Talk:Chiari malformation

message: The prognosis section is appallingly out of date. The article cites a secondhand reference to a 1996 study. Given my experience with a child with sb, hydrocephalus, syringiomelia and symptomatic ac ii. I have heard that there are isolated cases of children dying but these are almost always where surgery has not been attempted, e.g. Shunts or decompression. I think the 1996 article is so out of date that reference to it actually leads people astray. Does anyone have better references to use?  — Preceding unsigned comment added by 124.179.29.24 (talk) 02:06, 24 April 2012 (UTC)
thread_title: old info

message: I believe this section should be deleted as it is simply a type of advertising.  I don't see that this section provides any benefits to our readers.  Please speak now, or forever hold your peace.  Matthew 1130 14:39, 26 February 2007 (UTC)
replies: text: Agreed. Removed. --Lipothymia 01:53, 14 March 2007 (UTC)
thread_title:  Specialists 

message: This condition exists as per a modified version of the Human condition in Cavalier King Charles Spaniels - do we want to add that information here or create a seperate page I suggest add it here...let me know on my talk I will bring in references etc and write a small summary of the condition in canines. benjicharlton (talk) 04:53, 23 August 2008 (UTC)
thread_title: Other Species

message: HI,
MY NAME IS MAMIE ZERBE AND I HAVE CHIARI TYPE 1 MY DOCTOR TOLD ME THAT I NEE AN OPRATION AS SOON AS I CAN BECAUSE I HAVE HEADACHES 24/7 AND I ALSO HAVE NOSE BLEEDS TOO. 
I AM REALLY SCARED OF THIS OPRATION BECAUSE I NEVER HAD THIS KIND BEFORE . IS THERE ANY INFORTATION BESIDES WHAT I FOUND ON THE INTERNET ? IS THERE A BOOK THAT I COULD GET FROM A LIBARARY TO READ UP ON THIS CHIARI TYPE 1 AT ALL ? 
YOU CAN CALL ME AT <removed phone number> I  LIVE IN STRAUSSTOWN PA . PLEASE TELL ME MORE IF YOU CAN THANK YOU.
MAMIE ZERBE
:Wikipedia is not a good place to ask questions like this.  Try doing an internet search on the name of the disease and the words "support group" or "discussion".  WhatamIdoing (talk) 03:27, 13 April 2008 (UTC)
replies: text: Agreeing with the last person, you should go to the [] and get advice from there. Chiari Malformation is a rare disease, and there is little information you could get from a library, if any. The ASAP organization also has a phone number that you can call to get information on specialists in your area, and they can send you a packet of information in the mail. - Cyborg Ninja (talk) 01:56, 17 July 2008 (UTC)
thread_title:  CHIARI PATITSEN 

message: Dateline NBC did a special on Chiari on Dec 14, 1999. It was the first time Chiari was mentioned in the mainstream, not this more recent citation.  — Preceding unsigned comment added by Egthegreat (talk • contribs) 01:40, 14 December 2012 (UTC)
thread_title: Society and Culture

message: I added the following: 
*2008, May 9 The kid who can't sleep CNN.com
*2008, May 9 Boy Hasn't Slept In 3 Years local6.com
*2008, May 9  Rare condition doesn't let St. Petersburg kid sleep Baynews9.com
71.191.3.39 (talk) 12:06, 9 May 2008 (UTC)
replies: text: I dont think these should be in the article.   S. T. H.   23:10, 15 May 2008 (UTC)
replies: text: You can delete external links from an article if you think that they are inappropriate.  If you can point to a reason in WP:ELNO or WP:MEDMOS#External links that supports your personal opinion, or you can explain your reasons well enough to convince other editors, then they'll actually stay deleted.  WhatamIdoing (talk) 02:37, 17 May 2008 (UTC)
replies: text: These would about insomnia not ACM. It May be a side effect but not a ACM link.  Trees Rock Plant A Tree! 15:09, 17 May 2008 (UTC)
replies: text: I think it should be included, possibly as backup in a Symptoms section. The article states the insomnia is due to the boy's Chiari malformation, and this is important information for not only patients to be aware of, but doctors as well. - Cyborg Ninja (talk) 02:04, 17 July 2008 (UTC)
replies: text: (Apparently) a single patient has this symptom, so we need three different links about it?  WhatamIdoing (talk) 05:43, 17 July 2008 (UTC)
thread_title: New links

message: This article is lacking in information. While I personally find it a little annoying to hear this from other Wikipedia visitors and think that everyone should contribute, I do not know enough about Chiari malformation to do so without possibly giving incorrect info. I contribute to many other articles, including the syringomyelia article. I and many others would highly appreciate it if someone extended this article, rather than citing useless Wikipedia guidelines. - Cyborg Ninja (talk) 02:08, 17 July 2008 (UTC)
thread_title: Lacking

message: im very new to this my brother is in the hospital right now on life support and the doctors are thinking this is the reason so any info you can provide will be greatly appreciated my name is Donetta Clark my e-mail is djclark76108@yahoo.com thank you once again  —Preceding unsigned comment added by 12.7.62.73 (talk) 17:06, 4 April 2009 (UTC)
thread_title:  new 

message: There is no mention of Spina Bifida here even though Chiari is very common in people with SB. Roger (talk) 21:11, 15 October 2009 (UTC)
thread_title:  Spina Bifida 

message: I have removed the name 'Maggie Watts (Laurens Mum)' from the list of notable people with this condition. As a search on wikipedia finds no mention of any person named Lauren Watts, I can only assume that both Maggie and Lauren Watts (?) are normal citizens who have been listed on this page. Not only does this go against the definition of 'Notable persons', I cannot help but feel it malicious - are these people okay with this condition? Do they want it to be recognised? Would they be upset by this? Really, we have no clue. With the undue informality and inappropriate nature of this inclusion, I have removed it. If anyone could explain this to me, it'd be fine to add it again. 
--94.192.80.191 (talk) 16:05, 14 February 2010 (UTC)
replies: text: You're way overthinking this - its just plain simple vandalism. Revert it and move on - there's no need to launch a huge discussion about it. BTW please post new topics to the bottom of the page. Roger (talk) 16:36, 14 February 2010 (UTC)
thread_title: Notable persons

message: Based on the text of this article, Arnold-Chiari malformation currently is used to refer primarily to one type. The current preferred terminology to be inclusive of all types is "Chiari malformation." Here is the article text: "Chiari malformation is the most frequently used term for these types of malformations. The use of the term Arnold–Chiari malformation has fallen somewhat out of favor over time, although it is used to refer to the type II malformation. Current sources use "Chiari malformation" to describe four specific types of the condition, reserving the term "Arnold-Chiari" for type II only. Some sources still use "Arnold-Chiari" for all four types." Any objections to updating the article title to reflect current use? --Karinpower (talk) 02:35, 5 February 2015 (UTC)
replies: text: Yes, move—second support for move, and no objections in the 2 years since this thread opened: Yes, this move will go ahead. It cannot be done with the "Move" button because of a move-over-redirect page history conflict. I will list it at WP:REQMOVE to get it done. Lise-lyse (talk) 23:13, 3 March 2017 (UTC)
thread_title:  Propose title change for this article - to Chiari malformation 

message: A reader noted that one of the symptoms in the list of symptoms did not have a footnote. In fact many do not but they were particularly interested in the footnote talking about the clockwise progression. I added a citation needed template, but I wanted to bring it more attention.
I see that it was added by an editor here, and editor with only nine edits and who is not edited in over a year so I haven't bothered pinging that editor.
I hope someone with more medical knowledge can look into whether the entry deserves to stay and if so provide a suitable reference.--S Philbrick(Talk) 15:27, 30 June 2015 (UTC)
thread_title:  Reference needed 

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thread_title:  External links modified 

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thread_title:  External links modified 

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thread_title:  External links modified 

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I have just modified 6 external links on Chiari malformation. Please take a moment to review my edit. If you have any questions, or need the bot to ignore the links, or the page altogether, please visit this simple FaQ for additional information. I made the following changes:
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*Added archive https://web.archive.org/web/20080708203920/http://www.pathology.vcu.edu/WirSelfInst/neuro_medStudents/devdis.html to http://www.pathology.vcu.edu/WirSelfInst/neuro_medStudents/devdis.html
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*Added archive https://web.archive.org/web/20110704123740/http://www.wichiaricenter.org/oth/Page.asp?PageID=OTH000006 to http://www.wichiaricenter.org/oth/Page.asp?PageID=OTH000006
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*Added archive https://web.archive.org/web/20151017080306/http://www.canada.com/story.html?id=b0bf13ea-d410-4975-b477-febf1df5ec94 to http://www.canada.com/story.html?id=b0bf13ea-d410-4975-b477-febf1df5ec94
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thread_title:  External links modified (January 2018)