10. End Date 31/03/2020 11. FT Collection Type MANDATORY 12. Collection Type MANDATORY 13. Owning Organisation NHS England 14. Owning Department Knowledge & Intelligence 15. Name and Contact Details Name: Fiona Leat (fiona.leat@hscic.gov.uk) Email: n/a Tel No: 01138665463 16. Senior Supporting Official Name Sheila Dixon 17. Senior Supporting Official Contact Details Senior Analytical Manager(Statistician) Tel No: 01138249238 Email: Sheila.dixon1@nhs.net 18. Data Provider - Burden Days 273.6 18. Data Provider - Burden £ £ 62282.3
18. Frequency Monthly 18. Source Organisations (Number of orgs) Acute Non Foundation Trust (75) , Acute Foundation Trust (96) 19. Set Up Costs 20. Other Costs 21. Total Costs £ 62282.3 22. Please explain the reason for any increase or decrease in burden and provide details of the any other costs figure provided in Q20 The collection, the collection has been designed so that it can also fulfil the current requirement for the annual aggregate KH12 collection. The KH12 aggregate return is scheduled to imminently due to the implementation of the dataset. The dataset itself has now been collected since 2012 and will continue in its current form, and so there is no change in burden for those providing this data, aside from the removal of the KH12. There are no set up costs as there are no changes as a result of this application. Regarding KH12, a report of the consultation was published on the consultation website. Further notifications of its discontinuation were put on Unify and on the NHS England statistical publication pages and various individuals were informed by email. There has been no cost associated with any of this. 23. Benefits to Patients and the NHS Key to the Coalition Government's ambition to close the gap in cancer survival rates between England and Europe, set out in the Department of Health’s Improving Outcomes: A Strategy for Cancer (IOSC), is achieving earlier diagnosis of cancer. The National Awareness and Earlier Diagnosis Initiative (NAEDI) has evidence linking late diagnosis with poor survival and avoidable deaths.
35. Process required for others to go through to obtain the data Published data is freely available to the public from the NHS England website. In addition, once published DID data is also available on the website for NHS Employees and individuals with NHS Sponsorship. In order to access extracts of the data or bespoke tabulation requests, customers must go through the Data Access Request Service, and more details on this process can be found here: http://www.hscic.gov.uk/dars 36. Keywords Diagnostic, Imaging, RIS 37. National / Official statistic 38. Method used to store the data 39. Why sampling is not used Sampling is not suitable as data is required from all providers of diagnostic imaging services, to allow benchmarking, monitoring and assessment of all services and linkage of specific records to cancer registries. 40. Details of any pilots Yes, when first established the DID was piloted at 19 NHS Trusts, covering a broad range of type and size of Trust from throughout England. The pilot required the extraction of all the DID data items contained in their local Radiology Information System (RIS), for all records in May 2011. The sites then submitted to DH the non-patient identifiable (PI) data items of the dataset along with some summary statistics about the PI data they had extracted. They also completed a feedback form about the process. The form contained a section that asked the time it took to complete various tasks. The estimate of burden calculated here is based on the evidence provided by these 19 Trusts.