2. In the last 12 months, do you feel you have been involved or consulted as much as you wanted in discussions about the support or services provided to the person you care for? 1. I’m not aware of any discussions in the last 12 months; 2. I always felt involved or consulted; 3. I have usually been involved and consulted; 4. I sometimes felt involved or consulted; 5. I never felt involved or consulted. 11 6 16 19 27 Did Not Answer (or DNA) 5 13 7 19 23 32 6 3. Overall, how satisfied/ dissatisfied are you with support or services you and the person you care for have received from Social Services in the last 12 months? 1. We received any support or services from Social Services in the last 12 months; 2. I’m extremely satisfied; 3. I am very satisfied; 4. I am quite satisfied; 5. I am neither satisfied nor dissatisfied; 6. I am quite dissatisfied; 7. I am very dissatisfied; 8 0 3 5 23 10 16 10 0 4 6 27 12 19
8. I am extremely dissatisfied. 13 DNA 6 15 7 4a. Thinking about the positive and negative aspects that make up your quality of life, how would you rate the quality of your life as a whole? So good, it not be better; Very good; Good; All right; Bad; Very bad; So bad, it couldn’t be worse. 0 0 10 29 19 15 10 DNA 1 0 0 12 35 23 18 12 1 4b. Do care and support services help you to have a better quality of life? Yes/ No Yes 17 No 57 DNA 10 20 68 12 5a. Which statement best describes your level of control over your daily life? have as much control over my daily life as I want; have adequate control over my daily life; 10 25 12 30
7. As a Carer, do you face any difficulties if you want to attend events such as meetings, Forums, training sessions, etc.? Yes/ No Yes: 51 No: 14 DNA: 19 61 17 22 8. Thinking how much contact you’ve had with people you like, which statement best describes your social situation? 1. I have as much social contact as I want with people I like; 2. I have some social contact with people, but not enough; 3. I have little social contact with people and feel socially isolated. 23 29 28 DNA: 4 27 35 33 5 9. Which statement best describes how you spend your time? 1. I’m able to my time as I want, doing things I value or enjoy; 2. I’m able to do enough of the things I or enjoy with my time; 3. I do some of the things I value or enjoy with my time but not enough; 9 9 43 11 11 51
4. I don’t do anything I value or enjoy with my time. 22 DNA: 1 26 1 10. statement best describes how having help to do things makes you think and feel about yourself? 1. Having help makes me think and feel better about myself; 2. Having help does not affect the way I think or feel about myself; 3. Having help sometimes undermines the way I think and feel about myself; 4. Having help completely undermines the way I think and feel about myself. 36 17 9 9 DNA: 13 43 20 11 11 15 11.Which statement best describes how the way you are helped and treated makes you think and feel about yourself? 1. The way I’m helped and treated makes me think and feel better about myself; 2. The way I’m helped and treated does not affect 21 28 25 33
the way I think or feel about myself; 3. The way I’m helped and treated sometimes undermines the way I think and feel about myself; 4. The way I’m helped and treated completely undermines the way I and feel about myself. 14 10 DNA: 11 17 12 13 12. How is your health in general? 1. Very good; 2. Good; 3. Fair; 4. Bad; 5. Very bad. 6 22 21 19 15 DNA: 1 7 26 25 23 18 1