowsyndrome.com 

message: Currently, the text seems to mix "visual snow" (a particular neurological symptom) with "visual snow syndrome" (the disorder described by the Headache Classification Committee of the International Headache Society). The symptom "visual snow" can appear without the patient meeting the diagnostic requirements for the "visual snow syndrome". The symptom can appear alone, but syndrome is usually accompanied by many other comorbidities. 
I think differentiating the symptom and the syndrome would make the article clearer and would stop a common misinterpretation: that the visual snow syndrome consists only of visual snow.
Mroman42 (talk) 14:19, 28 June 2021 (UTC)
thread_title:  Differentiating visual snow and visual snow syndrome 

message: "The dots remain individual and do not clump together or change in size." oh yes they do. for me, they clump and change opacity to create images such as faces. i also see no source? Llucadesigns (talk) 20:03, 23 December 2023 (UTC)
replies: text: Removed the info you think is false (after checking some sources I agree) and added a source to the beginning paragraph. Do you think that represents it better?  Honeyedmilk (talk) 13:37, 2 April 2024 (UTC)
thread_title:  Most likely false info 

message: — Assignment last updated by Eaturvegeez (talk) 19:34, 10 February 2024 (UTC)
thread_title: Wiki Education assignment: Technical and Professional Writing