Talk:Hidradenitis suppurativa

message: I think it would be very helpful if someone could post photos of the lesions and scarring  caused by hidradenitis suppurativa.  I realize this may pose difficulties, but perhaps someone associated with the Hidradenitis Suppurativa Foundation could help out? BellyOption 23:59, 10 September 2006 (UTC)
replies: text: There are plenty of photos the problem is getting one that comforms to copyright, the best ones are only in journals, and indeed at what stage? How would fellow wikipedians feel about some of the more graphic images in the later stages? --DeepVeinInsomnia 23:00, 11 March 2007 (UTC)

text: I have aquired a photo (2nd stage HS) where the authour has granted permession for its use on this site would anyone volunter to upload it, and take it through the rights process? as I have not done this before (leave a message on my user page) --DeepVeinInsomnia 22:18, 27 March 2007 (UTC)
thread_title: Suggestion for photos

message: One thing I'd like to point out following the above discussion, is to remind everyone that Wikipedia is not supposed to be original research or personal opinions.  It is supposed to be reporting a summation of what other researchers say.  For example, I believe I got the original list of names from http://hs-usa.org , rather than what I've heard doctors tell me it's called, and as such I should've put in a reference to that webpage.  
To further the attempt to make sure we're doing neutral reporting (it's so tempting to put in all my opinions and thoughts on it!) I'm going to stick in a few notes where we need specific citations and references.  
--zandperl 13:39, 28 March 2006 (UTC)
replies: text: For citation formats, see Wikipedia:Citing sources#How_to_cite_sources or Wikipedia:Footnotes for formats - I used the "Embedded html" described in the former, but I'd eventually love to see the latter.  --zandperl 13:48, 28 March 2006 (UTC)
thread_title: Citations Needed

message: The ref to "tunnels" said citation needed, and I found an article confirming that, though not the exact same wording.  I felt it was useful to confirm that "tunnels" exist, so put in the citation.
Is this OK?
WardXmodem (talk) 22:21, 7 December 2013 (UTC)
thread_title: Q about citation I just added

message: (if it has not been already) : It's estimated (due the number of those afflicted who do not consult a physician) that roughly 80% of those with HS suffer from some sort of depression. I added some information to the page a few weeks ago and plan to contribute more. I have done extensive research on the subject, so I would like to (eventually) add what documentation I have found during the past two years about this disease.
I myself have HS, and promise to keep personal opinions/theories to myself :)
:—Preceding unsigned comment added by JayEmGee (talk • contribs)  09:07, 31 October 2006
This acne treatment site probably isn't good for wikipedia.
:—Preceding unsigned comment added by 24.21.134.225 (talk • contribs)  04:17, 29 November 2006 
:So why did you add it ? - I've removed the invalid broken link David Ruben  Talk  04:20, 29 November 2006 (UTC)
replies: text: perchance http://abscesses.org/hidradenitisSuppurativa/content/view/31/30/ as an informal CC licensed referenced article, personally for those with access to medical repositories you couldn't do better than Seton, M,. (2006) "teach me, and I will be Silent; Make Me Understand How I have Erred" Job (6:24) American College of Physicians 21 March 2006, Annals of Internal Medicine, Vol 144, Number 6 --DeepVeinInsomnia 23:19, 11 March 2007 (UTC)
thread_title: Addressing psychological effects

message: I am concerned about this section and the decisiveness on which it comments on treatments.  Nearly a quarter of all suffers state that no treatment helps to relieve their symptoms (see http://abscesses.org/hidradenitisSuppurativa/content/view/22/33/ ).  I think we need to add some statistic here (see JM von der Werth, HC Williams (2000), The natural history of hidradenitis suppurativa, Journal of the European Academy of Dermatology and Venereology 14 (5), 389-392. doi:10.1046/j.1468-3083.2000.00087.x ) to add some sense of reality.  Talking about this as though it is a treatable and hence conveying it as an ultimately curable illness would be a gross exaggeration. --DeepVeinInsomnia 22:43, 11 March 2007 (UTC)
thread_title: Treatments

message: This section conveys the illness as rare however with documented (see Jan von der Werth, (2001) Hidradenitis suppurativa, Dermatology in Practice, Volume 9, Number 3, 2001 ISN: 0262-5504 available from http://www.hs-usa.org/pub/articles/2001_HS_VDW.pdf [Accessed 10 March 2006]) evidence that is contrary it is anything but rare and effects approximated one million suffers world wide with over 30% of the population knowing someone that is effected http://abscesses.org/hidradenitisSuppurativa/content/view/22/33/. It has a similar, though deeply less publicised, prevalence as aids in the 90's (http://www.cdc.gov/mmwr/preview/mmwrhtml/00046531.htm#00002287.htm )do we need to debate this or simply over write it?
ggggg
Jensenbeachcpl 01:12, 16 March 2007 (UTC)
thread_title: Overview

message: I've had HS for 30+ years.  In the past 28 months, I've had seven surgeries related to HS; two of those were for the Ileostomy that was necessary, since the HS had migrated so close to my anus.  I've since had most of the tissue of my vulva removed.  Many, many years of extremely painful, chronically oozing abcesses relieved by what I determined to be my only option, multiple surgeries.  Both armpits, buttocks, groin and small one under a breast.  Skin grafts.
I'd like to share my HS experiences in any way that might assist HS sufferers.MissCookie 05:14, 27 March 2007 (UTC)
replies: text: Wikipedia exists so the community can contribute to the articles, however there is a very human desire to help others in a similar state (which is highly commendable) there are sites out there that try to form a supportive community ( a list exists at http://dmoz.org/Health/Conditions_and_Diseases/Skin_Disorders/Hidradenitis_Suppurativa/ ) could I maybe draw your attention to http://abscesses.org which is accepting personal stories from HS suffers (Authours wanted - http://abscesses.org/hidradenitisSuppurativa/content/view/13/41/ ) --DeepVeinInsomnia 22:15, 27 March 2007 (UTC)
thread_title: I would like to help other suffers

message: Is there a source for the statment "...but it is generally considered to be ineffective" under Treatments, regarding isotretinoin? if not, it should be removed. 74.142.41.108 05:11, 7 October 2007 (UTC)
thread_title: Refrence?

message: please comment if you want to retain the top half of this discussion page, it should start with a table of content if no one replies i will delete it, also I will delete the statement about refrence (sic) unless this ip can confirm they are part of the active community and understand the challenges this topic faces  —Preceding unsigned comment added by Deepveininsomnia (talk • contribs) 22:42, 6 May 2008 (UTC)
thread_title: Remove the entire top half of this page

message: Please would you consider adding the website address for the British Association for Hidradenitis Suppurativa to the HS related pages. WWW.BA-HS.ORG.UK 90.197.86.28 (talk) 14:31, 23 June 2009 (UTC)
thread_title:  British Association for Hidradenitis Suppurativa 

message: i have had hs for 5 yrs and never heard of 1 study for it can anyone help or knows where i can go to find studie's on hs                   
                                 75.70.139.70 (talk) 04:44, 7 August 2009 (UTC)
thread_title:  is there and studie's open right now 

message: My daughter has this condition and I have looked at this article a few times after my husband found it. Thankyou for it. I would like to add some material, at some point, as we have had some very real success treating it.. I will never put any material in without consensus. Bianca
--LoudBellRinger (talk) 02:13, 11 September 2009 (UTC)
thread_title: Hi

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thread_title:  External links modified 

message: This is probably the classic article, and this entry could be rewritten to follow this article. 
http://www.nejm.org/doi/full/10.1056/NEJMcp1014163
Clinical Practice: Hidradenitis Suppurativa
Gregor B.E. Jemec
N Engl J Med
366:158-164
January 12, 2012
DOI: 10.1056/NEJMcp1014163
Key Clinical Points
Hidradenitis Suppurativa
* Hidradenitis suppurativa is a chronic, recurrent inflammatory disease affecting skin that bears apocrine glands.
* It is manifested as painful, deep-seated, inflamed lesions, including nodules, sinus tracts, and abscesses, and is estimated to affect 1% of the population.
* A long delay in diagnosis is common, since the disease is often mistaken for a simple infection.
* Lesions treated with incision and drainage routinely recur.
* Few randomized trials have been carried out to guide care, but observational data suggest that many patients have improvement after treatment with antibiotics; a tetracycline or a combination of clindamycin and rifampin is often used.
* For more severe disease, treatment may involve immunosuppressive agents such as inhibitors of tumor necrosis factor α, although results of randomized trials have been inconsistent.
* For recalcitrant lesions, complete removal by surgical excision or laser therapy often results in local clearing.
There's also a more recent article on two successful phase 3 trials of adalimumab, which also has a nice introductory summary. http://www.nejm.org/doi/full/10.1056/NEJMoa1504370 But it isn't a review article. --Nbauman (talk) 05:26, 4 August 2016 (UTC)
thread_title:  NEJM article by Jemec 

message: I added this but someone else deleted it, so I'm putting it here on the talk page to see what others think.
https://www.ncbi.nlm.nih.gov/pubmed/10393449
Dermatology. 1999;198(3):261-4.
Cigarette smoking as a triggering factor of hidradenitis suppurativa.
König A1, Lehmann C, Rompel R, Happle R.
Out of 84 patients treated for hidradenitis suppurativa, 63 subjects (27 men, 36 women) completed the questionnaire. The rate of active cigarette smokers was 88.9% (56 patients), whereas 4 subjects (6.4%) had never smoked. 3 patients (4.8%) stated to be ex-smokers, but 2 of these had quit smoking only recently and after onset of the disease. The rate of smokers in the matched-pair control group was 46%. The significantly higher proportion of active smokers among patients with hidradenitis suppurativa can be expressed by an odds ratio of 9.4, the calculated 95% confidence interval was 3.7-23.7 (p < 0.001). The expected smoking prevalence in Germany was 26.7% according to national statistics. 73% of our patients had no family history of hidradenitis suppurativa whereas 27% reported at least one affected first-degree relative.
Bk33725681 (talk) 07:46, 1 January 2017 (UTC)
replies: text: Well, the first problem I see is that this is a rather old study (almost twenty years old). Is there anything more recent on the relationship between cigarette smoking and hidradenitis? Another problem is that this is a primary source rather than a secondary source (which is strongly preferred per WP:MEDRS). TylerDurden8823 (talk) 08:54, 1 January 2017 (UTC)
thread_title:  Cigarette smoking as a triggering factor of hidradenitis suppurativa 

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thread_title:  External links modified 

message: --OzRobHowes (talk) 22:43, 25 October 2017 (UTC)
replies: text: User:OzRobHowes Here is a ref for the first  and removed the other. Doc James (talk · contribs · email) 01:52, 26 October 2017 (UTC)
thread_title: Wiki Musings Continued from a Decade Ago 

message: doi:10.1001/jama.2017.16691 JFW | T@lk 14:25, 29 November 2017 (UTC)
thread_title:  JAMA review 

message: Should this material be re-added? I'm aware that appears to be a single primary source. Thanks. Martinevans123 (talk) 15:16, 2 July 2018 (UTC)
thread_title:  [[Karl Marx]] 

message: In the lede:
   The condition is not caused by an infection, poor hygiene, or the use of deodorant.[3][4]
Under the heading triggering factors:
   Deodorants, depilation products, shaving of the affected area – their association with HS is still an ongoing debate amongst researchers.[19]
Is there no association between deodorants and HS, or is the association between deodorants and HS disputed? The article can only make one of these claims in good sense.--66.190.13.201 (talk) 10:25, 1 October 2021 (UTC)
thread_title:  Contradiction in article 

message: I worked on creating the original Wikipedia page on Hydradenitis Suppurativa 15-20 years ago (under some user name I no longer recall). I suffered tremendously from the condition for over 10 years before finally being correctly diagnosed. I have experienced *hundreds* of outbreaks and long-lasting episodes over a *40 year period* and after dissecting my own experience and studying everything I could regarding apocrine glands and hydradenitis suppurativa, it is *crystal clear* to me that, at least in my own case, stress, fear, pain, and sexual arousal or erotic stress are unquestionably THE MAIN TRIGGERS. 
Following is my most recent addition to the page. I fully expect it to be deleted (again) because I don't have some kind of degree in the field and the requisite cites. However, I am absolutely certain that my 40 years of continual personal experience, diligent observation, and simple deductive reasoning are of great value here!!
""Stress, Pain, Sexual Arousal, Fear. Apocrine glands secrete a concentrated fatty sweat, and are stimulated by situations causing stress, pain, sexual arousal or fear. Such situations cause the apocrine glands to contract, expelling their contents. If the glands or hair follicles associated with the apocrine glands are somehow blocked, this can cause abscesses. It is unknown why these direct causes have been continually overlooked.""
Is this really just *so simple* as to be disregarded?? 
-What are the purpose and function of apocrine sweat glands?
-What situations stimulate secretion of the fluids created by these glands?
WILL SOMEONE IN THE MEDICAL COMMUNITY **PLEASE** TAKE ON THE RESPONSIBILITY OF ADDRESSING THIS!!! Don't let people continue to suffer this horrendous condition due to its psychological triggers continually being overlooked!!! Wendykpage (talk) 16:35, 29 October 2023 (UTC)
replies: text: Unfortunately, original research doesn't fit in the article; additions should have sources to back them up. Also, "" is just saying that sources don't support the purported causes. I'm reverting your additions, but I did find a source that supports the "stress" claim, and so I'll leave that part. Kimen8 (talk) 21:26, 29 October 2023 (UTC)
thread_title:  Direct causes