debates/debates2025-11-05f conversation_9
Source: hansard.parliament.uk (2025-11-05)

UK Parliament Hansard data: debates/debates2025-11-05f conversation_9

Jonathan Brash:My constituent Georgia Hart was just 15 years old when she was diagnosed with Friedreich’s ataxia, a cruel and degenerative condition that slowly robs a person of their mobility and independence. Since then, her courageous parents have battled day in and day out to raise awareness and money to get her the treatment she needs. There is now a drug, omaveloxolone, which has been proven to slow the progression of the disease, yet despite that it has been stalled by the National Institute for Health and Care Excellence, partly because the number of patients affected is judged to be above the limit for ultra-rare conditions.

Georgia and those like her are being failed not because the science is not there and not because the treatment is not there but simply because the numbers do not add up. Does the Deputy Prime Minister agree that we cannot allow bureaucracy to stand in the way of life-changing treatment? Will he commit to ensuring that I, along with Ataxia UK, can meet the relevant Minister at the earliest opportunity so that Georgia and her family do not lose more precious time? \p David Lammy: It seems that, like the right hon. Member for Braintree (Sir James Cleverly), the hon. Member for South Suffolk (James Cartlidge) cannot count, let alone stand up on behalf of the public.

I thank my hon. Friend the Member for Hartlepool (Mr Brash) for his question. Our NHS has a strong record in delivering new medicines for rare diseases. The evaluation process is rightly led by NICE. As I understand it, the manufacturer of the new treatment for Friedreich’s ataxia has withdrawn from the process. However, the door remains open for the company to re-engage. I am happy to arrange the meeting that my hon. Friend seeks to help ensure more broadly that everyone gets the care they deserve while we are investing an additional £29 billion in the national health service. \p Lindsay Hoyle: I call the deputy leader of the Liberal Democrats. \p Daisy Cooper: On behalf of my party, may I join the Deputy Prime Minister in expressing our horror at the terrifying knife attack at the weekend and pay tribute to all those, including the emergency services, who put themselves in harm’s way to protect others? As we approach Remembrance Sunday, may I also join him in remembering all those who gave the ultimate sacrifice for our rights and our freedoms?

Those rights and freedoms are now under threat in a way that we have not seen since the second world war. Putin is waging war on our continent and interfering in democracies across Europe, the Chinese Government are waging espionage against this House and Elon Musk is inciting violence on our streets. To date, the Government have failed to heed our calls for a new inquiry into Russian meddling, failed to place China on the enhanced tier of country threats and failed to launch an MI5 investigation into the threat posed by Elon Musk. What will it take for the Government to act and protect our democracy? \p David Lammy: May I remind her that as Foreign Secretary I stood at this Dispatch Box and spoke to the China audit that we said we would do on coming into government? We did that; indeed, I did it on the same day that we published our national security strategy. The Secretary of State for Defence has also published the strategic defence review. If the hon. Lady looks across all three of those documents, they set this country in the best place possible to face down the threats that she rightly refers to. \p Daisy Cooper: I hope that the Deputy Prime Minister in his new role will consider our calls again.

Right now, families across the country are struggling with a cost of living crisis, yet the Chancellor is preparing to increase taxes. Meanwhile, because of high interest rates and arcane Treasury rules to do with quantitative easing, the big banks are making billions of pounds in windfall profits that they never expected, never relied on and never had to take any risk to earn. Without asking the Deputy Prime Minister to pre-empt the Chancellor’s Budget, which does he think is fairer: taxing struggling families or taxing big banks? \p David Lammy: The hon. Lady knows that we have 80 years of convention, and it is for the Chancellor of the Exchequer to present her Budget later on this month. I say gently to her: it was under her Government, in which her party was in coalition with the Conservatives, that we saw austerity right across our country; and she will know that there are major parties that are proposing austerity again. I know that the Chancellor will do everything she can to continue, as she set out yesterday, to invest in our NHS and in our public services.