What are the biggest challenges to date in this role? Base: Number of CNCs who answered question % n=41 Educating other health care professionals about role/ negative perceptions of role from other health care professionals 44% Managing intersection of management duties with other role components/workload of administration and reporting duties/unclear role description 29% Facilitating system change/changing ingrained attitudes about process (advocating patient-centred approach) 27% Not enough FTE/lack of funding/resource 22% Coordination of patients through patient cancer pathway/ensuring timeliness of process 22% Lack of patient database/IT resources/tracking patients between DHBs 10% Identification of eligible patients 12% Appendix 5: Providers’ best things and improvements For providers key strengths of CNCI are having a single point of contact for patient information, improved coordination and improved communication Best thing about the Cancer Nurse Coordinator role Base: Number of providers who answered question % n=408 Dedicated person tasked with patient oversight/single point of contact for information on patient 28% Improved coordination of patient cancer pathway and treatment process 19% Facilitates improved communication and relationships with other health care professionals/ ensures smoother interaction and transfer of patients from different DHBs/support for and alleviates workload for other health care professionals 17% Provides patients with information and education on cancer, treatment process, services available; patients less confused about process 13% Patient has a ‘go to’ person for queries and advice 13% Facilitates system enhancements/addressing barriers and gaps in service delivery 11% Provides overall support for patients and family/whānau from diagnosis/reduces patient stress 10% Improved timeliness (non-specific and referral/treatment process) 9% Good link between patients and secondary care; makes referrals to primary care services 4% Patients’ cultural needs met (Māori/Pacific/Asian), links to Māori services and providers are good 1%
Draft: Triage and management of referrals to Cancer Nurse Coordinator Triage category Presentation Action Outcome 1 Confirmed diagnosis Requires psycho-social support AND/OR Has complex care coordination needs Has poor understanding of treatment trajectory Nurse Coordinator acts as primary nurse Comprehensive assessment Liaise with MDM to identify a coordinated plan of care Act as first point of contact Lead role in facilitating care Patient care is focused on symptom management, information and supportive care Recognise barriers in care and opportunities to progress service development 2 High suspicion of cancer or confirmed diagnosis Requires psycho-social support AND/OR Has complex care coordination needs Clear treatment pathway identified Engaged with HCP at key points on treatment trajectory Comprehensive assessment Liaise with MDM to identify a coordinated plan of care Patient care is focused on support and information Manage transition between treatment services Referral to support services Recognise barriers in care and opportunities to progress service development 3 Confirmed cancer diagnosis Single modality treatment Psychosocial needs are met Does not meet DHB criteria for complex care coordination Engaged with established treatment team Review referral and patient information Liaise with treatment teams as necessary Signpost availability of information and education materials Update patient records as required Maintain data 4 High suspicion of cancer Psychosocial needs met Does not meet DHB criteria for complex coordination Patient has clear understanding of the diagnostic pathway Review referral and patient information Liaise with treatment team as necessary, eg, GP, MDM Update patient records as required Maintain data