support, supported living, respite care and carer support. This funding may be used to purchase support from contracted providers, or can be accessed through an individualised funding arrangement. Some disabled people, families and whānau may also access Participation and Inclusion funding, which covers specialist employment and community participation services and very high needs funding from the Ministry of Social Development. Children and young people living with a disability may access Ministry of Education Ongoing Resourcing Scheme (ORS) funding and Transition funding. The key components of the EGL Waikato Demonstration are: Co-design: The first year of the Demonstration in the Waikato brought together the EGL Waikato partners to co-design and build community awareness of the Demonstration in preparation for delivering the components outlined below. Tūhono/Connector engagement: EGL Waikato staff assist participants to think about where they’re at, make links and connections in the community, make their plan, understand their budget, and link with the information and support that they choose to work towards their vision of a good life. Building community connections: The Tūhono/Connector and the EGL Demonstration team help disabled people, families and whānau to or extend their connections with the community. Supported self-assessment (SSA) and planning: processes help participants, family and whānau, and their Tūhono/Connector to understand what resources are required to support participants to plan for and live the lives they want, as reflected in their personal plans. Participants can complete the SSA by themselves or receive support from their Tūhono/Connector to think about what is needed to live their good life. Pooled personal budget: A person-centred funding allocation is linked to a participant’s plan and supported self-assessment, and each person controls how this is spent to create a good life for themselves. Participants can either self-manage their personal budget or engage with a host to manage the budget. EGL brings together funding from government agencies – the Ministries of Health, Education and Social Development – in a pooled funding package that can be used in different ways to see disabled people, families and whānau plan for the lives they want. Figure 1 below provides an overview of the pathway participants move along when they engage with EGL Waikato. Following the design and
The qualities identified are summarised Values Reflects, models and mirrors the EGL principles: Self-determination Person centred Beginning Mana enhancing Ordinary life outcomes Easy to use Mainstream first Relationship building Attributes Spark, energy Fresh ideas Willingness to listen Empathy Encouragement Responsiveness Presence Flexibility Optimism Future focus Innovation Creativity Willingness to walk alongside Commitment to deliver – do what they say they will do Willingness to help Consistency Trustworthiness Skills and knowledge Ability to build effective relationships Sound facilitation skills Ability to network and connect into new spaces Awareness of possibilities on creating opportunities Flexibility Cultural responsiveness Excellent communication skills Sound knowledge base – of the sector, community, EGL systems (planning, budget management) Participant experiences of working with Tūhono/Connector Overall, participant interviews identified that:
Evaluative rubric used in analysis EGL Principles EGL Waikato Demonstration Implementation Criteria EGL Waikato Outcomes Criteria EGL Christchurch Quality of Life Domains Disabled People Families and Whānau Self- Determination The EGL Waikato Demonstration increases and supports disabled people, and their families and whānau to have control of their lives. I am in control of my life and what happens to me. I can say what I want and carry out my choices and decisions. Family and whānau are empowered to express their goals and aspirations and those they care for. Self-Determination Autonomy/personal control Goals and personal values (desires, expectations) Choices (opportunities, options, preferences) Person-centred Disabled people, and their families and whānau have increased choice and control over supports. These supports take a whole-of-life approach over time and are tailored to their needs, goals, and aspirations. I control and direct my life, including my disability supports. I can choose who can assist me with my support. Supports work for me when and how I want them. I can do things that are important to me. Supports work for families and whānau when and how they want these. EGL Principles EGL Waikato Demonstration Implementation Criteria EGL Waikato Outcomes Criteria EGL Christchurch Quality of Life Domains Disabled People Families and Whānau Beginning early The EGL Waikato Demonstration ensures that their core systems I have aspirations and can plan for them. Families and whānau are aspirational for their child’s life and future.
community connections, supported and planning, and personal budgets) are accessible, flexible and easy to navigate. I am in control of my life and what happens to me. I have the supports I need, when I need them. We have access to support and funding that contributes to our family and whānau living the life we want. We are known and connected in our community. Mana enhancing EGL Waikato demonstration creates opportunities for the abilities of disabled people; values the abilities and contribution of disabled people and families and whānau. The contribution I can make is recognised and respected. I can contribute to the lives of others and to my community. EGL Waikato is culturally respectful of me. The abilities and contributions of families and whānau are recognised and respected. EGL Waikato is culturally respectful of our family and whānau.
Self-concept (identity, self-worth, Lack of stress (predictability and control) Safety and security Spirituality/ culture Physical Well-Being Health and wellness (functioning, symptoms, fitness, nutrition) Activities of daily living (self-care, mobility) Physical activities including recreation Material Well-Being Financial status Employment status; job-related skills and behaviours Housing status Having possessions Personal Development Education (achievements, education status) Performance (success, achievement, productivity) Personal competence (cognitive, social, practical skills) Ordinary Life Outcomes The EGL Waikato Demonstration supports equity and citizenship for disabled people, families and whānau. I am supported to live an everyday life in everyday places, like others at similar stages of life. I have citizenship rights, including opportunities for learning and contribution, having a home and family, friends and connections and employment. Families and whānau are supported to live an everyday life in everyday places. EGL Principles EGL Waikato Demonstration Implementation Criteria EGL Waikato Outcomes Criteria EGL Christchurch Quality of Life Domains Disabled People Families and Whānau Easy to use The EGL Waikato Demonstration ensures that their core systems community connections, supported I find the EGL system easy to use and flexible. I have supports that are simple to use and flexible. We find the EGL system easy to use and flexible. We know how to and can access all the information
and planning, and personal budgets) are accessible, flexible and easy to navigate. I know how to and can access information, support and funding at the time I need it. I have one plan and one amount of funding. our family and whānau needs. We have one plan and one amount of funding. Mainstream First Disabled people, families and whānau are supported to access community options, connections and services before specialist disability services. I am known and connected in my community. I know how to and can access all the information at the time I need it. Community options, connections and services that are for everyone can be used before disability services. We know how to, and can access all the information our family and whānau needs. We are known and connected in our community. Community options, connections and services that are for everyone can be used before disability services. EGL Principles EGL Waikato Demonstration Implementation Criteria EGL Waikato Outcomes Criteria EGL Christchurch Quality of Life Domains Disabled People Families and Whānau Relationship Building EGL Waikato builds and strengthens relationships between EGL Waikato Partners – disabled people, families and whānau, community and government. I can build strong relationships that are important to me. I can contribute to the lives of others and to my community. We are known and connected in our community. We know how to, and can access all the information our family and whānau needs. Interpersonal Relations Interactions (social networks, social contacts) Relationships (family, friends, peers) Supports (emotional, physical, financial) Social activities Social Inclusion Community integration and participation Community roles (contributor, volunteer)