paediatric pulmonary fibrosis at months old my son ben mahon was diagnosed with stage neuroblastoma mnyc amplification after months of chemotherapy treatment periphial stem cell rescue surgeries etc ben came through happy healthy and cancer free at years old he was then diagnosed with interstitial lung disease and recieved high dosage steroid treatment among other things a year later ben had a cardiorespirtory arrest with a ph level of yet survived normal but oxygen dependant and with pulmonary hypertention january th my little man died after spending weeks on ventillators he lost muscle and didn't have the stregnth any longer to breathe alone he was in remission for and a half years he is the youngest child to have a stem cell rescue in out state of western australia and the only survivor from his treatment i have no idea why i wrote this i guess i just wanted the world to know how strong and brave my son was thank you for taking the time to read this yours leanne mahon collie western australia june th