There are many voluntary organisations concerned with special educational needs and disabilities, some also have online forums and local groups. The majority of organisation listed below able to give independent support when parents and/or carers require information and advice. They provide information to parents, carers, children and young people from within their own expertise, this information may be on their website, telephone, in writing or in person. There are also some company’s in the list below that provide products that may be useful to parents of children with SEN and/ or disabilities. ORGANISATION DESCRIPTION CONTACTS Provides advice and information about how computers and other digital technologies can help people with a range of conditions and impairments. Has a range of free downloadable factsheets and provides a helpline. Website: Helpline: 0800 269 545 Use the on the site Specialises in the design and manufacture of clothes for wheelchair or for anyone who has problems in finding essential clothing that fits properly. Website: Provides a website with extensive information and advice Website: Provides info & experience in microelectronics as an aid to communication. Services inc. Detailed assessments of individuals & software development & multi-disciplinary training. Website: Email: Provides information, advice and support to people made chronically ill through allergy and those who care for them Website: Helpline: 020 8892 2711 Email:
Provides information and advice in relation to Allergies. Online information includes Allergy resources for schools Website: Allergy Helpline: 01322 619898 Online resource about bullying and how to deal with it. Website: Provides support & info for families, carers, children & young people with speech & language impairments. Also see-I CAN Website: Helpline: 0300 666 9410 (Monday and Tuesday, 9.15am - 2.30pm Wednesday, Thursday and Friday, 10.30am - 2.30pm) Or email using their Offers cheerful support to young people with ME and their families. Has a medical, educational and psychological advisor and primarily exist to support our members and put them in touch with each other so they don’t feel so isolated. Membership free to sufferers under 25yrs of age Website: Helpline: 0330 2211223 (Monday to Friday, 10am - 2pm) Email: Offers help & advice to sufferers & carers. Produces literature on all aspects of asthma. Asthma nurses man the helpline Website: Helpline: 0300 222 5800 (Monday to Friday 9am to 5pm) For non medical enquiries only Email: ATAXIA – 16/30 a central nervous system disorder Provides info, advice & support to sufferers, their families, carers & professionals. Quarterly mag, info leaflets, videos & helpline. Website: Helpline: 0845 644 0606 (Monday-Thursday 10:30am-2:30pm) Email: Free online information and resources Website: Provides information, advice & support for people and their Website:
families affected by anorexia & bulimia. is open to anyone over 18. Parents, teachers or any concerned adults should call the adult helpline. is open to anyone under 25. Help for adults Helpline: 0345 634 1414 (Monday to Wednesday, 1pm to 4pm) Email: Help for people Youthline: 0345 634 7650 (Monday to Wednesday, 1pm to 4pm) Email: Provides information and support to enable blind and partially sighted children and young people to achieve their educational and recreational goals. Website: Support line: 0800 781 1444 Believes that deaf people have the same rights to quality education as any citizen throughout their lives which accepts their linguistic, cultural and social identity. closely with other organisations in ensuring that the rights of deaf people are considered in all avenues of their lives. Website: Tel: 020 7697 4140 SMS / FaceTime: 410 724 ooVoo / Skype: bda.britdeafassoc (Video call available 12pm to 5pm, Monday to Thursday only) Email: National umbrella organisation aiming to support & inform with regard to dyslexia / specific learning difficulties. Info, advice & support. Website: Helpline: 0333 405 4567 (Tuesday, Wednesday & Thursday:10am-1pm) Email: . Offers support and impartial information to all lives are affected by stammering. Website: Helpline: 0845 603 2001 Email: Provides non-medical services to families affected by childhood acquired brain injury across the UK. Website: Helpline: 0303 303 2248 Email: Provides advice & information on education for all children and Website: