GP Surgeries Same information systems Communication Carer Link Resources Hospitals Registration process Automatically generated Schools Changing attitudes changed in education Acknowledge carer “status” Raised profiles of carers Changing social attitudes “careism” Recognition of young carers Other points raised were as follows: 1st contact is vital Health/Social Care /any profession has access to appropriate information and understand it Training is available. Holistic overview of the contributions of other partners – ‘whole package’ 1st contact needs to be followed up with check understanding and signposting, makes people feel valued yes I’m fine might not continue ‘Planning with’ not ‘doing to’ – staff need to allow carers to identify care and treatment together, appreciate who the experts are – bear in mind at first contact carers may have been caring for some time Carers experience joined up health and social care services not telling your story over and over again. Even staff change Continuity in support, alongside good communications retain and empower staff so they stay in the job! Consider the impact of new people on the person being looked after and the carer. Trust and confidence takes time to develop. Consider how we commission to develop this Time needs to be taken when handover length of appointment – and the carers choose! Forward planning with GPs – reasonable adjustments. Listening and being guided by the carer Receptionist prompts Carers are known and In 2016 information
service for carers not identified as needing anything ‘yet’ – Three, six, nine month contact. Carer advocacy/buddy service to ease new carers into services – e.g. first appointments, show around caring world Caseworker ‘lead professional’ for whole support liaison. panel of expert carers Recruiting and Training more volunteers. Offer them incentives Have disability awareness or deaf awareness training for museums, banks, companies and schools Training council staff to appreciate what the caring experience is really like Recognising the journey that carers make – changing states/emotions along the way. Find ways to communicate carers story and learning. Website panel of experts to consult. Set up helpline – Ask an expert 3 Celebrate value of each individual carers Carers register Make a good video for use in training celebrating carer role. Being more pro-active in communicating services/resources for carer that are available. Return to carers who do not take up services offered at first contact, as they may not be able to engage so soon after assuming caring role. Befriending/buddy up experienced carer with a new carer Treated with respect by organisations. Single point of access * Named contact/liaison * Take responsibility for interaction Information and Support Information 2 way street Consistent information More honesty from professionals Build Trust in what they say is best for them Quality How are carers supported to achieve personalisation and ensure this is sustainable
sustainable once carers own health needs change Carers Experience DO MORE - trust between carer and professional (two way street) 3 Voluntary and Community Sector Priorities: Outcome Suggestion Score Carers Experience Use legislation e.g. Mental Capacity Act to protect people not the system 9 Carers are supported to manage their loved one's condition CONTINUE - Carers Personal Budgets 7 Carers are supported to manage their loved one's condition START - planning for a crisis needs to happen early to ensure people feel empowered and services don't repeat actions that don't help 7 Carers are supported to manage their loved one's condition START - Organisations talking to each other and working together, having systems that speak to each other. For the benefit of the carer 7 Carers are supported to manage their loved one's condition STOP - treating everyone the same! One size does not fit all 6 Information and Support START - marketing "Proud to be a Carer" 5 Information and Support START - a local offer for carers 5 Carers Experience DO MORE - assessments being carried out by trusted assessors rather than statutory organisations 5 Single point of information for carer - one person 4