8=Declines to Respond 9=Not stated Family history of breast cancer Whether a first degree female relative of the woman has had a diagnosis of breast cancer. If multiple first degree female relatives of the women had a diagnosis of breast cancer, the value will be derived as ‘yes’, without associated to any given relative. A first degree female relative is a mother, sister or daughter. 1=Yes 2=No Family history of breast The relationship of the client’s family member who has had a diagnosis of breast cancer to the client. This does not correlate directly with data element Family history of breast cancer 1=Mother 2=Sister 3=Daughter Family history of breast cancer—age at diagnosis Age (when diagnosed) of the person in the client’s family who has had a diagnosis of breast cancer. 9999=Unknown age Family history of breast Laterality of the breast cancer diagnosed in the client’s family member. This does not correlate directly with data element Family history of breast cancer or relationship 1=Unilateral 2=Bilateral 3=Unknown Previous history of breast cancer Whether or not the client has had a previous diagnosis of breast cancer, including ductal carcinoma in situ. This information is based on the client’s at each visit and is retained for each visit. 1=Yes 2=No Previous history of breast The year in which the client’s previous breast cancer was diagnosed YYYY Round number The number of the most recent screening round for a particular presenting woman, within the State/Territory BreastScreen Program. NN Symptom status Self-reported breast lump or nipple discharge (clear or blood stained) or other 0=No symptoms reported
breast symptoms (for example dimpling of the skin of the breast) of which the woman is aware prior to screening and which she reports at the time of screening. 1=Lump 2=Nipple 3=Nipple stained breast symptoms, please specify 9=Not stated Screening Visit Segment Appointment Booking Date The date an appointment was made by the woman, or someone on her behalf. DD/MM/YYYY Date of first attendance for this episode The date the presenting woman first attended for screening, this episode. DD/MM/YYYY The recommended action following the client’s to the screening unit for this episode. 1=Routine rescreen 2 years 2=Routine rescreen 1 year 3=To assessment centre for mammographic recall only 4=To assessment centre for reasons 5=To assessment centre for combined recall Assessment Visit Segment Date of first attendance for assessment The date the woman first attended for assessment, for this episode. DD/MM/YYYY Percutaneous needle biopsy performed Whether or not a percutaneous needle biopsy was performed, including details of the type of needle biopsy performed or the reason why a needle biopsy was not performed. 1=Yes, fine needle aspiration 2=Yes, core biopsy, non-vacuum assisted 3=Yes, core biopsy, vacuum assisted
woman’s right breast, or whether both breasts are involved. Surgical treatment The definitive outcome of the surgical treatment. Unknown (code 9) is to be used only after attempts to seek a result have failed. 1=No decision 2=No decision II/III Axillary Dissection 4=Level I Axillary Dissection 5=Axillary Node Sampling 6=Sentinel Node Biopsy 7=Complete local excision 8=Total mastectomy 9=Unknown Radiotherapy Whether or not radiotherapy was as a part of the treatment regime. Unknown (code 9) is to be used only after attempts to seek a result have failed. 1=Yes, primary 2=Yes, adjuvant 3=No 9=Unknown Chemotherapy Whether or not chemotherapy was given as a part of the treatment regime. Unknown (code 9) is to be used only after attempts to seek a result have failed. 1=Yes, primary 2=Yes, adjuvant 3=No 9=Unknown Metastasis—distant Whether or not there was evidence of distant metastasis at the time of primary treatment. Unknown (code 9) is to be used only after attempts to seek a result have failed. 1=Present 2=Not present 9=Unknown Death segment Date of Death Death segment DD/MM/YYYY Underlying cause of death The underlying cause of death of the woman. Caveat: due to the lack of information provided by ABS/RBDM, this information has not been populated since 2013. 1=Breast cancer 2=Other