Power differentials Feeling judged by clinicians G1 Power differentials Feeling punished for previous behaviour G6 Power differentials Not seen as adults by the treating team, being seen as ‘little brats’. G3 Lack of information and education Not being told of rights, or provided information about treatment order G1, G2, G3, G4 Lack of information and education2 Consumers not having control over information that services have on them and services not having information which is informed by consumer treatment preferences G2, G5 Lack of information and education2 Not knowing about advocates or how to access an advocate G6 Impact of circumstances and environment Hospital environment – feeling unsafe, scary place, intimidating G1, G3, G4, G5, G6 Impact of circumstances and environment Difficulty making decisions when in crisis and/or distressed G2, G3, G4 Impact of circumstances and environment Having a legal guardian controlling/overriding decisions G6 Impact of circumstances and environment Medication – impairing cognitive function G1 Impact of circumstances and environment Having a Mental Health Act which imposes compulsory treatment against consumer’s wishes G1 Impact of circumstances and environment Cigarettes – shortage, expense and people taking them G6 Impact of circumstances and environment Aggression from other people G6 Making decision-making easier Common themes Sub-themes Groups who identified with theme
Advocacy requirements Common themes Sub-themes Groups who identified with theme Personal qualities of an advocate2 reliable and available – having continued presence on wards G1, G4, G5 Personal qualities of an advocate2 Non-judgemental, trustworthy, and empathic – someone understanding what consumers are experiencing, ‘a friend or peer’ G2, G4, G5, G6 Personal qualities of an advocate2 Having an understanding of consumer experiences, through lived experience G4, G5 Personal qualities of an advocate2 Passionate, strong, driven G3, G4 Personal qualities of an advocate2 able to choose advocate who is good match including gender of advocate G3, G5 Personal qualities of an advocate2 A good listener G3 Personal qualities of an advocate2 Someone who can relate to consumer culturally G5 Personal qualities of an advocate2 Someone who looks approachable so consumer feels advocate is an equal G6 Determining meaningful outcomes An advocate to interpret what consumer really wants and translating information into a plan G1, G6 Determining meaningful outcomes Helping consumer remember goals during advocacy G2 Determining meaningful outcomes Need to know who advocate is advocating for (consumer, or carer) G5 Providing information Provide information in a way that consumer understands and telling consumer the options G1, G3, G4
Providing information Advocate allowing consumer the freedom to choose how their personal information is used G2 Providing information Advocate to ensure perspective on consumer situation is not biased by medical opinion G1 Providing information Provide information in a way that consumer understands and telling consumer the options G1, G3, G4 Building relationships to understand consumer Meeting with consumer before advocacy situation to understand consumer’s goals in context of life experiences G1, G5 Building relationships to understand consumer Building trust G5 Building relationships to understand consumer Someone who can liaise with others for consumer G6 What consumers need to self-advocate Common themes Sub-themes Groups who identified with Having access to the right information2 Information on choices, rights, options and how to appeal G1, G2, G3, G4, G6 Having access to the right information2 Information on treatment, medication and timeframes G2 Having access to the right information2 A checklist of important information and services G3, G5 Having access to the right information2 Someone coming in to talk about rights and choices more useful than being provided a lot of information to read G6
Content of information Information on nominated persons could be more specific about how consumer’s interests are represented G5 Content of information Information about how to access an advocate G6 Content of information That IMHA is a free service G5 Content of information Need to differentiate between IMHA and VLA G5 IMHA Postcard critiques Requires more information on front about circumstances of treatment orders and how IMHA can provide assistance G1, G4