Talk:Sophia Mirza

message: I have created this page as a simple entry for Mirza, briefly covering the facts of her death and hinting at the implications, which are more fully covered in the CFS page. This is my first article.
* I could not find information about Mirza's birth date, I calculated 1974 from the fact that she was 32 at her death in 2006.
* I have not covered the facts or issues in depth as I have nothing original to contribute and the sources do that much better than I can.
* I would create a link to the relevant section of the CFS article from the Implications section, but there isn't really a good candidate section for that.
:Thanks for creating this page.  How about a link back to the "Deaths" section in the CFS article (it might not have existed when you created this page).
:One thing I would say though, is that I don't think this is the first recorded death from CFS.  IIRC this was a claim made by the magazine[?] that reported it which later carried a correction. 
MikeEsp 00:29, 27 November 2006 (UTC)
replies: text: Indeed, there are many more deaths from CFS on record, official or otherwise. This is just the first official death in the UK. It is estimated that in some 5% of the cases CFS, or rather ME, results in death. Guido den Broeder 12:46, 15 March 2007 (UTC)
thread_title:  Writing the initial page 

message: The Carruthers "Canadian" definition (CD) has very little international support and was published in a poorly esteemed and now defunct journal (J CFS). Although a huge improvement on the CDC definition it has not replaced it, rather the CDC have ignored the Canadian definition and continued to run with an ever increasingly broad and psychosocial definition, helmed by Dr William Reeves, who has himself said that the historical outbreaks of ME are nothing to do with CFS (See Hyde). The unwieldy compound term used by the CD implies that the terms are equivalent and interchangeable and it's that that is "absurd", not the choice of using ME when talking about ME. If not for the unreal elevation of vague and subjective "fatigue" to a primary feature, the CD would actually be entirely an ME definition, pure and simple. They kept CFS simply to ass-kiss the international fatigue obsessives and (allegedly) US insurance claims. The only other main authority that implies equivalency is the WHO but everyone ignores them (especially the IoP in the UK!) as they're generally only involved in statistics.
There are at least six CFS definitions and the controversial, legally challenged UK NICE guidelines have introduced yet another, almost as bad as the Oxford. So the particular argument that one unpopular definition among many more popular including "CFS" in the name means the terms are equivalent falls flat. The hard fact is, as WP's own CFS article and backpage arguments surely display, CFS can be anything to anyone, although all the most respected sources insist that physical signs and pathological findings are diagnostic exlusions.
And what do the people who invented CFS have to say about it -- the CDC, arguably one of the world's most respected medical authorities?
"Various terms are incorrectly used interchangeably with CFS. CFS has an internationally accepted case definition that is used in research and clinical settings. The name chronic fatigue and immune dysfunction syndrome (CFIDS) was introduced soon after CFS was defined; there is no case definition for CFIDS, and the name implies an understanding about the pathophysiology of CFS that is not fully supported in the medical literature. The name myalgic encephalomyelitis (ME) was coined in the 1950s to clarify well-documented outbreaks of disease; however, ME is accompanied by neurologic and muscular signs and has a case definition distinct from that of CFS."
From the horse's mouth, so to speak.
I recommend reading Dr Hyde's PDF booklet on the differences between ME and CFS, available on his Nightingale site and various other sites.
Dr Hyde was one of the three respected ME specialists who walked out of the CDC silly name committee when he saw the flagrant farce they were making of the Incline Village outbreak in the 1980s.
62.69.36.100 (talk) 08:37, 21 September 2008 (UTC)
replies: text: This page is to improve the Sophia Mirza mainpage, not to discuss the differences between ME and CFS, if there are any.  That particular bit of text from the CDC has been discussed to death at the talk:chronic fatigue syndrome page, and ultimately it was decided to keep the terms together as a synonym due to undue weight and sourcing concerns.  WLU (t) (c) (rules - simple rules) 11:59, 21 September 2008 (UTC)
thread_title:  ME and CFS are contrasting concepts