Overview of institutional services for persons with disabilities (2014) Table 1: Typology of institutions TYPE OF SERVICE SIZE AGE TYPE OF LEVEL OF SUPPORT PROVIDED LENGTH OF AGE OF SERVICE Centros para personas con discapacidad física (CAMF) (Centres for Physically Disabled Persons) Residential services and day centre services Over 100 places Physical 24 hour support provided save for 48 places, which only cover daytime support National Over 2 years 10-50 (generally around 25) Centros Estatales de Promoción de la Autonomía Personal (CRMF) (Centres for the Promotion of Personal Autonomy) Residential services 30-100 places Physical and sensory the former 24 hour support, save for weekends and holidays, when they go back home National Over 2 years 10-50 years (generally around 25) al Adult Adult
Hogares o Residencias Temporales o Permanentes para Discapacitados Intelectuales (Temporary or Permanent Homes for Persons with Intellectual Disabilities) Residential services 30-100 places, but in fact the figure is much closer to 100 than to 30 24-hour support provided Mixed Mixed Mixed lengths of or 10-50 years Hogares o Residencias Temporales o Permanentes para Discapacitados Físicos (Temporary or Permanent Homes for Persons with Physical Disabilities) Residential services 30-100 places, but in fact the figure is much closer to 100 than to 30 Physical 24-hour support provided Mixed Mixed Mixed lengths of or 10-50 years Hogares o Residencias Temporales o Permanentes para Enfermos Mentales (Temporary or Permanent Homes for Mentally Sick Persons) 30-100 places, but in fact the figure is much closer to Mental health problem 24-hour support provided Mixed Mixed lengths of or 10-50 years y y Adult Adult Adult
Residential services 100 than to 30 Viviendas con Apoyo o Tuteladas para Personas con Discapacidad (Sheltered Housing for Persons with Disabilities) Residential services 6-10 places Mixed 24-hour support provided Mixed Mixed Over 2 years 10-50 years Viviendas Supervisadas para Personas con Enfermedad Mental (Sheltered Housing for Mentally Sick Persons) Residential services 6-10 places Mental health problem 24-hour support provided Mixed Over 2 years 10-50 years Viviendas autónomas para Personas con Discapacidad Intelectual (Independent housing for Persons with Intellectual Disabilities) Residential services 6-10 places Persons with 24-hour support provided Mixed Mixed Over 2 years 10-50
Centros de Día para Personas con Discapacidad Intelectual (Day Centres for Persons with Intellectual Disabilities) Non-residential centres 30-100 places Persons with Daytime support provided Mixed Over 2 years 10-50 years Centros de Día para Personas con Discapacidad Física (Day Centres for Persons with Physical Disabilities) Non-residential services 30-100 places Persons with physical Daytime support provided Mixed Mixed Over 2 10-50 years
Table 2: data sources TITLE/ REFERENCE ORGANISATION COLLECTING DATA YEAR OF DATA PERIOD COVERED BY THE DATA FOR DATA SCOPE OF DATA SERVICE SCOPE OF DATA Please include: title of the survey, data set, study, report, administrative document etc, including full reference with URL if available Name of organisation/ institution that collected the data. Type of organisation e.g. government ministry, local authority, national statistical office academia, NGO Year when data was Time period covered by the data/ report Desk research, visits to design, sampling, data area, region, federal state, Services for people with mental health services for people with services for older people, services
for large homes etc Guía de Recursos de Atención a la Discapacidad, (GRAdis), (Guide of Resources for Disability Attention) (Not available until after this summer, the URL link is an announcement) Government ministry (Ministry of Health, Social Services and Equality) 2014 The document will describe the current services data National level for persons with provided by both private and public Beneficios ayudas a las personas con discapacidad, Febrero 2014 (Benefits and grants for persons with disabilities) (Not available on the internet) Office for Disability Attention (Oficina de Atención a la Discapacidad) (OADIS), government ministry (Ministry of Health, Social Services and Equality) 2014 The document describes the current services as in February 2014 data National level Homes for physically disabled persons (this is the only relevant children ,
Registre d’Entitats, Serveis i Establiments de Serveis Socials (RESES) Register of Organisations and Establishments providing social services) Catalan government department (Department of Social Welfare and Family) It is regularly updated The data set describes the current institutions and services when they were consulted by us (Summer 2014) data Catalan level Social services and settings for all kinds of Encuesta Discapacidad, Autonomía Personal y Situaciones de Dependencia (Survey on Disability, Personal Autonomy and Dependency Situations) National Statistics Institute (Instituto Nacional de Estadística) (INE) 2010 2008 Sampling National level Health and social benefits for disabled in terms of those receiving them or in need of them individual
Overview of community-based services for persons with disabilities (2015) 3: community-based services for persons with disabilities Type of service Please provide the name of the type of service in the national language and a translation into English Please indicate if the types of services presented below are given a different name in your country Yes/ No Please indicate if this type of service is available in your country Profile of the users age (children, adults or older persons) type of disability (physical disability, intellectual disability, psycho-social disability, deaf or hard of hearing, blind) Explanatory information For each type of service, please provide a description of: the type and level (i.e. 24 hour, daytime, weekends, etc.) of support the service provides; location of the service (i.e. city, town, rural areas); who is eligible for the service who is typically the provider and funder of services (i.e. national government, local government, municipality, NGO, Extent to support is For each type of service, please provide information about the extent to which users control the support provided. Can individuals using the service: recruit and manage staff providing support; determine the activities for which support is needed; If data are available, please specify number of services operating in the country and the number of users Please provide a full reference for this data, including information the period covered by the data. Please indicate, if data is
provider, except for Andalusia. They use PEVS only to pay Day Care Center or Residential Service and the amount of PEVS is not enough money .to purchase more than one service By the end of 2010, 52,402 persons received PEVS (6.71% people in SAAD, which were 654.499 people) Earmarked cash payment for personal assistance (Prestación Económica de Asistencia Personal, PEAP) Yes, but it does not provide full coverage of the needed and it is incompatible with any other service or cash payment in SAAD. It is possible to receive it with all ages, all types of disability and all grades of dependency Typically adult age Typically physical disability PEAP is provided by the Autonomous Community of residence but it is funded by the and the Autonomous Community 50-50 Amount can be shortened depending on income and personal wealth. Such reductions are fixed by each Autonomous Community and may reach 90%. Maximum amounts are: PEAP is released once a contract is presented at the Autonomous Community. Users choose services or individuals authorized by the Autonomous Community and can terminate the agreement with the contractor if they prefer another one. 1,883 persons receiving PEAP (0.20% people in SAAD) by the end of 2014 (1,572 of them in País Vasco). The number has increased every year. By the end of 2013, 1.441 persons
Grade III 715.07€/month Grade II 426.12€/month Grade I 300.00€/month Only personal assistance can be purchased with PEAP, whereas with PEVS you can purchase any service except for personal assistance. received PEAP (0.15% people in SAAD) By the end of 2012, 1.280 persons received PEAP (0.13% people in SAAD) By the end of 2011, 874 persons received PEAP (0.10% people in SAAD) By the end of 2010, only 735 persons received PEAP
(0.09% people in SAAD). Out of SAAD Biscay (Basque Country), Madrid and Andalusia have small size complementary services Biscay: Service for Support to Independent Living (SAVI, Servicio de Apoyo a la Vida Independiente) Biscay: Yes Biscay: 1)Persons in a situation of dependency and their families to receive information, orientation and advice regarding Biscay: A DPO manages the service and provides the information, orientation and advice Biscay: The person and the family decide which information and orientation they want to receive. Biscay: Service has started in 2014
Independent Living. 2)Persons who receive PEAP to receive additional hours of personal assistance. The same DPO provides complementary of personal assistance with the aim that independent living is possible. It is funded by the Biscay provincial Government (Diputación Foral de Vizcaya). They elaborate plans of support for Independent Living prioritizing free election by persons and real The user needs to be able to decide which services he/she needs and to control and give instructions to the personal assistance (therefore is not offered in principle to people with important intellectual disabilities) 32 people received complementary hours of personal assistance by December 31st 2014.
Madrid: The Office for independent Living (Oficina de Vida Independiente, OVI) Andalusia: Pilot Project of Personal Assistance (Proyecto Piloto de Asistencia Personal) Madrid: Yes Madrid: Aduls with physical disability and grade of dependency recognized. availability of services and resources. They elaborate plans of independent living to people receiving PEAP. They create a group of professionals to carry out the personal assistance. Madrid: Support to Independent living by of personal assistance. Maximum 11 hours a day. Madrid: Users recruit, manage staff, determine the activities for which support is needed and how budget is used. Madrid: 60
Andalusia: Yes Andalusia: Persons older than 16 years old with a grade of disability of 75% (exceptionally 65%) ande situation of dependency recognised., The service is provided in Madrid Persons with an active life are eligible. The service is funded by Madrid regional Government. Andalusia: It is a personal assistance service for `people living in Andalusia. User must be able to give instructions to the assistant . Users of Residential services, Day care centers and Occupational centers are not eligible. People receiving PEAP, PECEF Andalusia: Personal assistant is employed by the user or by a company or DPO. User determine activities for which support is needed. Andalusia: 6 users, whereas there are 10 persons receiving PEAP in Andalusia
economic crisis. It is not a universal service. We have requested information to 4 CCAA. Biscay (Basque Country and Madrid have answered) – see separate rows below. Biscay – Residences (Residencias y Viviendas) Yes - Biscay Biscay: Their residences (Residencias y Viviendas) have usually between 8 and 25 users. There is some old residence of 70 users who are people with severe intellectual Biscay: They offer a permanent or temporary accommodation to people with ‘no other options of lighter accommodation because of their need of intense support Objectives: 1. To create a living group which helps each user to Biscay: Individualisation as key value as services which provide support to persons. Planification centered in person. Biscay: Residences (Residencias y Viviendas) 1,155 places inside Biscay and 230 places outside Biscay (in other provinces).
recognition process although no grade of dependency has been recognised. Favour relationship with family and friends Services funded by the Biscay provincial Government. Management of services by DPOs. Madrid: (residences are not small scale, only home groups can be considered as CBSs). Yes – Madrid Madrid: Home groups for people with intellectual disability (Viviendas Comunitarias para personas con discapacidad intellectual) Madrid: They provide accommodation, food, personal and social assistance, and leisure activities. Users attend Occupational centers or a Special employment Madrid: No self direction has been reported. Madrid Regional government is starting to implement Planification centered in person in their own centers, Basque Country is Madrid: 355 places.
3 or 4 users with a mental illness. Madrid: (residences are not small scale, only home groups can be considered as CBSs). Yes – Madrid Madrid: Supervised places in hostels for people with mental illness and good autonomy but no money nor family. Madrid: Accomodation and needs. Madrid: No self direction has been reported 35 places. Madrid Service of transition to Independent Living (Servicio de transición a la vida Independiente STVI) (Temporary Home groups) Madrid Yes Madrid People between 18 and 40 years old with physical disability and no intellectual disability. Madrid It is a residencial service of maximum 2 in two adapted flats to acquire independent living skills. Madrid People do not recruit or manage staff but are involved in the design f the Individual Plan and cose what they need. They sign a document Madrid: 7 people per year
People living in Madrid, with social skills, who are receiving training, looking for a job or starting in a new job are eligible. It is managed by a DPO and funded by the Madrid regional Government getting obliged to participarte and remain in the programme for two years. In-home, both home help and home care service (ayuda a domicilio) Yes, in all Spain and older persons. Personnel are trained to care for old people, not to support for example a young person with intellectual disability or autism. A number of hours are allocated by the Autonomous Community (if admission is through SAAD) or by the town hall (if admission is through the town hall). Offered both in cities and rural areas. The number of In-home hours in SAAD is the following: Users choose timetable excluding weekends when there is no service. 132,597 persons receiving (14.26% people in SAAD) by the end of 2014. The number has increased every year (except for 2013 that decreased).
% people in SAAD) By the end of 2010, 90,912 persons received (11.64 % people in SAAD) Day care centres: there are two cathegories: Day Centres (Centros de Día) Ocupational Centres (Centros Ocupacionales) Yes, there are in all Spain. They are not community oriented in general Day Centres: offered to adult and older persons with great needs of support Occupational Centres: offered to adult persons with Service is offered daytime, form Monday to Friday or several days a week. Offered in cities. Funded by State and CCAA but users pay Users can choose the centre they want to go, but there must be places free. There are not separate data of Day care centres and Occupational Centers. Data of both types of centres are globally given under the name home
By the end of 2011, 58,030 persons received centres (6.32% people in SAAD) By the end of 2010, 44.610 persons received centres (5.71% people in SAAD) Family support / Respite care (provides supports to carers in their caring role and allows them to have a break, may be formal or informal, and may be provided in the Yes there are PECEF all over Spain All ages, all types of disabilities, all grades of dependency. is provided by the Autonomous Community of residence but it is funded by the State and the Autonomous Community 50-50 Users (or their families) decide how to use the money. There has been misuse during the economic crisis and form August 1st 2012 PECEF has been 374,348 persons receiving PECEF (40.25% people in SAAD) by the end of 2014. The number has increased every
home or out of the home) Cash payment to cover family care (Prestación Económica por Cuidados en el entorno familiar, PECEF) Amount can be reduced depending on income and personal wealth. Such reductions are fixed by each Autonomous Community and may reach 90%. Maximum amounts are: Grade III 387,64€/month Grade II 268.79€/month I 153.00€/month restricted, and amounts reduced at least 15% depending on the Autonomous Community. Some independent living activist call as ‘house arrest” because it does not provide services to facilitate participation in the community They are provided only if the social worker who represents the Autonomous Community thinks year until mid 2012 and is decreasing from then. By the end of 2013, 408,401 persons received PECEF (43.21 % people in SAAD). By the end of 2012, 426,810 persons received PECEF (44.46 % people in SAAD). By the end of 2011, 417,782
Respite care (Servicios de respiro) Yes there are respite services but limited and normally not provided in SAAD but by DPO´s with some public Respite services are usually offered to families of persons with great need of support. No data available. No data available. No data available.
economic aids. Two examples (Biscay and Andalusia are given below) Biscay - Respite care (Servicios de respiro) Biscay: Yes, out of SAAD Biscay: Families of persons with disabilities Biscay: ways: Leisure activities for persons with disabilities which provide respite to families Temporary accommodation for respite or emergency situations A persons takes temporal care at the domicile of the person with disability so that Biscay: Users choose when they receive the service Biscay: 26 places 28 places 77 places.
the family carer has respite. Andalusia: Respite care (Servicios de respiro) Andalucía: yes out of SAAD Biscay: People with disabilities older than 16 years old Andalusia: 24 a day in residences in periods between 24 hours and a month, which can be extended. Both in and rural areas. must have grade of disability and grade of dependency.. Funded by the Andalusia regional government and managed by DPOs in 90% of services Users choose when they want to receive the service. In 2014 were 21,688 respite stays (each day is counted as one stay) in 55 residential centers, in 142 places. There has been no decrease during the last five years. Foster care (Acogimiento familiar) Yes, there are, but there are no public data. Requested to four CCAA Children, all kinds of disability Managed by CCAA, less support to foster families, due to economic crisis. No self-direction No data available, only Andalusia has reported that in 2014 ther were 299 in
foster care in Andalusia Informal support (Apoyo informal) Yes, of course it exists but it cannot be considered as a service All ages and all kinds of disability No funding can be depending of the personal network No data available Peer support/counselling (provided by with the counsellor and the client having equal status, and sharing experience and assistance in gaining independence and Selfmanagers (Autogestores) Yes, there are, but it is rather a community than a service persons with intellectual disability Meeting once a week. DPO´s create the groups There is self direction No data available