Schedule of papers 2014 Buildings: GF = George Fox CC = Charles Carter Tuesday 9th September Paper Session A 13.30-15.00 (90 minutes) A1 Anat Greenstein Venu Venue: GF1 GF1 GF1 Goodley Dan and Katherine Runswick-Cole Becoming Thinking about the human through disability in a time of austerity Donna Reeve Homo sacer, states of exception and zones of indistinction: An analysis of disabled people’s experience of welfare reform in the UK Susie Balderston Assisted Suicide, Prosecutions and Advance Directives: A problem of policy, practice and PACE in Europe. A2 John Bertelsen GF2 Birgit KirkebÆk, John Bertelsen and Bente Dunker Bertelsen The concept of dignity in a new and historical context- or: the return of the rhetoric of morality Emmeline Burdett The Nuremberg Medical Trial and Disability Studies Nancy Hansen Disabled Academics Reshaping the Research Landscape A3 Claudia Malacrida Venue: GF3 Ikanshi Khanna [via In Search of Intimacy: Experiences of Persons with Physical Disability Anna The Right to Sex: Legal Capacity Law and Sexual Decision-Making Giulia Garofalo Geymonat When Stigmas Meet. The Making of Sexual Assistance in Europe A4 Chair: Lindsay Coyle Josephine Foubert, Ronan Van Rossem and Katia Levecque Same consequences for everyone? The socially and relationally structured influence of chronic illnesses on
Lindsay Exploring the diagnosis, treatment and care experiences of people living with multiple disabilities/ illnesses/ conditions Helene von Granitz Core of Content - What constitutes perceived quality of personal assistance? A5 Alan Roulstone Venue: GF5 Abigail Pearson Reasonable adjustment: The Golden Goose or the Cuckoo in the Nest of Equality? Ieva Eskyte Translating accessibility perspectives of the private market and Disabled People Organisations Frederike Scholz Disability discrimination and the recruitment process: responding to legal and technological developments A6 Chair: Emma Palmer CC A16 Dawn Benson Birth Injury, Disabling Families and Enabling Human Factors Sandra Dowling, Berni Kelly and Karen Winter Abuse, risk, and safeguarding disabled looked after children. A7 Chair: Sue Cranmer Venue: CC A15 Patrick Kermit, Anne Mali Tharaldsteen and Gry Mette D. Haugen Adolescents with sensory impairments in ordinary classrooms – different notions of “participation” and “inclusion” Snæfrídur Thóra Egilson School experiences of pupils with physical impairments over time Palan “I seriously wanted to opt for Science but they said no”: ‘Access’ to Higher Education for Students with Visual Impairments in India A8 Chair: Val Williams Venue: CC A17 Oliver Mutanga Collision of identities: An analysis of race, class and gender among disabled students at two South African universities Zoe Aitken, Anne Kavanagh, Lauren Krnjacki, Anthony Lamontagne, Andrew Beer, Mapping the intersections between disability, type of impairment, gender and socio-economic disadvantage
Emma Baker and Rebecca Bentley David Abbott and Marcus Jepson 'It's not even gender neutral, gender's not even in Men with Duchenne muscular dystrophy and interactions with social care A9 Mad Studies Stream Chair: Peter Beresford & Brigit McWade Venue: CC A19 Jijian Voronka, Kathryn Church and Lucy Costa Symposium: Making Mad Studies in Canada: process, practice, and contestations Paper Session B: 15.30-17.00 B1 Xirong He Venue: GF4 Åsa Alftberg Experiences of soundscapes for individuals with cochlear implants Amanda Taylor and Gerasimos Chatzidamianos The silent corner of mental health and Deafness: An interdisciplinary dialogue Xirong He Hearing parents raising their deaf children on the journey to mainstream schools in Beijing, China B2 Chair: Sue Cranmer Venue: GF5 Delia Ferri and Jenni Kline Fostering the Production of Assistive Technologies in Europe: A Multidisciplinary Analysis Sue Cranmer What is an assistive technology? Convergence across mainstream and ‘assistive’ technologies. Peter Fuzesi Designing dis/abilities B3 Chair: Katherine Runswick-Cole Venue: CC A15 Susan Eriksson Deviance, normalcy and tales: performances of sexuality of disabled people in autobiographical data Marta Sałkowska "We had to make it normal that she was not normal". Subjective meanings of normalcy among mothers of persons with Down’s syndrome in Norway and in Poland Amith Kumar P V ‘Crippling the crips’: Imposing ‘normalcy’ on the disabled in India
B4 Zoe Lambert CC A16 Aine Sperrin Access to Independent Living for Persons with Intellectual Disabilities in post-conflict states Rebecca Irvine Challenging perceptions of disability in the post-conflict environment: who wins? Zoe Lambert ‘You and Me’: Carer/Caree Narratives in Writing about Disability B5 Chair: Simo Vehmas Venue: GF1 Colin Cameron Disability, Normality and Absurdity Allan Sutherland and Michael Shamash From catheters to cafetieres: Disabled People and hospital food. Mark Sherry The Anti-Crip B6 Chair: Nick Hodge GF2 Berni Kelly and Theresa McShane Exploring a social justice perspective for research with disabled care leavers Emma Louise McKinney A Case-Study on Addressing the Disability Poverty Gap amongst Youth with Disabilities in South Africa. Snæfrídur Thóra Egilson and Linda Björk Ólafsdóttir Quality of life of children and with autism B7 Theresa Lorenzo Venue: GF3 Bronagh Byrne Minding the gap? Implementation of the ‘UN Convention on the Rights of Persons with Disabilities’ and disabled children and young people Theresa Lorenzo Reciprocal capacity building for inclusive development of disabled youth: experiences from South Africa Marie Sepulchre Exploring the meaning of 'community' in relation to citizenship and experiences of disability B8 Eva Eskyte Tolga Duygun Promoting Universalist Disability Policy? The Role of International Organisations and the Supranational Organisation in the Direction of Disability Policy in Turkey trial
Eiríkur Smith Adrift in the mainstream: What influences the currents of Icelandic disability policy and is it directing? Daniel Walsh, Trisha Suresh and Omar Waraich Moving from the margins: Mainstreaming persons with disabilities in Pakistan B9 Helen Davies Venue: CC A18 Alan Gregory "An Illustration from Nature's Book”: Showcasing the Storyteller's Spectacular Body in Hilary Mantel's The Giant, O'Brien Helen Davies ‘Nature cannot be surpassed by art’: The of prosthetics in the body of the soldier Hanna Björg S igurjónsdóttir Mirror, mirror on the wall B10 Chair: Helen Spandler Kate Mattheys Austerity, inequality and mental health Venue: CC A19 Brigit McWade Recovery-as-policy as a form of neoliberal Victoria Armstrong Why Mad Studies can change what the ‘Time to Change’ campaign won’t challenge Wednesday 10th September Paper Session C 11.00-12.30 (90 minutes) C1 Chair: Sue Cranmer Venue: GF1 Jon Warren and Kayleigh Garthwaite Biographies of Challenging Official Spatial Constructions of Sickness and Disability Alan Roulstone The End of Disability Voice: PiP and the Dispossessed? Imogen Disabling States: The Political Aesthetics of Disgust in Postwelfare Britain C2 Chair: Claudia Malacrida Beth Helping clients rediscover sex; the role of the Occupation Therapist Kirsty Liddiard “I never felt like she was just doing it for the money”: Disabled Men’s Intimate
Mental Health Conditions (Equality Act 2010, Section 60) Mick McKeown Alliances and activism: deliberative dialogue for framing a politics of mental health Session D: 14.45-15.45 (60 minutes) D1 Chair: Anne Kavanagh GF1 Katherine Runswick-Cole, Dan Goodley, Val Williams, Toby Brandon, Annie Ferguson, Keith Bates, Pete Crane, Wendy Crane, Laurence Clark and Jodie Bradley Disability, theory and activism in a time of austerity D2 Chair: Sue Cranmer Venue: GF2 Rachel Purtell and Allan Sutherland WHO HAS THE POWER IN YOUR CARE SET-UP? Henia Schwartz The Center for Independent Living Jerusalem (CIL) - Assistive Technical Devices Workshop D3 Chair: Damian Milton Venue: GF3 Damian Milton Autistic expertise: a critical reflection on the production of knowledge in autism studies. D4 Chair: Liz Tilly Venue: GF4 Gertraud Kremsner „The footballteam smells good“ – subalternity and the construction of disability in the biographies of people with learning difficulties who used to live in (total) institutions Liz Tilly Living independently – small things that make a big difference D5 Chair: Beth Lewis Anne Abildgaard People with acquired injury as in product development
Video Conference: Brenda Lefrancois Sanism and the Mad Studies Project Thursday 11th September 2014 Paper Session F: 9.30-11.00 F1 Chair: Liz Ellis GF3 Melaneia Warwick NHS ethical approval for research with people with profound and multiple learning disabilities: creative strategies from a participatory arts setting. Mark Lindsey-Halls, Natasha Smith, Ralphson Stuart, John Teague and Liz Ellis Walking and talking together: Inclusive research about where we live Isabel Bonello and Anne-Marie Callus Inclusive Research – a stepping stone on the road to empowerment F2 Chair: Jane Williams Venue: GF2 Pietilä and Matti Laitinen The disabled writers challenging the rules of autobiography? Rannveig Traustadottir Images of Disability in Mary Ellen Mark's Photographs of Extraordinary Children Jane Williams Turning Tides F3 Chair: Nick Hodge GF4 Nick Hodge Schools without labels Anat Greenstein Radical inclusive pedagogy: The disabled people’s movement in and out of the school Brehme Discourses of Normality in a German Inclusive School: Children's perspectives F4 Chair: Alison Sheldon Venue: GF1 Val Williams Change theories and disability studies Tom Campbell and Angharad Beckett Disability, Biopower, Resistance: The Social as Oppositional Device Simo Vehmas and Nick Watson Towards a normative sociology of impairment and disablement
F5 Aless McCann Venue: GF5 Claudia Malacrida Sex, Lies and Intellectual Disability: Knowledge and Newgenics Leslie Swartz The return of the freak show: the Oscar Pistorius and its implications for disability in South Africa Susan Flynn Promised Lands: Biotechnology and Cure in Contemporary Film F6 Chair: Berni Kelly Venue: CC A16 Berni Kelly and Theresa McShane Silent Voices: Examining the characteristics and experiences of disabled care leavers Karen Fisher and Xiaoyuan Shang Employment Pathways of Disabled Adult Orphans leaving Institutions or Foster Care in China Lindey Cookson : ‘He only knew before the ceiling above him’: disabled children’s institutional care in Bulgaria F7 Mark Priestley Venue: CC A17 Marcus Redley Equal recognition before the Law: Article 12 of the Convention on the Rights of Persons with Disabilities and its implications Mark Priestley and Ema Loja The political participation of disabled people in Europe Olsen and Patrick Stefan Kermit UNCRPD and Rule of Law F8 Graeme Whitfield Venue: CC A15 Bahadir Celiktemur Learning Disability Partnership Boards: The Unfulfilled Potential of a Deliberative Forum Grahame Whitfield to the people? Will choice and control be a reality for older people with Personal Health Budgets - and what are the implications for outcomes? Sarah Galvani, Wulf Livingston & Hannah Morgan Cause or consequence: alcohol and substance use among people with sight loss
F9 Chair: Kristen Bjornsdottir CC A16 Herminder Kaur Disability and Physically dis-Abled Teenagers Kristin Bjornsdottir and Eiriksina Asgrimsdottir When disability becomes taboo Joanne Hogan, Maureen Horgan, Sheila Glenn and Kevin Southern Using a Social Relational Approach to Understand Young People's Experiences of Chronic Illness F10 Mad Stream Chair: Victoria Armstrong Venue: CC A19 Ann-Charlotte Timander The relevance of a theoretical framework of disability studies to the of mental distress and recovery Richard Brunner Applying the Capabilities Approach to reconfigure social approaches to lived experience Helen Spandler, Jill Anderson and Bob Sapey The Elephant in the Room: Is ‘mad positive’ enough?