Talk:Haemophilia

message: I removed this section because it wasn't really true or referenced.  From the early 1900s to the 1970s life expectancy went up to almost 65 (which is close to normal) and then HIV lowered it back down to around 25 in the 1980s.  There is also quality of life to be considered, and I don't believe you can have any real information on it all at this point.  —Preceding unsigned comment added by REGULAR-NORMAL (talk • contribs) 13:43, 21 January 2008 (UTC)
thread_title:  Life Expectancy 

message: Are you sure that Prince Maurice of Battenberg had hemophilia?? He died in service fighting the German forces in 1914; he would not have been able to join any military force if he had hemophilia. Arno 07:27, 16 Aug 2004 (UTC)
replies: text: Some biographies on Queen Victoria and her descendents say that Beatrice passed the gene on to both Leopold and Maurice, while others say just Leopold was a sufferer. His cousin, Prince Waldemar of Prussia had hemophilia, but he enlisted, albeit with a desk job. Leopold also enlisted, so it wasn't out of the question. Maurice, if he had hemophilia, might have had a job that would keep him out of fighting, but it was a war, chances are, he found some way to get into action. Morhange 02:11, 01 Jul 2005 (UTC)
thread_title:  Maurice of Battenburg 

message: There seems to be a contradiction regarding Haemophilia B. It is first mentioned to be x-linked recessive (paragraph 1 under Genetics), the same as Haemophilia A, and later tagged as autosomal recessive (under Forms). I believe that the former is correct (x-linked recessive), but an expert should probably make the judgment.
:I'm not an expert, but I've made the judgment. JFW | T@lk 11:48, 3 Jan 2005 (UTC)
thread_title:  Haemophilia B 

message: What is the difference between a mild hemophilia and von Willebrand disease (vWD)?
:Very small, apart from the underlying defect and the potential treatment. Hemophilia also causes a slightly different form of bleeding - it is more in muscles and joints. vWD, in contrast, affects the skin and mucous membranes. JFW | T@lk 21:13, 25 Apr 2005 (UTC)
thread_title:  Hemophilia and von Willebrand's disease 

message: My nephew has Hemophilia and I'm pretty sure I wouldn't want him to link to a page discussing 'blood 
letting' and whatnot.  I'm not saying we should rate pages based on it's content or whatever.  I'd just 
like to know how his disease is related to sex acts!  Before anyone gives me the "...doesn't necessarily 
lead to sex" excuse, I'm just ASKING.  I don't understand how an illness that doesn't allow a person's 
blood to clot properly (very dangerous) correlates to deliberately putting oneself in harms way by cutting 
themself and letting someone else drink it.  Even MORE dangerous -- drinking the blood of someone ELSE!
Hey, no offense.  If you want to pretend you're a vampire in this day and age, all I can say is GOD BLESS 
'YA and be my guest, but what does that have to do with a serious illness such as Hemophilia?  I apologize, 
in advance, for 'shouting', but this upset me just a bit.  Please advise.........SBernheart
:You are completely right. The Blood fetish page does not even mention this false etymology. If the bleeding condition had not been described before some moron thought blood was sexy, the fetish would have been named that way. But history sometimes makes things more difficult.
:On a more policy-related note: Google "blood fetish" & hemophilia yields 41 results, with Wikipedia bang at the top. Alone, "blood fetish" Googles >80,000. There is therefore no need to disambiguate this. Really. JFW | T@lk 22:02, 30 January 2006 (UTC)
thread_title:  Blood Fetish????? 

message: I can understand the extensive discussion of the way hemophilia is inherited. It would be sufficient to omit it and link to a general discussion of sex-linked disorders, but because hemophilia is such a textbook example of sex-linked inheritance, it isn't surprising to find that discussion here. But isn't the extensive discussion and family tree of old european hemophilia cases relatively unimportant? How does this contribute to a naive wikipedia user's understanding of hemophilia? Especially a user who is interested as a patient or a friend of a patient with the disorder?
:It is of immense historical interest. Wikipedia medical articles are not sterile reviews about conditions, they should include the maximum of related information in the humanities. Czarevitch Alexei had haemophilia, and his disease caused the inclusion of Rasputin in the royal entourage, with the consequences that are well known. It massively changed public perception of this condition. JFW | T@lk 22:05, 30 January 2006 (UTC)
thread_title:  Missplaced emphasis? 

message: Giangrande, whom I cited extensively in coagulation, has also written usefully on the history of haemophilia. This may be a useful source. JFW | T@lk 21:58, 2 February 2006 (UTC)
thread_title:  History 

message: Hey I just wanted to say that this a great article... Speaking as a high-schooler, and more humanities oriented student, this was really easy to read and digestible.  Usually the science articles on Wikipedia are cryptic and difficult so this was a relief.  Sorry I just wanted to say thanks.
:The following discussion is an archived debate of the proposal. Please do not modify it. Subsequent comments should be made in a new section on the talk page. No further edits should be made to this section. 
The result of the debate was don't move, of course. —Nightstallion (?) Seen this already? 14:11, 22 April 2006 (UTC)
thread_title:  Alex of Southampton, NY, USA 

message: :Add *Support or *Oppose followed by an optional one-sentence explanation, then sign your opinion with ~~~~
=====Oppose=====
* Oppose. JFW | T@lk 18:46, 17 April 2006 (UTC)
thread_title: Survey

message: * Oppose. JFW | T@lk 18:46, 17 April 2006 (UTC)
thread_title: Oppose

message: * Strong support. Random the Scrambled 11:46, 18 April 2006 (UTC)
thread_title: Support

message: :Add *Support or *Oppose followed by an optional one-sentence explanation, then sign your opinion with ~~~~
*Support. See reason for move. Random the Scrambled 13:12, 15 May 2006 (UTC)
replies: text: Yes, they will. Random the Scrambled 20:13, 16 May 2006 (UTC)

text: Why do you oppose it? Just wondering. No need to prove it (there, now are you WP:POINT people happy?). Random the Scrambled 13:51, 17 May 2006 (UTC)

text: I never saw any reason from Exploding Boy other than that this proposal is pointless. Was that it? Random the Scrambled 18:43, 19 May 2006 (UTC)
thread_title: Survey

message: Female carriers of haemophilia A and B may be prone to bleeding even at moderately lowered coagulation factor levels. JFW | T@lk 21:56, 21 June 2006 (UTC)
thread_title:  Bleeding in carriers 

message: This article does not mention the myth that Haemophilic females cannot have children.
Sandy June 05:32, 3 July 2006 (UTC)
replies: text: If they missed it on purpose, then it's because it is a myth, thus being untrue. Random the Scrambled 14:16, 8 July 2006 (UTC)
thread_title: Haemophilic female

message: Does anyone else think that this page should possibly be semi-protected? It's been attacked by quite a lot by vandals recently. Charlie MacKenzie 16:10, 10 October 2006 (UTC)
thread_title:  Vandalism 

message: Seems Haemophilia article has been stripped the picture has been taken off and it seems much less clear, was there a reason or would it be wise to revert?
Drew 06:27, 13 October 2006 (UTC)
thread_title:  History, Possible Revert 

message: Spelling on the page keeps changing from 'haemophilia' to 'hemophilia' and back again. Can we not just pick one and stick with it? —The preceding unsigned comment was added by 82.30.81.131 (talk) 18:59, 4 March 2007 (UTC)
replies: text: I agree with this thought.  Any thoughts on which it should be?  Whichever we pick, it should be consistent throughout the article, which is why I have been reverting people who only change some of the entries... -- Whereizben - Chat with me - My Contributions 13:51, 19 March 2007 (UTC)

text: I would say the best thing is to be consistent with the title of the article. Unfortunately, that's liable to touch off the big debate about what THAT should be again. For what it's worth, I'm a Brit and thus spell it with the A, but if the consensus is to standardise without it, that's OK by me. McNutcase 17:26, 19 March 2007 (UTC)
thread_title:  Spelling 

message: Should this page have links to the pages for famous people with hemophilia? (Tsarevich Alexei Nikolaevich Romanov, other members of british descent)
I happen to have severe hemophilia A
       
Asha'man Nellis, Jearn Rift Sept of the Codarra Aiel 11:56, 21 March 2007 (UTC)
thread_title:  Links 

message: "However, Michael Dunn is the coolest hemophiliac that has ever existed...no questions asked."
That sounds like a bit of a joke. Should it be removed? —The preceding unsigned comment was added by 81.86.115.184 (talk) 12:58, 14 April 2007 (UTC)
thread_title:  Michael Dunn's Coolness? 

message: According to the article "If a female gives birth to a haemophiliac child, she is a carrier for the disease." This is surely only true if there are other affected family members. Should her son be the first case of haemophilia in the family, there is a 20% chance that he has a de novo disease causing mutation. (This according to GeneReviews.)Nyosi 08:48, 7 June 2007 (UTC)
replies: text: My son has Severe Hemophilia A and I am not a carrier - his case, as with others - was a spontaneous mutation. 76.30.52.19 16:22, 7 September 2007 (UTC)
thread_title:  Carriers of haemophilia 

message: Paragraphs 4 and 5 implicates Baxter and other manufacturers in the infection of patients with HIV, implies negligence on their part, and references lawsuits against Baxter.  The article reference (reference 8) is specifically about a lawsuit against Armour Pharmaceuticals (now part of Sanofi-Aventis).  This article does not mention any manufacturers other than Armour, and in fact mentions that Armour used a heat-treatment step that was lower in temperature than the other manufacturers.  Unless other references are incorporated, these paragraphs should reference Armour only.Ekwhite (talk) 20:15, 13 December 2007 (UTC)
thread_title:  Treatment 

message: Review  JFW | T@lk 10:01, 24 January 2008 (UTC)
thread_title:  Brain bleeds 

message: I have been to this page a few times and the bits about Bayer and their role in the 1970's AIDS and Hep outbreak among hemophiliacs keeps getting deleted and added again.  I don't see mention about it in the Discussion page and don't believe that there is a Wiki reason for it to be deleted.  I am assuming it is being deleted because it makes many people and companies look very bad.  Considering the outbreak was to the hemophiliacs what the Atomic Bomb was to the Japanese (infecting so many hemophiliacs with generations of ramifications), it is a pretty big deal and should have more than a small paragraph dedicated to it in this article.  At the very least it should have a stub article dedicated to it.  
I second locking the article (someone else mentioned it above).  This is obviously a controversial article on what is in included, and not included and how it is spelled, and instead of discussing anything, people keep going in and deleted and adding whatever they please without regard to Wiki-Standards.  I already put in a request for indefinite semi-locking. Chexmix53 (talk) 20:37, 5 March 2008 (UTC)
thread_title:  Bayer / Vandalism - Second locking the article 

message: It is recommended that people affected with Hemophilia do specific exercises to strengthen the joints, particularly the elbows, knees, and ankles. Exercises include elements which increase flexibility, tone, and strength of muscles, increasing their ability to protect joints from damaging bleeds. These exercises are recommended after an internal bleed occurs and on a daily basis to strengthen the muscles and joints to prevent new bleeding problems. Many recommended exercises include standard sports warm-up and training exercises such as stretching of the calves, ankle circles, elbow flexions, and Quadriceps sets.
Is there a source for this? 81.158.186.80 (talk) 01:40, 27 July 2008 (UTC)
thread_title:  Excercises 

message: I am a little unsure as to the validity of the claims about the effect of hypnosis on the severity of symptoms. A Web of Science search for "hypnosis AND haemophilia" (or "hemophilia") lists only nine results in total, eight of which are pre-1990's, the remaining one giving me a dead link through Wiley InterScience. Can someone of a pharmacology/psychology bent check out some of these alt. treatments a little further please? I am a little skeptical, although admit this is not my area of expertise and that hypnosis may reduce associated stress responses etc. Thanks, WhirlwindChemist (talk) 19:54, 18 October 2008 (UTC)
replies: text: I am confused by the discussion above, because I thought Wikipedia articles were supposed to rely on secondary, not primary sources. Although the inclusion or exclusion of any given source in the category "secondary" may sometimes be a fine judgement, it seems very clear that new research could never be considered secondary. On that basis, it seems to me that most of the section on complementary therapy as it is currently written is not suitable for inclusion in an encyclopedia. This is not to say that information about complementary medicine has to be thrown out of the article entirely, but rather that discussion of it ought to make use of both adequate editorial distance and careful objectivity. Dratman (talk) 04:33, 28 September 2014 (UTC)
thread_title:  Complementary Therapy & Hypnosis 

message: As a hemophiliac who is heavily involved in the hemophilia community, raising hemophilia awareness and advocacy, as well as serving on the board of my state's Hemophilia Foundation, I have to say that I am greatly annoyed and, in fact, offended, that the Wikipedia article on the disability that has affected my life at every level since birth is miss-spelled and has been ordained to be so by people who do not have hemophilia, nor are members of the community or are trained, medical professionals practicing hemophilia treatment. This is tantamount to me going over to the page for AIDS or pregnancy or such and making inaccurate changes to it based on some perceived expertise I have on the subject based on a couple of articles I may have read at some point. This would be completely inappropriate and disrespectful. Therefore, I am proposing a new discussion (I am inclined to simply make the change now, but will respect Wikipedia norms) regarding the inaccurate titling of this article and the need to correct it. Without any real and reasonable excuse for keeping it listed under the wrong title, then I will eventually change it anyway. Comments?  —Preceding unsigned comment added by Jeffus Maximus (talk • contribs) 22:58, 16 February 2009 (UTC)
thread_title:  Hemo, not Haemo 

message: This latest edit brings up something interesting, so I will not "fix" it.  I googled "hemophilia bleeds" and came up with nothing.  Might this be a term used within a small group only?  It seems to me that it may need to be changed... Gandydancer (talk) 17:15, 14 December 2009 (UTC)
thread_title:  Hemophilia "bleeds" 

message: I was searching for information on what ethnic groups are more likely to get this. But we DO NOT have any information on that. (At least I can't find it here.) I think someone should enter the following to improve the article:
Hemophilia occurs in all races and ethnic groups. Rates of hemophilia among whites, African Americans, and Hispanic males in the US are similar. http://emedicine.medscape.com/article/779322-overview  —Preceding unsigned comment added by 68.147.211.232 (talk) 14:18, 21 April 2010 (UTC)
thread_title:  Ethnic and racial background? 

message: Hemophilia A and B both have a normal bleeding time as tested in the clinic by the template bleeding time test, so I removed the line that said prolonged bleeding is diagnostic of hemophilia. I also added other test details that are part of the clinical signs. Junzibelle (talk) 00:05, 10 September 2012 (UTC)
thread_title:  changed Signs&Symptoms: normal bleeding time 

message: doi:10.1111/jth.12672 JFW | T@lk 20:10, 29 July 2014 (UTC)
thread_title:  ISTH definitions paper 

message: IMO this should not be the first sentence "Haemophilia, also spelled hemophilia (from the Greek haima αἷμα 'blood' and philia φιλία 'love')"
We are not a dictionary. The first sentence should get quickly to what the disease is. It should not be a discussion of the etymology of the word itself. Thus I have reverted  and moved the etymology lower in the lede. Others thoughts? Doc James (talk · contribs · email) 01:31, 2 September 2015 (UTC)
thread_title: Simplier

message: doi:10.1016/S0140-6736(15)01123-X JFW | T@lk 09:08, 8 July 2016 (UTC)
thread_title:  Lancet seminar 

message: Hello fellow Wikipedians,
I have just modified 4 external links on Haemophilia. Please take a moment to review my edit. If you have any questions, or need the bot to ignore the links, or the page altogether, please visit this simple FaQ for additional information. I made the following changes:
*Added archive https://web.archive.org/web/20080612182033/http://www.wfh.org/index.asp?lang=EN&url=2%2F1%2F1_1_1_FAQ.htm to http://www.wfh.org/index.asp?lang=EN&url=2%2F1%2F1_1_1_FAQ.htm
*Added archive https://web.archive.org/web/20080213000435/http://www.hemophilia.ca/en/10.php to http://www.hemophilia.ca/en/10.php
*Added archive https://web.archive.org/web/20090331042700/http://www.wfh.org/2/1/1_1_3_HistoryHemophilia.htm to http://www.wfh.org/2/1/1_1_3_HistoryHemophilia.htm
*Added archive https://web.archive.org/web/20091012020300/http://sciencenow.sciencemag.org/cgi/content/full/2009/1008/2 to http://sciencenow.sciencemag.org/cgi/content/full/2009/1008/2
When you have finished reviewing my changes, you may follow the instructions on the template below to fix any issues with the URLs.
Cheers.—InternetArchiveBot (Report bug) 10:45, 26 July 2017 (UTC)
thread_title:  External links modified 

message: "Prevention may occur by removing an egg, fertilizing it, and testing the embryo before transferring it to the uterus." It is not evident how this is prevention, and the link doesn't clarify it.  --2607:FEA8:D5DF:F3D9:90A5:43E0:2661:3E2A (talk) 16:10, 17 April 2020 (UTC)
replies: text: If testing shows the embryo to be afflicted, it isn't implanted. WP Ludicer (talk) 12:45, 24 July 2022 (UTC)
thread_title:  "prevention" 3rd paragraph lede 

message: The third paragraph contains the sentence, "Human embryos in research can be regarded as the technical object/process." What does that mean? Could this be rephrased to be more intelligible? WordwizardW (talk) 06:52, 24 November 2023 (UTC)
thread_title:  third paragraph 

message: What is anemia 2402:8100:2578:C24C:0:0:22AB:D213 (talk) 05:29, 15 May 2024 (UTC)
thread_title:  Bio