Talk:Interstitial cystitis

message: You reverted the edits I had done on Interstitial Cystitis stating that I wasn't following the Mos. Could you please give me more feedback than that?? What caught your eye that I was doing wrong. I'm recovering from surgery and had some hours to spare.. and would hate to lose these updates.. especially when this page had been clearly changed by industry.. promoting neuromodulation, etc. etc. Aruaidh (talk) 02:57, 25 September 2010 (UTC)
replies: text: Look at how to format citations, and omit sentences such as "Substantiated claim". RxWatch (talk) 04:55, 25 September 2010 (UTC)
replies: text: My bad. I was using a wikipedia guide that used "substantiated claim" as part of the reference text. I must have misunderstood their format.  —Preceding unsigned comment added by Aruaidh (talk • contribs) 18:15, 25 September 2010 (UTC)
thread_title:  Recent changes 

message: This article should be referenced to high quality sources such as review articles rather than to primary research papers and the popular press. Doc James (talk · contribs · email) (if I write on your page reply on mine) 12:08, 5 October 2012 (UTC)
replies: text: Do you have any suggested references to add or to use in place of the research papers currently used as references in the body of this article? TylerDurden8823 (talk) 23:41, 5 October 2012 (UTC)
replies: text: I can help you identify sources if you need help finding them, please message me at my talk page. Forgive me for being critical on the article, but right now I see the sentence "A Harvard University study concluded, 'the impact of interstitial cystitis on quality of life is severe and debilitating' " in the lead. I don't know of a reason to name drop "Harvard" like this (see WP:MEDREV). Tha paper is from 2000 and is a primary research paper. Per WP:MEDDATE, we try to use recent review articles if possible. I see it has been cited by three review articles. The most recent is  "Clinical guidelines for interstitial cystitis and hypersensitive bladder syndrome". That would be a good source to rewrite content with. And then we have "A Harvard Medical School guide...", which sounds like further name dropping and it is cited to a teriary source, which is not ideal in this case. A clinical practice guideline is one type of secondary WP:MEDRS and review articles are another. These should be cited for most of the content in a medical article (when they can be located). I came here because I noticed this article was put up for good article review. In my opinion it lacks basic verifiability because it is tagged as having potentially self published material, and in general strays from the guideline of WP:MEDRS, by citing questionable sources such as old primary research. For example, the statement "Neuromodulation can be successful in treating IC/BPS symptoms, including pain" is cited to a 1994 paper. That's not how we write articles, unfortunately. Biosthmors (talk) 20:29, 16 October 2012 (UTC)
thread_title: A number of issues 

message: The DMSO page mentions use for treatment - yet this page lacks any mention.
 Shirley SW, Stewart BH, Mirelman S.; Stewart; Mirelman (March 1978). "Dimethyl Sulfoxide in Treatment of Inflammatory Genitourinary Disorders". Urology. 11 (3): 215–220. . .  — Preceding unsigned comment added by 108.243.106.82 (talk) 16:33, 6 March 2017 (UTC)
thread_title:  DMSO 

message: I put quantify after "IC/BPS can result" in the lead because it is vague. Is it 1/1000 or 4/10? Biosthmors (talk) 16:04, 13 December 2012 (UTC)
replies: text: Good question. I'm really not sure to be honest but I can't seem to get a hold of any studies right now that will satisfactorily answer this question. We'll have to wait in the meanwhile until a good review source on quality of life in interstitial cystitis emerges.TylerDurden8823 (talk) 06:39, 5 February 2013 (UTC)
thread_title:  Quantify tags 

message: My edit on Kegel exercises was reversed, but the text still has essentially the same meaning, except it's unclear, hinting that kegels can help IC. I'm not aware of papers that claim they are helpful. Got any? Ratel (talk) 07:19, 14 July 2015 (UTC)
thread_title:  Kegels 

message: , you removed reference to links to fibromyalgia and IBS. But "For example, epidemiological studies have revealed that IC/BPS is commonly associated with other chronic pain conditions, including fibromyalgia, irritable bowel syndrome and chronic fatigue syndrome." This from a review study, and Pubmed full of other evidence to support. Please re-insert. Ratel (talk) 21:06, 6 October 2016 (UTC)
replies: text: We still say "Many of those affected also have irritable bowel syndrome and fibromyalgia."? Doc James (talk · contribs · email) 21:28, 6 October 2016 (UTC)
replies: text: And CFS? Ratel (talk) 21:39, 6 October 2016 (UTC)
replies: text: Do we need to list them all in the lead? There are lots of associations. Doc James (talk · contribs · email) 00:05, 7 October 2016 (UTC)
thread_title:  Associated with other disorders 

message: I would like to see some coverage of Cystistat. When I first looked at the literature there seemed like a lot of good studies of it - for example Long-term results of intravesical hyaluronan therapy in bladder pain syndrome/interstitial cystitis. (2011) found half in remission after five years which is discussed in Review of intravesical therapies for bladder pain syndrome/interstitial cystitis (2015) but without much in the way of interesting commentary or critique. Apparently Cystistat is approved in many countries (Canada, EU per this) but not the U.S. II | (t - c) 21:49, 12 February 2017 (UTC)
replies: text: Also on the topic of instillation, sort of, is this study on the effect on pH on pain: no effect. II | (t - c) 21:57, 12 February 2017 (UTC)
thread_title:  Covering hyaluronic acid (Cystistat) 

message: Source of more information:
*https://www.cdc.gov/ic/index.html
:Barbara (WVS) ✐  ✉  and Merry Christmas 23:22, 19 December 2017 (UTC)
thread_title: Reference

message: Singapore Med J. 2015 Dec; 56(12): 660–665. doi: 10.11622/smedj.2015185 PMCID: PMC4678404 PMID: 26702160 The clinical presentation and diagnosis of ketamine-associated urinary tract dysfunction in Singapore
Jacklyn Yek, MBBS, MRCS,1 Palaniappan Sundaram, MBBS, MRCS,1 Hakan Aydin, MB, Am Bd Pathology,2 Tricia Kuo, MBBS, MRCS,1 and Lay Guat Ng, MBBS, FRCS1 1. Winstock AR, Mitcheson L, Gillatt DA, Cottrell AM. The prevalence and natural history of urinary symptoms among recreational ketamine users. BJU Int. 2012;110:1762–6. 
Chu PS, Ma WK, Wong SC, et al. The destruction of the lower urinary tract by ketamine abuse: a new syndrome? BJU Int. 2008;102:1616–22. 
Middela S, Pearce I. Ketamine-induced vesicopathy: a literature review. Int J Clin Pract. 2011;65:27–30.
Tsai TH, Cha TL, Lin CM, et al. Ketamine-associated bladder dysfunction. Int J Urol. 2009;16:826–9.
Hanno PM, Burks DA, Clemens JQ, et al. Diagnosis and treatment of interstitial cystitis/bladder pain syndrome, amended 2014. American Urological Association  Available at: https://www.auanet.org/education/guidelines/ic-bladder-pain-syndrome.cfm .
Lee CL, Jiang YH, Kuo HC. Increased apoptosis and suburothelial inflammation in patients with ketamine-related cystitis: a comparison with non-ulcerative interstitial cystitis and controls. BJU Int. 2013;112:1156–62. 
95.146.100.219 (talk) 16:45, 10 August 2019 (UTC)
thread_title:  Could Ketamine be a cause? 

message: IC is not exclusive to females. I am male and have been dealing with it for 5 years. About 2% of sufferers are male. JW0419 (talk) 17:09, 27 March 2024 (UTC)
thread_title:  Correction