Talk:Morgellons Research Foundation

message: Hi I don't think this was the editors intention, but to me the first half or 2/3 of this is a rave about the science and wonderful mission of the MRF.  Then it mentions the internal schisms.  That's not the editor's fault though, as his concern was to quickly fork it.  But I do think at least one cite and sentence saying the different view people who are unbelievers in morguellons have about the MRF and their 'mission,' should be included.  And the quote about their mission here is a bit long.
I'm hungover or I'd fix it myself lol, maybe later.:)Merkinsmum 12:32, 12 August 2007 (UTC)
thread_title: reads as a boost to MRF

message: This looks biased toward the research foundation. Looks like it's pursuing people to help the foundation. contribsSTYROFOAM☭1994TALK 22:11, 21 February 2008 (UTC)
replies: text: While I agree, that doesn't necessarily make it a POV problem (a POV issue would be editors selectively citing only favorable sources); the problem is that some reliable sources need to exist that criticize the MRF before WP can include criticisms of the MRF. Editors' opinions can't be cited. If you can find some reliable sources, then they might be included to help rectify the apparent bias. Realistically, I think the POV tag is not the best choice, but what it needs instead is a "more reliable sources needed" tag. Dyanega (talk) 00:59, 22 February 2008 (UTC)
replies: text:  The fundamental problem is that MRF has no scientific credibility and is mentioned only as an organisation advocating diagnosis of its supposed disease - there are no proper sources discussing it dispassionately. Guy (Help!) 09:08, 22 February 2008 (UTC)
thread_title:  POV 

message: I think that the controversial nature of this subject is causing us to lose sight of the purpose of this article. This entry should discuss the MRF, its history and mission. While it would be appropriate to discuss controversies within the organization, or misdeeds on the MRF's part (with proper citation), flagging and flogging this articles as has been done here seems to be based on disagreements about the existence of the phenomenon or its causes. These issues should be dealt with under the article relating to Morgellons itself.
In this context, this article needs only minor editing. I would disagree that the information about the rift between BOD members should be removed, but I do think that going into the financial specifics here is unwarranted, and a link to a source would suffice.  I will edit later, if someone doesn't beat me to it. Ninja housewife (talk) 14:06, 6 August 2008 (UTC)
replies: text: The controversies in the org were added last summer by a person that was or is at the org see . But your right I don't know why the dollar amount Leitao gave in 2004 should be here. RetroS1mone talk 01:22, 8 August 2008 (UTC)
thread_title:  Missing the Point? 

message: I think this should be fixed:  "but the medical community disagrees, noting that the described symptoms of Morgellons are associated with a psychotic disorder known as delusional parasitosis or Ekbom's syndrome."
Who is this medical community? This is practically Subjective... By medical community I'm sure then you by no means are referring to the CDC because the CDC's investigation is STILL ongoing and they are inconclusive.... No one besides a few doctors interviewed in the recorded Morgellons Media have suggested this is parasitosis. 
Quote from the CDC: 
"What is the current status of the investigation?
Study recruitment, collection of survey data and the clinical examinations have been completed. Testing of blood and other samples is underway and data analysis will follow. No study results are available at this time.".....  Yeah the "medical community" sounds very solid and conclusive....
"Is this condition contagious?
The factors associated with acquiring this condition are unknown. At this time, there is insufficient information to determine whether or not this condition is contagious."
Please check my references (CDC) if you like. These were taken from the FAQ
http://www.cdc.gov/search.do?queryText=morgellons&action=search
http://www.cdc.gov/unexplaineddermopathy/   (aka morgellons)
Wiki Quote:
"The Foundation considers Morgellons to be a newly emerging infectious disease, but the medical community disagrees, noting that the described symptoms of Morgellons are associated with a psychotic disorder known as delusional parasitosis or Ekbom's syndrome" 
.... I suggest this needs to be fixed or at least add more information. Who is writing these articles and what exactly is going on in wikipedia? The CDC has no idea in hell what is going with this potential disease and they are studying things under microscopes as we speak while making limited public statements. Yet CDC isn't mentioned once here. You merely state in so many words: "The foundation attempts to make awareness for people who say they have a fibergrowing disease that they refer to as morgellons but everyone in the medical industry says no its in their heads". 
Thats not acceptable. I can link you an article discussing the CDC begining its investigation in 2006 and the CDC information I provided for you is taken from today.... this is not a debate section but for information purposes.... I would have to ask, it takes more than 3 years for these people to say "Hey these are just hair and fabric parts!" ?? You're quoted "Medical Community" currently has no idea and no suggestions to explain this situation.
When I write about this phenomenon in suggestions boxes like this they tend to get deleted. So I will save this on a document and discuss it elsewhere if wiki's "community" is not interested. No I don't have this disease, and I don't know anyone that does before you suggest that I am infected with the "delusions". I just prefer to pay attention  —Preceding unsigned comment added by 68.37.40.139 (talk) 06:06, 17 April 2009 (UTC)
replies: text: It was discussed at Morgellons alot, pls look up the discussion. The article is from reliable sources. RetroS1mone talk 12:41, 17 April 2009 (UTC)
thread_title:  You should fix this.... 

message: Minor edit:
The Foundation considers Morgellons to be a newly emerging infectious disease, but the majority medical community disagrees, noting that the described symptoms of Morgellons are most likely associated with a psychotic disorder known as delusional parasitosis or Ekbom's syndrome. Center for Disease Control (CDC) is currently conducting a study of self diagnosed Morgellons patients.
If wikipedia considers accurate information important than this minor change should be acceptable. This is not subjectivity, this is information (reference provided). If the added information is disliked for this page then deletion of the entire sentence "The Foundation considers Morgellons to be a newly emerging infectious disease, but the medical community disagrees, noting that the described symptoms of Morgellons are associated with a psychotic disorder known as delusional parasitosis or Ekbom's syndrome", should be (deletion) suggested if confronted with the possible argument of one feeling that validation or invalidation of this particular disease/syndrome does not belong in the Morgellons Research Foundation introduction of this page although this does not appear to be the case. If this is dismissed I fear subjectivity may in fact be a prime factor in wikipedia's Morgellons text. Under the scenario of an unwillingness to alter this particular document because it was possibly provided in its entirety from a reliable source, in the world of wikipedia that would be considered ridiculous.
http://www.cdc.gov/unexplaineddermopathy/
http://www.cdc.gov/search.do?queryText=morgellons&action=search  —Preceding unsigned comment added by 68.37.40.139 (talk) 20:30, 18 April 2009 (UTC)
thread_title:  Hopefully this works