Talk:Keratoconus

message: *Hi. I've created a page for Corneal dystrophy (human) and included keratoconus, but I'm not sure whether it belongs "officially" to the group of corneal dystrophies. Best regards, --CopperKettle 10:11, 8 July 2009 (UTC)
thread_title: A dystrophy or not?

message: * Coma - Keratoconic (KC) eyes have large amounts of vertical coma, found in the recent news. Something about creating a better-fitting lenses. Best regards. --CopperKettle 12:28, 5 August 2009 (UTC)
replies: text: *Arrived at PubMed:  --CopperKettle 15:54, 12 August 2009 (UTC)
thread_title: Coma and keratoconus

message: Found a mention of such phenomenon: "Sharply focused beam of light near the nasal limbus ,produced by lateral illumination of the cornea in patients with advanced keratoconus" --CopperKettle 16:04, 26 August 2009 (UTC)
thread_title: Rizzuti phenomenon 

message: Who put this in to the article? : "In some cases, crosslinking may also be successfully combined with other treatment methods such as partial PRK"
How do you know ? and how do you know the results ? and out of the blue with out a build up of research ? also I keep getting blocked by various people (but it might be one person using different names) what is their problem ? as its for no reason but because they can't discuss anything with me here !! I think this is getting done higher up by the wiki command structure as I have never heard of these peoples names before !! Why for the cloak and dagger stuff ? why not keep[ it fair and clean ??  —Preceding unsigned comment added by 149.254.49.29 (talk) 14:11, 11 October 2009 (UTC)
replies: text: It was added in early September by an anonymous editor and no-one seemed to have noticed. I have removed the claim from the article. With regard to the blocks you say you have been receiving, there are none currently registered against your IP address above. These may have been against other IP addresses instead. It is is possible that, as an anonymous user, you were experiencing someone else's block due to a revolving IP address. An easy way to prevent this is to register for an account, which is quickly done. If you can provide a link to an IP address that was blocked, we can look into the reason why for you. —BillC talk 21:24, 11 October 2009 (UTC)

text: Can you clarify what you are saying here? Thanks, —BillC talk 13:42, 18 October 2009 (UTC)
thread_title:  Partial PRK 

message: European approval is only for the ultraviolet light machine, it does not address epithelium status which is up to the treating ophthalmologist. —Preceding unsigned comment added by 173.55.11.160 (talk) 4:38, 10 December 2009 (UTC)
replies: text: The reference used for that sentence only mentions the procedure with the epithelium removed. If you have a reliable sources that go into greater detail about the European approval status, feel free to add them to the article, and perhaps that particular sentence needs to be reworded to distinguish the European and US statuses. Thanks. Delicious carbuncle (talk) 15:06, 11 December 2009 (UTC)
thread_title:  Approval status 

message: I've tagged this article as requiring copy-editing. The pre-contents section alone has several clumsy phrasings and strange statements, e.g. "A new procedure is called KXL, which is promising."
Some sections also seem to contradict each other: "A number of patients complain of chronic eye rubbing and also think it as a possible cause to the disease but it is not so" under Pathophysiology seems to contradict the claim under Environmental Causes that "vigorous eye rubbing contributes to the progression of keratoconus". Since I have no medical knowledge, however, I don't feel confident to assess this. Muspilli (talk) 16:05, 8 March 2012 (UTC)
replies: text: Also, I've noticed some poorly-sourced time-dependent details. Biosthmors (talk) 18:08, 8 March 2012 (UTC)
thread_title: Copy-edit required, and potential contradictions

message: As a sufferer the worst contrast for ghost images are traffic lights at night it kind of looks like there are shine rays coming off of them QueenAlexandria (talk) 21:19, 9 July 2012 (UTC)
thread_title: Ghost Images

message: See Dua's layer and  this refs: 
* 
* 
"Corneal hydrops, a buildup of fluid in the cornea that is common in patients with keratoconus (a conical deformity of the cornea) might be caused by a tear in Dua's layer. Dua hypothesizes that such a tear would allow water from inside the eye to pass through and cause fluid buildup.", Wikipedia.
:Added here, cited the Ophthalmology Journal instead. k18s (talk) 10:18, 7 August 2013 (UTC)
thread_title:  Add something about relations with Dua's layer  

message: There isn't a picture of a Keratoconic cornea that has been removed, "fully intact" within 24 hours of the surgery. I have Stage 4 Keratoconus; I will be having PK (Penetrating Keratoplasty) surgery in this coming May (May 2015). I'm going to ask my ophthalmologist, which will be doing the procedure, if he could either  allow me to keep the damaged cornea, or which I think will be more likely, to take pictures of it. I think it's important that a cornea that is was removed  as close to when the actual procedure was done be shown in the article . And another reason, which hasn't been given some attention in the entry, is the nature of how Keratoconus progresses.
I was initially diagnosed with it in 2012, and from that time march 2015, the Keratoconus progressed in an extremely fast period of time. o, I happen to be in the small group of persons with Keratoconus where what would be considered a "normal" progression or activity of the disease is very atypical. I subscribe to the journals Ophthalmology & the American Journal of Ophthalmology, which they 2 of the main  ophthalmology medical journals in the United States.  My subscriptions are of the free access kind, so it means that many of the articles aren't availble full text without a paid or association subscription. I've been trying to look where there are  any studies done  on the smaller percentage of patients like me, but to no look. So, if anyone cares to try, please do. it would be very helpful, to at least make mention of the fact unique nature of its progression and that there are people like me who are out there, though in a small percentage of Keratoconus suffers. So, I'm able to get pictures of my left cornea, I would like to added it to the entry. Actually, both of my eyes are affected, and my left eye was deemed the "good" eye, as along with Keratoconus affecting my right eye, I also have optic neuropathy with the right eye, which makes me technically blind. My left eye is now the bad eye.
Use way as no way; Use limitation as no limitation (talk) 11:37, 27 March 2015 (UTC)
thread_title:  Adding another example picture-Image of a possible fully intact Keratoconic cornea 

message: In several language versions of this article as well as of the Pellucid marginal degeneration article, the following sentence is still included, allthough it was deleted from English Wikipedia in 2005:
:It is sometimes called the "academic's eye disease" because two-thirds of the people afflicted with it have IQs above 130.Patient-Point organization (2010) "Keratokonus"Eye Ultimate (2008) "Information Keratoconus: Cause, Symptoms and Treatment"
''
See Talk:Keratoconus/Archive_1#Academic.27s_Eye_Disease talk archive from 2006.
The sentence was added to english Wikipedia in 2004, but I can not see that the sources ever were provided here, but in several other language versions. Does anyone have access to the sources, or can you at least give more accurate names of the sources? This piece of information is also spread to seveal other sites, for example , but I am not sure it should be considered reliable. It might be a very successful desinformation attempt. I just want to verify that we can delete this claim from other language versions. In at least Swedish the term "academic's eye disease" is a redirect to "Keratoconus". I suppose that the redirected term also should be deleted? I have not seen it in the literature or in any scholarly papers, neither in Swedish nor English.  Mange01 (talk) 09:38, 8 July 2015 (UTC)
replies: text: I have never seen any reference for it, and am tempted to believe that the sentence is flat-out false. —BillC talk 22:09, 30 August 2015 (UTC)
thread_title:  IQ discussion, and "academic's eye disease", still in several other language versions 

message: Wondering what people think about
"Keratoconus is relatively rare and largely unknown in the general population, and the practical application of standard treatments has limits. Examples of the difficulties involved in prescribing corrective lenses, especially glasses lenses, and complications that arise from wearing contact lenses are discussed in Taking the Heat - A Steelworker's Story. In this memoir Richard Sarver details the challenges of functioning as a laborer in a steel mill while contending with keratoconus and high myopia. With other career choices limited because of his low vision, Sarver sought employment at a Roanoke, Virginia steel mill, where he has worked for more than 30 years. The corrective lenses available to him have provided only marginal improvement to his vision.Taking the Heat - A Steelworker's Story, 2012, Flatwoods Press, LLC, pp. 208 - 232. "
-- Doc James (talk · contribs · email) 18:30, 10 November 2015 (UTC)
replies: text: I think it's a single case history which doesn't add to the subject matter. The facts which it does say about it: "relatively rare and largely unknown in the general population", "practical application of standard treatments has limits" are already discussed elsewhere in the text. —BillC talk 23:52, 10 November 2015 (UTC)
replies: text: Yes my thoughts aswell. Doc James (talk · contribs · email) 02:36, 11 November 2015 (UTC)
thread_title: Thoughts

message: * http://avedro.com/en-us/press-releases/avedro-receives-fda-approval/
* http://www.medscape.com/viewarticle/862122
I guess we can now add more details about crosslinking. keep in mind that this approval only applies to the method used by Avedro, their KXL system and riboflavin solutions. corneal collagen cross-linking should be updated too! k18s (talk) 14:06, 29 April 2016 (UTC)
replies: text: Press releases are not great sources. Doc James (talk · contribs · email) 14:07, 29 April 2016 (UTC)
replies: text: This probably has a record on FDA.gov too... but it seems you think FDA's decision isn't important enough... k18s (talk) 14:13, 29 April 2016 (UTC)
replies: text: Cochrane is better IMO. The FDA approval is still in there. Doc James (talk · contribs · email) 15:53, 29 April 2016 (UTC)
thread_title:  Avedro received FDA approval for their crosslinking system 

message: Hello fellow Wikipedians,
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thread_title:  External links modified 

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*Added archive https://web.archive.org/web/20051031055107/http://www.nei.nih.gov:80/health/cornealdisease/index.asp to http://www.nei.nih.gov/health/cornealdisease/index.asp#h
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thread_title:  External links modified 

message: Before making this edit I have checked some other featured medical articles (e.g. Parkinson's disease#Advocacy) and many of them have an Advocacy section. how should we talk about awareness days and supporting organizations? k18s (talk) 22:11, 12 November 2016 (UTC)
replies: text: The sourcing for that was terrible and itself reflected advocacy.  it is maybe ok to have an advocacy section if there are decent sources for it; twitter and the advocacy group's website are unacceptable.  Jytdog (talk) 22:14, 12 November 2016 (UTC)
replies: text: This is NKCF's own website http://worldkcday.com. I could only find one proper third-party source and all other mentions are on social media. is Twitter not acceptable even to show the recognition? how many sources are needed for something like this? k18s (talk) 22:19, 12 November 2016 (UTC)

text: Would it be okay if I find Twitter, Facebook mentions from verified accounts of third-party organizations? k18s (talk) 22:24, 12 November 2016 (UTC)

text: diff  k18s (talk) 22:24, 12 November 2016 (UTC)
replies: text: especially for advocacy topics we need independent sources that are solid.  exactly because of WP:PROMO which is policy; see also the WP:Advocacy essay.  Strong sourcing for this kind of content, please. Jytdog (talk) 23:33, 12 November 2016 (UTC)
thread_title:  Advocacy  

message: Infoboxes are supposed to contain simple details. Therefore removed the name of sign which IMO belongs in the body not the lead. Others thoughts.
*Option 1 "The "cone shaped cornea" that is characteristic of keratoconus"
*Option 2 "Munson's sign showing a "cone shaped cornea" that is characteristic of keratoconus"
Doc James (talk · contribs · email) 20:19, 23 June 2017 (UTC)
thread_title: Infoboxes

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thread_title:  External links modified 

message: Hello - Below are some edits that should be considered to the opening of this page around some statistics, diagnosis, and treatments. 
In the 2nd Paragraph:
- Replace "About seven percent of those affected have a family history of the condition" with "Patients with a parent, sibling, or child who has keratoconus have 15 to 67 times higher risk in developing corneal ectasia compared to patients with no affected relatives(2)(3)."
2-Fecarotta CM, Huang WW. Pediatric genetic disease of the cornea. J Pediatr Genet. 2014;3(4):195–207. doi:10.3233/PGE-14102
3-Wang Y, Rabinowitz YS, Rotter JI, Yang H. Genetic epidemiological study of keratoconus: evidence for major gene determination. Am J Med Genet. 2000;93(5):403–409
- Replace "Diagnosis is by examination with a slit lamp" with "Diagnosis is most often by topography. Topography measures the curvature of the cornea and creates a colored “map” of the cornea. Keratoconus causes very distinctive changes in the appearance of these maps, which allows doctors to make the diagnosis."
In the 3rd Paragraph:
- Replace "worsens" with "progresses". 
- We would also request the addition of corneal cross-linking as it was FDA-approved in April 2016 and is recommended for progressive keratoconus. Below is a potential addition to the end of the paragraph: 
       - In 2016, the FDA approved corneal collagen cross-linking to halt the progression of keratoconus. In some cases, when the cornea becomes dangerously thin or when sufficient vision can no longer be achieved by contact lenses due to steepening of the cornea, scarring or lens intolerance, corneal cross-linking is not an option and a corneal transplant may be required.
In the 4th Paragraph:
- Following "Keratoconus affects about 1 in 2,000 people." add "However, some estimates suggest that the incidence may be as high as 1 in 400 individuals." 
Thank you! LivingWithKC (talk) 17:32, 8 April 2021 (UTC)
thread_title:  Copy-Edit Suggestions 

message: Hello - Below are some edits that should be considered to the Signs and Symptoms, Genetics, and Diagnosis sections of this page. 
Signs and symptoms
''
Update Opening Sentence: People with early keratoconus often notice a minor blurring or distortion of their vision, as well as an increased sensitivity to light, and visit their clinician seeking corrective lenses for reading or driving.
Genetics 
''
Add: Patients with a parent, sibling, or child who has keratoconus have 15 to 67 times higher risk in developing corneal ectasia compared to patients with no affected relatives.
Diagnosis
''
Add: Add a new paragraph between "A handheld keratoscope.." and "A more definitive diagnosis..."
Change: centreline to centerline 
Thank you! LivingWithKC (talk) 21:42, 23 June 2021 (UTC)
thread_title:  Copy-Edit Suggestions 

message: Thank you! LivingWithKC (talk) 17:57, 28 July 2021 (UTC)
replies: text: Sorry, we can't add that, because it's copied from a copyright web page. Also, please see WP:MEDRS.— Diannaa (talk) 19:00, 16 August 2021 (UTC)
thread_title:  Suggestions to Treatment Section