Talk:McCune–Albright syndrome

message: I'm not sufficiently knowledgeable to correct it, but McCune-Albright syndrome (which BTW is often just refered to as Albright synd in pathology texts) is a type of polyostotic fibrous dysplasia. That is, they are not synonyms. 140.254.207.209 21:52, 20 May 2007 (UTC)
replies: text: Fixed. --Arcadian (talk) 02:38, 24 February 2009 (UTC)
thread_title:  

message: I am a 57 year old with Polystotic Fibrous Dysplasia and McCune Albright Syndrome PFD/MAS. This is a complex disease that presents different aspects in individual patients. Often there are endocrine and cardiac issues that can be connected back to ones' having the disease. 
Depending upon where the tumors are located, one can lose sight and or hearing. The triad of cafe o latte skin pigmentation, endocrine issues and Polystotic, or multiple tumor sights has been disproven. Patients may not have all three but for the most part they will always have the multiple bone tumors associated with PFD.
Patients with this disease may actually present with symptoms that appear like the patient may have several different unrelated ailments but further testing can tie the multitude of symptoms together. A bone endocrinologist is a critical specialist to have on the medical team. Few doctors have ever heard of FD/PFD/MAS, fewer yet have ever seen a patient suffering from it.
There is a risk of death with PFD/MAS through a sudden cardiac death. There is also a relationship between PFD/MAS and HBP and cardiac arrythemias. I am a lay person reporting from my own personal experiences from a life with this disease.
184.63.175.172 (talk) 03:45, 14 November 2012 (UTC)
thread_title:  PFD/MAS 

message: .  I just don't have time to upload it right now.  If you'd like to upload it but don't know how, I'm glad to help, just drop me a note on my talk page. delldot ∇. 05:33, 14 October 2008 (UTC)
thread_title:  Free image available 

message: Lauren Ruotolo, afflicted with McC-A syndrome, wrote a book called Unstoppable in Stilettos.  Probably qualifies as a notable case - hit the bestseller list.  —Preceding unsigned comment added by 99.48.75.121 (talk) 22:07, 7 March 2011 (UTC)
thread_title:  Unstoppable in Stilettos 

message: Doc James, I just noticed this edit by . What do you think of it? Flyer22 Reborn (talk) 00:16, 29 October 2016 (UTC)
replies: text: Not sure. Restored part of it. Doc James (talk · contribs · email) 02:58, 29 October 2016 (UTC)
replies: text: Okay, Doc. Thanks for looking into it. Flyer22 Reborn (talk) 03:10, 29 October 2016 (UTC)
thread_title:  March 3, 2016 edit  

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thread_title:  External links modified 

message: IntothesameImage edits added appropriate organization and were concise and neutral.  — Preceding unsigned comment added by Gomer2 (talk • contribs) 16:49, 4 February 2018 (UTC)
thread_title:  Jan, 2018 edit