You have had a stroke You are a carer of someone who has had a stroke Your stroke affected your communication You find it hard to write You had treatment for your stroke in xxxx Hospital Who is doing the research? The manager of this research is Helen Rodgers The main researcher is Gill Pearl
The research is run from the xxx university/hospital The National Institute for Health Research is paying for this research Why are we doing the research? There is therapy for coping after stroke Psychologists give this therapy We don't know enough about it This research will help us to learn more There is a new drug This is for shoulder pain after a stroke We need to test this
We need to know more it How can we stop strokes from happening? Research can test new ways to give therapy We can find out what works best People get help after a stroke Can we help people in a better way? You had help after your stroke What was good? What could be improved? a stroke some people can’t use their hand It is hard to move the fingers Occupational therapists may help
We want to compare two different ways We want to know is best Treatment A is xxx Treatment B is xxx We want 200 people to take part Half the people will have treatment A Half the people will have treatment B The computer decides This is like flipping a coin You would not know which you get You will have some tests You will have the treatment This will last for xxx months/weeks Then you will have more tests
The researcher will look at the results They will learn about the treatment We want to talk to xxx people We will ask xxx after their stroke We will use what they tell us Then we will learn more What will I have to do? In the research you will have an interview answer some questions
We will send you a questionnaire You can do this at home Tell us if you need help We will help you We will take photographs/video recordings/sound recordings This helps us to remember what you said This helps us to measure any change Only the researchers will see the photographs/video They will be kept safe
Where will the research happen? The research will happen in several hospitals These hospitals are in the UK The research will happen in Newcastle University You will need to stay in hospital for this research You will stay for 1 day You will need to hospital for the research appointments You will not stay overnight You will go to a clinic A researcher will visit you at home How long will the research last?
The whole research will last for xxx years/months Your part will last for xxx years/months You will have appointments every xxx/once a week/month Will I get paid? You will not get paid for taking part in the research We will pay for your travel to any appointments. We will pay for any expenses for attending the appointments We will give you vouchers if you take part We will give you some money This is to thank you Some appointments will last a long time
We will give you meals Do I have to take part? You can decide You don't have to If you don’t take part you will still get your normal help If you change your mind, you can stop at any time You don't have to give a reason If you stop you will still get your normal help You don't have to decide now, you can think about it You can take your time
This helps with other research about stroke We will take out your name and personal details We will tell your doctor that you are in this research project What might be good about taking part? You may be helped by the therapy/treatment You may enjoy taking part You may find it interesting You will help people in the future They will get better help
You will help us to learn This may prevent strokes in the future What might be difficult about taking part? We don't think it is dangerous however the therapy may not help you There may be some side effects You may find it tiring You may find it distressing It will take up your time
The University has insurance What will happen after the research? The researchers will look at the results They will learn more about xxx What will happen to the results? We will give you the results of the research We will share the results with researchers at conferences and meetings through newsletters and magazines
You may want more information Contact xxx They will answer your questions Let us know if you want to take part You can contact us at xxxx If you decide to take part you will need to sign a consent form This says that you understand the research and you agree to take part We will contact you We will ask for your decision Yes I want to