Talk:Lupus anticoagulant

message: I had a pulmonary embolism last summer (04) and it was discovered that I have the Lupus anticoagulant, and now I will be on a high dose of coumadine for the rest of my life.  It has actually been a life changing event.  At first I was in constant fear that I would develop another blood clot.  Actually, I have developed another clot in my lungs.  I went through a lot of fear, but I am accepting it.  There is nothing I can do about it, and I just can't live in fear anymore.  God will take care of me, and He knows what's best.  It has taught me to always be ready to meet Him, and to live each day to its fullest.  Whoever reads this, know that you are not alone.  I pray for those who have to live with this disorder.  God bless you, and stay strong.
i love you so much
:I'm not sure why you were commenced on life-long anticoagulation after only one thromboembolic event, but it has probably been a good thing, considering you had a recurrence on treatment. Sadly, immunosuppressants are not routinely used for LAC. I hope that apart from relying on God you are also seeing His messenger (i.e. your physician) and have discussed other treatment options. JFW | T@lk 20:43, 11 May 2005 (UTC)
replies: text: LAC+PE=Lifelong anticoagulation.  The risk of recurrence is extremely high.  We should probably address this on the LAC page... :)--Dr.michael.benjamin 06:52, 17 October 2007 (UTC)
thread_title: I

message: Could they be related? My daughter is 18 she lost her pheriphal vision in her right ey for no apparent reason. She has since(thru many different types of tests) been diagonised with a pfo, and lupus anticoagalant. She is currently in the hospital due to a kidney stone which developed into a kidney infection. Her current symptons are lower-mid back pain, fever that comes and goes, and when the pain is at its worst it travel across her back and around towards her abdomnal. My question is anyone else out here prone to kidnwy stones that has lupus ant coagulant? Could the stone develop because they was an obstruction caused by a clot that came thru the kidney? Or am I way out in left field?--75.194.202.191 (talk) 11:12, 10 August 2008 (UTC)
thread_title:  Lupus anticoagulant and kidney problems.... 

message: I was diagnosed with lupus anticoagulant 2003; this followed repeated blood clotting episodes.  I was also diagnosed at the same time with anti-cardiolipin antibody. (spelling amnesty, please)..  I remember the relief I felt at the time - knowing that with blood thinning therapy I wouldn't have to worry about another blood clot again - ever.  So, now a number of years later I have had other issues to deal with.  I saw a rheumatologist after one "flare up" of lupus syndrome.  He placed me on plaquenile, gave me a limp hand shake and I haven't seen him since.  Refills of my prescription came through my hematologist who follows my PT/INR on a regular basis.  In 2007 I experienced something weird and different - apparently this "lupus syndrome" attacked my platelets and my hematologist placed me on an extended round of prednisone to get me back to normal - whatever that is.  And most recently, I have just been released from a stint in the hospital with pneumonia that was difficult to treat because of an extreme drop in my white blood cells.  Apparently this disabled the effectivity of oral antibiotics I've been on since November. Finally I had it with the primary care physician and called a pulmonologist.  He admitted me immediately to the hospital and called in my oncologist/hematologist. Had it not been for my hematologist being on top of things - I don't know what would happen.  He treated me with neutropenia injections to boost my white blood cells.  I had two of these shots to jump start my bone marrow. It was painful, but it worked - at least temporarily.  The second day following the second injection, my white cell count started dropping again.  At one point, they were so low the doctors would not let anyone in my room without masks to protect me from germs I might not be able to fight off.  Now, this is kind of scary to me... I don't want to drop dead from someone's concerned sniffles. So again I'm on prednisone - and I suppose it is working to boost my blood cells.  I'm home from the hospital, on oral anti-biotics and at least THINK I'm recovering.  So... here's my question I HOPE someone can answer for me.  When does lupus anticoagulant become lupus?  When do you need to see a rheumatologist - and why?  If the disorder seems primarily to attack your blood cells - is it still just lupus anticoagulant or lupus syndrome?  I truly don't understand what's going on and so much of the research I read is way over my head.  Anyone out there with wisdom in layman's terms?  I am more interested now than ever because my young adult daughter has also been diagnosed with this anticoagulant and suffers arthritic type symptoms.  To our knowledge, she has never had a clotting disorder.  I want to know more so I can know how to help her, and give good sound advice...
Anybody?  —Preceding unsigned comment added by 204.116.188.156 (talk) 03:20, 7 April 2009 (UTC)
thread_title:  Lupus anticoagulant diagnosis 

message: In November 2006 I was six months pregnant and I lost my baby due to blood clots in the placenta.  I was told that I have a blood clotting disorder, but at that time was not told which one.  In July 2008 I was diagnosed with Antiphospholipid Syndrome.  In April 2010, I was diagnosed with DVT and PE (several blood clots in both lungs).  I have since had to go to the ER with problems with my leg (the one with the blood clot in it) and two times for chest pain.  I also just found out from the Hematologist this Friday that I also have Lupus Anticoagulant Syndrome.  I would like to know if Antiphospholipid Syndrome and Lupus Anticoagulatant Syndrome are two differnt blood clotting disorders or one?  Any information would help.  Thanks, Sheryl  —Preceding unsigned comment added by 67.176.47.174 (talk) 00:41, 17 May 2010 (UTC)
thread_title:  Lupus Anticoagulant Syndrome & Antiphospholipid Syndrome 

message: is it safe 2 take these medications when u only have 1 kindeny? wt do u think can anyone answer this question please candy jones  — Preceding unsigned comment added by 74.34.133.226 (talk) 17:36, 18 September 2011 (UTC)
thread_title:  ms n lupus n only 1 kindeny 

message: doi:10.1111/jth.15047 JFW | T@lk 10:20, 30 October 2020 (UTC)
thread_title:  ISTH