Talk:Cyclic vomiting syndrome

message: My sister has been dealing with CVS for approximately 7 1/2 years now. One thing I would like to see improved in this article is explaining how difficult CVS is to diagnos. My sister has undergone tests for migraines, hormonal imbalances, emotional responses, etc. and is currently hospitalized and is having even more tests run tomorrow (specifically on her gall bladder, and a spinal tap was potentially mentioned). I could edit it myself of course but I don't have significant sources to do so, and I know from my own experience that Wikipedians tend to remove uncited material (which I understand is in accordance with Wikipedia's policies).
She has had multiple doctors over the years. Some have been quite aware of CVS, some have blatantly told my mother that she was making it up. So, with no known cause, and numerous alternate possibilities, the only way to diagnos CVS is to take the Cat in the Hat approach and determine everything it isn't.
One other "stress-factor" that affects not just the sufferer, but also their family is just getting people in general to accept and acknowledge what it is. As far as illnesses go CVS is not among the most widely known about. My sister having attended multiple schools (for various reasons) has been massively impacting. My mother having to try to explain CVS to the administration, the nurse, not to mention her own employers...having to take time off of work to take care of my sister...it is very difficult (based on my own experience) to get this openly accepted. That of course is highly opinionated and thereby inherently more difficult to verify, cite, and/or keep impartial.
However, I would like to thank those who have contributed to this article. There's a lot here that I did not previously know. I would like to see it expanded upon. Knowledge is power, and hopefully one day this will be more widely known about...maybe even leading to a cure! -24.155.116.126 (talk) 06:46, 19 June 2009 (UTC)
thread_title: Difficulty of diagnosis (and acknowledgement)

message: The following statement "...there are some professionals who are able to detect and cure CVS." appears to be unvarifiable through either of the external links provided. Both sites suggest that diagnosis generally is done by elimination of other causes, and that it is not "curable" although some cases may repond to treatment. This runs counter to the statement, which seems to grant unexplained diagnostic and curative powers to "some professionals" without explaination.
209.74.195.102 19:23, 30 January 2006 (UTC)
thread_title:  Sources Needed 

message: I have cleaned up this article, spelling, grammar, and added major content. It was a rather fine article before. I just made it better. I added a reference and cleaned up the formatting if anyone has any qualms or questions with the changes I made please contact me. Ajindustries.
Ajindustries 01:46, 30 December 2006 (UTC)
thread_title:  Full Clean up and major content added! 

message: Should probably be added to the article. - ʄɭoʏɗiaɲ τ ¢ 02:57, 6 October 2009 (UTC)
thread_title:  Psychogenic Vomiting 

message: We believe one of our 4 year old twins has CVS, though have not had this diagnosed as of yet. We were under the care of a neurologist and have various tests done, MRI, EEG etc to rule out seizures and what not. We took her to our pediatrician early on when they started but they would only suggest it was a bug of some type making her ill. Our next step is with a pediatric GI later this month who is known to treat CVS.We have been dealing with this since she was about 1 year old but only started to really track this over a year and a half ago. We believed at first that she was having some type of migraine which I still think is the case but when we started looking at CVS, mentioned as a possibility by the neurologist, and logging these "episodes" we noticed a time pattern. They were happening about every 8 weeks almost to the day. We started to plan around them as we knew it would happen within a day or so of the schedule. The episodes lasts an average of 10 hours with 3-5 vomiting episodes per hour. Oddly, her twin sister had the same episodes in the past but hasn't had them in a noticable pattern and it has now been 1 year since she had an episode. My daughter is having an episode today, about 3 days ahead of expected. Every episodes begins the same; she is having a normal day when it begins she covers her eyes, screams she is going "round and round" will fall on the floor and begin vomiting. She will sleep in between the vomiting. Right now we are only giving her a suppository to help the nausea/vomiting. She won't eat or drink anything but I do manage do drop water with a straw in her mouth after she vomits to help clear the acid taste and keep her somewhat hydrated.  
She started a steriod yesterday for a cough and I'm curious if that may have triggered it early? I haven't found any support groups in Tampa yet, if anyone knows of any please comment.Javacoffbean (talk) 14:33, 8 October 2009 (UTC)
replies: text: You may wish to check out the mayo clinic in Jacksonville, they have a good record for GI related illness. - ʄɭoʏɗiaɲ τ ¢ 16:05, 8 October 2009 (UTC)
thread_title:  CVS 

message: I just removed the following paragraphs:
::CVS "may" most often to some extent sometimes be related to migraines to some degree, but also even to mitocondric dysfuntion . CVS sufferers have a much higher number of first degree relatives who have migraines than is the case in the general population, but as CVS also can occur after bacterial infections or blood infections that envolves mitocondric changes trough the Rna ,this is not allways the case. Some CVS sufferers have symptoms similar to abdominal migraine but even pain that are explained to originate from the autonomic nervesystem and is sometimes expressed in or around the spine stomach liver kidneys feet and hands or even the whole body or as a burning sensation allover the body, but in most other cases the relationship is far less strong and they can't relate to migranous symptoms. Some sufferers obtain some relief from anti-migraine treatments, but they are to often not universally effective.
::Prescribed life conditions are to keep the patient from stressfull situations in their life aswell as physical and psycological and to get alot of rest in a dark and soundless enviroment as far away from disturbance as possible.
The grammar and spelling here are very bad; so bad that it makes me wonder if the underlying information is correct.  For example, I'm guessing by "mitocondric dysfuntion" the person means some type of mitochondrial disorder, but I'm not sure specifically what is implied. Similarly, the first sentence has about 4 qualifiers too many (may most sometimes to some degree)--one will suffice.  The most recently added part ("Prescribed life conditions...") directly contradicts what is said higher up in this section--that treatments done on an individual trial and error problem.  Furthermore, all of this is unsourced.  I know that's true for much of the rest of the article, but it just adds to my inability to interpret what this part should say.  If someone with sources wants to take a stab at fixing this part, feel free to re-add, but please do fix first.  Qwyrxian (talk) 14:51, 24 July 2010 (UTC)
thread_title:  Removal of paragraphs from Treatment 

message: Okay, I decided to hit the rest of the article, too.  Basically, it felt like there were two articles there--one following the standard medical style used on WP for diseases, and a second that felt like it was written to "help" sufferers, like you'd read in an "All about CVS" tract your doctor or a support group gave you.  I pulled out a lot of that "second article."  While some could certainly argue that information might be "useful," it certainly is not appropriate in tone or content for Wikipedia.  For example, it is acceptable to mention that children may miss around 24 days of school per year (although that should be sources).  It's not appropriate to add that, as a result, these children often have to go to private tutors to catch-up.  That's a lifestyle discussion, not a discussion of the disease itself, and one that is essentially unsourceable.
I certainly invite discussion here on the talk page of my edits; it's possible that some of what I removed could be re-added with proper sourcing and adherence to the WP:MOS.  Qwyrxian (talk) 15:04, 24 July 2010 (UTC)
replies: text: Mike, I really need you to discuss your additions here.  When editors disagree about what to include in an article, they're required to hash it out on the talk page.  I sincerely believe that your additions need to stay out, because they're not cited, they're not encyclopedic, and sometimes they either contradict or duplicate the cited info on the page.  Qwyrxian (talk) 18:11, 24 July 2010 (UTC)
replies: text: I'm trying to get you to see that what you're adding doesn't even make sense. "Mitochondrial dysfunction" can't "circulate"--it's not a "thing" that moves around the body.  Similarly, there can't be pain primarily in the left leg--diseases don't ever preferentially attack the same side of the body in all people (except for certain brain disorders).  If you won't discuss this on talk or in edit summaries, I have no choice but to keep removing or rewriting your contributions.  Further unexplained contributions will be considered disruptive.  Qwyrxian (talk) 02:06, 26 July 2010 (UTC)
thread_title:  Further Cleanup 

message: Went through & cleaned up some linguistic/grammar problems, punctuation errors & all-around messiness. It was needed: Some of the language read like it was taken directly from journals without context. It was all pretty much nit-picky stuff, I didn't add, remove or drastically change anything, but if anyone disagrees with what I've done, feel free to revert & shout me down.Ctnelsen (talk)  —Preceding undated comment added 18:55, 12 April 2013 (UTC)
thread_title:  Language Cleanup 

message: This article can be updated with information from de:Syndrom des zyklischen Erbrechens using Google translate. DiptanshuTalk 13:19, 25 November 2013 (UTC)
thread_title:  Translation 

message: Does anyone know what the "two studies" are that supposedly found a prevalence around 5% in school age children? I left the claim in for now with a cn tag, but I think the claim needs to be either supported or deleted very soon. I don't find it credible: if the condition were present in 1 in every 50 school age children, those of us with school age children would all know someone with it! Moreover, it's wildly different from the reputable figure I did find. So I think it's just wrong, and may come back and delete it if it hasn't been supported in a week or two. Educres (talk) 20:10, 26 August 2014 (UTC)
thread_title:  Prevalence 

message: I have been struggling with cvs for 11 years (I am 18) and I can tell you that this illness can cause you to lose your whole life. I can not make a plan without getting sick the day it’s happening because I am EXCITED to go. I’ve missed my graduation , birthdays , family trips , etc. when I'm sad , it’s constant vomiting for hours until I pass out. You lose everyone in your life because no one understands why you can’t just stop throwing up and it makes you alone. I’ve lost every relationship ive had because this is so overwhelming to watch me almost die then get better just to almost die again. There’s no mention of how so incredibly alone this makes you feel. 2601:644:4300:18B0:0:0:0:C955 (talk) 15:51, 20 December 2021 (UTC)
thread_title:  How hard cvs is and how it affects you and your family