refers to the statements on the next few pages, so translators should avoid using ‘below’ for ‘following’. 10* Please indicate, by ticking the appropriate box, how often the following statements have been true for you. The respondent should a tick/checkmark (or box in the relevant countries) in the appropriate box to indicate how often/frequently the following statements have been true for them during the past 2 weeks – in other words, how often the respondent’s situation or experience has matched what is described in the statement. OK 11 ALSAQ-5 © Isis Innovation Limited, 2000.All rights reserved. / © Isis Innovation Limited, 2000. All rights reserved. This is a copyright notice, stating that the copyright for the ALSAQ-5 or ALSAQ-40 is held by Isis Innovation Limited. All rights associated with the copyright are reserved by the copyright holder. Note to Developer: Please could you advise whether you would like us to translate ‘All rights reserved.’, or whether the whole copyright line should remain in English? Developer: The copyright line should remain in English. PharmaQuest: This line will be left in English and omitted from further reports. 12* The following statements all refer to certain difficulties that you may have had during the last 2 weeks The statements that follow all refer to/are about certain/particular difficulties that the respondent may have had/experienced during the past 2 weeks (14 days leading up to today). OK 13 If you cannot walk at all please tick If the respondent is not able to walk at all, they OK
Always/cannot walk at all. should enter a tick/checkmark (or cross if appropriate for the target country) in the box corresponding to the option ‘Always/cannot walk at all’. Note to Developer: Yes, please harmonise In this item, there is a slash after ‘Always’, but in the response option it (with ‘or’) PharmaQuest: is written out as ‘or’ (please see item 17 Thank you; item to be worded as follows: below). Please could you advise whether you would like us to harmonise this by replacing the slash with If you cannot walk at all please tick Always or cannot walk at all. ‘or’ in this item? 14* How often during the This asks how Developer: last 2 weeks have the often/frequently the following (statements) have been true for the respondent during the past 2 weeks (14 days leading up to today) – in other words, how often the respondent’s situation or experience has matched what is described in the statement. OK following been true? 15* Please tick one box for The respondent should Developer: each question a tick/checkmark/cross OK (as applicable) in one box for every question. 16 I have it The respondent has Developer: Q1 difficult to walk short distances, e.g. around the house. found it difficult to walk short distances – for example, to walk between rooms in the house. OK 17 Never These are the response Developer: R1- Rarely options . The first 4 OK 40 Sometimes options are used for question, 1 to 40. Always or cannot walk at all The last one is used for questions 1-5. Further
during the past 2 51 I have felt lonely. The respondent has felt Developer: Q31 OK 52 I have been bored. The respondent has Developer: Q32 been bored – this could refer to a lack of external stimulus to keep the respondent interested (social contact, interesting work, entertainment, etc.) or it could refer to the respondent’s lack of interest in their surroundings. I am not sure it is helpful to speculate as to the cause of the boredom, though most likely it is because they cannot engage fully with the physical and social world 53 I have felt The respondent has felt Developer: Q33 embarrassed in social situations. embarrassed in situations where they may be expected to or wish to interact with other people. OK ‘Embarrassed’ refers to feeling highly and concerned with others’ perception of oneself, and includes a feeling of unwanted exposure in of other people. 54 I have felt hopeless The respondent has felt Developer: Q34 about the future. hopeless/had no hopes for the future. Felt the future offered no hope. 55 I have worried that I The respondent has Developer: Q35 am a burden to other people. worried/been concerned that they may be a burden to other people. OK A burden is something that is borne (carried, figuratively) with difficulty, so effectively the respondent is worried about causing difficulties for other people due to their condition. 56 I have wondered why The respondent has Developer: Q36 I keep going. wondered/asked themselves why they keep OK