Talk:Muscular Dystrophy Association

message: I just linked Spinal Bulbar Muscular Atrophy to Kennedy's Disease (since they're the same thing). Lotsotech 13:40, 5 September 2007 (UTC)
thread_title:  Minor Change 

message: Removed the following:
:Jerry Lewis has also made some disparaging remarks towards the disabled community:
:* In 1990, he wrote a first-person essay entitled "If I Had Muscular Dystrophy" for Parade magazine, in which he characterized those with muscular dystrophy as "being half a person." Many in the disabled community viewed his remarks as prejudicial, contributing to the idea that disabled people are "childlike, helpless, hopeless, nonfunctioning and noncontributing members of society."
:* On May 20 2001, he responded to his critics in an interview on CBS News Sunday Morning: "If you don't want to be pitied for being a cripple in a wheelchair, don't come out of the house." Again, disability rights activists blasted him for characterizing disabled people as helpless and homebound.
As this information is available in the Jerry Lewis article.  While Lewis is well know for work with MDA, these are personal comments and criticism not MDA sponsored events.  There's little need for people to associate the two.  If needed a short line about Mr. Lewis' controversy can be added, but it doesn't appear needed.--Kinglink 20:24, 16 August 2006 (UTC)
thread_title:  Removal of Jerry Lewis Criticism 

message: I removed the following:
:The exact amount of the final tally that rolls up on the board at the close of each annual Telethon is predetermined by MDA representatives weeks before the Telethon is held.
I doubt this is true, and I don't think its responsible to leave it on the article without a citation. —Cliffb 01:02, 1 September 2006 (UTC)
thread_title:  Final tally removal 

message: I think it should be mentioned that there is a band called Jerry's Kids and I think it should say something like "Jerry's Kids redirects here, for the band, see Jerry's Kids (band)".
Also, why does "Kill Kill Kill" redirect to this article?  —Preceding unsigned comment added by 93.242.56.1 (talk) 16:21, 2 December 2010 (UTC)
thread_title:  Jerry's Kids vs. Jerry's Kids (band) 

message: Thank you again FeldBum with your help on my initial request. I am requesting some more edits for this page, as detailed below:
*Can you make the following additions to the ‘History’ section?
** In the first paragraph, can you change “...Paul Cohen who suffered from the disease.” to “...Paul Cohen who lived with neuromuscular disease.”
*** 
** After the first paragraph, can you start a second paragraph with: “In 1954, MDA began its partnership with the International Association of Firefighters for the annual Fill the Boot Campaign.” Source: http://shoplocal.clevelandbanner.com/stories/cleveland-firefighters-raise-over-40000-for-mda,106475
***, with rewrite. A little repetitive, so I edited below.
**“Shortly afterward in 1955, the organization held its first summer camp.” Source: https://www.latimes.com/socal/daily-pilot/entertainment/tn-dpt-xpm-2011-07-29-tn-dpt-0730-cook-20110729-story.html
***, with rewrite.
**“Harley Davidson became an MDA National Sponsor in 1980, and in 1987 the MDA Ride For Life program began, a fundraising ride held over Labor Day weekend.” Sources: https://ultimatemotorcycling.com/2009/09/11/2009_harley-
davidson_muscular_dystrophy_association/; https://musculardystrophynews.com/2020/09/01/virtual-events-mark-mda-national-muscular-dystrophy-awareness-month/’
***, with rewrite.
**“Harley Davidson was joined by CITGO as a national sponsor in 1986” Source: https://www.ctpost.com/local/article/CITGO-sponsored-golf-tourney-raises-100k-for-MD-10806152.php
***, with rewrite.
**”The MDA Shamrocks program launched in 1982 in Grand Rapids, Michigan, and became a national program one year later.” Source: https://patch.com/georgia/douglasville/kroger-customers-support-mda-s-shamrocks-program
***, with rewrite.
** “In 1996, MDA was honored with the Lifetime Achievement Award from the American Medical Association for its contributions to the health and welfare of humanity.” Source: https://www.ktre.com/story/1416480/jerry-lewis-biography/
***, with rewrite and additions.
**”In October 2020, the MDA Telethon, which had originally run from 1966 to 2014, was reimagined as The MDA Kevin Hart Kids Telethon after a 6 year hiatus” (Source: https://www.forbes.com/sites/chrisstrub/2020/10/13/after-six-year-hiatus-reimagined-mda-kevin-hart-kids-telethon-returns-oct-24/?sh=3a749e05589b). 
***, with edits.
**”The 2-hour event was held virtually due to the COVID-19 pandemic, and streamed live on the Laugh Out Loud Network and its YouTube platform” (Source: https://musculardystrophynews.com/2020/10/20/mda-telethon-going-virtual-with-host-kevin-hart/)
***, with edits.
** “Celebrity guests included Jack Black, Josh Gad, Michael B. Jordan, and Jillian Mercado” (Source:https://www.thenonprofittimes.com/fundraising/mda-getting-back-in-telethon-game/).
***.
**"Spencer Smith, a lawyer with spinal muscular atrophy, described the Kevin Hart Kids Telethon as an opportunity to represent those who have typically been underrepresented in disability advocacy, with an emphasis on people thriving and living with neuromuscular disorders." Source: https://www.washingtonpost.com/opinions/letters-to-the-editor/the-muscular-dystrophy-telethon-is-needed-and-inspirational/2020/10/26/51153ab8-17a2-11eb-8bda-814ca56e138b_story.html 
***, POV.
**Also on telethon day was a 10-hour Let’s Play For A Cure streamthon, which featured DJ and producer Zedd, gaming personality missharvey, and esports athletes (Source: https://musculardystrophynews.com/2020/10/20/mda-telethon-going-virtual-with-host-kevin-hart)
***, with rewrite and additional source.
**Following the Kevin Hart Kids Telethon was MDA’s 70th Anniversary Show, hosted by entertainment TV journalists Nancy O’Dell and Jann Carl (Source: https://musculardystrophynews.com/2020/10/20/mda-telethon-going-virtual-with-host-kevin-hart)
***, with edits and in different section.
**” In January 2021, MDA announced Indianapolis Colts running back Nyheim Hines as its National Spokesperson.” Source: https://www.wthr.com/article/sports/colts-rb-nyheim-hines-named-national-spokesperson-for-mda/531-c26d02f9-8a29-49f0-aa4d-df3a2bad8424?fbclid=IwAR2DkLo8xmKkNqqTMp7eCBpxiuJpodohaLgs02LQ2s1Or8rRFp8pquBQ9LY
***.
*Can you add a new subsection to the History section, called “Research”? Under this new section, can you add:
**“In 1986, MDA funded researcher Louis Kunkel identified the dystrophin gene, the gene for DMD/BMD.” Source: https://www.biospace.com/article/the-time-for-dmd-gene-therapy-is-now-a-chat-with-the-mda/
***, with edits.
**MDA funded the first gene therapy trial in 1999, followed by the first vector based gene therapy trial for DMD in 2006.” Sources: https://www.google.com/books/edition/Muscular_Dystrophy/fi5JhCJsxC0C?hl=en&gbpv=1&dq=MDA+funded+the+first+gene+therapy+trial+in+1999&pg=PA18&printsec=frontcover
https://www.nationwidechildrens.org/newsroom/news-releases/2006/03/first-us-trial-of-dmd-gene-therapy
***, with edits.
**  “In 2007, MDA funded Adrian Krainer and his colleagues at the Cold Spring Harbor Laboratory in New York for the early-stage development of nusinersen. Nusinersen became FDA approved in 2019 as the first treatment for children with spinal muscular dystrophy (SMA).” Source: https://www.thelancet.com/journals/laneur/article/PIIS1474-4422(20)30027-2/fulltext
***, with edits.
** “In addition to nusinersen, MDA has funded the development of six FDA approved medicines since 2015, including Strongbridge Biopharma’s Keveyis (dicholorphenamide) for primary periodic paralysis; Sarepta Therapeutics’ Exondys 51 (eteplirsen), PTC Therapeutics’ Emflaza (deflazacort) and Vyondys 53® for DMD; Mitsubishi Tanabe Pharma’s Radicava (edaravone) for ALS; and Alexion’s Soliris (eculizumab) for myasthenia gravis.” Sources: https://charcot-marie-toothnews.com/2019/04/04/mda-conference-bringing-neuromuscular-disease-experts-to-orlando-to-share-new-era-in-treatment-research/ https://musculardystrophynews.com/2019/12/13/vyondys-53-for-duchenne-md-with-exon-53-mutations-fda-approval/
***, would need individual independent sourcing for each drug. Would also be chemical name, not brand trademark. PK650 (talk) 00:41, 29 September 2021 (UTC)
replies: text: Hi , going through these one by one and updating above. --FeldBum (talk) 16:22, 11 June 2021 (UTC)
replies: text:  are you still working on this? Z1720 (talk) 19:25, 24 August 2021 (UTC)
replies: text: Thanks , forgot that I hadn't yet finished this one. --FeldBum (talk) 19:52, 24 August 2021 (UTC)
replies: text:  Hi. Would be happy to review the rest of this request list if you're too busy. PK650 (talk) 02:21, 24 September 2021 (UTC)
replies: text: Hey , that would be great, thanks! I'll try to work on it today too. --FeldBum (talk) 15:53, 27 September 2021 (UTC)

text: Done  PK650 (talk) 00:42, 29 September 2021 (UTC)
thread_title:  New Edit Request 

message: — Assignment last updated by Mkuulei6 (talk) 19:48, 15 April 2024 (UTC)
thread_title: Wiki Education assignment: Online Communities