Talk:Stevens–Johnson syndrome

message: Under external links there is one with the text "Book On Stevens Johnson Syndrome - Best On The Market" that points to http://waboyer.com/ That sight has a link on the side about Stevens-Johnson but is a collection of someone's writings about all kinds of subjects.The S-J book is not a book, it is an advertisement for a book. I'm not up on wikipedia policy but I'm pretty sure this is self-promotion and close to being spam.75.163.96.162 (talk) 11:11, 7 July 2009 (UTC)
thread_title: A misplaced or spam link

message: Why is it called Stevens-Johnson syndrome?  Were those two doctors who discovered it?  Or were they patients who had the symptoms? — Preceding unsigned comment added by 75.74.113.1 (talk) 23:00, 25 November 2006 (UTC)
thread_title: Eponyms

message: Where is the source or note suggesting SJS is associated with gigseng? —The preceding unsigned comment was added by 206.170.104.39 (talk) 20:31, 16 December 2006 (UTC)
thread_title:  Ginseng 

message: The section "People with Stevens-Johnson Syndrome" should probably not include any names without a reference - though I was able to find (and add) the reference for Tessa Keller, I couldn't find anything for Sebastian Tamayo, Donald Trump's assistant. Should this name be removed pending a reference? SJFriedl (talk) 16:01, 19 January 2008 (UTC)
thread_title:  "People with S-J" 

message: There is  a case in south central Indiana where an 85 year old male who had been taking medication for gout contracted Stevens-Johnson Syndrome.  Recovery is slow and on going.  Looking at a lengthy hospital stay.  THe medication was allpurniol.  —Preceding unsigned comment added by 76.251.80.204 (talk) 02:53, 28 August 2008 (UTC)
thread_title:  gout medication links to stevens-johnson syndrome 

message: may also cause SJ it is a Non-nucleoside reverse transciptase inhibitor. Should be inserted and referenced. 
AriaNo11 (talk) 03:43, 17 October 2008 (UTC)
thread_title:  nevirapine  

message: I'm 12 and I've had Stevens Johnsons Syndrome, I think a picture would improve the quality of this page and I don't think there's any point in the 'who's had SJS'SophieLaura96 (talk) 19:28, 12 March 2009 (UTC)
thread_title: picture request

message: I have a friend suffering from this disease right now. When I was trying to find out what this is, I noticed in the "Treatment" section "citation requested" that the text is exactly the same as at this URL under "treatment": http://www.sjsinfo.net/  —Preceding unsigned comment added by 86.60.209.83 (talk) 18:10, 9 June 2009 (UTC)
thread_title: requested citations

message: Wouldn't a symptoms/presentation section be helpful?Peetiemd (talk) 02:32, 19 June 2009 (UTC)
thread_title: Symptoms?

message: Umm why would you say three to six ratio when the obvious and correct way of saying it would be one to three ratio?  —Preceding unsigned comment added by 208.110.226.193 (talk) 19:39, 16 November 2010 (UTC)
replies: text: Uhm, 3 to 6 ratio is 1 to 2 ratio, not 1 to 3 like you wrote. 84.197.115.157 (talk) 08:06, 20 June 2011 (UTC)
thread_title:  three to six ratio 

message: I am the mother of Calvin Lock, my son suffered from TENS due to an allergic reaction to Ibuprofen. I witnessed the illness unfold from the start and to this day, still cannot believe the failings of the health professionals responsible for my son's care and diagnosis. 
I know there is a massive difference between Stevens-Johnson Syndrome and Toxic Epidemal Necrolysis, especially incidence rates. The facts about 'rarity' are mis-leading. 
Stevens-Johnson Syndrome is in fact NOT rare. It affects 1 in every 5000-10000 people in the U.K every year. 
Toxic Epidemal Necrolysis IS rare. It affects 1 in every 1-3 million people in the U.K a year, as far  as reported cases go. I would guess these are survivors and sadly, i believe that death related incidences go UN-REPORTED. 
There needs to be more accurate awareness of this illness across the medical profession. I personally feel that due to the high level of drug related reactions, the illness is somewhat being 'covered up'. Many sufferers are unaware of the U.K's YELLOW CARD SCHEME on the MHRA website. Here you can report your allergic reaction to the drug you were taking. Patients are never told about this. I WASN'T informed about this. I asked the hospital consultants if THEY had reported my son's adverse reaction, they HAD NOT!!! They're explanation- ' we do not report reactions to existing drugs, we only report reactions to NEW drugs'. I was fortunate enough to be informed by another victim about the reporting scheme, sadly, many are unaware. 
To date, there have been 8771 'reported' reactions to the drug IBUPROFEN, 4899 were ADVERSE REACTIONS. 
I run a support group for S.J.S & T.E.N.S  victims. I have 2 people who suffered adverse reaction to Nurofen and their cases went un-reported. They are now in the process of doing so. How many more are out there???? 
I have read through many P.I.Ls from different brands of Ibuprofen and only a few clearly state S.J.S/T.E.N.S can occur as a very rare side effect. Many well known brands are aware their product can cause this adverse reaction, yet fail to disclose this information. I find it extremely worrying that on nearly every brand of a childs ibuprofen, there is no instruction that the product SHOULD NOT BE GIVEN TO A CHILD WITH CHICKEN POX. 
Getting back to the awareness side of things, there is no patient information leaflet available on this illness. The public refer to the internet for advice and info and sadly read about the dramatic cases, view horrific images of the worst cases and are left in a state of panic and confusion. 
Victims react in many different ways, there are very few reports of the thousands of cases of EARLY DIAGNOSIS and recovery. 
For any sufferer, there is no AFTER CARE advice sheet/leaflet, no links to support groups or charities and no information on possible long term after effects. 
Why is it kept so 'hidden'??? If you type the conditions into the N.H.S CHOICES website, there are NO results!! 
Its about time the medical profession got better educated so in turn, the general public had access to valid information. Awareness is more likely encourage the public to be a bit more vigilent when it comes to taking medicines, maybe even encourage them to read P.I.L.s ( if more simplified). 
Until then, horror stories are more likely to discourage people into using medicines and also, create bad press for victims of this illness. 
Robyne01 (talk) 09:44, 11 January 2013 (UTC)
thread_title:  Stevens-Johnson Syndrome UK 

message: The references have been uniformly formatted.
===Removed references===
Reference removed from article, failed verification.
References at end of ref section not footnoted removed.
Stevan Johnson syndrome treatment s by medibird.com
35 J Rheumatol. 2003 Oct;30(10):2234-40. The risk of Stevens-Johnson syndrome and toxic epidermal necrolysis associated with nonsteroidal antiinflammatory drugs: a multinational perspective. Mockenhaupt M, Kelly JP, Kaufman D, Stern RS; SCAR Study Group. http://www.ncbi.nlm.nih.gov/pubmed?term=14528522/ pmid= 14528522
===Infections subsection===
The entire Infections subsection was a cut and paste. I did what I could to paraphrase and attribute it. The section needs a rework with multiple references.
===Suggested reference===
The article needs some work, cohesion, flow, structure, references.
- - MrBill3 (talk) 12:21, 25 February 2014 (UTC)
thread_title:  Refs formatted, section paraphrased, work suggested 

message: The article needs some work, cohesion, flow, structure, references.
- - MrBill3 (talk) 12:21, 25 February 2014 (UTC)
thread_title: Suggested reference

message: someone keeps adding a 17 year old UK girl. She is not notable in any way at all. Can you please stop adding her, just because she had it doesnt make her notable!!86.162.27.214 (talk) 10:47, 2 July 2014 (UTC)
thread_title:  notable people 

message: I think the difference between EM and SJS/TEN overlap (see e.g. Classification) needs some clarification
193.202.91.11 (talk) 08:02, 12 May 2017 (UTC)
replies: text: EM no longer considered as part of the continuum per  Doc James (talk · contribs · email) 17:11, 12 May 2017 (UTC)
thread_title:  SJS, TEN, EM 

message: This content added to the first paragraph
"SCARS includes five syndromes: Drug reaction with eosinophilia and systemic symptoms (DRESS syndrome), Acute generalized exanthematous pustulosis (AGEP), SJS; Toxic epidermal necrolysis (TEN), and Stevens-Johnson/toxic epidermal necrolysis overlap syndrome (SJS/TEN). Each of the five disorders is commonly initiated by medications but typically only in individuals who are genetically or otherwise predisposed to do so. The pathophysiology, i.e. mechanism(s), for these predispositions is incompletely understood. Nonetheless, new strategies are in use or development to identify those individuals who are predisposed to experience the SCARs-inducing effects of specific drugs and thereby avoid treatment with them."
Belongs in the article on SCARS 
Disorders are NOT combated but treated. 
The lead typically follows the order or the body which it did before and which I have restored.
Have moved a brief overview of SCARS to paragraph 3. Best Doc James (talk · contribs · email) 16:56, 14 March 2018 (UTC)
thread_title: SJS article NOT SCARS article

message: Have restored the first sentence to: 
"Stevens–Johnson syndrome (SJS) is a type of severe skin reaction."
This is easier to understand than
"Stevens–Johnson syndrome (SJS) is one type of a set of skin reactions termed severe cutaneous adverse reactions (i.e. SCARs)"
Also the first is supported by the reference provided.
Doc James (talk · contribs · email) 17:14, 15 March 2018 (UTC)
thread_title: First sentence

message: I check pages listed in :Category:Pages with incorrect ref formatting to try to fix reference errors. One of the things I do is look for content for orphaned references in wikilinked articles. I have found content for some of :Stevens–Johnson syndrome's orphans, the problem is that I found more than one version. I can't determine which (if any) is correct for this article, so I am asking for a sentient editor to look it over and copy the correct ref content into this article.
Reference named "pmid27154258":
From Drug reaction with eosinophilia and systemic symptoms: 
From Severe cutaneous adverse reactions: 
I apologize if any of the above are effectively identical; I am just a simple computer program, so I can't determine whether minor differences are significant or not. AnomieBOT⚡ 15:47, 24 March 2018 (UTC)
thread_title:  Orphaned references in [[:Stevens–Johnson syndrome]] 

message: Sequelae in former SJS/TENS survivors  — Preceding unsigned comment added by PhiloMarx (talk • contribs) 04:35, 27 December 2020 (UTC)
thread_title: Suggested additional content

message: The redirect Stevens-Johnson-Fuchs-Syndrome has been listed at redirects for discussion to determine whether its use and function meets the redirect guidelines. Readers of this page are welcome to comment on this redirect at  until a consensus is reached.  The Blade of the Northern Lights (話して下さい) 23:23, 20 January 2024 (UTC)
thread_title:  "[[:Stevens-Johnson-Fuchs-Syndrome]]" listed at [[Wikipedia:Redirects for discussion|Redirects for discussion]]