Overview of institutional services for persons with disabilities (2014) 1: Typology of institutions TYPE OF SERVICE SIZE AGE GROUP TYPE OF LEVEL OF SUPPORT PROVIDED TYPICAL TYPICAL FUNDER LENGTH OF AGE OF SERVICE Care home (Verzorgingshuis) (residential) 30-100 places Older people / Adult 24 hour support provided / day care Voluntary/ Mixed government and private Over 2 Over 50 years Nursing home (Verpleeghuis) (residential) 30-100 places Older people / Adult Mixed 24 hour support provided Voluntary/ Mixed government and private Over 2 Over 50 years Family Replacing Home (gezinsvervangend thehuis) (residential) 11-30 places Adult Mixed 24 hour support provided Voluntary/ Mixed government and private n Over 2 years 10-50 years Family home (Gezinshuis) (residential) 1-5 places Mental health 24 hour support provided Voluntary/ Mixed government and private Over 2 years 10-50 years Sheltered housing (Beschermd wonen) (residential) 11-30 places Adult Mental health / 24 hour support provided Voluntary/ Mixed government and private Over 2 years 10-50 years
24-uusvoorziening (24-hours service) (residential) 11-30 places Adult Mental health 24 hour support provided Voluntary/ Mixed government and private Up to 6 months 10-50 years Assisted living (Begeleid wonen) (non-residential) 1-5 places Adult Mental health / Variable support provided, depending on the residents’ needs Voluntary/ Mixed government and private 6 months to two years 10-50 years care (Ambulante zorg) (non-residential) 1-5 places Mixed Variable support provided, depending on the residents’ needs Voluntary/ Mixed government and private Mixed lengths of 10-50 years Home care (thuiszorg) 1-5 places Adult / Older people Mixed Variable support provided, depending on the residents’ needs Voluntary/ Mixed government and private Mixed lengths of 10-50 years Day activity Centre 11-30 places / Adult Mixed. Day time support provided, no night time staffing Voluntary/ Mixed government and private Mixed lengths of 10-50 years residential
Netherlands, National Institute of Public Health and the Environment (Rijksinstituut voor Volksgezondheid en Milieu) (2014), Dutch National Atlas of Public Health (Nationale Atlas Volksgezondheid), Bilthoven, Rijksinstituut voor Volksgezondheid en Milieu, available at: National Institute of Public Health and the Environment (Rijksinstituut voor Volksgezondheid en Milieu). Governmental organisation. 2011-2014 It is a website that is updated with the most recent available data. Desk and reports), administrative data National All Federation of Patients and Consumer Organisations in the Netherlands (Nederlandse Patiënten Consumenten Federatie) (2014), Care map the Netherlands (ZorgkaartNederland), Utrecht, Nederlandse Patiënten Consumenten Federatie, available at Federation of Patients and Consumer Organisations in the Netherlands (Nederlandse Patiënten Consumenten Federatie). NGO 2014 2014 It is a website that is updated with the most recent available data. Desk research (studies and reports), administrative data. National All Inspectie voor de Gezondheidszorg (Health Care Inspectorate) (2014), Verbetering van de kwaliteit van de ouderenzorg gaat langzaam. Intensivering toezichtbezoeken aan verpleeg- en verzorgingshuizen in de periode 2011 en 2012, [Improvement of the quality of the care for the elderly Health Care Inspectorate (Inspectie voor de Gezondheidszorg). Governmental organisation. 2013 2011-2012 Visits to institutions National for older people service service 2014
progresses slowly. Intensification supervisory visits to nursing homes and care homes during the period 2011-2012 - unofficial translation], Utrecht, Inspectie voor de Gezondheidzorg, available at: Ngo, D. and M. (2014), Sectorrapport ggz 2012. Feiten en cijfers over een sector in beweging [Sectoral report mental health care 2012. Facts and figures about a sector in transition - unofficial translation] , Amersfoort, 2012, available at: Dutch Association of Mental Health and Addiction Care (GGZ Nederland) - Sectoral organisation 2009-2012 Desk research / administrative (reports and studies) / adminstrative data National for people with mental health Statistics Netherlands (Centraal Bureau voor de Statistiek) (2014), Gezondheid en zorg in cijfers 2013[Health and care in figures 2013 - unofficial translation], The / Heerlen : Centraal Bureau voor de Statistiek, available at: Statistics Netherlands (Centraal Bureau voor de Statistiek), National statistical office 2012-2013 Administrative data National All Sadiraj, K., Ras, M., Putman, L. and Jonker, J.J. (2013), Youth care: a growing future? Overview of actual demand for youth care services in the Netherlands Institute for Social Research (Sociaal en Cultureel Planbureau). 2012 2001-2011 Administrative data National for service
period 2001-2011 and forecast demand in the period 2011-2017 (Groeit de jeugdzorg door? Het beroep op de voorzieningen: realisatie 2001-2011 en raming 2011-2017, The Hague, Sociaal en Cultureel Planbureau, available at: Governmental organisation Vroonhof, P., Zandvliet, K., Van Klaveren, S., Spijkerman, M. and Winnubst, M. (2013), Monitor Investeringen V&V 2011-2015. Eénmeting juni 2013, [Monitor Investments in Care Homes and Nursing Homes. First measurement June 2013] - unofficial translation], Zoetermeer / Rotterdam, Panteia / SEOR, available at: Panteia and SEOR. Independent research organisations 2013 2013 Visits to institutions National / care homes Van der Kwartel, A.J.J. (2013), Brancherapport Gehandicaptenzorg 2012 [Sectoral report Care for the disabled 2012 - unofficial translation], Utrecht, Vereniging Gehandicaptenzorg Nederland (VGN), available at: Association of Healthcare Providers for People with Disabilities (De Vereniging Gehandicaptenzorg Nederland, VGN) NGO. 2013 2012 Desk research / administrative (reports) / administrative data National for people with
Bomhoff, M., Paus, N. and Friele, R. (2013), Nothing to complain An explorative study at three long-term care facilities for older persons. (Niets te klagen. Onderzoek naar uitingen van ongenoegen in verzorgings- en verpleeghuizen), Utrecht, Nivel, available at: Nivel, the Netherlands Institute for Health Services Research. Independent research organisations 2012 2012 Interviews interviews about how complaints are handled with residents, their family members, caretakers and other personnel, complaints managers and directors ; visits to institutions National / care homes Van Campen, C., Broese van Groenou, M., Deeg, D. and Iedema, J. (2013), Ageing with care. Care trajectories of older persons over a decade years. (Met zorg ouder worden. Zorgtrajecten van ouderen in tien jaar), The Hague, Sociaal en Cultureel Planbureau, available at: Netherlands Institute for Social Research (Sociaal en Cultureel Planbureau), Governmental organisation 2012 1998-2008 Sampling ; ( data were drawn from the Longitudinal Aging Study Amsterdam (lasa), a national representative panel of older persons in the data National for older people
Panteia / SEOR (2012), Monitor Investeringen VV(T) 2011-2015. Nulmeting 31 december 2011, [Monitor Investments in Care and Nursing Homes 2011-2015. Baseline measurement 31 December 2011 - unofficial translation], Zoetermeer / Rotterdam, Panteia / SEOR, available at: Panteia and SEOR, Independent research organisations 2012 2011 Visits to institutions National homes / care homes Woittiez, I., Ras, M. and Oudijk, D. (2012), IQ with limitations. Measuring intellectual disability and in care recipients (IQ met beperkingen. De mate van verstandelijke handicap van zorgvragers in gebracht), The Hague, Sociaal en Cultureel Planbureau, available at: Netherlands Institute for Social Research (Sociaal en Cultureel Planbureau), Governmental organisation 2011 1998-2009 Administrative data National for people with Hingstman, T.L., Langelaan, M. and Wagner, C. (2012), De dagelijkse bezetting en kwaliteit van zorg in instellingen voor langdurige zorg [Daily staff and quality of care in instutions for care - Nivel, the Netherlands Institute for Health Services Research. Independent research organisation (Nivel, Nederlands instituut voor onderzoek van de gezondheidszorg) 2011 2011 Questionnaire ;( survey of staff from a sample of 23 institutions for long term care on the quality National Long term care service
unofficial translation], Utrecht, Nivel, available at: of care); Visits to institutions De Klerk, M. (2011), Care in the latter years. Health and use of care in residential care and nursing homes 2000-2008 (Zorg in de laatste jaren. Gezondheid en hulpgebruik in verzorgings- en verpleeghuizen 2000-2008), The Hague, Sociaal en Cultureel Planbureau, available at: Netherlands Institute for Social Research (Sociaal en Cultureel Planbureau). Governmental organisation. 2010 2000-2008 Questionnaire (survey among a random sample of elderly residing in care homes and nursing homes about the care they received); administrative data National All Inspectie voor de Gezondheidszorg (Health Care Inspectorate) (2010), Gebrekkige indicatiestelling en samenwerking edreiging voor kwaliteit van zorg voor licht verstandelijk gehandicapten [Deficient indication and lack of cooperation threat to the quality of the care for persons with a minor intellectual disability - unofficial translation] , Utrecht, Inspectie voor de Gezondheidszorg, available at : Health Care Inspectorate (Inspectie voor de Gezondheidszorg), Governmental organisation 2009 2009 Questionaire (an online survey of 177 providers of care to adults with a mental disability on the indication’ (assessment of patient requirements and cooperation with other National for people with service
providers); desk research (reports and studies), visits to institutions Inspectie voor de Gezondheidszorg (Health Care Inspectorate) (2008), Verpleeghuiszorg op de goede weg : Resultaten van vervolgbezoeken aan de 149 meest risicovolle instellingen voor verpleeghuiszorg in 2006/2007 [Nursing care services are improving : Results of return visits to the 149 high-risk nursing care institutes in 2006/2007 - unofficial translation] , Utrecht, Inspectie voor de Gezondheidzorg, available at: Health Care Inspectorate (Inspectie voor de Gezondheidszorg), Governmental organisation 2008 2006-2007 Visits to institutions National homes Inspectie voor de Gezondheidszorg (Health Care Inspectorate) (2008), Verantwoorde zorg voor gehandicapten onder druk. Toets op risico’s in de 24-uurszorg voor mensen met een verstandelijke beperking 2006-2007 [Care for the disabled under pressure. Examination of risks in the 24 hour care of the mentally disabled - unofficial Health Care Inspectorate (Inspectie voor de Gezondheidszorg), Governmental organisation 2008 2006-2007 Questionnaire (among 149 organisations that provide care for the mentally disabled on the care they give), visits to institutions for people with
translation] , Utrecht, Inspectie voor de Gezondheidszorg, available at: Overview of services for persons with disabilities (2015) Table 3: Community-based services for persons with disabilities Type of Please provide the name of the type of service in the national language and a translation into English Please indicate if the types of services presented below are given a different name in your country Yes/ No Please indicate if this type of service is in your country Profile of the age (children, adults or older persons) type of disability (physical disability, intellectual disability, psycho-social disability, deaf or hard of hearing, Explanatory information For each type of service, please provide a short description of: the type and level (i.e. 24 hour, daytime, weekends, etc.) of support the service provides; location of the (i.e. city, town, rural areas); who is eligible for the who is typically the provider and funder Extent to which support is For each type of service, please provide information about the extent to which users control the support provided. Can individuals using the service: recruit and manage staff providing support; determine the activities for which support is needed; If data are available, please specify number of services operating in the country and the number of Please provide a full reference for this data, including information about the
of services (i.e. national government, local government, municipality, NGO, private company, etc.)? determine how the budget for services and supports is used; choose types of equipment and adaptations to meet their needs? period covered by the data. Please indicate, if data is available, if has been decrease / increase in the last five years Persoongebonden budget (Personal budgets) Yes. Typically used by adults and older persons with disabilities and for all types of impairments. Both the 2015 Social Support Act (Wet Maatschappelijke Ondersteuning 2015) and the Long-Term Care Act (Wet Langdurige Zorg) enables individuals to use a personal budget (persoonsgebonden budget) by an individual can purchase help or support in all sort of forms: domestic help (thuiszorg), personal care (persoonlijke verzorging) such as help with everyday activities such as 1 The budget is not given directly to the applicant. The Social Insurance Bank (Sociale Verzekeringsbank or SVB), the organization that implements national insurance schemes in the Netherlands, pays the bill for the services directly to the organisation that provides the care or support. The applicant All operate personal budgets. There are figures on how many personal budgets were allocated under the Medical Expenses Act (Algemene Wet
getting up, nursing (verpleging), support services (begeleiding) such as daycare and learning to cope with your disability and short stays away from home (kortdurend verblijf), such as weekend care, holiday care and respite care. The personal budget under the 2015 Social Support Act are financed by the municipalities who get their budget from the national government. The personal budget under the Long-Term Care Act is financed by the national government. The user of the services is expected to make a contribution. The services are provided by private organisations. The Long-Term Care Act (Wet Langdurige informs the SVB when it should pay the care provider for the it has delivered. Bijzondere 119,184 in 2014. This Act ceased to exist at the end of and was replaced by the Care Act and the 2015 Social Support Act. In 2013 121,913 persons received a personal budget. In 2012 128,707 persons. In 2011 138,682 persons. In 2010 120,572 persons.
Medical Expenses Act (Algemene Wet Bijzondere Ziektekosten) and under the old Social Support Act. The funder are the municipalities which get their budget from the national government. The service is provided by non-profit private organisations in all parts of the Netherlands. 141,795 persons. figures relate to the services provided in kind not the services provided as part of the personal budget. The figures on 2013 are provisional figures. Persoonlijke zorg (Personal care) Yes. Typically used by adults and persons with disabilities and for all types of impairments. Personal care relates to services that relate to the physical care of a person: feeding, exercise etc. Personal assistance is provided under the 2015 Social Support Act (Wet Maatschappelijke Ondersteuning 2015). It used to be provided under the Exceptional Provided in kind or via a personal budget. If persons choose for in kind provision they are obliged to take care from an organisation that has a contract with the municipality. If persons choose for a personal budget they have more freedom to choose their care provider. All fund personal care services. In 2013 370,300 ppersons received personal care. In 2012 362,815
Medical Expenses Act (Algemene Wet Bijzondere Ziektekosten) that ceased to exist at the end of 2014. The funder are the municipalities which get their budget from the national government. The is provided by non-profit private organisations in all parts of the Netherlands. persons. In 2011 352,105 persons. In 2010 340,115 persons. These figures relate to the services provided in kind not the services provided as part of the personal budget. The figures on 2013 are provisional figures.
Residentiële zorg (Residential care) Yes. Typically used by adults and older persons with disabilities and for all types of impairments. Residential care is provided under the 2015 Social Support Act (Wet Maatschappelijke Ondersteuning 2015) and under Long-Term Care Act (Wet Langdurige Zorg). It used to be provided under the Exceptional Medical Expenses Act (Algemene Wet Bijzondere Ziektekosten) that ceased to exist at the end of 2014. Services under the 2015 Social Support Act are funded by the municipalities which get their budget from the national government. The is provided by non-profit private organisations. The Long-Term Care Act (Wet Langdurige Zorg) is financed by premiums paid by all tax payers. It is a Under the 2015 Social Support Act residential care can be provided in kind or via a personal budget. If persons choose for in kind provision they are obliged to take care from an organisation that has a contract with the municipality. If persons choose for a personal budget they have more freedom to choose their care provider. Under the Long-term Care Act users get an indication for care from the Centre for Care Assessment (Centrum Indicatiestelling Zorg or CIZ). With this indication the user turns to a care office (zorgkantoor). The care office informs the user about the possibilities so the user can make a choice. Care can be provided in kind or via a All fund residential care. There are figures on how many persons were in residential care as funded in kind by the Exceptional Medical Expenses Act (Algemene Wet Bijzondere These figures do not include the residential care provided as part of a personal
received residential care.In 2012, 80,865 persons and in 2011 76,580 persons. The figures on 2013 are provisional figures. Volledig pakket thuis (Full package at home) Yes. Typically used by adults and older persons with disabilities.All types of impairments Full package at home is a form of residential care but provided in the residence of the user. The form of service is provided under the Long-Term Care Act (Wet Langdurige Zorg). It used to be provided under the Exceptional Medical Expenses Act (Algemene Wet Bijzondere Ziektekosten) that Under the Long-term Care Act users get an indication for care from the Centre for Care Assessment (Centrum Indicatiestelling Zorg or CIZ). With this indication the user goes to a care office (zorgkantoor). The care office informs the user about the possibilities so the user can make a choice. One of the options is full package at home. In the statistics the full package at home is considered as a form of residential care so we cannot provide data.
ceased to exist at the end of 2014. The Long-Term Care Act is financed by premiums paid by all tax payers. It is a national law. The Services are provided by private non-profit organisations in all parts of the Netherlands. Thuishulp (home help) Yes. Typically used by adults and older persons with disabilities. All types of impairments Home care services (huishoudelijke verzorging) are provided as part of the 2015 Social Support Act. The funder are the municipalities which get their budget from the national government. The service is provided by non-profit private organisations in all Provided in kind or via a personal budget. If persons choose for in kind provision they are obliged to take care from an organisation that has a contract with the municipality. If persons choose for a personal budget they have more freedom to choose their care provider. All fund home care services. In 2013 414,075 persons received this form of services. In 2012 443,160 persons received in home help. In 2011 : 444,540. In
parts of the Netherlands. 2010: 431,320. These figures relate to the services provided in kind not the services provided as part of the personal budget. The figures on 2013 are provisional figures. Dagactiviteitencentrum (Day care centre) Yes. Typically used by adults and older persons with disabilities. All types of impairments. Day care care centres are provided under the 2015 Social Support Act (Wet Maatschappelijke Ondersteuning 2015). They used to be provided under the Exceptional Medical Expenses Act (Algemene Wet Bijzondere Ziektekosten). The funder are the municipalities which In kind provision or via a personal budget. If persons choose for in kind provision they are obliged to take care from an organisation that has a contract with the municipality. If persons choose a personal budget they have more freedom to choose their care provider. All fund day care centres. In 2013 90,625 persons received this form of service. In 2012 93,335 persons. In 2011 92,705 persons. These figures relate to the services
get their budget from the national government. The service is provided by non-profit private organisations in all parts of the Netherlands. provided in kind not the services provided as part of the personal budget. The figures on 2013 are provisional figures. Respijtzorg (Respite care) Yes. This service is provided to informal carers. Respite care is financed by the municipalities under the 2015 Social Support Act. It used to be financed by Exceptional Medical Expenses Act (Algemene Wet Bijzondere Ziektekosten) that ceased to exist at the end of 2014. The care itself is provided by professional organisations in all parts of the Netherlands. Informal carers in need of respite care can choose from a wide range of services. There are several types of service available. Popular types of respite care are: respite care, day-care, short-stay and special holiday arrangements. There are no overall figures on respite care. Respite care can be provided in several ways. One of the most popular forms of respite care is the short stay. On 1 January 2015 9,135 persons received a
Netherland to several categories of children. One of these is the category of children with a disability whose parents can not cope with care. by chapter 5 of the Youth Act (Jeugdwet). The Act is implemented by the municipalities. The care itself is provided by foster families who are supported and recruited by 28 recognized foster care organisations. Parents with children with a disability can request municipalities for support that is provided under the Youth Act including foster care. Foster care is provided in all parts of the Netherlands. Act (Jeugdwet). Services under this act are financed by the municipalities which get their budgets from the central government. children were placed in foster care. 66 % of these were placed in foster care as part of youth protection. 28 percent were placed in foster care as part of a voluntary There are no figures on how many children with a disability were placed in foster care. Mantelzorg (Informal support) Yes. Typically used by adults and older The 2015 Social Support Act recognizes informal support services. The The availability of informal care depends on the network of the The number of informal carers in the Netherlands
persons with disabilities and for all types of starting point of the 2015 Social Support and the preceding Social Support Act is that people with a disability should make use of their social resources or informal networks to live independently. Only if these networks do not exist or are very small or weak, people with a disability can claim support from the municipality. Informal carers are thus a corner stone of the system under the Social Support Act. Only when there is no informal carer's available, support by professionals is made available by the municipality. The 2015 Social Support Act enables municipalities to persons who needs support or care. is estimated by Netherlands Statistics at 1,5 million in the year 2012. Informal care is provided in all A literature review by The Netherlands Institute for Social Research produces other estimates: One in 5 adults gives aid to a member of the household, family
support these informal carers, by giving respite care for example. member, relative, friend or neigbour who is in need of support. That amounts to 2,6 million people giving aid. Of these 1,1 million give care or aid for a long term (more than three months. Both are estimates. There are no correct numbers. Zelfhulp (Peer support/counselling) Yes. Typically used by adults and persons with disabilities and for all types of impairments. Peer support is provided is some places in the Netherlands. Information is rather fragmentary. It is often called self help These services are organized in a very informal and cost efficient way. People with a disability can make us of them without paying a fee etc There are no data on peer support.
(zelfhulp) in the Netherlands. Vriendenkringen (Circles of support) Yes. Typically used by adults and persons with disabilities and for intellectual and mental impairments. Circles of support have been implemented in several municipalities in the Netherlands. under the Social Supprt Act (Wet Maatschappelijke Ondersteuning). They are funded by the municipalities who get their budget from the central government. Because of the low costs of this form of support, some circles of support are finaced by the care providers themselves. These services are organized in a very informal and cost efficient way. People with a disability can make use of them without paying a fee etc. There are no figures in how many circles of support / have been There are also no figures on how many of these circles exist. One example of a circle of support has been evaluated.. This project in Hardenberg was financed
interventions the person is hospitalized. Maatjesprojecten (Befriending) Yes Typically used by adults and older persons with disabilities and for all types of impairments. Befriending (maatjesprojecten) is provided under the 2015 Social Support Act (Wet Maatschappelijke Ondersteuning 2015). The funder are the municipalities which get their budget from the national government. The service is provided by non-profit private organisations. project are also funded by special funds which finance social projects. One of these funds is the Oranjefonds. Oranje fonds maintains a special website: These services are organized in a very informal and cost efficient way. People with a disability can make us of them without paying a fee etc. There are no figures in how many befriending projects have been There are also no figures on how many of these circles exist.