Clinical trial: NCT04314752
Section: Confidentiality
Subsections: Confidentiality

As with all research, there is a chance that confidentiality could be compromised. To minimize the risks of breach of confidentiality, we will not include any information that directly identifies you on the specimens and information we collect, and on the data resulting from the research. Instead, we will record a code on the bio-
Do not write below this line. For IRB stamp **and version date only.**
Clinical trial: NCT04314752
Section: Purpose of Research
Subsections: Introduction And Purpose

You are being invited to join the research study because you were previously diagnosed with multiple myeloma within the past five years, were at least 21 years old at the time of diagnosis, are of African American, Latino, Asian American, Native Hawaiian/Pacific Islander or Non-Hispanic White, and live within one of the 48 California counties. This study is being done to learn more about the potential causes of multiple myeloma.  
If you agree to participate in this research, you will be asked to complete a questionnaire survey and provide a 2ml saliva sample for this research. This form will refer to the samples we obtain from you as "specimens."
Here are some issues to think about before you decide whether to join this research: We will use the specimen(s) and data we collect for the following research purpose(s):
While this study does not involve banking the data and/or specimens we collect with your identifiable information (e.g., your name, medical record number, or date of birth) for future use, we may still use your data or specimens to answer additional research questions or share them with other investigators for additional research. If we do so, we will remove all identifiable information before use or sharing. We will use a code on the bio-specimen and information, and we will keep a link between the code and your identity in a different location, in a password protected document and only those who are conducting the study will have access to the study records. Once identifiers have been removed, we will not ask your consent for the use of sharing of your data or specimens in additional research.  
Do not write below this line. For IRB stamp **and version date only.**
You will not receive the results of any of the tests performed on your specimens. Data summarizing the study results will be available as aggregate study findings are published.  
You will also not receive any commercial value or income that may result from the use of your specimens and data. You will only receive a one-time compensation for participating in the study, totaling $50. $20 for completion of the survey and $30 for completion of the saliva kit.  
Participation in research is completely voluntary. You can choose to participate now and change your mind in the future. Whatever you decide, there will be no penalty to you or loss of benefits to which you are otherwise entitled. If you decide to have your specimens and information removed from the research, contact the research team and ask to have your biospecimens and information removed from the study. No new research will be conducted with your specimens and information after you contact the research team.  
You will not receive any direct benefit if you take part in this study. We hope this research will bring more knowledge about the potential causes of multiple myeloma The physical risks of this research are minimal but you may feel a bit of discomfort for a short period of time while saliva is being colledcted.