PICANet Annual Report 2015-2017
Source: data.gov.uk (2019-12-05)

Paediatric Intensive Care Audit - This data contains information on all admissions to Paediatric Intensive Care units in the UK and Ireland 2015-2017.

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PICANet Annual Report Appendices 2018 
 
 
 
 
 
Appendices 
Paediatric Intensive Care 
Audit Network 
Annual Report 2018 
Data collection period  
January 2015–December 2017 

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PICANet Annual Report Appendices 2018 
 
Contents 
A. 
PARTICIPATING ORGANISATION & HOSPITAL CHARACTERISTICS .............................................................. 3 
B. 
CLINICAL ADVISORY GROUP MEMBERSHIP .......................................................................................... 5 
C. 
STEERING GROUP MEMBERSHIP ....................................................................................................... 7 
D. 
PIC FAMILIES GROUP MEMBERSHIP .................................................................................................. 9 
E. 
DATA COLLECTION FORM – ADMISSION ........................................................................................... 10 
F. 
DATA COLLECTIN FORM – REFERRAL ............................................................................................... 14 
G. 
DATA COLLECTION FORM – TRANSPORT .......................................................................................... 15 
H. 
INFORMATION LEAFLET – FAMILIES AND CARERS ................................................................................ 17 
I. 
INFORMATION LEAFLET – CHILDREN ................................................................................................ 19 
J. 
PICANET PRIVACY AND FAIR PROCESSING STATEMENT ....................................................................... 21 
K. 
DATA VALIDATION FORM .............................................................................................................. 24 
L. 
DATA VALIDATION REPORT............................................................................................................ 26 
M. PUBLICATIONS, ABSTRACTS & PRESENTATIONS 2014-2016 ................................................................ 27 
Publications .................................................................................................................................... 27 
Abstracts ......................................................................................................................................... 29 
Presentations and Posters .............................................................................................................. 30 
N. 
STAFFING STUDY DATA COLLECTION FORMS 2017 ............................................................................ 31 
O. 
DATA REQUESTS DECEMBER 2016 – DECEMBER 2017 ...................................................................... 51 
Published in the UK by the Paediatric Intensive Care Audit Network (PICANet). This work is copyright. Apart from any use as permitted under the Copyright, Designs 
and Patents Act 1988, no part may be reproduced by any process without permission from PICANet.  
Requests and enquiries concerning reproduction rights should be directed to PICANet at: 
 
 
 
PICANet 
 
School of Medicine 
 
Room 8.49, Worsley Building 
 
University Of Leeds 
 
Leeds, LS2 9JT 
 
Telephone: xx-xxxx-xxxx 
 
E-mail: xxx@xxx.xx 
 
 
 
In all cases PICANet must be acknowledged as the source when reproducing or quoting any part of this publication.  
Please use the following format when citing this report: 
 
Paediatric Intensive Care Audit Network Annual Report 2018 (published November 2018): Universities of Leeds and Leicester. 
 
©2018 The University of Leeds, University of Leicester and the Healthcare Quality Improvement Partnership 
 
 

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PICANet Annual Report Appendices 2018 
A.      PARTICIPATING ORGANISATION & HOSPITAL CHARACTERISTICS 
NHS Trust / Organisation 
Participating Hospital 
Unit / 
Ward 
Number of ITU 
beds 
Number of HDU 
beds 
Type of unit 
Barts Health NHS Trust 
The Royal London Hospital 
PCCU 
2 
41 
General  
Birmingham Children’s Hospital NHS Trust 
Birmingham Children’s Hospital 
PICU 
29.5 
0 
General including cardiac, liver, 
neurosurgical, ECLS, ENT, oncology, 
metabolic and spinal 
Cambridge University Hospitals NHS 
Foundation Trust 
Addenbrooke's Hospital 
PICU 
9 
4 
General  
Cardiff & Vale NHS Trust 
The Children’s Hospital for Wales 
PCCU 
6 
4 
General  
Central Manchester & Manchester 
Children’s University Hospitals NHS 
Foundation Trust 
Royal Manchester Children’s 
Hospital 
PICU 
15 
0 
General  
Great Ormond Street Hospital for Children 
NHS Trust 
Great Ormond Street Hospital for 
Children 
CCCU 
19 
0 
Cardiac 
PICU & 
NICU 
26 
0 
General & Neonatal 
Guy’s & St. Thomas’ NHS Foundation Trust 
Evelina London Children’s Hospital 
PICU 
19 
0 
General & Cardiac 
HSE (Health Services Executive) 
Children’s University Hospital, 
Temple Street, Dublin 
PICU 
9 
0 
General 
Our Lady’s Children’s Hospital, 
Crumlin, Dublin 
PICU 
18 
5 
General & Cardiac 
King’s College Hospital NHS Trust 
King’s College Hospital  
PICU 
8 
81 
General, Hepatic & Neurosurgical 
Leeds Teaching Hospitals NHS Trust 
Leeds General Infirmary 
PICU 
16 
0 
General & Cardiac 
Newcastle Upon Tyne Hospitals NHS 
Foundation Trust 
Great North Children’s Hospital 
PICU 
11 
0 
General & Surgical ICU 
Freeman Hospital 
CICU 
12 
0 
Cardiothoracic surgery, heart failure, 
ECMO & ENT 
NHS Lothian – University Hospitals Division 
Royal Hospital for Sick Children, 
Edinburgh 
PICU 
10 
9 
General, Neurosurgical & Spinal 
NHS Greater Glasgow and Clyde – Women 
and Children’s Division 
Royal Hospital for Children, Glasgow  
PICU 
20 
2 
General, Neurosurgical Cardiac & ECMO 
Oxford University Hospitals NHS Trust 
The John Radcliffe Hospital 
PCCU 
8 
9 
General including neurosurgical, 
craniofacial and major trauma 

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PICANet Annual Report Appendices 2018 
NHS Trust / Organisation 
Participating Hospital 
Unit / 
Ward 
Number of ITU 
beds 
Number of HDU 
beds 
Type of unit 
Nottingham University Hospitals NHS Trust 
Nottingham Children’s Hospital 
PICU 
8 
6 
General (plus regional oncology, major 
trauma, ENT, paediatric surgery, 
regional neurosurgical, spinal, 
supraregional renal service and cleft lip 
& palate services) 
Royal Brompton & Harefield NHS 
Foundation Trust 
Royal Brompton Hospital 
PICU 
16 
4 
Cardiac & Respiratory 
Alder Hey Children’s NHS Foundation Trust 
Alder Hey Children’s Hospital 
PICU 
21 
0 
General & Cardiac 
Sheffield Children’s NHS Foundation Trust  
Sheffield Children’s Hospital 
PCCU 
9 
8 
General (plus major trauma, 
neurosurgery, ENT, oncology, 
metabolic, paediatric surgery, spinal) 
University Hospitals Southampton NHS 
Foundation Trust 
Southampton Children’s Hospital 
PICU 
14 
0 
General, Cardiac & Neurosurgery 
South Tees Hospitals NHS Foundation Trust 
The James Cook University Hospital 
PICU 
4 
2 
General 
St. George’s Healthcare NHS Trust 
St. George’s Hospital 
PICU 
6 
6 
General, Neurosurgical, Oncology & 
Paediatric Surgery 
Imperial College Healthcare NHS Trust 
St. Mary’s Hospital 
PICU 
7 
0 
General 
Belfast Health and Social Care Trust 
Royal Belfast Hospital for Sick 
Children 
PICU 
122 
0 
General 
University Hospitals Bristol NHS Foundation 
Trust 
Bristol Royal Hospital for Children 
PICU 
17 
0 
General, Cardiac, Neurosurgery, Burns 
and Major Trauma 
University Hospitals of Leicester NHS Trust 
Leicester Royal Infirmary  
CICU 
6 
0 
General 
Glenfield Hospital 
PICU 
7 
0 
Cardiac & ECMO 
University Hospitals of North Midlands NHS 
Trust 
Royal Stoke University Hospital 
PICU 
6.5 
0 
General 
HCA Healthcare (non NHS) 
The Harley Street Clinic 
PICU 
13 
5 
General & Cardiac 
The Portland Hospital for Women 
and Children 
PICU 
10 
0 
General 
 
1. ITU/ HDU beds are used flexibly if required.  
2. PICU Royal Belfast Hospital for Sick Children routinely admit children up to 14 years of age.  
The above information was recorded in November 2017 

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PICANet Annual Report Appendices 2018 
B.     CLINICAL ADVISORY GROUP MEMBERSHIP 
C. NAME 
POSITION 
NHS TRUST / HOSPITAL 
PERIOD SERVED 
DR RACHEL AGBEKO 
PAEDIATRIC INTENSIVIST 
NEWCASTLE UPON TYNE HOSPITALS NHS FOUNDATION TRUST  
GREAT NORTH CHILDREN’S HOSPITAL 
2012 - PRESENT 
DR JOHN ALEXANDER 
CONSULTANT IN PAEDIATRIC INTENSIVE CARE 
UNIVERSITY HOSPITALS OF NORTH MIDLANDS NHS TRUST  
ROYAL STOKE UNIVERSITY HOSPITAL 
2012 - PRESENT 
SIMON CHILES 
SENIOR CHARGE NURSE 
UNIVERSITY HOSPITALS OF LEICESTER NHS TRUST 
LEICESTER ROYAL INFIRMARY 
2014 - PRESENT 
KATHRYN CLAYDON - SMITH 
CLINICAL NURSE SPECIALIST 
CENTRAL MANCHESTER & MANCHESTER CHILDREN’S UNIVERSITY HOSPITALS NHS 
TRUST 
ROYAL MANCHESTER CHILDREN’S HOSPITAL 
2009 - PRESENT 
DR PETER DAVIS (CHAIR) 
CONSULTANT IN PAEDIATRIC INTENSIVE CARE 
UNIVERSITY HOSPITALS BRISTOL NHS FOUNDATION TRUST 
ROYAL HOSPITAL FOR CHILDREN 
2006 - PRESENT 
LOUISE DEWSBURY 
PICU MATRON 
GUY’S & ST THOMAS’ NHS FOUNDATION TRUST 
EVELINA CHILDREN’S HOSPITAL 
2017 - PRESENT 
DR ANDREW DURWARD 
 
CONSULTANT IN PAEDIATRIC INTENSIVE CARE 
GUY’S & ST THOMAS’ NHS FOUNDATION TRUST 
EVELINA CHILDREN’S HOSPITAL 
2002 - 2018 
JUDITH GRAY 
SISTER 
NEWCASTLE UPON TYNE HOSPITALS NHS FOUNDATION TRUST 
NEWCASTLE FREEMAN HOSPITAL 
2015 - PRESENT 
DR HILARY KLONIN 
CONSULTANT IN PAEDIATRIC INTENSIVE CARE 
HULL & EAST YORKSHIRE HOSPITALS NHS TRUST 
HULL ROYAL INFIRMARY 
2002 - 2018 
DR PAULA LISTER 
CONSULTANT PAEDIATRIC INTENSIVIST 
GREAT ORMOND STREET HOSPITAL FOR CHILDREN NHS TRUST 
GREAT ORMOND STREET HOSPITAL FOR SICK CHILDREN 
2012 - 2018 
DR CATHY MCMAHON 
CONSULTANT IN PAEDIATRIC INTENSIVE CARE 
OUR LADY'S CHILDREN'S HOSPITAL, CRUMLIN, DUBLIN & 
THE CHILDREN’S UNIVERSITY HOSPITAL, DUBLIN 
2011 -2016 
LESLEY MOLONY 
INFORMATION OFFICER 
SOUTHAMPTON UNIVERSITIES HOSPITAL NHS TRUST 
SOUTHAMPTON CHILDREN’S HOSPITAL 
2013 - PRESENT 
DR RODDY O’DONNELL 
CONSULTANT IN PAEDIATRIC INTENSIVE CARE 
CAMBRIDGE UNIVERSITY HOSPITALS NHS FOUNDATION TRUST 
ADDENBROOKE’S HOSPITAL 
2002 - PRESENT 
DR JOHN PAPPACHAN 
 
ANAESTHETICS AND PAEDIATRIC INTENSIVE CARE MEDICINE   
SOUTHAMPTON UNIVERSITIES HOSPITAL NHS TRUST 
SOUTHAMPTON CHILDREN’S HOSPITAL 
2012 - PRESENT 
DR ADRIAN PLUNKETT 
CONSULTANT PAEDIATRIC INTENSIVIST 
BIRMINGHAM CHILDREN’S HOSPITAL NHS TRUST 
BIRMINGHAM CHILDREN’S HOSPITAL 
2012 - 2018 
DR PADMANABHAN RAMNARAYAN 
(REPRESENTING TRANSPORT 
ORGANISATIONS) 
CONSULTANT 
GREAT ORMOND STREET HOSPITAL NHS TRUST  
CHILDREN'S ACUTE TRANSPORT SERVICE 
2012 - PRESENT 
DR MARK TERRIS 
(REPRESENTING NORTHERN IRELAND) 
CONSULTANT ANAESTHETIST 
BELFAST HEALTH AND SOCIAL CARE TRUST 
ROYAL BELFAST HOSPITAL FOR SICK CHILDREN 
2014 - PRESENT 

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PICANet Annual Report Appendices 2018 
C. NAME 
POSITION 
NHS TRUST / HOSPITAL 
PERIOD SERVED 
DR SHANE TIBBY 
 
CONSULTANT IN PAEDIATRIC INTENSIVE CARE 
GUY’S AND ST THOMAS’ FOUNDATION TRUST 
EVELINA CHILDREN’S HOSPITAL 
2011 - PRESENT 
DR ALISTAIR TURNER  
(REPRESENTING SCOTLAND) 
CONSULTANT IN PAEDIATRIC INTENSIVE CARE 
ROYAL HOSPITAL FOR CHILDREN, GLASGOW 
2016 - PRESENT 
DR ALLAN WARDHAUGH 
(REPRESENTING WALES) 
CONSULTANT IN PAEDIATRIC INTENSIVE CARE 
CARDIFF AND VALE UNIVERSITY HEALTH BOARD  
UNIVERSITY HOSPITAL OF WALES 
2004 - PRESENT 
DR PETER WILSON 
 
PICU CONSULTANT 
UNIVERSITY HOSPITAL SOUTHAMPTON NHS FOUNDATION TRUST 
SOUTHAMPTON CHILDREN’S HOSPITAL 
2011- PRESENT 
 
Membership recorded above is the membership spanning the reporting period 2015-2017 

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PICANet Annual Report Appendices 2018 
C.      STEERING GROUP MEMBERSHIP 
NAME 
POSITION 
ORGANISATION 
REPRESENTATION 
PERIOD SERVED 
CHRISTOPHER COSLETT 
DIRECTORATE MANAGER FOR CARDIOTHORACIC 
SERVICES AND CRITICAL CARE 
UNIVERSITY HOSPITAL OF WALES 
WALES 
2016 - 2018 
DR PETER DAVIS 
CONSULTANT IN PAEDIATRIC INTENSIVE CARE 
UNIVERSITY HOSPITALS BRISTOL NHS FOUNDATION TRUST 
BRISTOL ROYAL HOSPITAL FOR CHILDREN 
CHAIR OF PICANET CAG 
2011 - PRESENT 
LOUISE DEWSBURY 
MATRON PICU  
EVELINA LONDON CHILDREN’S HOSPITAL 
PICS NURSE MANAGEMENT GROUP 
2017 - PRESENT 
CHARLIE EVANS 
CASE MIX PROGRAMME MANAGER 
INTENSIVE CARE NATIONAL AUDIT & RESEARCH CENTRE 
(ICNARC) 
INTENSIVE CARE NATIONAL AUDIT & 
RESEARCH CENTRE (ICNARC) 
2015 - 2016 
ANDREW FLEMING 
NATIONAL CLINICAL AUDIT MANAGER 
INTENSIVE CARE NATIONAL AUDIT & RESEARCH CENTRE 
(ICNARC) 
INTENSIVE CARE NATIONAL AUDIT & 
RESEARCH CENTRE (ICNARC) 
2017 - PRESENT 
PETER-MARC FORTUNE 
CONSULTANT PAEDIATRIC INTENSIVIST 
ASSOCIATE CLINICAL HEAD 
ROYAL MANCHESTER CHILDREN’S HOSPITAL 
PAEDIATRIC INTENSIVE CARE SOCIETY 
PRESIDENT (OCTOBER 2016) 
2016 - PRESENT 
JULIA GRACE 
NATIONAL COMMISSIONER 
NHS ENGLAND 
NATIONAL COMMISSIONER FOR PIC CRG 
2013 - 2016 
SASHA HEWITT 
HQIP PICANET  COORDINATOR 
HEALTHCARE QUALITY IMPROVEMENT PARTNERSHIP 
(HQIP) 
COMMISSIONING AND FUNDING BODY 
2017 - PRESENT 
TASNEEM HOOSAIN 
HQIP PICANET  COORDINATOR 
HEALTHCARE QUALITY IMPROVEMENT PARTNERSHIP 
(HQIP) 
COMMISSIONING AND FUNDING BODY 
2015 - 2017 
RACHEL LUNDY 
NATIONAL COMMISSIONER 
NHS ENGLAND 
NATIONAL COMMISSIONER FOR PIC CRG 
2016 - PRESENT 
DR MICHAEL MARSH (CHAIR) 
CONSULTANT IN PAEDIATRIC INTENSIVE CARE 
SOUTHAMPTON UNIVERSITY HOSPITALS NHS TRUST 
SOUTHAMPTON CHILDREN’S HOSPITAL PICU 
ROYAL COLLEGE OF PAEDIATRICS AND CHILD 
HEALTH 
2002 - PRESENT 
DR JILLIAN MCFADZEAN 
CONSULTANT IN ANAESTHESIA & INTENSIVE 
CARE / PA 
NHS LOTHIAN – UNIVERSITY HOSPITALS DIVISION 
EDINBURGH ROYAL HOSPITAL FOR SICK CHILDREN 
EDINBURGH ROYAL HOSPITAL FOR SICK 
CHILDREN, SCOTLAND 
2005 - PRESENT 
JENNY MOONEY 
DIRECTOR OF OPERATIONS 
HEALTHCARE QUALITY IMPROVEMENT PARTNERSHIP 
COMMISSIONING AND FUNDING BODY 
2015 - 2016 
DR KEVIN MORRIS 
CONSULTANT IN PAEDIATRIC INTENSIVE CARE 
BIRMINGHAM WOMEN’S AND CHILDREN’S NHS 
FOUNDATION TRUST 
BIRMINGHAM CHILDREN’S HOSPITAL PICU 
IMMEDIATE PAST PRESIDENT OF THE 
PAEDIATRIC INTENSIVE CARE SOCIETY 
2006 - 2016 
DR GALE PEARSON 
CONSULTANT IN PAEDIATRIC INTENSIVE CARE 
BIRMINGHAM WOMEN’S AND CHILDREN’S NHS 
FOUNDATION TRUST 
BIRMINGHAM CHILDREN’S HOSPITAL 
CHAIR OF PAEDIATRIC INTENSIVE CARE 
CLINICAL REFERENCE GROUP 
2015 - PRESENT 
DR MARK PETERS 
CLINICAL UNIT CHAIR 
GREAT ORMOND STREET HOSPITAL FOR CHILDREN 
GREAT ORMOND STREET HOSPITAL, LONDON 
CHAIR OF PAEDIATRIC INTENSIVE CARE 
SOCIETY STUDY GROUP 
2008 - 2016 
LAURA REEKIE 
DATA MANAGER 
NHS LOTHIAN – UNIVERSITY HOSPITALS DIVISION 
EDINBURGH ROYAL HOSPITAL FOR SICK CHILDREN 
DATABASE REPRESENTATIVE 
2005 - 2016 

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PICANet Annual Report Appendices 2018 
NAME 
POSITION 
ORGANISATION 
REPRESENTATION 
PERIOD SERVED 
DR BARNEY SCHOLEFIELD 
CONSULTANT INTENSIVIST 
BIRMINGHAM CHILDRENS HOSPITAL 
CHAIR OF PAEDIATRIC INTENSIVE CARE 
STUDY GROUP 
2016 - PRESENT 
VIVIENNE SEAGROVE 
HQIP PICANET  COORDINATOR 
HEALTHCARE QUALITY IMPROVEMENT PARTNERSHIP 
COMMISSIONING AND FUNDING BODY 
2017 - PRESENT 
DR MARK TERRIS 
CONSULTANT ANAESTHETIST 
BELFAST HEALTH AND SOCIAL CARE TRUST 
ROYAL BELFAST HOSPITAL FOR SICK CHILDREN 
NORTHERN IRELAND 
2012 - PRESENT 
HEATHER WARDLE 
MATRON PICU & CARDIAC CHILDREN'S 
SERVICES 
LEEDS TEACHING HOSPITAL 
PICS NURSE MANAGEMENT GROUP 
2016 - 2017 
DOMINIQUE GRAY WILLIAMS 
AUDIT CO-ORDINATOR 
WELSH HEALTH SPECIALISED SERVICES COMMITTEE 
WELSH HEALTH SPECIALISED SERVICES 
COMMITTEE 
2003 - 2016 
LUCY WHEELER 
PARENT 
N/A 
PARENT REPRESENTATION 
2011 - PRESENT 
DR PETER WILSON 
CLINICAL DIRECTOR FOR CHILD HEALTH 
SOUTHAMPTON CHILDREN’S HOSPITAL 
PAEDIATRIC INTENSIVE CARE SOCIETY 
PRESIDENT 
2011 - 2016 
 
Membership recorded above is the membership spanning the reporting period 2015-2017 

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PICANet Annual Report Appendices 2018 
D.         PIC FAMILIES GROUP MEMBERSHIP 
 
 
NAME  
POSITION  
ORGANISATION  
PERIOD SERVED  
DR JOHN 
ALEXANDER  
CONSULTANT IN 
PAEDIATRIC 
INTENSIVE CARE  
UNIVERSITY HOSPITALS OF NORTH MIDLANDS 
NHS TRUST  
ROYAL STOKE UNIVERSITY HOSPITAL  
2010 -  2013  
RE-JOINED 2015 
- PRESENT 
FIONA BICKELL 
/KAREN STARKIE 
RETRIEVAL NURSE 
PRACTITIONER 
SOUTH THAMES RETRIEVAL SERVICE  
2010 - PRESENT  
KATHY 
BRENNAN 
MATRON 
KING’S COLLEGE HOSPITAL NHS TRUST 
THOMAS COOK CHILDREN’S CRITICAL CARE UNIT 
2016 - PRESENT 
SARAH BUNDY  
FAMILY LIAISON 
SISTER  
BIRMINGHAM WOMEN’S AND CHILDREN’S NHS 
FOUNDATION TRUST 
BIRMINGHAM CHILDREN’S HOSPITAL PICU  
2010 - PRESENT  
DR MARIA 
CLARE 
 
SPECIALIST CLINICAL 
PSYCHOLOGIST 
UNIVERSITY HOSPITALS BRISTOL NHS 
FOUNDATION TRUST  
BRISTOL ROYAL HOSPITAL FOR CHILDREN 
2016 - PRESENT 
HELENE 
CRADDOCK  
SENIOR STAFF NURSE  
UNIVERSITY HOSPITALS BRISTOL NHS 
FOUNDATION TRUST  
BRISTOL ROYAL HOSPITAL FOR CHILDREN  
2011 - PRESENT  
PROFESSOR 
ELIZABETH 
DRAPER  
PRINCIPAL 
INVESTIGATOR  
PICANET  
2009 - PRESENT  
DEBRA EHALA  
SISTER  
NEWCASTLE UPON TYNE HOSPITALS NHS 
FOUNDATION TRUST  
GREAT NORTH CHILDREN’S HOSPITAL  
2009 - PRESENT  
CLAIRE GREEN 
FAMILY LIAISON 
SISTER 
SHEFFIELD CHILDREN’S NHS FOUNDATION TRUST  
SHEFFIELD CHILDREN’S HOSPITAL 
2015 - PRESENT 
KELLEY 
HUMPHREY 
FAMILY CARE SISTER 
LEEDS TEACHING HOSPITALS NHS TRUST 
LEEDS  GENERAL INFIRMARY  
2017 - PRESENT 
DR HILARY 
KLONIN  
CONSULTANT IN 
PAEDIATRIC 
INTENSIVE CARE  
HULL & EAST YORKSHIRE HOSPITALS NHS TRUST  
HULL ROYAL INFIRMARY  
2009 - 2017 
CAROLINE 
LAMMING  
RESEARCH NURSE  
PICANET  
2009 - PRESENT  
SHELLEY MARSH  
LAY REPRESENTATIVE  
N/A  
2011 - PRESENT  
CLAIRE RYAN 
MATRON 
CENTRAL MANCHESTER & MANCHESTER 
CHILDREN’S UNIVERSITY HOSPITALS NHS TRUST  
ROYAL MANCHESTER CHILDREN’S HOSPITAL 
2014 - PRESENT 
JOANNE 
WILLIAMS 
FAMILY LIAISON SISTER  
IMPERIAL COLLEGE HEALTHCARE NHS TRUST 
ST MARY’ S HOSPITAL  
2017 – PRESENT  
VACANCY 
LAY REPRESENTATIVE  
N/A  
 
VACANCY 
LAY REPRESENTATIVE  
N/A  
 
Membership recorded above is the membership spanning the reporting period 2015-2017 

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PICANet Annual Report Appendices 2018 
 
E.      DATA COLLECTION FORM – ADMISSION
 
 

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F.        DATA COLLECTION FORM – REFERRAL 

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G.     DATA COLLECTION FORM – TRANSPORT 
 

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*These forms in appendices E-G refer to latest versions used during the reporting period. Regular reviews and updates may alter these in 
the future. 

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H.  INFORMATION LEAFLET – FAMILIES AND CARERS  
 

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I.      INFORMATION LEAFLET – CHILDREN  
 

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*Parents and Carer and Children’s information leaflets are also available for Welsh and Irish patients and families.  

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PICANet Annual Report Appendices 2018 
 
J. PICANET PRIVACY AND FAIR PROCESSING STATEMENT  
 
 
PICANet Patient Privacy Notice and Fair Processing Statement. 
This statement explains how we use any personal information we collect about you (child / young 
person) or the child you care for 
What data are being collected? 
PICANet collects data on every child and young person referred or admitted to a Paediatric Intensive 
Care Unit (PICU) in the UK and the Republic of Ireland. The data are sent to us over a very secure web 
application by each PICU or specialist transport team on a regular basis.  Data are collected for each 
individual for the whole period of their PICU stay and also about what happened to them if they had a 
critical care transport (this means a specialist team of nurses and doctors travelled in an ambulance to 
pick them up and take them to a PICU). PICANet has permission to also collect personal identifiers of 
children or young people admitted to or referred for Paediatric Intensive Care without taking explicit 
(written) consent from the children or their carers.  This was granted by the NHS Health Research 
Authority Confidentiality Advisory Group. A summary of the entry for PICANet is available on the 
register of approvals on the HRA website (PICANet was first approved in 2002 and its reference is: 
PIAG 4-07(c)/2002). The personal identifiers include name, address, date of birth and health record 
identifier number (e.g. NHS number)*.  
* We don’t receive name, address or health record identifier number for the Republic of Ireland or Latvia 
What are the data being used for? 
We collect this data for clinical audit, research and service evaluation and planning to improve the 
care given to children and young people admitted to PICU.  Each year we produce a report on activity 
and outcomes for paediatric intensive care in the UK and Ireland. No personal information will ever be 
made public in any report or publication. 
Where are the data held and for how long? 
All of the data is held at the University of Leeds in a highly secure environment.  As we are an audit, 
we keep this data permanently so we can check on what has happened in the past.  We do remove 
personal identifiers from our data base once an individual is older than 18 years and has not been in 
PICU for the last five years. 
Sharing data with other organisations 
PICANet may share data held on its database with researchers, other audits or other healthcare 
providers in order to help improve patient care.  We will NOT share personal identifiers (such as 
name, address, date of birth or NHS number) with anyone else unless the appropriate legal, ethical 
and security arrangements are in place to keep your personal details safe and secure. Very 
occasionally, personal data may be processed by an authorised third party such as NHS Digital, again, 

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PICANet Annual Report Appendices 2018 
 
only with the necessary regulatory permissions.  They have very high levels of security and will keep 
these data very safe. 
We have a rigorous process of assessing the merit of requests for data and information and publish 
details of these requests each year in our annual report.  Data collected in English NHS paediatric 
intensive care units and specialist transport teams are controlled by the Healthcare Quality 
Improvement Partnership and all requests go through their Data Access Request Group.  More details 
about the HQIP data request process can be found at: http://www.hqip.org.uk/national-
programmes/a-z-of-nca/audits-and-data-gov-uk/.  
What if I don’t want information about me or about the child I care for included? 
If you do not want information that would identify you or the child you care for included in PICANet, 
please tell the nurse or doctor in the paediatric intensive care unit. Alternatively, you can contact 
PICANet by telephone or email (details provided below) and we will ensure that your personal 
identifiers are taken off the database. You are free to request this at any time and any decision 
request removal of your or your child’s identifiers will not alter the care you receive in this or any 
other hospital. You also have the right to request access to and to request to rectify information held 
about you or the child you care for. 
 
Richard Feltbower 
Senior Lecturer in Epidemiology 
Leeds Institute of Cardiovascular and Metabolic 
Medicine 
School of Medicine 
University of Leeds 
Clarendon Way 
LS2 9JT, UK 
Tel xx-xxxx-xxxx 
Elizabeth S Draper 
Professor of Perinatal & Paediatric 
Epidemiology 
Department of Health Sciences 
College of Medicine, Biological Sciences and 
Psychology 
University of Leicester 
George Davies Centre 
University Road, Leicester 
LE1 7RH, UK 
 
Email: xxx@xxx.xx 
 
Who is responsible for the data? 
 
The Data Controller for data collected in English NHS PICUs and transport teams is: 
 
Healthcare Quality Improvement Partnership 
6th Floor, 45 Moorfields,  
London, 
EC2Y 9AE 
(Charity Reg No. 1127049) 
Data Protection Officer: Sasha Hewitt (E: xxx@xxx.xx) 

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PICANet Annual Report Appendices 2018 
 
Data controller registration number provided by the Information Commissioner’s Office: Z1780946  
 
The Data Controller for data collected in private PICUs and PICUs and transport teams in Scotland, 
Wales, Northern Ireland and the Republic of Ireland is: 
 
University of Leeds 
Leeds 
LS2 9JT 
Data Protection Officer: David Wardle (T: xx-xxxx-xxxx, E: xxx@xxx.xx) 
Data controller registration number provided by the Information Commissioner’s Office: Z553814X 
 
Who processes the data? 
 
The Data Processors for all data are:  
 
University of Leeds 
Leeds 
University of Leicester 
University Road  
LS2 9JT 
Data Protection Officer: David Wardle 
T: xx-xxxx-xxxx                                        
E: xxx@xxx.xx  
Leicester, LE1 7RH 
 
 
Data Protection Officer: Parmjit Gill 
T: xx-xxxx-xxxx 
E: xxx@xxx.xx 
 
What is the legal basis for processing the data? 
 
The data are needed to carry out a task in the public interest to ensure high standards of quality and 
safety of healthcare. * 
 
What if I have concerns about the way the personal data are processed? 
 
If you wish to raise a complaint about how we have handled your or your child’s personal data, 
please contact the Data Protection Officers (above) who will investigate the matter. If you are not 
satisfied with our response or believe we are processing the data in a way that is not lawful you can 
complain to the Information Commissioner’s Office (ICO). 
https://ico.org.uk/ 
  
 
 
 
 
* General Data Protection Regulation: 
Article 6 (1) (e) processing is necessary for the performance of a task carried out in the public interest 
or in the exercise of official authority vested in the controller. 
Article 9 (2) (i) processing is necessary for reasons of public interest in the area of public health, such 
as protecting against serious cross-border threats to health or ensuring high standards of quality and 
safety of health care and of medicinal products or medical devices, on the basis of Union or Member 
State law which provides for suitable and specific measures to safeguard the rights and freedoms of 
the data subject, in particular professional secrecy. 

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PICANet Annual Report Appendices 2018 
 
 
K.  DATA VALIDATION FORM 
 

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PICANet Annual Report Appendices 2018 
 

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PICANet Annual Report Appendices 2018 
 
L.    DATA VALIDATION REPORT 
 
This is a sample validation report, these real-time reports along with many others, can be produced 
by individual organisations through PICANet Web. 
 
 
 
 
 
 

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PICANet Annual Report Appendices 2018 
 
M. PUBLICATIONS, ABSTRACTS & PRESENTATIONS 2015-2017 
PUBLICATIONS 
JOURNAL 
TITLE 
AUTHORS 
ARCH DIS CHILD. 2017 FEB;102(2):131-138. 
DOI: 10.1136/ARCHDISCHILD-xx-xxxx-xxxx. 
EPUB 2016 SEP 28. 
HoW MANY CHILDREN AND YOUNG PEOPLE WITH 
LIFE-LIMITING CONDITIONS ARE CLINICALLY 
UNSTABLE? A NATIONAL DATA LINKAGE STUDY. 
JARVIS S, PARSLOW RC, CARRAGHER P, 
BERESFORD B, FRASER LK. 
CRITICAL CARE MEDICINE 2015;43(5):1070-78 
MONITORING QUALITY OF CARE THROUGH 
LINKAGE OF ADMINISTRATIVE DATA: NATIONAL 
TRENDS IN BLOODSTREAM INFECTION IN U.K. 
PICUS 2003-2012. 
HARRON K, PARSLOW R, MOK Q, TIBBY SM, 
WADE A, MULLER-PEBODY B, GILBERT R. 
BMJ OPEN 2015;  5 (8): E008118 
DATA LINKAGE ERRORS IN HOSPITAL 
ADMINISTRATIVE DATA WHEN APPLYING A 
PSEUDONYMISATION ALGORITHM TO PAEDIATRIC 
INTENSIVE CARE RECORDS. 
HAGGER-JOHNSON G, K HARRON, T FLEMING, 
R GILBERT, H GOLDSTEIN, R LANDY, RC 
PARSLOW 
RESUSCITATION 2015; 97: 122-128 
OBSERVATIONAL STUDY OF CHILDREN ADMITTED 
TO UNITED KINGDOM AND REPUBLIC OF IRELAND 
PAEDIATRIC INTENSIVE CARE UNITS AFTER OUT-
OF-HOSPITAL CARDIAC ARREST. 
SCHOLEFIELD, B.R., F. GAO, H.P. DUNCAN, 
R.C. TASKER, R.C. PARSLOW, E.S. DRAPER, P. 
MCSHANE, P. DAVIES, K.P. MORRIS 
SEIZURE: EUROPEAN JOURNAL OF EPILEPSY 2015; 
29: 153-161 
ADMISSIONS TO PAEDIATRIC INTENSIVE CARE UNITS 
(PICU) WITH REFRACTORY CONVULSIVE STATUS 
EPILEPTICUS (RCSE): A TWO-YEAR MULTI-CENTRE 
STUDY. 
TULLY, I., E.S. DRAPER, C.R. LAMMING, D. 
MATTISON, C. THOMAS, T. MARTLAND, R. 
APPLETON 
ARCHIVES OF DISEASE IN CHILDHOOD (2016). 
101 (9): 798-802. 
IS IT TAKING LONGER TO DIE IN PAEDIATRIC 
INTENSIVE CARE IN ENGLAND AND WALES?. 
PLUNKETT, A., & PARSLOW, R. C. 
JOURNAL OF THE AMERICAN HEART ASSOCIATION 
(2016). 5 (5): E003369. 
DEATH AND EMERGENCY READMISSION OF 
INFANTS DISCHARGED AFTER INTERVENTIONS FOR 
CONGENITAL HEART DISEASE: A NATIONAL STUDY 
OF 7643 INFANTS TO INFORM SERVICE 
IMPROVEMENT. 
SONYA CROWE, DEBORAH A RIDOUT, RACHEL 
KNOWLES, JENIFER TREGAY, JO WRAY, DAVID J 
BARRON, DAVID CUNNINGHAM, ROGER C 
PARSLOW, MARTIN UTLEY, RODNEY FRANKLIN, 
CATHERINE BULL, KATHERINE L BROWN 
PLOS ONE (2016). 11 (3): E0151348 
GENERALISABILITY AND COST-IMPACT OF 
ANTIBIOTIC-IMPREGNATED CENTRAL VENOUS 
CATHETERS FOR REDUCING RISK OF 
BLOODSTREAM INFECTION IN PAEDIATRIC 
INTENSIVE CARE UNITS IN ENGLAND. 
HARRON, K., MOK, Q., HUGHES, D., MULLER-
PEBODY, B., PARSLOW, R., RAMNARAYAN, P., 
& GILBERT, R. 
ARCHIVES OF DISEASE IN CHILDHOOD (2016). 
101 (2): 140-146. 
ADMISSION TO HOSPITAL FOR BRONCHIOLITIS IN 
ENGLAND: TRENDS OVER FIVE DECADES, 
GEOGRAPHICAL VARIATION AND ASSOCIATION 
WITH PERINATAL CHARACTERISTICS AND 
SUBSEQUENT ASTHMA. 
C A GREEN; D YEATES; A GOLDACRE; C 
SANDE; R C PARSLOW; P MCSHANE; A J 
POLLARD; M J GOLDACRE 
EUROPEAN JOURNAL OF PAEDIATRICS (2016); 
175(11), 1545 
CURRENT INTENSIVE CARE MANAGEMENT FOR 
ADOLESCENTS IN THE UNITED KINGDOM: A 
RETROSPECTIVE COHORT STUDY 
WOOD, D., GOODWIN, S., DAVIS, P., 
PAPPACHAN, J., PARSLOW, R., HARRISON, D., 
& RAMNARAYAN, P. 
PALLIATIVE MEDICINE (2017); 32(2), xx-xxxx-xxxx 
CHANGING PLACE OF DEATH IN CHILDREN WHO 
DIED AFTER DISCHARGE FROM PAEDIATRIC 
FRASER, L. K., FLEMING, S., & PARSLOW, R 

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PICANet Annual Report Appendices 2018 
 
JOURNAL 
TITLE 
AUTHORS 
INTENSIVE CARE UNITS: A NATIONAL, DATA 
LINKAGE STUDY. 
ARCHIVES OF DISEASE IN CHILDHOOD (2017); 
102:496-502. 
ETHNIC AND SOCIOECONOMIC VARIATION IN 
INCIDENCE OF CONGENITAL HEART DEFECTS. 
KNOWLES RL, RIDOUT D, CROWE S, ET AL 
JAMA PEDIATRICS (2017); 171(7), 678-686 
ASSOCIATION OF SHORT ANTENATAL 
CORTICOSTEROID ADMINISTRATION-TO-BIRTH 
INTERVALS WITH SURVIVAL AND MORBIDITY 
AMONG VERY PRETERM INFANTS RESULTS FROM 
THE EPICE COHORT. 
NORMAN, M., PIEDVACHE, A., BORCH, K., 
HUUSOM, L. D., BONAMY, A. -K. E., HOWELL, 
E. A., . . DRAPER, E.S., ZEITLIN, J. 
ARCHIVES OF DISEASE IN CHILDHOOD (2018); 
103:540-547 
CHILDREN WITH LIFE-LIMITING CONDITIONS IN 
PAEDIATRIC INTENSIVE CARE UNITS: A NATIONAL 
COHORT, DATA LINKAGE STUDY 
FRASER, L. K., & PARSLOW, R 
BMJ Open Respiratory Research (2018) 5 
(1): e000297. 
IMPACT OF THE INTRODUCTION OF A UNIVERSAL 
CHILDHOOD INFLUENZA VACCINATION 
PROGRAMME ON INFLUENZA-RELATED 
ADMISSIONS TO PAEDIATRIC INTENSIVE CARE UNITS 
IN ENGLAND 
HARDELID, PIA, MELPO KAPETANSTRATAKI, LEE 
NORMAN, SARAH J FLEMING, PAULA LISTER, 
RUTH GILBERT, AND ROGER C PARSLOW 
Respiratory Medicine (2018). 137: 23-29 
CHARACTERISTICS AND MORTALITY RISK OF 
CHILDREN WITH LIFE-THREATENING INFLUENZA 
INFECTION ADMITTED TO PAEDIATRIC INTENSIVE 
CARE IN ENGLAND 2003-2015 
HARDELID, PIA, MELPO KAPETANSTRATAKI, LEE 
NORMAN, SARAH J. FLEMING, PAULA LISTER, 
RUTH GILBERT, AND ROGER C. PARSLOW 
Pediatric Critical Care Medicine (2018). 19 
(3): 210-217 
RENAL REPLACEMENT THERAPY IN THE CRITICALLY 
ILL CHILD 
WESTROPE, CLAIRE A., SARAH FLEMING, 
MELPO KAPETANSTRATAKI, ROGER C. 
PARSLOW, AND KEVIN P. MORRIS 
PEDIATRIC INFECTIOUS DISEASE JOURNAL (2018). 
36 (3): xx-xxxx-xxxx. 
 
INTENSIVE CARE ADMISSIONS FOR CHILDREN 
WITH ENTEROVIRUS AND HUMAN PARECHOVIRUS 
INFECTIONS IN THE UNITED KINGDOM AND THE 
REPUBLIC OF IRELAND,2010-2014 
BRACCIO S., KAPETANSTRATAKI M., SHARLAND 
M., & LADHANII S.N. 
CRITICAL CARE MEDICINE (2018), 45(6), 1045-
1053. 
DOI:10.1097/CCM.0000000000002369 
OUTCOMES FOR CHILDREN RECEIVING NON-
INVASIVE VENTILATION AS THE FIRST-LINE MODE 
OF MECHANICAL VENTILATION AT INTENSIVE CARE 
ADMISSION: A PROPENSITY SCORE-MATCHED 
COHORT STUDY. 
MORRIS, J. V., RAMNARAYAN, P., PARSLOW, 
R. C., & FLEMING, S. J. 
BMJ-BRITISH MEDICAL JOURNAL, (2018) 361, 1 
PAGE 
RISING INFANT MORTALITY RATES IN ENGLAND 
AND WALES-WE NEED TO UNDERSTAND 
GESTATION SPECIFIC MORTALITY 
DAVIS, P. J., FENTON, A. C., STUTCHFIELD, C. 
J., & DRAPER, E. S. 
PEDIATRIC CRITICAL CARE MEDICINE : A JOURNAL 
OF THE SOCIETY OF CRITICAL CARE MEDICINE AND 
THE WORLD FEDERATION OF PEDIATRIC INTENSIVE 
AND CRITICAL CARE SOCIETIES (2018); 19(6) 
E300-311 
INTERHOSPITAL TRANSPORT OF CRITICALLY ILL 
CHILDREN TO PICUS IN THE UNITED KINGDOM 
AND REPUBLIC OF IRELAND: ANALYSIS OF AN 
INTERNATIONAL DATASET. 
RAMNARAYAN, P., DIMITRIADES, K., 
FREEBURN, L., KASHYAP, A., DIXON, M., 
BARRY, P. W., DRAPER, E. S 

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PICANet Annual Report Appendices 2018 
 
JOURNAL 
TITLE 
AUTHORS 
ARCHIVES OF DISEASE IN CHILDHOOD, (2018); 
103(4), 341-345 
INCREASING ADMISSIONS TO PAEDIATRIC 
INTENSIVE CARE UNITS IN ENGLAND AND WALES: 
MORE THAN JUST RISING A BIRTH RATE. 
DAVIS, P., STUTCHFIELD, C., EVANS, T. A., & 
DRAPER, E. 
ABSTRACTS 
ABSTRACT 
TITLE 
AUTHORS 
PICS 2015 CONFERENCE, 14TH-16TH SEPTEMBER 
2015 
 
DESCRIPTIVE EPIDEMIOLOGY OF 
ADMISSIONS TO PICU OF CHILDREN LESS 
THAN 2 YEARS OLD WHO WERE BORN 
POST-TERM IN THE UK AND THE REPUBLIC 
OF IRELAND, 2003-2014 
M. KAPETANSTRATAKI, S.J. FLEMING, E. S. DRAPER, 
K. JOHNSON, R. C. PARSLOW 
SURVIVAL ANALYSIS FOR JUNIOR RESEARCHERS 
CONFERENCE, 13-14 APRIL 2016 
SURVIVAL IN PAEDIATRIC INTENSIVE CARE 
UNITS (PICU) AND BEYOND, ENGLAND 
AND WALES, 2004 -2014 
KAPETANSTRATAKI M, FLEMING SJ, PARSLOW RC 
 
9TH CONGRESS OF THE WORLD FEDERATION OF 
PEDIATRIC INTENSIVE & CRITICAL CARE SOCIETIES 9-
13 JUNE 2018 
USE OF CONTINUOUS RENAL 
REPLACEMENT THERAPY BY PAEDIATRIC 
INTENSIVE CARE UNITS IN THE UK AND 
THE REPUBLIC OF IRELAND 
WESTROPE, C.; KAPETANSTRATAKI, M.; PARSLOW, 
R.; MORRIS 
9TH CONGRESS OF THE WORLD FEDERATION OF 
PEDIATRIC INTENSIVE & CRITICAL CARE SOCIETIES 9-
13 JUNE 2018 
PROGNOSTIC FACTORS FOR SURVIVAL POST 
CARDIAC ARREST IN KIDS THE NETPACK-2 
AUDIT. PEDIATRIC CRITICAL CARE 
MEDICINE 
EVANS, S.; MARTIN, J.; KAPETANSTRATAKI, M.; 
PARSLOW, R.C.; SCHOLEFIELD 
 

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PICANet Annual Report Appendices 2018 
 
PRESENTATIONS AND POSTERS 
MEETING/CONFERENCE 
VENUE 
DATE 
PRESENTATION/POSTER TITLE 
PICANET TEAM ATTENDEES 
ROYAL COLLEGE OF PAEDIATRICS 
AND CHILD HEALTH ANNUAL 
CONFERENCE 2015 
ICC, BIRMINGHAM 
29/04/2015 
PROLONGED INVASIVE 
VENTILATION IN PAEDIATRIC 
INTENSIVE CARE: CHILDREN 
RESIDENT IN ENGLAND AND 
WALES, 2004-2013 
S FLEMING, K MORRIS, C LAMMING,  
A EVANS, R PARSLOW, E DRAPER 
29TH ANNUAL PICS CONFERENCE 
ICC, BIRMINGHAM 
14-
16/09/2015 
SURVIVAL IN PICU AND BEYOND 
ROGER PARSLOW, SARAH FLEMING, 
MELPO KAPETANSTRATAKI 
ANNUAL TIPNET MEETING 
MILAN 
10/2016 
PICANET – NATIONAL PIC AUDIT 
IN THE UK 
LIZ DRAPER 
PICANET AGM 
ROYAL COLLEGE OF 
NURSING, LONDON 
04/11/2015 
PRESENTATION ON NATIONAL 
REPORT 
PICANET TEAM 
PICANET AGM  
BIRMINGHAM  
02/11/2016 
PRESENTATION ON NATIONAL 
REPORT 
ROGER PARSLOW, MELPO 
KAPETANSTRATAKI 
PAEDIATRIC CRITICAL CARE 
NETWORK ANNUAL CONFERENCE 
ALDER HEY, 
LIVERPOOL 
08/03/2017 
IS MORTALITY A USEFUL MEASURE 
OF PICU OUTCOME? 
ROGER PARSLOW 
9TH CONGRESS OF THE WORLD 
FEDERATION OF  PEDIATRIC 
INTENSIVIST &CRITICAL CARE 
SOCIETIES 
SINGAPORE 
9-
13/06/2018 
THE RELATIONSHIP BETWEEN 
LACTATE, BASE EXCESS AND 
MORTALITY IN PAEDIATRIC 
INTENSIVE CARE 
MELPO KAPETANSTRATAKI 
9TH CONGRESS OF THE WORLD 
FEDERATION OF  PEDIATRIC 
INTENSIVIST &CRITICAL CARE 
SOCIETIES 
SINGAPORE 
9-
13/06/2018 
IMPROVING MORTALITY 
PREPDICTION USING ACID/BASE 
PARAMETERS IN PIM2 
MELPO KAPETANSTRATAKI 
     

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PICANet Annual Report Appendices 2018 
 
N. 
 STAFFING STUDY DATA COLLECTION FORMS 
 

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PICANet Annual report Appendicies 2018 
O. DATA REQUESTS DECEMBER 2016 – DECEMBER 2017  
*If you require further details of the Data Requests made to PICANet please contact the team by email. 
REQUEST DATE: 
NAME, POSITION AND 
PLACE OF WORK/STUDY: 
AIM OF DATA REQUEST: 
DATA 
PROVIDED? 
DATA PROVIDED BY: 
REQUEST CLOSED? 
04/09/2017 
PROFESSOR ELIZABETH 
DRAPER, UNIVERSITY OF 
LEICESTER 
DO DIFFERENCES IN TIMELINESS OF ACCESS (TO PIC TRANSPORT TEAMS AND PICU 
ADMISSION), AND CARE DELIVERED DURING TRANSPORT (TEAM COMPOSITION, 
CRITICAL INCIDENTS, INTERVENTIONS), AFFECT PATIENT OUTCOME (30-DAY 
MORTALITY)? THESE DATA WILL BE LINKED TO OTHER DATA SOURCES SUCH AS 
HES, ONS, CASE MIX PROGRAMME (ADULT CRITICAL CARE DATA). DATA LINKAGE 
WILL BE PERFORMED BY NHS DIGITAL USING THE IDENTIFIERS SUPPLIED (NHS NO, 
DOB, SEX, POSTCODE). ONCE DATA LINKAGE HAS BEEN PERFORMED, THE 
PSEUDONYMISED STUDY DATASET WILL BE SENT TO AND ANALYSED AT UNIVERSITY 
OF LEICESTER. 
 
YES 
LEE NORMAN 
YES 
28/07/2017 
REBECCA MITTING, 
IMPERIAL COLLEGE 
HEALTHCARE NHS 
TRUST 
THE AIM IS TO EXPAND ON OUR OBSERVATION THAT PRACTICE VARIATION 
BETWEEN UK INTENSIVE CARE UNITS INFLUENCES THE DURATION OF INVASIVE 
MECHANICAL VENTILATION FOR BRONCHIOLITIS AND TO IDENTIFY WHETHER THIS 
HAS AN EFFECT ON LENGTH OF STAY.  (A RECENT ARTICLE IN J PEDIATRIC  (2017 
JUN 8 S0022-3476. ESSOURI S ET AL) SUGGESTED THAT LENGTH OF STAY MAY BE 
SIMILAR DESPITE VARYING USE OF NIV) 
 
YES 
- 
YES 
28/06/2017 
SOUMENDU MANNA, ST 
GEORGE'S HOSPITAL 
NHS FOUNDATION 
TRUST 
REVIEW OF SAFETY (INDICATION, COMPLICATION) AND OUTCOME OF SURGICAL 
TRACHEOSTOMY IN CHILDREN WITH CANCER RECEIVING INDUCTION 
CHEMOTHERAPY AND COMPARE WITH OUR INSTITUTIONAL OUTCOME. 
  
 
NO 
- 
YES 

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PICANet Annual Report Appendices 2018 
REQUEST DATE: 
NAME, POSITION AND 
PLACE OF WORK/STUDY: 
AIM OF DATA REQUEST: 
DATA 
PROVIDED? 
DATA PROVIDED BY: 
REQUEST CLOSED? 
28/06/2017 
BUVANA 
DWARAKANATHAN, ST 
GEORGE'S HOSPITAL 
NHS FOUNDATION 
TRUST 
WE WOULD LIKE TO IDENTIFY FACTORS WHICH INDICATE POOR OUTCOME IN 
VENTILATED CHILDREN WITH DKA. 
 
NO 
- 
YES 
27/03/2017 
DR PETER BARRY, 
UNIVERSITY HOSPITALS 
OF LEICESTER 
SERVICE EVALUATION 
NO 
- 
YES 
24/03/2017 
DR HARI KRISHNAN, 
BIRMINGHAM 
CHILDREN’S HOSPITAL 
WE AIM TO EXPLORE RELATIONSHIP BETWEEN FACTORS INFLUENCING 48-HOUR 
UNPLANNED READMISSION RATE, WITH PARTICULAR EMPHASIS ON RELATIONSHIP 
WITH SIZE OF THE UNITS, OCCUPANCY RATES AND WEEKEND V WEEKDAY 
VARIATION. WE WILL ALSO ANALYSE WHETHER THERE IS AN OUTCOME DIFFERENCE 
AMONG PATIENTS WHO HAD UNPLANNED READMISSION V THOSE THAT DID NOT. 
 
YES 
MELPO KAPETANSTRATAKI 
ONGOING 
24/03/2017 
OFRAN ALMOSSAWI, 
LONDON SCHOOL OF 
HYGEINE AND TROPICAL 
MEDICINE 
TO INVESTIGATING THE DIFFERENCES IN MORTALITY BETWEEN GENDERS FOR THOSE 
UNDER THE AGE OF 1 YEAR, AND ADMITTED WITH AN INFECTIVE CAUSE. 
 
YES 
MELPO KAPETANSTRATAKI 
 
YES 

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PICANet Annual Report Appendices 2018 
REQUEST DATE: 
NAME, POSITION AND 
PLACE OF WORK/STUDY: 
AIM OF DATA REQUEST: 
DATA 
PROVIDED? 
DATA PROVIDED BY: 
REQUEST CLOSED? 
03/03/2017 
ROMA MCCLUSKEY AND 
DR KATHERINE 
BOHANAN, 
ADDENBROOKE’S 
HOSPITAL, CAMBRIDGE 
TO DESCRIBE THE BURDEN OF DROWNING AND NEAR-DROWNING ON PICU 
PROVIDERS IN THE UK AND IRELAND, AND FACTORS THAT MAY INFLUENCE THIS 
 
NO 
- 
YES 
03/03/2017 
MARK RUSSELL, 
BIRMINGHAM 
CHILDREN’S HOSPITAL 
• TO DESCRIBE THE USE OF INO ACROSS THE UK 
• TO DESCRIBE THE VARIATION IN USE ACROSS DIFFERENT UNITS IN THE UK 
• CATEGORISE THE MAIN REASON/PRIMARY DIAGNOSIS FOR THIS ADMISSION IN 
ALL PATIENTS THAT RECEIVE INO (E.G RESPIRATORY) 
• DESCRIBE 30 DAY MORTALITY FOR ALL PATIENTS THAT RECEIVED INO AND 
SEPARATE INTO GROUPS BASED ON PRIMARY DIAGNOSIS FOR ADMISSION 
• DESCRIBE THE PERCENTAGE OF PATIENTS RECEIVING INO AND ADVANCED 
VENTILATORY SUPPORT DURING ADMISSION (HFOV) COMPARED TO 
CONVENTIONAL INVASIVE VENTILATION 
• DESCRIBE THE PERCENTAGE OF PATIENTS RECEIVING INO AND THEN 
PROGRESSING TO ECMO 
 
YES 
LEE NORMAN 
YES 
03/03/2017 
MEL MILLER,  NATIONAL 
SERVICE DIVISION, 
SCOTLAND 
TO DETERMINE THE EXTENT TO WHICH PAEDIATRIC BED CAPACITY SHOULD BE 
INCREASED TO MEET THE RECOMMENDATIONS OF THE 2012 REVIEW AND IF 
DEMAND FOR PAEDIATRIC INTENSIVE CARE IN SCOTLAND IS CONTINUING TO 
INCREASE. 
  
TO ASCERTAIN ACTIVITY OVER THE PAST FOUR YEARS AND IDENTIFY ANY 
SIGNIFICANT SHIFTS IN THE PROFILE OF PATIENTS, LENGTH OF STAY, DIAGNOSTIC 
GROUPS   
THE RESULTS WILL INFORM THE ANALYSIS OF WHETHER ADDITIONAL PAEDIATRIC 
INTENSIVE CARE BEDS ARE REQUIRED IN SCOTLAND. 
 
YES 
*** 
YES 

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PICANet Annual Report Appendices 2018 
REQUEST DATE: 
NAME, POSITION AND 
PLACE OF WORK/STUDY: 
AIM OF DATA REQUEST: 
DATA 
PROVIDED? 
DATA PROVIDED BY: 
REQUEST CLOSED? 
24/01/2017 
DAGAN LONSDALE, ST 
GEORGE'S, UNIVERSITY 
OF LONDON 
TO EXPLORE THE MAIN DETERMINENTS OF PHARMACOKINETIC VARIABILITY IN 
CRITICALLY ILL PATIENTS 
NO 
- 
YES 
24/01/2017 
PRASHNA 
PRIMULAPATHI, 
NEWCASTLE UPON TYNE 
HOSPITALS NHS TRUST 
CVVH IN TUMOUR LYSIS SYNDROME- IS THERE A POPULATION WHICH MAY 
BENEFIT FROM STARTING CVVH EARLIER PRIOR TO MEETING CURRENT CRITERIA. 
AN EPIDEMIOLOGICAL STUDY. 
 
NO 
- 
YES 
24/01/2017 
 
ELIZABETH 
STEPHENSON, NHS 
ENGLAND, SPECIALIST 
COMMISIONING 
THE REVIEW INTO PAEDIATRIC CRITICAL CARE AND SPECIALISED SURGERY IN 
CHILDREN WILL LOOK AT BOTH THE CONNECTED AND DISTINCT ELEMENTS OF EACH 
SERVICE. THE REVIEW WILL ASCERTAIN THE OPTIMAL MODELS FOR THE PROVISION 
OF SUSTAINABLE, HIGH QUALITY, RESPONSIVE PAEDIATRIC CRITICAL CARE AND 
SPECIALISED SURGERY IN CHILDREN IN ENGLAND, CONSIDERING CRITICAL CO-
DEPENDENCIES WITH OTHER ESSENTIAL SERVICES. IN PARTICULAR WE WILL SEEK TO 
ADDRESS THE FOLLOWING ISSUES: 
· CLARIFY PATHWAY LINKAGES BETWEEN PAEDIATRIC CRITICAL CARE AND 
SPECIALISED SURGERY IN 
CHILDREN; 
· HOW BEST TO OPTIMISE USE OF PAEDIATRIC INTENSIVE CARE BEDS, THROUGH 
CONSIDERATION OF 
DIFFERENT LEVELS OF CRITICAL CARE REQUIRED TO SUPPORT STABLE AND UNSTABLE 
CHILDREN OF 
DIFFERENT LEVELS OF ACUITY; 
· THE POTENTIAL ROLE OF NETWORKED MODELS OF CARE FOR CHILDREN’S 
SPECIALISED SURGERY 
AND PAEDIATRIC CRITICAL CARE, SUPPORTING CARE CLOSER TO PATIENTS HOME 
RESIDENCE 
WHERE POSSIBLE; 
YES 
LEE NORMAN 
YES 

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PICANet Annual Report Appendices 2018 
REQUEST DATE: 
NAME, POSITION AND 
PLACE OF WORK/STUDY: 
AIM OF DATA REQUEST: 
DATA 
PROVIDED? 
DATA PROVIDED BY: 
REQUEST CLOSED? 
· THE OPTIMAL NATIONAL MODEL OF PROVISION FOR (PAEDIATRIC CARDIAC AND 
RESPIRATORY) 
EXTRACORPOREAL MEMBRANE OXYGENATION (ECMO) SERVICES; 
· HOW BEST TO DELIVER COMPREHENSIVE TRANSPORT SERVICES FOR CHILDREN 
REQUIRING PICU 
ADMISSION, AND IN DUE COURSE, REPATRIATION; AND 
· CRITICAL LINKAGES TO OTHER CURRENT AND FORTHCOMING SERVICE REVIEWS, 
ESPECIALLY 
CONGENITAL HEART DISEASE (CHD), BURNS AND NEONATAL INTENSIVE CARE. 
 
21/12/2016 
MARK PETERS, 
PROFESSOR OF 
PAEDIATRIC INTENSIVE 
CARE, ICNARC/PICS 
SG/UCL GREAT 
ORMOND ST ICH 
FEVER OBSERVATIONAL STUDY: FOR UK BETWEEN 1/2/17 AND 1/8/2018 TO 
INFORM THE FEASIBILITY OF CONDUCTING A STUDY TO TEST DIFFERENT 
TEMPERATURE THRESHOLDS AT WHICH CLINICIANS DELIVER ANTIPYRETIC 
INTERVENTION IN CRITICALLY ILL CHILDREN WITH FEVER DUE TO INFECTION. 
NO 
MELPO KAPETANSTRATAKI 
YES 
07/12/2016 
AHMED OSMAN, PICU 
REGISTRAR, UNIVERSITY 
HOSPITAL 
SOUTHAMPTON NHS 
FOUNDATION TRUST 
CHANGES IN THE BURDEN OF OBESITY-RELATED CONDITIONS PRESENTING TO 
PAEDIATRIC INTENSIVE CARE: DATA FROM ALL UNITS REPORTING TO PICANET 
(I.E. ENGLAND, WALES, SCOTLAND, NORTHERN IRELAND, REPUBLIC OF IRELAND 
BETWEEN JANUARY 2002 AND DECEMBER 2016 TO ASSESS WHETHER THE 
INCIDENCE OF OBESITY-RELATED ILLNESSES PRESENTING TO PAEDIATRIC INTENSIVE 
CARE IS INCREASING OVER TIME, AND WHETHER CHILDHOOD OBESITY IS BECOMING 
MORE COMMON IN PATIENTS PRESENTING TO PAEDIATRIC INTENSIVE CARE. 
~ 
MELPO KAPETANSTRATAKI 
ONGOING 
01/12/2016 
GRACE RAHMAN, 
STUDENT, KINGS 
COLLEGE LONDON 
NATIONAL GEOGRAPHICAL SCOPE BETWEEN 29/08/2014 AND 29/08/2015, 
WHAT FACTORS INFLUENCE A PARENT’S DECISION TO DONATE THEIR CHILD’S 
ORGANS IN A CRITICAL CARE SETTING? 
NO 
MELPO KAPETANSTRATAKI 
NO 

 
 
 
 
Richard Feltbower 
Melpo Kapetanstrataki 
Lee Norman 
Sophie Butler 
Victoria Hiley 
 
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Elizabeth Draper 
Caroline Lamming 
Martin Perkins 
Tracy Harris 
Lyn Palmer 
Sarah Seaton 
 
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