4.1 carbamazepine 4.2 clobazam 4.3 gabapentin 4.4 lamotrigine 4.5 levetiracetam 4.6 oxcarbazepine 4.7 sodium valproate 4.8 topiramate 4.9 other 5 If adjunctive treatment was ineffective or not tolerated, did the following happen? 5.1 patient’s treatment was discussed with a tertiary epilepsy specialist 5.2 patient’s treatment was referred to a tertiary epilepsy specialist If yes, did the tertiary epilepsy specialist prescribe any of the following? 5.3 eslicarbazepine acetate 5.4 lacosamide 5.5 phenobarbital 5.6 phenytoin 5.7 pregabalin 5.8 tiagabine 5.9 vigabatrin 5.10 zonisamide 5.11 other a Circle exception codes as appropriate. Details of exceptions are listed at the end of the patient data collection tool. Exception codes A – carbamazepine and lamotrigine are unsuitable
Criterion 14 Carbamazepine, gabapentin, oxcarbazepine, phenytoin, pregabalin, tiagabine or vigabatrin should not be offered. Exceptions None Guideline reference 1.9.5.5 Definitions None Data collection tool for Epilepsy: pharmacological treatment by seizure type Complete one form for each patient. Patient identifier: Sex: Age: Organisation/service: Ethnicity: White Mixed Asian or Asian British Black or Black British Other British White and Black Caribbean Indian Caribbean Chinese Irish White and Black African Pakistani African Any other ethnic group Any other White background White and Asian Bangladeshi Any other Black background Not stated Any other mixed background Any other Asian background No. Data item no. Criteria Yes No NA/ Exceptionsa Absence seizures 10 Were any of the following offered as first-line treatment? 10.1 ethosuximide 10.2 sodium valproate 10.3 other (specify) 11 If ethosuximide and sodium valproate were unsuitable, ineffective or not tolerated, were any of the following offered? 11.1 lamotrigine 11.2 other (specify) 12 If two first-line drugs are ineffective, was a combination of two of the following prescribed? 12.1 ethosuximide
Exceptions None Guideline reference 1.9.6.4 Definitions Treatment with the drugs listed above should be considered but do not necessarily have to be offered, therefore a standard of 100% cannot be set. Criterion 19 Carbamazepine, gabapentin, oxcarbazepine, phenytoin, pregabalin, tiagabine or vigabatrin should not be offered. Exceptions None Guideline reference 1.9.6.5 Definitions None Data collection tool for Epilepsy: pharmacological treatment by seizure type Complete one form for each patient. Patient identifier: Sex: Age: Organisation/service: Ethnicity: White Mixed Asian or Asian British Black or Black British Other British White and Black Caribbean Indian Caribbean Chinese Irish White and Black African Pakistani African Any other ethnic group Any other White background White and Asian Bangladeshi Any other Black background Not stated Any other mixed background Any other Asian background No. Data item no. Criteria Yes No NA/ Exceptionsa Myoclonic seizures 15 15.1 Was sodium valproate offered as first-line treatment? B 16 If sodium valproate was unsuitable or not tolerated, were any of the following offered? 16.1 levetiracetam 16.2 topiramate 16.3 other (specify)
Data collection tool for Epilepsy: pharmacological treatment by seizure type Complete one form for each patient. Patient identifier: Sex: Age: Organisation/service: Ethnicity: White Mixed Asian or Asian British Black or Black British Other British White and Black Caribbean Indian Caribbean Chinese Irish White and Black African Pakistani African Any other ethnic group Any other White background White and Asian Bangladeshi Any other Black background Not stated Any other mixed background Any other Asian background No. Data item no. Criteria Yes No NA/ Exceptionsa Tonic or atonic seizures 20 20.1 Was sodium valproate offered as first-line treatment? 21 21.1 If sodium valproate was ineffective or not tolerated, was lamotrigine offered as adjunctive treatment? 22 22.1 If adjunctive treatment was ineffective or not tolerated, was the patient’s treatment discussed with a tertiary epilepsy specialist? If yes, did the tertiary epilepsy specialist prescribe any of the following? 22.2 rufinamide 22.3 topiramate 22.4 other 23 Were any of the following offered? 23.1 carbamazepine 23.2 gabapentin 23.3 oxcarbazepine 23.4 pregabalin 23.5 tiagabine 23.6 vigabatrin. a Circle exception codes as appropriate. Details of exceptions are listed at the end of the patient data collection tool.