Peer Support Groups Supported by DDWA No Group Name; and Area Special Interest Area Meetings / Connection Group Numbers Leader, Contact Phone and Email; Web Address 1 Save Our Sons (Formerly the Duchenne Foundation) People and families of people with Duchenne Muscular Dystrophy Meet 3-6 times a year; Average 5 attend Klair Bayley MOBILE : 0402 378 858 2 Angelman Syndrome Metro Families of children and adults with Angelman Syndrome Meet 3-6 times a year; 5- 15 attend Leticia Grant Ph: 0408 445 975 3 Valued Lives – Hills (East metro) People with disabilities and their families who live in the NDIS Trial Site / Hills Area Meet monthly 8-15 attend Margo McAdam Phone: 0448 298 011 Bronia Holyoak 0416 579 350 Mobile : 0404 457 983 4 Valued Lives – Cockburn (South metro) People with disabilities and their families who live in the Cockburn area & surrounds Meet monthly 5-10 attend Maria Ferreira 0435104983 Ronnie Burkin Mobile : 0404 457 983
5 Valued Lives – Durham Families of children and adults with disabilities in the NDIS trial extension area Meets monthly 15-20 attend Group Leader – Shelley Watson 0410 471 266 Ronnie Burkin Mobile : 0404 457 983 6 Wongan Hills Families Wheatbelt Families of children and adults with support needs who work together to access therapies, share information and support each other. Wongan Hills Area WA belt Meet weekly 15-20 attend Heydi de Waal Ph: 9671 1981 Lorraine Lobo ; 7 Merger of Minds Fremantle People with complex communication needs and their families and supporters Meet monthly 10- 20 attend Jaquie Mills ; MOBILE: 0407 223 234 8 Merger of Minds Broome People with complex communication and their families and supporters Meet bi-monthly on average. 5-10 attend Heike Radscivicius 0427 686 862 PO Box 2476; Broome 6725 ; MOBILE: 0407 223 234 9 Sibswest – and WA wide Siblings of people who have disability supports and/or who live in accommodation services 3-4 times a year; Seminars; Tracy Destree Mobile: 0429 564 905
10 Foster Families Southwest Bunbury FASD Families and Carers of children and adults with Foetal Alcohol Spectrum Disorder – looking at what supports are available and how to access them. Meet 1-2 monthly 5-10 attend Gay Pritchard Ph: 9725 4464 11 DisAbility Review Statewide Facebook Group, People with Cerebral palsy and other people who want to find out about services and how to self-direct supports 184 Members Mostly on line; but arranging information events Ben Keely James Davies .com.au; Ph: 9443 0537 12 Young Self Managers People with disabilities learning to manage funds and access supports of their choice. Meet monthly 5-10 attend Stanford 9485 1997 (work) 13 Microboards Group WAiS Small networks of people who are dedicated to supporting a person and working together to manage funds and supports. Meets monthly or as required 5-10 attend Susan Stanford 9485 1997 (work) 14 Host Families Perth metro Host families who welcome a person into their home and provide a home and family environment. Meet 3-4 times a year 5 attend Jill Bowman m: 0400 513 943 jsbowman@bigpond.net.au 15 Joondalup Autism Mums Perth Northern Suburbs Families of children/adults with autism or other disabilities Meet monthly 10-20 attend Gill Gore 0401 257 093 ; Helen Owen helenpark279@yahoo.co.uk 16 WA Deaf Community Group Perth Metro A group of deaf people who discuss services available; and the NDIS; and options Meets monthly Kerry Revell Case Mngmnt Officer 0403 239 522; Tel: (08) 9441 2677
especially re interpreting for inclusion. ; Group Leader – Patricia Levitzke-Gray 17 CARD Caring About Residents with Disabilities Perth Metro Families/carers of people who are in supported accommodation / residential care Meet monthly; 5-15 attend 65 members; Maz Kowald Mobile: 0415 692 188 mazkowald.card@gmail.com 18 Russell Family Foetal Alcohol Disorders Association Support Group WA Perth Metro families and individuals seeking information and hands on help for people affected by FASD On line and Face to face; 56 Members Louise Wilson Ph: 0413 032 726 19 Muslimability Families/carers and People/children with disabilities who are Muslim Face to face meetings Ifrah Abdullahi Ph: 0434 095 477 ; 20 Disability Access for Aboriginal Families Aboriginal people with disabilities and their families/carers/community Face to face meetings Margaret Culbong Phone. 0497 116 619 Email:margaretculbong@hotmail.com