Spreadsheet: f39680a4-b8ac-4a30-a437-92795abf2ec9
Sheet: Sheet1

Question 7: What Other Infrastructure and Surveillance Needs Must Be Met? (Infrastructure) | Fiscal Year: 2010 | 108 projects | 50847064.9 | Unnamed: 4
7A. [NAME] a needs assessment to determine how to merge or link administrative and/or surveillance databases that allow for tracking the involvement of people living with ASD in healthcare, education and social services by 2009. IACC Recommended Budget: $520,000 over 1 year. | red | 0 projects | 0
[NAME] an annual "State of the States" assessment of existing State programs and supports for people and families living with ASD by 2011. IACC Recommended Budget: $300,000 each year. | yellow | 1 projects | 197128
Project Title | Funder | Principal Investigator | Institution | Funding
State of the States for people with ASD | Centers for Medicare & Medicaid Services | L&M Policy Research, Thompson Reuters, and the National Association of State Directors of Developmental Disabilities | Centers for Medicare & Medicaid Services (CMS) | 197128
7C. Develop and have available to the research community means by which to merge or link databases that allow for tracking the involvement of people in ASD research by 2010. IACC Recommended Budget: $1,300,000 over 2 years. | green | 5 projects | 2785368
Project Title | Funder | Principal Investigator | Institution | Funding
A centralized standard database for the Baby Siblings Research Consortium | Autism Speaks | Young, Gregory | University of California, [NAME] | 63200
Autism Registry | National Institutes of Health | [NAME], Gregory | Group Health Cooperative | 842352
Interactive Autism Network (IAN) | Autism Speaks | [NAME], [NAME] | Kennedy Krieger Institute | 880000
Pilot project to assess web-based family recruitment for autism genetics studies | Autism Speaks | [NAME], [NAME]; Constantino, [NAME]; [NAME], [NAME] | University of California, Los Angeles; Washington University in St. Louis; Kennedy Krieger Institute | 0
Accelerating autism research through the Interactive Autism Network | Simons Foundation | [NAME], [NAME] | Kennedy Krieger Institute | 999816
7D. Establish and maintain an international network of biobanks for the collection of brain, fibroblasts for pluripotent stem cells, and other tissue or biological material, by acquisition sites that use standardized protocols for phenotyping, collection, and regulated distribution of limited samples by 2011. This includes developing fibroblast repositories to produce pluripotent stem cells. [NAME] should be put into place to expand the capacities of ongoing large-scale children's studies to collect and store additional biomaterials, promoting detection of biological signatures. IACC Recommended Budget for establishing biobanks by 2011: $10,500,000 over 2 years. IACC Recommended Budget for maintaining biobanks: $22,200,000 over 5 years. | yellow | 6 projects | 7814918.39
Project Title | Funder | Principal Investigator | Institution | Funding
Autism Celloidin Library | Autism Speaks | Hof, [NAME] | Mount Sinai School of Medicine | 0
Autism Genetic Resource Exchange (AGRE) | Autism Speaks | Staff Member | Autism Speaks (AS) | 1506381
Autism Tissue Program (ATP) | Autism Speaks | Staff Member | Autism Speaks (AS) | 497997
Bioinformatics support for AGRE | Autism Speaks | Staff Member | Autism Speaks (AS) | 318287
An open resource for autism iPSCs and their derivatives | National Institutes of Health | Schwartz, [NAME] | Children's Hospital of Orange County | 561413
Rutgers, The State University of New Jersey | Simons Foundation | Contract | Rutgers, The State University of New Jersey | 4930840.39
7E. Begin development of a web-based toolbox to assist researchers in effectively and responsibly disseminating their finding to the community, including people with ASD, their families, and health practitioners by 2011. IACC Recommended Budget: $400,000 over 2 years. | green | 1 projects | 390134
Project Title | Funder | Principal Investigator | Institution | Funding
Ethics of communicating scientific findings on autism risk | Autism Speaks | Newschaffer, [NAME] | Drexel University School of Public Health | 390134
7F. Create funding mechanisms that encourage rapid replication studies of novel or critical findings by 2011. (No recommended budget assigned by the IACC.) | red | 0 projects | 0
7G. Develop a web-based tool which provides population estimates of ASD prevalence for states based on the most recent prevalence range and average identified by the ADDM Network by 2012. IACC Budget Recommendations: $200,000 over 2 years. | red | 0 projects | 0
7H. Create mechanisms to specifically support the contribution of data from 90 percent of newly initiated projects to the National Database for Autism Research (NDAR) and link NDAR with other existing data resources by 2012. IACC Recommended Budget: $6,800,000 over 2 years. | yellow | 3 projects | 2453253
Project Title | Funder | Principal Investigator | Institution | Funding
Linking data sources from the Autism Genetic Resource Exchange (AGRE) with [NAME] | National Institutes of Health | Lajonchere, [NAME] | Autism Speaks (AS) | 469084
Linking data sources from the Autism Genetic Resource Exchange (AGRE) with [NAME] (supplement) | National Institutes of Health | Lajonchere, [NAME] | Autism Speaks (AS) | 141029
National Database on Autism Research (NDAR) | National Institutes of Health | No PI listed | Center For Information Technology | 1843140
7I. Supplement existing ADDM Network sites to use population-based surveillance data to conduct at least 5 hypothesis-driven analyses evaluating factors that may contribute to changes in ASD prevalence by 2012. IACC Recommended Budget: $660,000 over 2 years. | green | 13 projects | 6137128
Project Title | Funder | Principal Investigator | Institution | Funding
Phenotypic heterogeneity and early identification of ASD in the United States | Autism Science Foundation | Maenner, [NAME] | University of Wisconsin - Madison | 0
Autism and Developmental Disabilities Monitoring (ADDM) network - Alabama | Centers for Disease Control and Prevention | [NAME], [NAME] | University of Alabama at Birmingham | 425000
Autism and Developmental Disabilities Monitoring (ADDM) network - Arizona | Centers for Disease Control and Prevention | Cunniff, [NAME] | University of Arizona | 425000
Autism and Developmental Disabilities Monitoring (ADDM) network - Arkansas | Centers for Disease Control and Prevention | Shultz, [NAME] | University of Arkansas for Medical Sciences | 423626
Autism and Developmental Disabilities Monitoring (ADDM) network - Colorado | Centers for Disease Control and Prevention | [NAME], [NAME] | Colorado Department of Health and Environment | 390000
Autism and Developmental Disabilities Monitoring (ADDM) network - Maryland | Centers for Disease Control and Prevention | [NAME], [NAME] | Johns Hopkins University | 425000
Autism and Developmental Disabilities Monitoring (ADDM) network - Missouri | Centers for Disease Control and Prevention | Constantino, [NAME] | Washington University in St. Louis | 409966
Autism and Developmental Disabilities Monitoring (ADDM) network - New Jersey | Centers for Disease Control and Prevention | Zaharodny, [NAME] | University of Medicine & Dentistry of New Jersey | 425001
Autism and Developmental Disabilities Monitoring (ADDM) network - North Carolina | Centers for Disease Control and Prevention | Daniels, [NAME] | University of North Carolina at Chapel Hill | 413169
Autism and Developmental Disabilities Monitoring (ADDM) network - South Carolina | Centers for Disease Control and Prevention | [NAME] | Medical University of South Carolina | 424999
Autism and Developmental Disabilities Monitoring (ADDM) network - Utah | Centers for Disease Control and Prevention | Zimmerman, Judith | University of Utah | 417881
Autism and Developmental Disabilities Monitoring (ADDM) network - Wisconsin | Centers for Disease Control and Prevention | [NAME], [NAME] | University of Wisconsin - Madison | 425000
Metropolitan Atlanta Developmental Disabilities Surveillance Program/Autism and Developmental Disabilities Monitoring (ADDM) network - Georgia | Centers for Disease Control and Prevention | Van Naarden Braun, [NAME]; [NAME], Cathy; Baio, Jon | Centers for Disease Control and Prevention (CDC) | 1532486
7J. Develop the personnel and technical infrastructure to assist states, territories, and other countries who request assistance describing and investigating potential changes in the prevalence of ASD and other developmental disabilities by 2013. IACC Recommended Budget: $1,650,000 over 3 years. | yellow | 4 projects | 170490
Project Title | Funder | Principal Investigator | Institution | Funding
ARTI: The Autism Research & Training Initiative in India | Autism Speaks | [NAME], Vikram | Sangath | 50490
Epidemiological study of pervasive developmental disorders in Mexico | Autism Speaks | [NAME], [NAME] | McGill University | 60000
KwaZulu-Natal (KZN) Autism Study | Autism Speaks | Kauchali, [NAME] | University of KwaZulu-Natal | 60000
A large scale, two phase study to estimate prevalence, and raise awareness, about autism spectrum conditions in India | Autism Speaks | Mukerji, Shaneel | Action for Autism/Creating Connections | 0
7K. Encourage programs and funding mechanisms that expand the research workforce, enhance interdisciplinary research training, and recruit early career scientists into the ASD field by 2013. IACC Recommended Budget: $5,000,000 over 3 years. | green | 34 projects | 7358427
Project Title | Funder | Principal Investigator | Institution | Funding
Leadership in Family-Centered Early Intervention (LIFE) personnel preparation program | Department of Education | Hanline, Mary | Florida State University | 199995
Interdisciplinary Training Conference in Developmental Disabilities | National Institutes of Health | Abbeduto, Leonard | University of Wisconsin - Madison | 20000
Interdisciplinary Training Conference in Developmental Disabilities (supplement) | National Institutes of Health | Abbeduto, Leonard | University of Wisconsin - Madison | 5000
Infrastructure support for autism research at MIT | Simons Foundation | Sur, Mriganka | Massachusetts Institute of Technology | 1500000
International Meeting for Autism Research (IMFAR) Support | Simons Foundation | Gentry, [NAME] | International Society for Autism Research | 50000
Leadership training in high-need students with severe disabilities/autism | Department of Education | Hughes, [NAME] | Vanderbilt University | 299194
International Meeting for Autism Research (IMFAR) | Coalition for SafeMinds | International Society for Autism Researh (INSAR) | International Society for Autism Researh (INSAR) | 9800
Post-doctoral special education research training in urban communities: A research to practice model | Department of Education | [NAME], [NAME] | University of Kansas | 163322
2010 Molecular and Cellular Neurobiology Gordon Research Conference | National Institutes of Health | Shen, [NAME] | Gordon Research Conferences | 30000
Post-doctoral training in special education research | Department of Education | Odom, [NAME] | University of North Carolina at Chapel Hill | 159391
Birth to Kindergarten Professional Preparation: Inclusive Services for Children with Autism Spectrum Disorders | Department of Education | Niemeyer, [NAME] | University of North Carolina at Greensboro | 299953
Preparing tomorrow's school psychology faculty to meet the needs of children with disabilities using evidence-based practices | Department of Education | [NAME], [NAME] | University of Utah | 196402
Project STARS: Systematic Training for Autism Researchers and School Personnel | Department of Education | Mehta, [NAME] | University of North Texas | 199962
OPAM: A conference on Object Perception Attention and Memory | National Institutes of Health | Palomares, [NAME] | University of South Carolina | 7500
Recruiting and preparing highly qualified special educators | Department of Education | Dieker, [NAME] | University of Central Florida | 200000
Meeting grant - International Meeting for Autism Research (IMFAR) | Autism Science Foundation | International Meeting for Autism Research (IMFAR) | International Meeting for Autism Research (IMFAR) | 25000
Innovative Technology for Autism | Autism Speaks | Staff Member | Autism Speaks (AS) | 0
Early Childhood Special Education Leadership (ECSEL) | Department of Education | Smith, [NAME] | University of Colorado Denver | 199905
Interdisciplinary training for autism researchers | National Institutes of Health | Rogers, [NAME] | University of California, [NAME] | 283133
International Meeting for Autism Research (IMFAR) | National Institutes of Health | Rogers, [NAME] | University of California, [NAME] | 47822
International Mental Health/Developmental Disabilities Research Training Program | National Institutes of Health | Munir, [NAME] | Children's Hospital Boston | 188000
Providing core support for Jr. faculty for translational research in ASD | National Institutes of Health | Geschwind, [NAME] | University of California, Los Angeles | 678816
Synapses: Formation, Function and Misfunction | National Institutes of Health | [NAME], [NAME] | [NAME] | 10500
Mental Health/Disabilities (MHDD) Research Education Program | National Institutes of Health | Munir, [NAME] | Children's Hospital Boston | 154942
[NAME] and Autism 2010 | National Institutes of Health | [NAME], [NAME] | University of California, San Diego | 16000
2010 "Synaptic Transmission" Gordon Research Conference | National Institutes of Health | Castillo, Pablo | Gordon Research Conferences | 30000
Preparation of leadership personnel to serve infants, toddlers, children, and youth with autism | Department of Education | Wetherby, [NAME] | Florida State University | 199397
Preparing SLPs, OTs, early childhood special educators, and developmental psychologists for leadership roles in teaching, research, and service focused on young children with autism and their families | Department of Education | Crais, [NAME] | University of North Carolina at Chapel Hill | 199744
Towards defining the pathophysiology of autistic behavior | National Institutes of Health | [NAME], [NAME] | [NAME] | 9500
2010 Annual SFARI Meeting | Simons Foundation | No PI listed |  | 380573
Leadership training in severe disabilities/autism | Department of Education | [NAME], [NAME] | Vanderbilt University | 200000
2010 Neurobiology of Cognition Gordon Research Conference | National Institutes of Health | Wang, [NAME] | Gordon Research Conferences | 50000
Autism Research Program | National Institutes of Health | [NAME], Pat | University of Southern California | 805893
Cold Spring Harbor Laboratory faculty recruitment in developmental neurobiology | National Institutes of Health | Zador, [NAME] | Cold Spring Harbor Laboratory | 538683
7L. Expand the number of ADDM  sites in order to conduct ASD surveillance in children and adults; conduct complementary direct screening to inform completeness of ongoing surveillance; and expand efforts to include autism subtypes by 2015. IACC Recommended Budget: $16,200,000 over 5 years. | yellow | 8 projects | 1429602
Project Title | Funder | Principal Investigator | Institution | Funding
Autism and Developmental Disabilities Monitoring (ADDM) network - Arizona (expanded) | Centers for Disease Control and Prevention | Cunniff, [NAME] | University of Arizona | 110000
Autism and Developmental Disabilities Monitoring (ADDM) network - Missouri (expanded) | Centers for Disease Control and Prevention | Constantino, [NAME] | Washington University in St. Louis | 97003
Autism and Developmental Disabilities Monitoring (ADDM) network - New Jersey (expanded) | Centers for Disease Control and Prevention | Zaharodny, [NAME] | University of Medicine & Dentistry of New Jersey | 110000
Autism and Developmental Disabilities Monitoring (ADDM) network - South Carolina (expanded) | Centers for Disease Control and Prevention | [NAME] | Medical University of South Carolina | 150000
Autism and Developmental Disabilities Monitoring (ADDM) network - Utah (expanded) | Centers for Disease Control and Prevention | Zimmerman, Judith | University of Utah | 149999
Autism and Developmental Disabilities Monitoring (ADDM) network - Wisconsin (expanded) | Centers for Disease Control and Prevention | [NAME], [NAME] | University of Wisconsin - Madison | 110000
Early ASD surveillance - 1 | Centers for Disease Control and Prevention | Windham, [NAME] | California Department of Health | 353454
Early ASD surveillance - 2 | Centers for Disease Control and Prevention | Wetherby, [NAME] | Florida State University | 349146
7M. Support 10 "Promising Practices" papers that describe innovative and successful services and supports being implemented in communities that benefit the full spectrum of people with ASD, which can be replicated in other communities by 2015. IACC Recommended Budget: $75,000 over 5 years. | red | 0 projects | 0
(New to 2010) 7N. Enhance networks of clinical research sites offering clinical care in real-world settings that can collect and coordinate standardized and comprehensive diagnostic, biological (e.g., DNA, plasma, fibroblasts, urine), medical, and treatment history data that would provide a platform for conducting comparative effectiveness research and clinical trials of novel autism treatments by 2012. IACC Recommended Budget: $1,850,000 over 1 year. | green | 3 projects | 6662789.51
Project Title | Funder | Principal Investigator | Institution | Funding
Autism Treatment Network (ATN) | Autism Speaks | Staff Member | Autism Speaks (AS) | 3068517
Creating the Developmental-Behavioral Pediatrics Research Network | Health Resources and Services Administration | Blum, Nathan | Children's Hospital of Philadelphia | 200000
Prometheus Research, LLC | Simons Foundation | Contract | Prometheus Research, LLC | 3394272.51
(New to 2010) 7O. Create an information resource for ASD researchers (e.g., PhenX Project) to share information to facilitate data sharing and standardization of methods across projects by 2013.     o This includes common protocols, instruments, designs, and other procedural documents and should include updates on new technology and links to information on how to acquire and utilize technology in development.     o This can serve as a bidirectional information reference, with autism research driving the development of new resources and technologies, including new model systems, screening tools, and analytic techniques. IACC Recommended Budget: $2,000,000 over 2 years. | yellow | 3 projects | 605338
Project Title | Funder | Principal Investigator | Institution | Funding
Rodeo: A platform for discovery and analysis of protein network motifs | National Science Foundation | Wall, Dennis | Harvard University | 177496
CRCNS: Ontology-based multi-scale integration of the autism phenome | National Institutes of Health | Das, [NAME] | Stanford University | 328680
Cognitive usability evaluation of the [NAME] system | Simons Foundation | Kaufman, [NAME] | Columbia University | 99162
(New to 2010) 7P. Provide resources to centers or facilities that develop promising vertebrate and invertebrate model systems, and make these models more easily available or expand the utility of current model systems, and support new approaches to develop high-throughput screening technologies to evaluate the validity of model systems by 2013. IACC Recommended Budget: $1,100,000 over 2 years. | green | 1 projects | 1588780
Project Title | Funder | Principal Investigator | Institution | Funding
Transgenic animal models for neuroscience research | National Institutes of Health | Pickel, [NAME] | National Institutes of Health | 1588780
7Other. Not specific to Question 7 objectives | not applicable | 26 projects | 13253709
Project Title | Funder | Principal Investigator | Institution | Funding
A confocal laser scanning microscope for Neuroscience Imaging Center | National Institutes of Health | [NAME], [NAME] | University of Tennessee Health Science Center | 466377
ACE Center: Administrative Core | National Institutes of Health | Eichenbaum, [NAME] | University of California, San Diego | 34343
ACE Center: Data Management and Analysis Core | National Institutes of Health | Grigorenko, Elena | Yale University | 202592
CPEA Data Coordinating Center (supplement) | National Institutes of Health | Dukes, Kimberly | DM-Stat, Inc. | 59632
ACE Center: Data Management/Statistical Core | National Institutes of Health | Abbott, [NAME] | University of Washington | 38
ACE Center: Subject Assessment and Recruitment Core | National Institutes of Health | Minshew, [NAME] | University of Pittsburgh | 878970
ACE Center: The Diagnostic and Assessment Core | National Institutes of Health | Piggot, Judith | University of California, Los Angeles | 302409
Core B: Outreach and Translation | National Institutes of Health | [NAME], [NAME] | University of California, [NAME] | 108000
Core C: Analytical Core | National Institutes of Health | Hammock, [NAME] | University of California, [NAME] | 124440
Core D: Molecular Genomics Core | National Institutes of Health | Sharp, [NAME] | University of California, [NAME] | 73487
Statistics and Research Design Core | National Institutes of Health | Cicchetti, [NAME] | Yale University | 292249
2010 SFARI Workshops | Simons Foundation | No PI listed |  | 230623
ACE Center: The Imaging Core | National Institutes of Health | Bookheimer, [NAME] | University of California, Los Angeles | 335066
Administrative Core | National Institutes of Health | Piven, [NAME] | University of North Carolina at Chapel Hill | 502455
Behavioral [NAME] | National Institutes of Health | [NAME], [NAME] | University of North Carolina at Chapel Hill | 502439
Grant to purchase tissue freezer and coil to allow for phophorous magnetic resonance spectroscopy | Autism Research Institute | [NAME], [NAME] | Treatment Research and Neuroscience Evaluation of Neurodevelopmental Disorders (TRANSCEND) Research Laboratory, Massachusetts General Hospital | 30445
Mindspec, Inc. | Simons Foundation | Contract | Mindspec, Inc. | 666900
Core E: Participant Recruitment & Assessment Services | National Institutes of Health | Dykens, [NAME] | Vanderbilt University | 286854
Center for Visual and Cognitive Neuroscience (supplement) | National Institutes of Health | McCourt, [NAME] | North Dakota State University | 179659
Core A: Administrative Services | National Institutes of Health | Dykens, [NAME] | Vanderbilt University | 253048
fNIRS system to further research on neurodevelopmental disorders | National Institutes of Health | Pelphrey, [NAME] | Yale University | 444700
Office of the Scientific Director | National Institutes of Health | [NAME], [NAME] | National Institutes of Health | 6374025
Core E: Statistical Analysis Core | National Institutes of Health | Beckett, Laurel | University of California, [NAME] | 19844
ACE Center: Administrative Core | National Institutes of Health | Klin, [NAME] | Yale University | 120043
ACE Center: Assessment Core | National Institutes of Health | Leventhal, [NAME] | University of Illinois at Chicago | 382531
ACE Center: Data and Statistics Core | National Institutes of Health | Gibbons, [NAME] | University of Illinois at Chicago | 382540
This data file was dynamically generated.