Clinical trial: NCT03834974
Section: Confidentiality
Subsections: How Will My Personal Information Be Protected?

The following procedures will be used to protect the confidentiality of your data. The researchers will keep all study records (including any codes to your data) locked in a secure location on the UConn server. Access to our records will require a UConn login, software login, and personal approval from the program director to access data. At the end of the study, we will remove your name and contact information from the research records and replace with a code. The code will be a three digit number that reflects how many people have contacted the study team to express interest in the study. Data that will be shared with other investigators will be de-identified to help protect your identity. We will remove all identifiable information from the data once the study is complete and extraction data has been analyzed. At this time the link between participant identity and study data will be destroyed. We will keep the de-identified dataset indefinitely. If you end up referring eligible people into the study, or is someone who was referred by another participant, we will protect both parties by not sharing names when discussing any part of the referral process. At the conclusion of this study, the researchers may publish their findings. Information will be presented in summary format and you will not be identified in any publications or presentations. We will do our best to protect the confidentiality of the information we gather from you but we cannot guarantee 100% confidentiality. Your confidentiality will be maintained to the degree permitted by the technology used. Specifically, no guarantees can be made regarding the interception of data sent via the Internet by any third parties. You should also know that the UConn Institutional Review Board (IRB) and Research Compliance Services may inspect study records as part of its auditing program, but these reviews will only focus on the researchers and not on your responses or involvement. The IRB is a group of people who review research studies to protect the rights and welfare of research participants.
Clinical trial: NCT03834974
Section: Participant's Rights
Subsections: Can I Stop Being In The Study And What Are My Rights?

You do not have to be in this study if you do not want to. If you agree to be in the study, but later change your mind, you may drop out at any time. There are no penalties or consequences of any kind if you decide that you do not want to participate.
Clinical trial: NCT03834974
Section: Possible Risks, Discomforts, and Inconveniences
Subsections: What Are The Risks Or Inconveniences Of The Study?

Possible risks related to this research study are: psychological discomfort completing the surveys and personal information could be lost or exposed. To minimize this risk, we will do everything we can to make sure that your information is protected. Confidentiality will be maintained by the use of network secured database and locked file cabinets only accessible to study staff. We also encourage you not to use your name or location in any of the posts that you create. The Twitter and Facebook feeds that we use are public, which means individuals aside from participants follow it. Your study status as a participant and your identity will not be made known on the Twitter feed. Anything that you comment on, like, or post to the study feed will be extracted and used as study data. This helps us measure the engagement on our feed. Information you share on Twitter and Facebook is subject to the terms of use and privacy policy, including terms of use for their website and mobile application. You should review these terms and the privacy policy carefully before choosing to download and use the app or use the website. Twitter and Facebook may be able to collect, store and use information about you, such as personal information, location data, shared information, photographs, and more. During the study, if the research team becomes aware of any changes made to privacy policies, we will notify you that this has occurred and will encourage you to review your privacy settings. For any app or website, we encourage you to choose a password that includes a mix of lowercase letters, uppercase letters, numbers, and symbols, and does not include your username, the app/website name, or other easily-guessable information about you. We also encourage you to not use the same password across different accounts. Additionally, if you feel discomfort during any part of the study procedures, you may withdraw at any time.
Clinical trial: NCT03834974
Section: Procedures
Subsections: What Are The Study Procedures? What Will I Be Asked To Do?

This is an online-only study. If you would like to take part in this research, your participation will last approximately 6 weeks and will include:
A screening phase 4-week contest in which you create posts on certain topics which will appear in our Center's Twitter and Facebook feed Online survey before the study and after the contest Screening phase: The screening phase includes an initial 5-minute online survey, a 10-minute telephone conversation with our study staff, a second online survey lasting about 15 minutes. Once we have determined that you are eligible, you will be randomized into the study to determine which feed your posts will go on.
Clinical trial: NCT03834974
Section: Purpose of Research
Subsections: Overview Of The Research:

You are being asked to provide consent to participate in a research study. Participation is voluntary. You can say yes or no. If you say yes now you can still change your mind later. Some key points to consider are summarized in this overview, but you should consider all of the information in this document carefully before making your decision.  
This research is being done to deliver health information on Twitter and Facebook, specifically about lifestyle and mental wellbeing. We are doing a 4-week contest, which includes participants making the posts about the health information with weeklychances to win a gift card as well as compensation for creating each post. We will give you the health information to put into your posts.  
Participation includes an initial survey to see if you are eligible, a brief conversation to tell you about the study, a short survey to gather information about your lifestyle and wellbeing, a 30-minute webinar to talk about research and participation, 4 weeks of a social media contest, and a final survey to gather your opinions on your participation.  
Participation will involve approximately 2 and a half hours of your time over the next 6 weeks.  
Compensation is in the form of Amazon gift cards and includes $10 for each post (upto
$60), a chance to win $50 in each of the 4 week of the contest, and $50 at the end ofthe study. You can also receive $25 if you refer a friend who enrolls in the study.  
A possible risk of participating is release of confidential information. Some of the questions on the surveys may also cause you to feel upset. You may choose to notanswer any question you do not wish to answer. Risks are described in more detail later in this form.  
There may also be benefits of participation such as increased awareness of physicaland mental wellbeing.