PICANet Annual report 2014-2016
Source: data.gov.uk (2019-01-07)

Paediatric Intensive Care Audit - This data contains information on all admissions to Paediatric Intensive Care units in the UK and Ireland 2014-2016.

NOVEMBER 2017 ANNUAL REPORT 
 
Paediatric 
Intensive Care 
Audit Network 
Data Collection Period January 2014- December 2016 
 
Appendices 
 

2 
PICANet Annual Report Appendices 2017 
 
 
CONTENTS 
 
A. 
PARTICIPATING ORGANISATION & HOSPITAL CHARACTERISTICS .............................................................. 3 
B. 
CLINICAL ADVISORY GROUP MEMBERSHIP .......................................................................................... 5 
C. 
STEERING GROUP MEMBERSHIP ....................................................................................................... 7 
D. 
PIC FAMILIES GROUP MEMBERSHIP .................................................................................................. 9 
E. 
DATA COLLECTION FORM – ADMISSION ........................................................................................... 11 
F. 
DATA COLLECTION FORM – REFERRAL ............................................................................................. 15 
G. 
DATA COLLECTION FORM – TRANSPORT .......................................................................................... 16 
H. 
Information Leaflet – Families and carers ............................................................................... 18 
I. 
INFORMATION LEAFLET – CHILDREN ................................................................................................ 20 
J. 
DATA VALIDATION FORM .............................................................................................................. 22 
K. 
DATA VALIDATION REPORT............................................................................................................ 24 
L. 
PUBLICATIONS, ABSTRACTS & PRESENTATIONS 2014-2016 ................................................................ 25 
Publications .................................................................................................................................... 25 
Abstracts ......................................................................................................................................... 27 
Presentations .................................................................................................................................. 27 
M. STAFFING STUDY DATA COLLECTION FORMS 2016 ............................................................................ 28 
N. 
DATA REQUESTS DECEMBER 2015 – DECEMBER 2016 ...................................................................... 35 
 
 
 
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In all cases PICANet must be acknowledged as the source when reproducing or quoting any part of this publication.  
Please use the following format when citing this report: 
 
Paediatric Intensive Care Audit Network Annual Report 2017 (published November 2017): Universities of Leeds and Leicester. 
 
©2017 The University of Leeds, University of Leicester and the Healthcare Quality Improvement Partnership 

 
A.      PARTICIPATING ORGANISATION & HOSPITAL CHARACTERISTICS 
NHS TRUST / ORGANISATION 
PARTICIPATING HOSPITAL 
UNIT  
FUNDED PIC 
BEDS 
FUNDED HD BEDS 
TYPE OF UNIT 
BARTS HEALTH NHS TRUST 
THE ROYAL LONDON HOSPITAL 
PCCU 
2 
41 
GENERAL  
BIRMINGHAM WOMEN’S AND CHILDREN’S NHS 
FOUNDATION TRUST 
BIRMINGHAM CHILDREN’S HOSPITAL 
PICU 
29.5 
0 
GENERAL INCLUDING CARDIAC, LIVER, 
NEUROSURGICAL, ECLS, ENT, ONCOLOGY, 
METABOLIC AND SPINAL 
CAMBRIDGE UNIVERSITY HOSPITALS NHS FOUNDATION 
TRUST 
ADDENBROOKE'S HOSPITAL 
PICU 
9 
4 
GENERAL INCLUDING NEUROSURGERY AND 
MAJOR TRAUMA 
CARDIFF AND VALE UNIVERSITY HEALTH BOARD 
UNIVERSITY HOSPITAL OF WALES 
PCCI 
6 
4 
GENERAL 
CENTRAL MANCHESTER UNIVERSITY HOSPITALS NHS 
FOUNDATION TRUST 
ROYAL MANCHESTER CHILDREN’S HOSPITAL 
PICU 
15 
0 
GENERAL 
GREAT ORMOND STREET HOSPITAL FOR CHILDREN NHS 
FOUNDATION TRUST 
GREAT ORMOND STREET HOSPITAL  
CCCU 
19 
0 
CARDIAC 
PICU 
15 
0 
GENERAL  
NICU 
9 
0 
NEONATAL UNIT 
GUY’S & ST. THOMAS’ NHS FOUNDATION TRUST 
EVELINA LONDON CHILDREN’S HOSPITAL 
PICU 
19 
0 
GENERAL & CARDIAC 
HSE (HEALTH SERVICES EXECUTIVE) 
TEMPLE STREET CHILDREN’S UNIVERSITY HOSPITAL,  
DUBLIN 
PICU 
9 
0 
GENERAL, NEUROSURGICAL (UP TO 6 YEARS OF 
AGE), CRANIOFACIAL & SURGICAL NEONATAL. 
OUR LADY’S CHILDREN’S HOSPITAL, CRUMLIN 
PICU 
18 
5 
GENERAL & CARDIAC 
HULL & EAST YORKSHIRE HOSPITALS NHS TRUST 
HULL ROYAL INFIRMARY 
AICU 
2 
0 
2 DESIGNATED PIC BEDS 
KING’S COLLEGE HOSPITAL NHS FOUNDATION TRUST 
KING’S COLLEGE HOSPITAL 
PICU 
7 
81 
GENERAL & HEPATIC & NEUROSURGICAL 
LEEDS TEACHING HOSPITALS NHS TRUST 
LEEDS CHILDREN’S HOSPITAL 
PICU 
16 
0 
GENERAL, NEUROSURGERY, LIVER & CARDIAC 
NEWCASTLE UPON TYNE HOSPITALS NHS FOUNDATION 
TRUST 
THE GREAT NORTH CHILDREN’S HOSPITAL 
PICU 
11 
0 
GENERAL & SURGICAL ICU 
FREEMAN HOSPITAL 
CICU 
12 
0 
CARDIOTHORACIC SURGERY, HEART FAILURE, 
ECMO  
NHS LOTHIAN – UNIVERSITY HOSPITALS DIVISION 
ROYAL HOSPITAL FOR SICK CHILDREN, EDINBURGH 
PICU 
10 
9 
GENERAL (PLUS NEUROSURGICAL AND SPINAL) 
NHS GREATER GLASGOW AND CLYDE – WOMEN AND 
CHILDREN’S DIVISION 
ROYAL HOSPITAL FOR CHILDREN  
PICU 
20 
2 
GENERAL, NEUROSURGICAL CARDIAC & ECMO 
OXFORD UNIVERSITY HOSPITALS NHS FOUNDATION 
TRUST 
THE JOHN RADCLIFFE HOSPITAL 
PCCU 
8 
9 
GENERAL INCLUDING NEUROSURGICAL, 
CRANIOFACIAL AND MAJOR TRAUMA. 

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NHS TRUST / ORGANISATION 
PARTICIPATING HOSPITAL 
UNIT  
FUNDED PIC 
BEDS 
FUNDED HD BEDS 
TYPE OF UNIT 
NOTTINGHAM UNIVERSITY HOSPITALS NHS TRUST 
NOTTINGHAM CHILDREN’S HOSPITAL 
PICU 
6 
8 
GENERAL (PLUS REGIONAL ONCOLOGY, MAJOR 
TRAUMA, ENT, PAEDIATRIC SURGERY, 
NEUROSURGICAL, SPINAL, SUPRAREGIONAL 
RENAL SERVICE AND CLEFT LIP & PALATE 
SERVICES) 
ROYAL BROMPTON & HAREFIELD NHS FOUNDATION 
TRUST 
ROYAL BROMPTON HOSPITAL 
PICU 
16 
4 
CARDIAC & RESPIRATORY 
ALDER HEY CHILDREN’S NHS FOUNDATION TRUST 
ALDER HEY CHILDREN’S HOSPITAL 
PICU 
21 
0 
GENERAL & CARDIAC 
SHEFFIELD CHILDREN’S NHS FOUNDATION TRUST 
SHEFFIELD CHILDREN’S HOSPITAL 
PCCU 
9 
8 
GENERAL (PLUS MAJOR TRAUMA, 
NEUROSURGERY, ENT, ONCOLOGY, METABOLIC, 
PAEDIATRIC SURGERY, SPINAL) 
UNIVERSITY HOSPITAL SOUTHAMPTON NHS 
FOUNDATION TRUST 
SOUTHAMPTON CHILDREN’S HOSPITAL 
PICU 
14 
0 
GENERAL, CARDIAC & NEUROSURGERY 
SOUTH TEES HOSPITALS NHS FOUNDATION TRUST 
THE JAMES COOK UNIVERSITY HOSPITAL 
PICU 
4 
0 
GENERAL 
ST. GEORGE’S UNIVERSITY HOSPITALS NHS 
FOUNDATION TRUST 
ST. GEORGE’S HOSPITAL 
PICU 
6 
6 
GENERAL, NEUROSURGICAL, ONCOLOGY & 
PAEDIATRIC SURGERY 
IMPERIAL COLLEGE HEALTHCARE NHS TRUST 
ST. MARY’S HOSPITAL 
PICU 
8 
0 
GENERAL 
BELFAST HEALTH AND SOCIAL CARE TRUST 
ROYAL BELFAST HOSPITAL FOR SICK CHILDREN 
PICU 
122 
0 
GENERAL 
UNIVERSITY HOSPITALS BRISTOL NHS FOUNDATION 
TRUST 
BRISTOL ROYAL HOSPITAL FOR CHILDREN 
PICU 
18 
0 
GENERAL, CARDIAC, NEUROSURGERY, BURNS 
AND MAJOR TRAUMA 
UNIVERSITY HOSPITALS OF LEICESTER NHS TRUST 
LEICESTER ROYAL INFIRMARY 
CICU 
6 
0 
GENERAL 
GLENFIELD HOSPITAL 
PICU 
7 
0 
CARDIAC & ECMO 
UNIVERSITY HOSPITALS OF NORTH MIDLANDS NHS 
TRUST 
ROYAL STOKE UNIVERSITY HOSPITAL 
PICU 
8 
0 
GENERAL 
HCA HEALTHCARE (NON NHS) 
THE HARLEY STREET CLINIC 
PICU 
13 
5 
GENERAL & CARDIAC 
THE PORTLAND HOSPITAL FOR WOMEN AND 
CHILDREN 
PICU 
10 
0 
GENERAL 
1       ITU/ HDU BEDS ARE USED FLEXIBLY IF REQUIRED 
2      BELFAST ROUTINELY ADMITS PATIENTS UNDER 14 YEARS ONLY  
 
 
 
 
* The above information was recorded in November 2016 

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B.     CLINICAL ADVISORY GROUP MEMBERSHIP 
C. NAME 
POSITION 
NHS TRUST / HOSPITAL 
PERIOD SERVED 
DR RACHEL AGBEKO 
PAEDIATRIC INTENSIVIST 
NEWCASTLE UPON TYNE HOSPITALS NHS FOUNDATION TRUST  
GREAT NORTH CHILDREN’S HOSPITAL 
2012 - PRESENT 
DR JOHN ALEXANDER 
CONSULTANT IN PAEDIATRIC INTENSIVE CARE 
UNIVERSITY HOSPITALS OF NORTH MIDLANDS NHS TRUST  
ROYAL STOKE UNIVERSITY HOSPITAL 
2012 - PRESENT 
SIMON CHILES 
SENIOR CHARGE NURSE 
UNIVERSITY HOSPITALS OF LEICESTER NHS TRUST 
LEICESTER ROYAL INFIRMARY 
2014 - PRESENT 
KATHRYN CLAYDON - SMITH 
CLINICAL NURSE SPECIALIST 
CENTRAL MANCHESTER & MANCHESTER CHILDREN’S UNIVERSITY HOSPITALS NHS 
TRUST 
ROYAL MANCHESTER CHILDREN’S HOSPITAL 
2009 - PRESENT 
DR PETER DAVIS (CHAIR) 
CONSULTANT IN PAEDIATRIC INTENSIVE CARE 
UNIVERSITY HOSPITALS BRISTOL NHS FOUNDATION TRUST 
ROYAL HOSPITAL FOR CHILDREN 
2006 - PRESENT 
LOUISE DEWSBURY 
PICU MATRON 
GUY’S & ST THOMAS’ NHS FOUNDATION TRUST 
EVELINA CHILDREN’S HOSPITAL 
2017 - PRESENT 
DR ANDREW DURWARD 
(SHARING WITH DR SHANE TIBBY) 
CONSULTANT IN PAEDIATRIC INTENSIVE CARE 
GUY’S & ST THOMAS’ NHS FOUNDATION TRUST 
EVELINA CHILDREN’S HOSPITAL 
2002 - 2017 
JUDITH GRAY 
SISTER 
NEWCASTLE UPON TYNE HOSPITALS NHS FOUNDATION TRUST 
NEWCASTLE FREEMAN HOSPITAL 
2015 - PRESENT 
DR HILARY KLONIN 
CONSULTANT IN PAEDIATRIC INTENSIVE CARE 
HULL & EAST YORKSHIRE HOSPITALS NHS TRUST 
HULL ROYAL INFIRMARY 
2002 - PRESENT 
DR JILLIAN MCFADZEAN 
(REPRESENTING SCOTLAND) 
CONSULTANT IN PAEDIATRIC INTENSIVE CARE 
NHS LOTHIAN – UNIVERSITY HOSPITALS DIVISION 
EDINBURGH ROYAL HOSPITAL FOR SICK CHILDREN 
2005 - 2015 
DR CATHY MCMAHON 
CONSULTANT IN PAEDIATRIC INTENSIVE CARE 
OUR LADY'S CHILDREN'S HOSPITAL, CRUMLIN, DUBLIN & 
THE CHILDREN’S UNIVERSITY HOSPITAL, DUBLIN 
2011 -2016 
LESLEY MOLONY 
INFORMATION OFFICER 
SOUTHAMPTON UNIVERSITIES HOSPITAL NHS TRUST 
SOUTHAMPTON CHILDREN’S HOSPITAL 
2013 - PRESENT 
DR RODDY O’DONNELL 
CONSULTANT IN PAEDIATRIC INTENSIVE CARE 
CAMBRIDGE UNIVERSITY HOSPITALS NHS FOUNDATION TRUST 
ADDENBROOKE’S HOSPITAL 
2002 - PRESENT 
DR PAULA LISTER 
CONSULTANT PAEDIATRIC INTENSIVIST 
GREAT ORMOND STREET HOSPITAL FOR CHILDREN NHS TRUST 
GREAT ORMOND STREET HOSPITAL FOR SICK CHILDREN 
2012 - 2017 
DR JOHN PAPPACHAN 
(SHARED WITH PETER WILSON) 
ANAESTHETICS AND PAEDIATRIC INTENSIVE CARE MEDICINE   
SOUTHAMPTON UNIVERSITIES HOSPITAL NHS TRUST 
SOUTHAMPTON CHILDREN’S HOSPITAL 
2012 - PRESENT 
DR NAZIMA PATHAN 
(SHARED WITH RODDY O’DONNELL) 
CONSULTANT IN PAEDIATRIC INTENSIVE CARE 
CAMBRIDGE UNIVERSITY HOSPITALS NHS FOUNDATION TRUST 
ADDENBROOKE’S HOSPITAL 
2012 - PRESENT 
DR ADRIAN PLUNKETT 
CONSULTANT PAEDIATRIC INTENSIVIST 
BIRMINGHAM CHILDREN’S HOSPITAL NHS TRUST 
BIRMINGHAM CHILDREN’S HOSPITAL 
2012 - 2017 

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C. NAME 
POSITION 
NHS TRUST / HOSPITAL 
PERIOD SERVED 
DR PADMANABHAN RAMNARAYAN 
CONSULTANT 
GREAT ORMOND STREET HOSPITAL NHS TRUST  
CHILDREN'S ACUTE TRANSPORT SERVICE 
2012 - PRESENT 
DR KAY RUSHFORTH 
SENIOR SISTER 
LEEDS TEACHING HOSPITALS NHS TRUST 
LEEDS GENERAL INFIRMARY 
2012 - 2015 
DR MARK TERRIS 
(REPRESENTING NORTHERN IRELAND) 
CONSULTANT ANAESTHETIST 
BELFAST HEALTH AND SOCIAL CARE TRUST 
ROYAL BELFAST HOSPITAL FOR SICK CHILDREN 
2014 - PRESENT 
DR SHANE TIBBY 
(SHARED WITH DR ANDREW 
DURWARD) 
CONSULTANT IN PAEDIATRIC INTENSIVE CARE 
GUY’S AND ST THOMAS’ FOUNDATION TRUST 
EVELINA CHILDREN’S HOSPITAL 
2011 - PRESENT 
DR ALISTAIR TURNER 
CONSULTANT IN PAEDIATRIC INTENSIVE CARE 
ROYAL HOSPITAL FOR CHILDREN, GLASGOW 
2016 - PRESENT 
DR ALLAN WARDHAUGH 
(REPRESENTING WALES) 
CONSULTANT IN PAEDIATRIC INTENSIVE CARE 
CARDIFF AND VALE UNIVERSITY HEALTH BOARD  
UNIVERSITY HOSPITAL OF WALES 
2004 - PRESENT 
DR PETER WILSON 
(SHARED WITH JOHN PAPPACHAN) 
PICU CONSULTANT 
UNIVERSITY HOSPITAL SOUTHAMPTON NHS FOUNDATION TRUST 
SOUTHAMPTON CHILDREN’S HOSPITAL 
2011- PRESENT 
*Recorded in July 2017  
** Membership recorded that spans the period of the report only. 

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C.      STEERING GROUP MEMBERSHIP 
NAME 
POSITION 
ORGANISATION 
REPRESENTATION 
PERIOD SERVED 
CHRISTOPHER COSLETT 
DIRECTORATE MANAGER FOR CARDIOTHORACIC 
SERVICES AND CRITICAL CARE 
UNIVERSITY HOSPITAL OF WALES 
WALES 
2016 - PRESENT 
DR MARK DAROWSKI 
CONSULTANT PAEDIATRIC ANAESTHETIST 
LEEDS TEACHING HOSPITALS NHS TRUST 
LEEDS GENERAL INFIRMARY PICU 
ROYAL COLLEGE OF ANAESTHETISTS 
2002 - 2015 
DR PETER DAVIS 
CONSULTANT IN PAEDIATRIC INTENSIVE CARE 
UNIVERSITY HOSPITALS BRISTOL NHS FOUNDATION TRUST 
BRISTOL ROYAL HOSPITAL FOR CHILDREN 
CHAIR OF PICANET CAG 
2011 - PRESENT 
LOUISE DEWSBURY 
MATRON PICU  
EVELINA LONDON CHILDREN’S HOSPITAL 
PICS NURSE MANAGEMENT GROUP 
2017 - PRESENT 
CHARLIE EVANS 
CASE MIX PROGRAMME MANAGER 
INTENSIVE CARE NATIONAL AUDIT & RESEARCH CENTRE 
(ICNARC) 
INTENSIVE CARE NATIONAL AUDIT & 
RESEARCH CENTRE (ICNARC) 
2015 - 2016 
ANDREW FLEMING 
NATIONAL CLINICAL AUDIT MANAGER 
INTENSIVE CARE NATIONAL AUDIT & RESEARCH CENTRE 
(ICNARC) 
INTENSIVE CARE NATIONAL AUDIT & 
RESEARCH CENTRE (ICNARC) 
2017 - PRESENT 
PETER-MARC FORTUNE 
CONSULTANT PAEDIATRIC INTENSIVIST 
ASSOCIATE CLINICAL HEAD 
ROYAL MANCHESTER CHILDREN’S HOSPITAL 
PAEDIATRIC INTENSIVE CARE SOCIETY 
PRESIDENT (OCTOBER 2016) 
2016 - PRESENT 
JULIA GRACE 
NATIONAL COMMISSIONER 
NHS ENGLAND 
NATIONAL COMMISSIONER FOR PIC CRG 
2013 - 2016 
SASHA HEWITT 
HQIP PICANET  COORDINATOR 
HEALTHCARE QUALITY IMPROVEMENT PARTNERSHIP 
(HQIP) 
COMMISSIONING AND FUNDING BODY 
2017 - PRESENT 
TASNEEM HOOSAIN 
HQIP PICANET  COORDINATOR 
HEALTHCARE QUALITY IMPROVEMENT PARTNERSHIP 
(HQIP) 
COMMISSIONING AND FUNDING BODY 
2015 - 2017 
RACHEL LUNDY 
NATIONAL COMMISSIONER 
NHS ENGLAND 
NATIONAL COMMISSIONER FOR PIC CRG 
2016 - PRESENT 
DR MICHAEL MARSH (CHAIR) 
CONSULTANT IN PAEDIATRIC INTENSIVE CARE 
SOUTHAMPTON UNIVERSITY HOSPITALS NHS TRUST 
SOUTHAMPTON CHILDREN’S HOSPITAL PICU 
ROYAL COLLEGE OF PAEDIATRICS AND CHILD 
HEALTH 
2002 - PRESENT 
DR JILLIAN MCFADZEAN 
CONSULTANT IN ANAESTHESIA & INTENSIVE 
CARE / PA 
NHS LOTHIAN – UNIVERSITY HOSPITALS DIVISION 
EDINBURGH ROYAL HOSPITAL FOR SICK CHILDREN 
EDINBURGH ROYAL HOSPITAL FOR SICK 
CHILDREN, SCOTLAND 
2005 - PRESENT 
JENNY MOONEY 
DIRECTOR OF OPERATIONS 
HEALTHCARE QUALITY IMPROVEMENT PARTNERSHIP 
COMMISSIONING AND FUNDING BODY 
2015 - 2016 
DR KEVIN MORRIS 
CONSULTANT IN PAEDIATRIC INTENSIVE CARE 
BIRMINGHAM WOMEN’S AND CHILDREN’S NHS 
FOUNDATION TRUST 
BIRMINGHAM CHILDREN’S HOSPITAL PICU 
IMMEDIATE PAST PRESIDENT OF THE 
PAEDIATRIC INTENSIVE CARE SOCIETY 
2006 - 2016 
PROFESSOR JOHN NEWTON  
REGIONAL DIRECTOR OF PUBLIC HEALTH 
SOUTH CENTRAL STRATEGIC HEALTH AUTHORITY 
PUBLIC HEALTH ENGLAND 
2009 - 2015 
DR GALE PEARSON 
CONSULTANT IN PAEDIATRIC INTENSIVE CARE 
BIRMINGHAM WOMEN’S AND CHILDREN’S NHS 
FOUNDATION TRUST 
BIRMINGHAM CHILDREN’S HOSPITAL 
CHAIR OF PAEDIATRIC INTENSIVE CARE 
CLINICAL REFERENCE GROUP 
2015 - PRESENT 

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NAME 
POSITION 
ORGANISATION 
REPRESENTATION 
PERIOD SERVED 
DR MARK PETERS 
CLINICAL UNIT CHAIR 
GREAT ORMOND STREET HOSPITAL FOR CHILDREN 
GREAT ORMOND STREET HOSPITAL, LONDON 
CHAIR OF PAEDIATRIC INTENSIVE CARE 
SOCIETY STUDY GROUP 
2008 - 2016 
LAURA REEKIE 
DATA MANAGER 
NHS LOTHIAN – UNIVERSITY HOSPITALS DIVISION 
EDINBURGH ROYAL HOSPITAL FOR SICK CHILDREN 
DATABASE REPRESENTATIVE 
2005 - 2016 
DR BARNEY SCOLEFIELD 
CONSULTANT INTENSIVIST 
BIRMINGHAM CHILDRENS HOSPITAL 
CHAIR OF PAEDIATRIC INTENSIVE CARE 
STUDY GROUP 
2016 - PRESENT 
LUCY LLOYD SCOTT 
CASEMIX PROGRAMME MANAGER 
INTENSIVE CARE NATIONAL AUDIT & RESEARCH CENTRE  
(ICNARC) 
INTENSIVE CARE NATIONAL AUDIT & 
RESEARCH CENTRE  (ICNARC) 
2002 - 2015 
VIVIENNE SEAGROVE 
HQIP PICANET  COORDINATOR 
HEALTHCARE QUALITY IMPROVEMENT PARTNERSHIP 
COMMISSIONING AND FUNDING BODY 
2017 - PRESENT 
DR MARK TERRIS 
CONSULTANT ANAESTHETIST 
BELFAST HEALTH AND SOCIAL CARE TRUST 
ROYAL BELFAST HOSPITAL FOR SICK CHILDREN 
NORTHERN IRELAND 
2012 - PRESENT 
HEATHER WARDLE 
MATRON PICU & CARDIAC CHILDREN'S 
SERVICES 
LEEDS TEACHING HOSPITAL 
PICS NURSE MANAGEMENT GROUP 
2016 - 2017 
DOMINIQUE GRAY WILLIAMS 
AUDIT CO-ORDINATOR 
WELSH HEALTH SPECIALISED SERVICES COMMITTEE 
WELSH HEALTH SPECIALISED SERVICES 
COMMITTEE 
2003 - 2016 
LUCY WHEELER 
PARENT 
N/A 
PARENT REPRESENTATION 
2011 - PRESENT 
DR PETER WILSON 
CLINICAL DIRECTOR FOR CHILD HEALTH 
SOUTHAMPTON CHILDREN’S HOSPITAL 
PAEDIATRIC INTENSIVE CARE SOCIETY 
PRESIDENT 
2011 - 2016 
 

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D.         PIC FAMILIES GROUP MEMBERSHIP 
NAME  
POSITION  
ORGANISATION  
PERIOD SERVED  
DR JOHN ALEXANDER  
CONSULTANT IN PAEDIATRIC INTENSIVE CARE  
UNIVERSITY HOSPITALS OF NORTH MIDLANDS NHS TRUST  
ROYAL STOKE UNIVERSITY HOSPITAL  
2010 -  2013  
RE-JOINED 2015 - 
PRESENT 
FIONA BICKELL  
RETRIEVAL NURSE PRACTITIONER  
SOUTH THAMES RETRIEVAL SERVICE  
2010 - PRESENT  
SALLY BOLSOVER  
CRITICAL CARE SISTER  
SHEFFIELD CHILDREN’S NHS FOUNDATION TRUST  
SHEFFIELD CHILDREN’S HOSPITAL  
2011 - 2015  
KATHY BRENNAN 
MATRON 
KING’S COLLEGE HOSPITAL NHS TRUST 
THOMAS COOK CHILDREN’S CRITICAL CARE UNIT 
2016 - PRESENT 
SARAH BUNDY  
FAMILY LIAISON SISTER  
BIRMINGHAM WOMEN’S AND CHILDREN’S NHS FOUNDATION TRUST 
BIRMINGHAM CHILDREN’S HOSPITAL PICU  
2010 - PRESENT  
DR MARIA CLARE 
SPECIALIST CLINICAL PSYCHOLOGIST 
UNIVERSITY HOSPITALS BRISTOL NHS FOUNDATION TRUST  
BRISTOL ROYAL HOSPITAL FOR CHILDREN 
2016 - PRESENT 
DR GILLIAN COLVILLE  
CLINICAL PSYCHOLOGIST  
ST GEORGE’S HEALTHCARE NHS TRUST  
ST GEORGE’S HOSPITAL  
2009 - PRESENT  
HELENE CRADDOCK  
SENIOR STAFF NURSE  
UNIVERSITY HOSPITALS BRISTOL NHS FOUNDATION TRUST  
BRISTOL ROYAL HOSPITAL FOR CHILDREN  
2011 - PRESENT  
ANGELA DANJELO  
LAY REPRESENTATIVE  
N/A  
2013 - 2016  
PROFESSOR ELIZABETH DRAPER  
PRINCIPLE INVESTIGATOR  
PICANET  
2009 - PRESENT  
DEBRA EHALA  
SISTER  
NEWCASTLE UPON TYNE HOSPITALS NHS FOUNDATION TRUST  
GREAT NORTH CHILDREN’S HOSPITAL  
2009 - PRESENT  
KATE FODEN  
SISTER  
UNIVERSITY HOSPITALS OF NORTH MIDLANDS NHS TRUST  
ROYAL STOKE UNIVERSITY HOSPITAL  
2013 - 2016  
CLAIRE GREEN 
FAMILY LIAISON SISTER 
SHEFFIELD CHILDREN’S NHS FOUNDATION TRUST  
SHEFFIELD CHILDREN’S HOSPITAL 
2015 - 2016 
PHILLIP HUDNOTT  
AUDIT NURSE  
CENTRAL MANCHESTER & MANCHESTER CHILDREN’S UNIVERSITY HOSPITALS NHS TRUST  
ROYAL MANCHESTER CHILDREN’S HOSPITAL  
2011 - 2014  
DR HILARY KLONIN  
CONSULTANT IN PAEDIATRIC INTENSIVE CARE  
HULL & EAST YORKSHIRE HOSPITALS NHS TRUST  
HULL ROYAL INFIRMARY  
2009 - PRESENT  
CAROLINE LAMMING  
RESEARCH NURSE  
PICANET  
2009 - PRESENT  
SHELLEY MARSH  
LAY REPRESENTATIVE  
N/A  
2011 - PRESENT  

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NAME  
POSITION  
ORGANISATION  
PERIOD SERVED  
TINA MCCLELLAND  
AUDIT SISTER  
ALDER HEY CHILDREN’S NHS FOUNDATION TRUST  
ALDER HEY CHILDREN’S HOSPITAL  
2009 - 2014  
CLAIRE RYAN 
MATRON 
CENTRAL MANCHESTER & MANCHESTER CHILDREN’S UNIVERSITY HOSPITALS NHS TRUST  
ROYAL MANCHESTER CHILDREN’S HOSPITAL 
2014 - PRESENT 

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E.      DATA COLLECTION FORM – ADMISSION  
 

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F.        DATA COLLECTION FORM – REFERRAL  
 

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G. 
    DATA COLLECTION FORM – TRANSPORT  
 

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*These forms in appendices F-H refer to versions at time of publication. Regular reviews and updates may alter these in the future. 

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H.  INFORMATION LEAFLET – FAMILIES AND CARERS  
 

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I.      INFORMATION LEAFLET – CHILDREN  
 

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*Parents and Carer and Children’s information leaflets are also available for Welsh and Irish patients and families. 

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J.  DATA VALIDATION FORM  
 
 

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K.   DATA VALIDATION REPORT  
This is a sample validation report, these real-time reports along with many others, can be produced 
by individual organisations through PICANet Web. 
 

25 
PICANet Annual Report Appendices 2017 
 
L. 
PUBLICATIONS, ABSTRACTS & PRESENTATIONS 2014-2016 
PUBLICATIONS 
JOURNAL 
TITLE 
AUTHORS 
N ENGL J MED 2014;370(2): 107-18  
A RANDOMIZED TRIAL OF HYPERGLYCAEMIC 
CONTROL IN PAEDIATRIC INTENSIVE CARE. 
MACRAE D, GRIEVE R, ALLEN E, SADIQUE Z, 
MORRIS K, PAPPACHAN J, PARSLOW R, TASKER 
RC, ELBOURNE D 
HEALTH TECHNOLOGY ASSESSMENT 2014; 18 
(26): 1-209 
A CLINICAL AND ECONOMIC EVALUATION OF 
CONTROL OF HYPERGLYCAEMIA IN PAEDIATRIC 
INTENSIVE CARE (CHIP): A RANDOMISED 
CONTROLLED TRIAL. 
DUNCAN MACRAE, RICHARD GRIEVE, 
ELIZABETH ALLEN, ZIA SADIQUE, HELEN BETTS, 
KEVIN MORRIS, VITHAYATHIL JOHN 
PAPPACHAN, ROGER PARSLOW, ROBERT C 
TASKER, PAUL BAINES, MICHAEL BROADHEAD, 
MARK L DUTHIE, PETER-MARC FORTUNE, 
DAVID INWALD, PADDY MCMASTER, MARK J 
PETERS, MARGRID SCHINDLER, CARLA 
GUERRIERO, DEBORAH PIERCY, ZDENEK SLAVIK, 
CLAIRE SNOWDON, LAURA VAN DYCK AND 
DIANA ELBOURNE 
INTENSIVE CARE MEDICINE 2014; 40 (12): 
1916-23 
RISK OF BLOODSTREAM INFECTION IN CHILDREN 
ADMITTED TO PAEDIATRIC INTENSIVE CARE UNITS IN 
ENGLAND AND WALES FOLLOWING EMERGENCY 
INTER-HOSPITAL TRANSFER. 
KATIE HARRON, QUEN MOK, ROGER 
PARSLOW, BERIT MULLER PEBODY, RUTH 
GILBERT AND PADMANABHAN RAMNARAYAN. 
BMJ OPEN 2014;4(11): E006647 
ESTIMATING THE INCIDENCE, PREVALENCE AND 
TRUE COST OF ASTHMA IN THE UK: SECONDARY 
ANALYSIS OF NATIONAL STAND-ALONE AND LINKED 
DATABASES IN ENGLAND, NORTHERN IRELAND, 
SCOTLAND AND WALES-A STUDY PROTOCOL. 
MUKHERJEE M, GUPTA R, FARR A, HEAVEN 
M, STODDART A, NWARU BI, FITZSIMMONS D, 
CHAMBERLAIN G, BANDYOPADHYAY A, 
FISCHBACHER C, DIBBEN C, SHIELDS M, 
PHILLIPS C, STRACHAN D, DAVIES G, 
MCKINSTRY B, SHEIKH A, MCCLELLAND K, 
HAMILTON K, BURGESS K, STEWART R, 
MCVEIGH S, MURRAY P, GINGLES J, MAGUIRE 
J, KENNEDY C, MYERS J, DOOLE C, ROSATO M, 
BRUNTON C, WALSH C, MCKEOWN N, 
FITZPATRICK S, MCLOUGHLIN R, VITTY A, 
COPYRIGHT C, BATCHELOR J, MCSHANE P, 
FLEMING S, PARSLOW R, ROBINSON E, 
HICKFORD D, DINGLE H, LLOYD-SCOTT L, 
HARRISON D, MARTIN P, HUSSEY L, AGIUS R, 
PRICE D, VON ZIEGENWEIDT J, CARTER V, 
SKINNER D, HUTTON C, BATHIE E, CHISOLM A, 
BEEN J, KOTZ D, PAYNE R, JULIOUS S, 
GOODACRE S, DEVEREUX G, STEINER M, WEIR 
C, PARKER R, FENG Z, MCALLISTER D, CARTER 
R, MAY L, LIMB E, VIDAL-DIEZ A, CAREY I, 
DICKIE C, MALLOY A, MILLIGAN D, BARCLAY K, 
HO D, ALEXANDER M, BURNS G, MCANAW J, 
HOURCASTAGNÉ P, RALPH L, SMITH A, 
WALKER C, MIKOLAJCZAK D, BRIGGS R, 
HOPKINS L, WILSON L, BELL M, QUIRK S, 
MORRIS C, SIMPSON M, SISK R, HADDOW C, 
NOWELL S, HAIR D, DUFFY A, ROBERTSON I, 
PRITCHARD A, PEACOCK J, FLEMING M, KIRBY 
B, CLARK D, CALDWELL J, YOUNG C, BAILEY A, 
MELROSE C, MORRICE L, DOUGLAS A, 

26 
PICANet Annual Report Appendices 2017 
JOURNAL 
TITLE 
AUTHORS 
BROMLEY C, CAMPBELL R, WIERZOCH A. 
BMJ QUALITY & SAFETY 2014; 23 (9): 782-8 
DIFFERENCES IN CASE-MIX CAN INFLUENCE THE 
COMPARISON OF STANDARDISED MORTALITY 
RATIOS EVEN WITH OPTIMAL RISK ADJUSTMENT: AN 
ANALYSIS OF DATA FROM PAEDIATRIC INTENSIVE 
CARE. 
MANKTELOW BN, TA EVANS, AND ES DRAPER. 
CRITICAL CARE MEDICINE 2015;43(5):1070-78 
MONITORING QUALITY OF CARE THROUGH 
LINKAGE OF ADMINISTRATIVE DATA: NATIONAL 
TRENDS IN BLOODSTREAM INFECTION IN U.K. 
PICUS 2003-2012. 
HARRON K, PARSLOW R, MOK Q, TIBBY SM, 
WADE A, MULLER-PEBODY B, GILBERT R. 
BMJ OPEN 2015;  5 (8): E008118 
DATA LINKAGE ERRORS IN HOSPITAL 
ADMINISTRATIVE DATA WHEN APPLYING A 
PSEUDONYMISATION ALGORITHM TO PAEDIATRIC 
INTENSIVE CARE RECORDS. 
HAGGER-JOHNSON G, K HARRON, T FLEMING, 
R GILBERT, H GOLDSTEIN, R LANDY, RC 
PARSLOW 
RESUSCITATION 2015; 97: 122-128 
OBSERVATIONAL STUDY OF CHILDREN ADMITTED 
TO UNITED KINGDOM AND REPUBLIC OF IRELAND 
PAEDIATRIC INTENSIVE CARE UNITS AFTER OUT-
OF-HOSPITAL CARDIAC ARREST. 
SCHOLEFIELD, B.R., F. GAO, H.P. DUNCAN, 
R.C. TASKER, R.C. PARSLOW, E.S. DRAPER, P. 
MCSHANE, P. DAVIES, K.P. MORRIS 
SEIZURE: EUROPEAN JOURNAL OF EPILEPSY 2015; 
29: 153-161 
ADMISSIONS TO PAEDIATRIC INTENSIVE CARE UNITS 
(PICU) WITH REFRACTORY CONVULSIVE STATUS 
EPILEPTICUS (RCSE): A TWO-YEAR MULTI-CENTRE 
STUDY. 
TULLY, I., E.S. DRAPER, C.R. LAMMING, D. 
MATTISON, C. THOMAS, T. MARTLAND, R. 
APPLETON 
PEDIATRIC INFECTIOUS DISEASE JOURNAL (2017). 
36 (3): xx-xxxx-xxxx. 
 
INTENSIVE CARE ADMISSIONS FOR CHILDREN WITH 
ENTEROVIRUS AND HUMAN PARECHOVIRUS 
INFECTIONS IN THE UNITED KINGDOM AND THE 
REPUBLIC OF IRELAND,2010-2014 
BRACCIO S., KAPETANSTRATAKI M., SHARLAND 
M., & LADHANII S.N. 
CRITICAL CARE MEDICINE (2017), 45(6), 1045-
1053. 
DOI:10.1097/CCM.0000000000002369 
OUTCOMES FOR CHILDREN RECEIVING NON-
INVASIVE VENTILATION AS THE FIRST-LINE MODE 
OF MECHANICAL VENTILATION AT INTENSIVE CARE 
ADMISSION: A PROPENSITY SCORE-MATCHED 
COHORT STUDY. 
MORRIS, J. V., RAMNARAYAN, P., PARSLOW, 
R. C., & FLEMING, S. J. 
ARCHIVES OF DISEASE IN CHILDHOOD (2016). 
101 (9): 798-802. 
IS IT TAKING LONGER TO DIE IN PAEDIATRIC 
INTENSIVE CARE IN ENGLAND AND WALES?. 
PLUNKETT, A., & PARSLOW, R. C. 
JOURNAL OF THE AMERICAN HEART ASSOCIATION 
(2016). 5 (5): E003369. 
DEATH AND EMERGENCY READMISSION OF 
INFANTS DISCHARGED AFTER INTERVENTIONS FOR 
CONGENITAL HEART DISEASE: A NATIONAL STUDY 
OF 7643 INFANTS TO INFORM SERVICE 
IMPROVEMENT. 
SONYA CROWE, DEBORAH A RIDOUT, RACHEL 
KNOWLES, JENIFER TREGAY, JO WRAY, DAVID J 
BARRON, DAVID CUNNINGHAM, ROGER C 
PARSLOW, MARTIN UTLEY, RODNEY FRANKLIN, 
CATHERINE BULL, KATHERINE L BROWN 
PLOS ONE (2016). 11 (3): E0151348 
GENERALISABILITY AND COST-IMPACT OF 
ANTIBIOTIC-IMPREGNATED CENTRAL VENOUS 
CATHETERS FOR REDUCING RISK OF 
BLOODSTREAM INFECTION IN PAEDIATRIC 
INTENSIVE CARE UNITS IN ENGLAND. 
HARRON, K., MOK, Q., HUGHES, D., MULLER-
PEBODY, B., PARSLOW, R., RAMNARAYAN, P., 
& GILBERT, R. 
ARCHIVES OF DISEASE IN CHILDHOOD (2016). 
101 (2): 140-146. 
ADMISSION TO HOSPITAL FOR BRONCHIOLITIS IN 
ENGLAND: TRENDS OVER FIVE DECADES, 
C A GREEN; D YEATES; A GOLDACRE; C 
SANDE; R C PARSLOW; P MCSHANE; A J 

27 
PICANet Annual Report Appendices 2017 
JOURNAL 
TITLE 
AUTHORS 
GEOGRAPHICAL VARIATION AND ASSOCIATION WITH 
PERINATAL CHARACTERISTICS AND SUBSEQUENT 
ASTHMA. 
POLLARD; M J GOLDACRE 
ABSTRACTS 
ABSTRACT 
TITLE 
AUTHORS 
24TH ESPNIC ANNUAL MEETING, ROTTERDAM, 
12TH-15TH JUNE 2013 (ORAL PRESENTATION) 
WEIGHT-FOR-AGE DISTRIBUTION AND 
CASE-MIX ADJUSTED OUTCOMES OF 
14,205 CRITICALLY ILL CHILDREN 
N.J. PRINCE, K. BROWN, R.C. PARSLOW, M.J. 
PETERS 
PICS 2015 CONFERENCE, 14TH-16TH SEPTEMBER 
2015 
 
DESCRIPTIVE EPIDEMIOLOGY OF 
ADMISSIONS TO PICU OF CHILDREN LESS 
THAN 2 YEARS OLD WHO WERE BORN 
POST-TERM IN THE UK AND THE REPUBLIC 
OF IRELAND, 2003-2014 
M. KAPETANSTRATAKI, S.J. FLEMING, E. S. DRAPER, 
K. JOHNSON, R. C. PARSLOW 
SURVIVAL ANALYSIS FOR JUNIOR RESEARCHERS 
CONFERENCE, 13-14 APRIL 2016 
SURVIVAL IN PAEDIATRIC INTENSIVE CARE 
UNITS (PICU) AND BEYOND, ENGLAND 
AND WALES, 2004 -2014 
KAPETANSTRATAKI M, FLEMING SJ, PARSLOW RC 
 
PRESENTATIONS 
MEETING/CONFERENCE 
VENUE 
DATE 
PRESENTATION TITLE 
PICANET TEAM ATTENDEES 
PIC DIRECTORS MEETING 
LONDON 
25/03/2014 
CAPACITY IN PIC 
LIZ DRAPER 
EAST MIDLANDS PIC 
COMMISSIONERS 
NEC BIRMINGHAM 
04/2014 
TEN YEAR TRENDS IN PIC 
LIZ DRAPER 
PICANET AGM 
MANCHESTER 
05/11/2014 
PRESENTATION ON NATIONAL 
REPORT 
PICANET TEAM 
HQIP CLINICAL AUDIT & QI 
AWARDS. JUNIOR DOCTORS 
FINALS DAY 
LEICESTER 
19/11/2014 
NATIONAL CLINICAL AUDIT 
UPDATE - PICANET 
LIZ DRAPER 
ROYAL COLLEGE OF PAEDIATRICS 
AND CHILD HEALTH ANNUAL 
CONFERENCE 2015 
ICC, BIRMINGHAM 
29/04/2015 
PROLONGED INVASIVE 
VENTILATION IN PAEDIATRIC 
INTENSIVE CARE: CHILDREN 
RESIDENT IN ENGLAND AND 
WALES, 2004-2013 
S FLEMING, K MORRIS, C LAMMING,  
A EVANS, R PARSLOW, E DRAPER 
29TH ANNUAL PICS CONFERENCE 
ICC, BIRMINGHAM 
14-
16/09/2015 
SURVIVAL IN PICU AND BEYOND 
ROGER PARSLOW, SARAH FLEMING, 
MELPO KAPETANSTRATAKI 
ANNUAL TIPNET MEETING 
MILAN 
10/2016 
PICANET – NATIONAL PIC AUDIT 
IN THE UK 
LIZ DRAPER 
PICANET AGM 
ROYAL COLLEGE OF 
NURSING, LONDON 
04/11/2015 
PRESENTATION ON NATIONAL 
REPORT 
PICANET TEAM 
PICANET AGM  
BIRMINGHAM  
02/11/2016 
PRESENTATION ON NATIONAL 
REPORT 
ROGER PARSLOW, MELPO 
KAPETANSTRATAKI 
PAEDIATRIC CRITICAL CARE 
NETWORK ANNUAL CONFERENCE 
ALDER HEY, 
LIVERPOOL 
08/03/2017 
IS MORTALITY A USEFUL MEASURE 
OF PICU OUTCOME? 
ROGER PARSLOW 
      
 

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PICANet Annual Report Appendices 2017 
M. STAFFING STUDY DATA COLLECTION FORMS 2016 
 
 
 

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PICANet Annual Report Appendices 2017 
 
N. DATA REQUESTS DECEMBER 2015 – DECEMBER 2016  
*If you require further details of the Data Requests made to PICANet for English or non-English data please contact the team by email. 
REQUEST DATE: 
NAME, POSITION AND 
PLACE OF WORK/STUDY: 
AIM OF DATA REQUEST: 
DATA 
PROVIDED? 
DATA PROVIDED BY: 
REQUEST CLOSED? 
21/12/2016 
MARK PETERS, 
PROFESSOR OF 
PAEDIATRIC INTENSIVE 
CARE, ICNARC/PICS 
SG/UCL GREAT 
ORMOND ST ICH 
FEVER OBSERVATIONAL STUDY: FOR UK BETWEEN 1/2/17 AND 1/8/2017 TO 
INFORM THE FEASIBILITY OF CONDUCTING A STUDY TO TEST DIFFERENT 
TEMPERATURE THRESHOLDS AT WHICH CLINICIANS DELIVER ANTIPYRETIC 
INTERVENTION IN CRITICALLY ILL CHILDREN WITH FEVER DUE TO INFECTION. 
NO 
MELPO KAPETANSTRATAKI 
YES 
07/12/2016 
AHMED OSMAN, PICU 
REGISTRAR, UNIVERSITY 
HOSPITAL 
SOUTHAMPTON NHS 
FOUNDATION TRUST 
CHANGES IN THE BURDEN OF OBESITY-RELATED CONDITIONS PRESENTING TO 
PAEDIATRIC INTENSIVE CARE: DATA FROM ALL UNITS REPORTING TO PICANET 
(I.E. ENGLAND, WALES, SCOTLAND, NORTHERN IRELAND, REPUBLIC OF IRELAND 
BETWEEN JANUARY 2002 AND DECEMBER 2016 TO ASSESS WHETHER THE 
INCIDENCE OF OBESITY-RELATED ILLNESSES PRESENTING TO PAEDIATRIC INTENSIVE 
CARE IS INCREASING OVER TIME, AND WHETHER CHILDHOOD OBESITY IS BECOMING 
MORE COMMON IN PATIENTS PRESENTING TO PAEDIATRIC INTENSIVE CARE. 
~ 
MELPO KAPETANSTRATAKI 
ONGOING 
01/12/2016 
GRACE RAHMAN, 
STUDENT, KINGS 
COLLEGE LONDON 
NATIONAL GEOGRAPHICAL SCOPE BETWEEN 29/08/2014 AND 29/08/2015, 
WHAT FACTORS INFLUENCE A PARENT’S DECISION TO DONATE THEIR CHILD’S 
ORGANS IN A CRITICAL CARE SETTING? 
NO 
MELPO KAPETANSTRATAKI 
NO 

36 
PICANet Annual Report Appendices 2017 
REQUEST DATE: 
NAME, POSITION AND 
PLACE OF WORK/STUDY: 
AIM OF DATA REQUEST: 
DATA 
PROVIDED? 
DATA PROVIDED BY: 
REQUEST CLOSED? 
30/11/2016 
UMA VARMA, ST 7 
PAEDIATRIC NEUROLOGY 
GRID TRAINEE, ROYAL 
MANCHESTER 
CHILDREN’S HOSPITAL 
"SUPER REFRACTORY STATUS EPILEPTICUS IS DEFINED AS STATUS EPILEPTICUS THAT 
CONTINUES OR RECURS 24 HOURS OR MORE AFTER THE USE OF ANAESTHETIC 
AGENTS INCLUDING THOSE CASES WHERE STATUS EPILEPTICUS RECURS ON THE 
WITHDRAWAL OF ANAESTHESIA (SHORVON 2011). THIS CAN RESULT IN 
SIGNIFICANT MORTALITY AND MORBIDITY. THERE ARE ONLY A FEW STUDIES 
LOOKING AT SUPER REFRACTORY STATUS EPILEPTICUS IN BOTH ADULTS AND 
CHILDREN HENCE THE EXACT FREQUENCY IS NOT CLEAR. THERE IS LACK OF DATA IN 
THE INCIDENCE, THERAPIES USED AND THE OUTCOME IN CHILDREN WITH SUPER 
REFRACTORY STATUS EPILEPTICUS. THE AIMS OF THE STUDY ARE:- - TO GATHER 
DATA ON CHILDREN ADMITTED WITH SUPER REFRACTORY SEIZURES THROUGH THE 
BPNSU PORTAL IN THE UK AND IRELAND FOR A PERIOD OF ONE YEAR WITH THE 
HELP OF QUESTIONNAIRE TO CLINICIANS DIRECTLY INVOLVED IN CLINICAL CARE.   - 
TO ADD INFORMATION TO ENABLE BETTER UNDERSTANDING OF THIS SERIOUS 
CONDITION AND THE OUTCOMES OF VARIOUS THERAPIES TO HELP OPTIMISE 
TREATMENT STRATEGIES.   " FOR THE UK BETWEEN DATES 1/1/17 AND 
1/1/2018 
NO 
MELPO KAPETANSTRATAKI 
YES 
22/11/2016 
RITA FARIA, RESEARCH 
FELLOW, UNIVERSITY OF 
YORK  
FOR ENGLAND BETWEEN 1/8/2015 AND 31/7/2017. THE PREVAIL STUDY IS A 
RANDOMISED CONTROLLED TRIAL TO DETERMINE THE CLINICAL AND COST-
EFFECTIVENESS OF USING ANTIMICROBIAL AND ANTIFUNGAL IMPREGNATED VERSUS 
STANDARD PERIPHERALLY INSERTED CENTRAL VENOUS CATHETERS IN VERY 
PRETERM BABIES. 
NO 
MELPO KAPETANSTRATAKI 
UNKNOWN 

37 
PICANet Annual Report Appendices 2017 
REQUEST DATE: 
NAME, POSITION AND 
PLACE OF WORK/STUDY: 
AIM OF DATA REQUEST: 
DATA 
PROVIDED? 
DATA PROVIDED BY: 
REQUEST CLOSED? 
29/09/2016 
KATHRYN PARKINS, LEAD 
CONSULTANT FOR 
NORTH WEST & NORTH 
WALES PAEDIATRIC 
TRANSPORT SERVICE-
NWTS 
FOR ALL PATIENTS WHOSE HOME POSTCODE IS FROM NORTH WEST (ENGLAND) & 
NORTH WALES REGIONS REQUIRED TO HELP FUTURE PLANNING FOR ECMO 
TRANSPORT PROVISION IN REGION. NWTS REQUESTED TO TRANSFER PATIENTS 
TO/FROM ECMO CENTRES (NEONATES & PAEDIATRIC AGE GROUP), BUT AWARE 
THAT SOME REQUESTS ALSO ARE SENT DIRECTLY TO TEAMS BASED AT ECMO 
CENTRES, WHO MAY ALREADY BE BUSY TRANSFERRING OTHER PATIENTS. IN 
ADDITION NWTS CURRENTLY STRUGGLE TO PROVIDE A TEAM TO REPATRIATE 
PATIENTS TO REGION (POST-ECMO) AS ONLY SINGLE TEAM SERVICE, BUT HAVE 
BEEN ASKED TO PLAN FOR FUTURE. DATA FROM 1/4/14 AND 9/1/2016 
~ 
MELPO KAPETANSTRATAKI 
UNKNOWN 
22/08/2016 
OFRAN ALMOSSAWI, 
MSC STUDENT, 
MEDICAL STATISTICS, 
LSHTM AND IMPERIAL 
NHS TRUST 
DATA FROM 2015-2015 FOR ALL OF THE UK. TO INVESTIGATE THE POTENTIAL 
CAUSES OF DIFFERENCES IN MORTALITY BETWEEN GENDERS IN CHILDREN UP TO 1 
YEAR OF AGE AND ADMITTED WITH AN INFECTIVE AETIOLOGY. 
05/09/2016 
MELPO KAPETANSTRATAKI 
YES 
29/07/2016 
SARAH MOGAN, 
TRANSPORT NURSE, 
WATCH TRANSPORT 
SERVICE 
TO ASSESS THE PREPAREDNESS OF ADULT ITU'S IN OUR CATCHMENT AREA FOR 
ADMITTING PAEDIATRIC PATIENTS AS PER PICS 2015 STANDARDS. FOR SOUTH 
WALES AND THE SOUTH WEST BETWEEN 1/8/2015 AND 31/7/2016 
NO 
LEE NORMAN 
YES 
08/07/2016 
PADMANABHAN 
RAMNARAYAN, 
CONSULTANT, 
CHILDREN'S ACUTE 
TRANSPORT SERVICE, 
GREAT ORMOND STREET 
HOSPITAL 
TO DO A DESCRIPTIVE ANALYSIS OF CURRENT PIC TRANSPORTS IN THE UK. THERE 
ARE NO NATIONAL DATA AVAILABLE ON THIS TOPIC. AVAILABILITY OF AGE, 
DIAGNOSIS AND PIM SCORE WILL ALLOW MORE DETAILED DESCRIPTIONS OF 
SUBGROUPS OF PATIENTS. FOR UNITED KINGDOM AND IRELAND DURING 2014- 
2015 
YES 
LEE NORMAN 
YES 

38 
PICANet Annual Report Appendices 2017 
REQUEST DATE: 
NAME, POSITION AND 
PLACE OF WORK/STUDY: 
AIM OF DATA REQUEST: 
DATA 
PROVIDED? 
DATA PROVIDED BY: 
REQUEST CLOSED? 
17/06/2016 
WANTONG ZHAO, 
STUDENT, UNIVERSITY 
OF LEEDS 
I INTEND TO MODEL THE EFFECT OF A TRIAGE SYSTEM ON MORTALITY IN THE 
PAEDIATRIC INTENSIVE CARE SETTING TO DETERMINE THE BEST USE OF PICU 
RESOURCES.  I WILL USE SIMULATED DATA TO GENERATE DIFFERENT LEVELS OF 
ADMISSION DEMAND ON THE PIC SERVICE AND TEST THE EFFECTIVENESS OF A 
TRIAGE SYSTEM IN RELATION TO MORTALITY. TO COVER UK AND IRELAND 2009 
TO 2015. 
29/06/2016 
MELPO KAPETANSTRATAKI 
YES 
17/06/2016 
YIZHAO JIANG, 
STUDENT, UNIVERSITY 
OF LEEDS 
EXPLORE THE EFFECT OF MISSING AND INCORRECT DATA ON PIM2 MORTALITY 
PREDICTION BY SIMULATING DIFFERENT LEVELS OF MISSING AND INCORRECT DATA 
IN THE PIM2 MORTALITY PREDICTION MODEL.  I WILL USE THIS SIMULATED DATA 
TO GENERATE SMRS AND FUNNEL PLOTS TO EXAMINE WHAT EFFECT POOR DATA 
QUALITY HAS ON THE INTERPRETATION OF SMRS AND ASSESSMENT OF 
INSTITUTIONAL PERFORMANCE. FOR THE UK AND IRELAND BETWEEN 2004 AND 
2015. 
30/06/2016 
LEE NORMAN 
YES 
25/05/2016 
ROB TRUBEY, RESEARCH 
ASSOCIATE, CENTRE FOR 
TRIALS RESEARCH, 
CARDIFF 
AS ABOVE- THE STUDY AIMS TO ASSESS THE IMPACT OF A PAEDIATRIC EARLY 
WARNING SYSTEM INTERVENTION ON THE INCIDENCE OF ADVERSE EVENTS 
(MORTALITY, CARDIAC/RESPIRATORY ARRESTS, ADMISSIONS TO PHDU, 
ADMISSIONS TO PICU) IN FOUR PAEDIATRIC UNITS (TWO DGH, TWO TERTIARY 
CENTRES), USING AN INTERRUPTED TIME SERIES ANALYSIS. ALDER HEY AND 
CARDIFF PICU DATA ONLY FOR MAY 2015 TO MAY 2017 
07/07/2016 
MELPO KAPETANSTRATAKI 
YES 
20/05/2016 
GERRI SEFTON, 
ADVANCED NURSE 
PRACTITIONER PICU, 
ALDER HEY CHILDREN’S 
NHS FOUNDATION 
TRUST 
LOOKING AT SERIOUS ILLNESS/DETERIORATION IN HOSPITALISED CHILDREN AND 
THE USE OF PAEDIATRIC EARLY WARNING SCORES/SYSTEMS • THE IMPACT OF 
PEWS ON EMERGENCY TRANSFERS TO PICU PRE-POST IMPLEMENTATION • 
LONGITUDINAL IMPACT OF PEWS ON EMERGENCY TRANSFERS TO PICU • WHAT 
PATIENT FACTORS INCREASE THE RISK FOR SERIOUS DETERIORATION IN HOSPITAL. 
FOR ALL SITES RETURNING DATA TO PICANET BETWEEN 2004 AND 2015 
02/09/2016 
MELPO KAPETANSTRATAKI 
YES 

39 
PICANet Annual Report Appendices 2017 
REQUEST DATE: 
NAME, POSITION AND 
PLACE OF WORK/STUDY: 
AIM OF DATA REQUEST: 
DATA 
PROVIDED? 
DATA PROVIDED BY: 
REQUEST CLOSED? 
18/05/2016 
STEVEN MCVEA, ST4 
PAEDIATRICS, ROYAL 
BELFAST HOSPITAL FOR 
SICK CHILDREN 
TO QUANTIFY FREQUENCY THAT EXCHANGE TRANSFUSION IS CARRIED OUT IN PICU 
SETTING.  TO IDENTIFY DIAGNOSES REQUIRING EXCHANGE TRANSFUSION.  TO 
INFORM DEVELOPMENT OF EXCHANGE TRANSFUSION GUIDELINE FOR USE IN A 
QUALITY IMPROVEMENT PROJECT.  POSSIBILITY FOR POSTER PRESENTATION OR 
PUBLICATION IF SUCCESSFULLY DEVELOPED INTO QUALITY IMPROVEMENT PROJECT. 
NATIONALLY BETWEEN JANUARY 2005 AND PRESENT (MAY 2016) 
29/06/2016 
ROGER PARSLOW 
YES 
12/05/2016 
BRIAN MUMFORD, MSC 
STUDENT, SCHOOL OF 
COMPUTING, 
UNIVERSITY OF LEEDS 
MACHINE LEARNING FOR IMPROVED MORALITY PREDICTIONS: DATA WERE 
SOUGHT INITIALLY BY MS OMNIA AMINAS (AS PART OF HER MSC PROJECT) TO 
UNDERTAKE PRELIMINARY/PILOT WORK ON METHODS DEVELOPMENT WITH A VIEW 
THAT SUCH WORK WOULD FORM THE BASIS OF A GRANT PROPOSAL TO GO TO 
EXTERNAL FUNDING BODIES, FOR WHICH THIS (FOLLOW-ON) ACCESS TO DATA 
REQUEST WOULD BE MADE.  UNFORTUNATELY, MS AMINA’S WITHDREW FROM 
THIS PROJECT AND THERE WAS NO PROGRESS MADE ON THE PROPOSED 
PRELIMINARY WORK BY HER.  IT IS THEREFORE PROPOSED THAT THE 
PRELIMINARY/PILOT WORK IS INSTEAD UNDERTAKEN BY THE NOW NAMED 
APPLICANT (PROF MARK S GILTHORPE) AND HIS MAIN METHODOLOGICAL 
COLLABORATOR (DR MARC DE KAMPS).    PRELIMINARY INVESTIGATION OF NEW 
METHODS DEVELOPMENT WILL FORM THE BASIS OF A GRANT PROPOSAL TO BE 
SUBMITTED LATE 2015 OR SOMETIME IN 2016, DEPENDING UPON PROGRESS OF 
THE PILOT WORK.  THE TARGET EXTERNAL FUNDING BODY WILL BE INITIALLY THE 
MRC (METHODOLOGY PANEL), AS THE INTENDED PROPOSAL WILL BE LINKED TO 
THE ESTABLISHED MRC CENTRE FOR MEDICAL BIOINFORMATICS BASED AT THE 
UNIVERSITY OF LEEDS.  THE PRELIMINARY/PILOT WORK WILL EXPLORE THE 
FEASIBILITY OF DEVELOPING NEW METHODS AND NOVEL APPLICATIONS OF 
EXISTING METHODS TO ASSESS OUTCOMES IN PAEDIATRIC INTENSIVE CARE, 
SPECIFICALLY TO:  A) HELP IDENTIFY, WITH IMPROVED PRECISION, FACTORS 
ASSOCIATED WITH BETTER PATIENT OUTCOMES  B) IDENTIFY PATIENT SUBGROUPS 
AT GREATEST RISK OF DEATH OR SPECIFIC MORBIDITIES WHO MIGHT THEREFORE BE 
SUITABLE FOR ENTRY INTO CLINICAL TRIALS THAT SEEK TO EVALUATE NOVEL 
INTERVENTIONS OR IMPROVED PATIENT CARE  C) ELUCIDATE POTENTIAL CAUSAL 
FACTORS FROM NON-CAUSAL FACTORS AMONGST THE RELATIONSHIPS IDENTIFIED 
YES 
ROGER PARSLOW 
YES 

40 
PICANet Annual Report Appendices 2017 
REQUEST DATE: 
NAME, POSITION AND 
PLACE OF WORK/STUDY: 
AIM OF DATA REQUEST: 
DATA 
PROVIDED? 
DATA PROVIDED BY: 
REQUEST CLOSED? 
AS HIGHLY PREDICTIVE OF PATIENT OUTCOMES  D) ASSESS THE PERFORMANCE OF 
THESE NEW METHODOLOGIES THROUGH THE RE-ANALYSIS OF EARLIER PUBLISHED 
STUDIES   FROM THIS WORK IT IS HOPED THAT METHODOLOGIES DEVELOPED CAN 
BE APPLIED TO THE EXPLORATION OF COMPLEX ROUTINELY COLLECTED 
HEALTHCARE DATA (OFTEN CALLED ‘BIG DATA’) BEYOND THE PAEDIATRIC INTENSIVE 
CARE SETTING  WE WILL APPLY CONVENTIONAL STATISTICAL METHODS SUCH AS 
GENERALISED LINEAR AND MIXED MODELLING ALONG WITH BAYESIAN NETWORKS 
TO MODEL THE PATIENT JOURNEY THROUGH THE PAEDIATRIC INTENSIVE CARE 
SYSTEM TO ADDRESS A), B) AND C) ABOVE. MOREOVER, WE INTEND TO 
INVESTIGATE THE VIABILITY OF SO-CALLED DEEP LEARNING ARCHITECTURES TO 
CAPTURE HIDDEN REGULARITIES IN THESE PATIENT JOURNEYS.  SCIENTIFIC OUTPUTS 
(E.G. ABSTRACTS, JOURNAL PUBLICATIONS, FUNDING PROPOSALS) ARISING FROM 
THIS WORK WILL INVOLVE COLLABORATORS LISTED BELOW ACCORDING TO 
APPROPRIATE LEVELS OF INPUT, BUT ALWAYS SPECIFICALLY INFORMED BY THE LEAD 
COLLABORATOR, DR ROGER PARSLOW.    A KEY OUTCOME WILL BE THE 
IDENTIFICATION OF POTENTIAL NEW METHODS OR APPLICATIONS OF EXISTING 
METHODS THAT WOULD IMPROVE THE ASSESSMENT OF OUTCOMES IN PAEDIATRIC 
INTENSIVE CARE, FOLLOWED BY THE SUBMISSION OF AT LEAST ONE GRANT FOR 
EXTERNAL FUNDING TO DEVELOP THESE IDEAS FURTHER.    THE RESEARCH TEAM 
WILL OFFER A SEMINAR AND/OR WORKSHOP ON METHODS DEVELOPED, ONCE 
COMPLETE, FOR DISSEMINATION AT APPROPRIATE VENUES SUCH AS PICANET 
AFFILIATED DEPARTMENTS OR AT RELEVANT CONFERENCES.    WE UNDERSTAND 
THAT WE SEEK ACCESS TO AN UNUSUALLY LARGE AMOUNT OF DATA, BUT ACCESS 
WILL BE LIMITED TO THE RESEARCH TEAM, DATA WILL BE STORED ON A SECURE 
SERVER AT THE UNIVERSITY OF LEEDS WITH THE SAME SECURITY ARRANGEMENTS 
AS THE MAIN PICANET SERVER, AND DR PARSLOW, A MEMBER OF THE RESEARCH 
TEAM AND CO-PI FOR PICANET, WILL HAVE DIRECT INVOLVEMENT IN AND 
OVERSIGHT OF HOW THE DATA ARE ANALYSED.   DATA PERIOD: 12/05/2016 
TO 29/09/2016 FOR ENGLAND AND WALES 

41 
PICANet Annual Report Appendices 2017 
REQUEST DATE: 
NAME, POSITION AND 
PLACE OF WORK/STUDY: 
AIM OF DATA REQUEST: 
DATA 
PROVIDED? 
DATA PROVIDED BY: 
REQUEST CLOSED? 
11/05/2016 
MARIANNE JEFFRIES, 
PICU DATA MANAGER, 
PAEDIATRIC INTENSIVE 
CARE UNIT, BRISTOL 
ROYAL HOSPITAL FOR 
CHILDREN 
DATES 1/1/2012 TO 31/12/2014 FOR SOUTH WEST AREAS.  
  
13/05/2016 
MELPO KAPETANSTRATAKI 
YES 
15/04/2016 
SANTOSH 
SUNDARARAJAN, 
CONSULTANT IN 
PAEDIATRIC INTENSIVE 
CARE, LEEDS TEACHING 
HOSPITALS 
THIS IS NOT A RESEARCH STUDY. PATIENTS WITH A YORKSHIRE DOMESTIC 
POSTCODE (YO, HU, DN, S, HD, HX, WF, LS, HG AND BD) BETWEEN 
01/01/2011 AND 31/12/2015 
29/04/2016 
MELPO KAPETANSTRATAKI 
YES 
15/04/2016 
CHARLOTTE GOEDVOLK, 
CONSULTANT 
PAEDIATRIC INTENSIVIST, 
NUH  
01/01/2015-31/12/2015 OWN UNIT (NOTTINGHAM) 
21/09/2016 
LEE NORMAN 
YES 
16/03/2016 
M A DOULAH, 
CONSULTANT, LEEDS 
CHILDREN’S HOSPITAL 
AUDIT ONLY FOR LEEDS PICU ADMISSIONS 01/01/2010 TO END OF DECEMBER 
2010 
11/04/2016 
MELPO KAPETANSTRATAKI 
YES 

42 
PICANet Annual Report Appendices 2017 
REQUEST DATE: 
NAME, POSITION AND 
PLACE OF WORK/STUDY: 
AIM OF DATA REQUEST: 
DATA 
PROVIDED? 
DATA PROVIDED BY: 
REQUEST CLOSED? 
29/02/2016 
JENNY MORRIS, FOURTH 
YEAR MEDICAL 
STUDENT, UNIVERSITY 
OF LEEDS 
FOR DATA BETWEEN DATES 01/01/2007 AND 31/12/2014 IN ENGLAND AND 
WALES. WE AIM TO CARRY OUT A RETROSPECTIVE OBSERVATIONAL COHORT STUDY 
AND CROSS-SECTIONAL SURVEY, TO SHOW HOW THE ATTITUDES OF CLINICIANS 
CORRESPOND TO ACTUAL DATA COLLECTED ON NIV USE THROUGHOUT THE UK 
(PICANET DATA FROM JAN 2007 TO DEC 2014). A PILOT SURVEY HAS ALREADY 
BEEN DISTRIBUTED TO CLINICIANS AT THE LEEDS GENERAL INFIRMARY PICU AND 
WE AIM TO DISTRIBUTE AN AMENDED VERSION OF THIS SURVEY NATIONWIDE 
FOLLOWING FEEDBACK ON THE PILOT. 
  
OUR OBJECTIVES AND QUESTIONS WE WISH TO ADDRESS INCLUDE:  
1.              HOW DO CLINICIANS’ PERCEIVED USAGE OF NIV, AS A STEP-DOWN 
THERAPY FOLLOWING A PERIOD OF IV, COMPARE TO HOW OFTEN IT IS ACTUALLY 
USED IN PICU’S IN THE UK? 
A.               ARE THERE DISCREPANCIES IN THE CLINICIANS’ DEFINITIONS OF NIV? 
B.              HOW MANY UNITS USE A FIXED PROTOCOL FOR NIV STEP-DOWN 
USAGE? 
2.              WHICH PATIENT CHARACTERISTICS INFLUENCE THE USE OF NIV AS A 
STEP-DOWN THERAPY ACCORDING TO (A) CLINICIANS AND (B) PICANET AUDIT 
DATA? 
3.              HOW DOES NIV USAGE, AS A STEP-DOWN THERAPY, VARY ACROSS 
PICUS ACCORDING TO PICANET DATA? 
4.              FOLLOWING WITHDRAWAL OF INVASIVE VENTILATION, WHICH FORM 
OF ADDITIONAL VENTILATOR SUPPORT WOULD CLINICIANS BE MOST LIKELY TO USE? 
29/02/2016 
ROGER PARSLOW 
YES 

43 
PICANet Annual Report Appendices 2017 
REQUEST DATE: 
NAME, POSITION AND 
PLACE OF WORK/STUDY: 
AIM OF DATA REQUEST: 
DATA 
PROVIDED? 
DATA PROVIDED BY: 
REQUEST CLOSED? 
22/02/2016 
MARIE-CLAIRE LOBO, 
CONSULTANT IN PUBLIC 
HEALTH MEDICINE, 
HAMPSHIRE COUNTY 
COUNCIL 
TO INFORM A COMMISSIONING STRATEGY FOR CHILDREN AND YOUNG PEOPLE 
WITH SPECIAL EDUCATION NEEDS/DISABILITY (SEN/D) ACROSS HAMPSHIRE. DATA 
REQUESTED FOR HAMPSHIRE. PLEASE EXCLUDE THE THREE UNITARY AUTHORITIES 
– PORTSMOUTH, SOUTHAMPTON AND THE ISLE OF WIGHT IN JANUARY 2013 –
DECEMBER 2015 BUT IF NOT AVAILABLE, JANUARY 2012-DECEMBER 2014, • 
ANNUAL ADMISSIONS OVER THE PAST TEN YEARS (FOR TRENDS) I.E. FIGURES 
BETWEEN JANUARY 2005 AND DECEMBER 2015, BUT IF NOT AVAILABLE,  
JANUARY 2004 TO DECEMBER 2014, TO UNDERSTAND THE YEAR ON YEAR 
INCREASE IN RATE OF ACTIVITY/GROWTH 
04/03/2016 
MELPO KAPETANSTRATAKI 
YES 
22/02/2016 
TIM HAYWOOD, 
HAMPSHIRE COUNTY 
COUNCIL, LEEDS 
TEACHING HOSPITALS 
WE ARE LOOKING TO DO AN AUDIT - LOOKING AT BLOODS ON ADMISSION AND 
OUTCOME- JUST PATIENTS ADMITTED TO LTHT IN THE FIRST INSTANCE - <19 
YEARS OF AGE BETWEEN 01/01/2005 AND 01/01/2016. 
03/03/2016 
MELPO KAPETANSTRATAKI 
YES 
04/02/2016 
ANDREW CUMELLA, 
POLICY ANALYST, 
ASTHMA UK 
I. THE PURPOSE OF THIS DATA IS TO SUPPLY THE CHARITY, ASTHMA UK, WITH 
DATA ON INTENSIVE CARE EPISODES THAT WILL ALLOW US TO TRACK TRENDS IN 
THIS INDICATOR. 
II. THE DATA WILL FEED INTO OUR ONGOING MONITORING AND CAMPAIGNS 
EFFORTS TO IMPROVE THE LIVES OF PEOPLE WITH ASTHMA IN THE UK.(UK (WITH 
NATIONS BREAKDOWN)) DATED RANGE 01/04/2012 - 31/02015 
02/03/2016 
MELPO KAPETANSTRATAKI 
YES 
14/01/2016 
JOHN PAPPACHAN, 
CONSULTANT, 
SOUTHAMPTON 
CHILDREN'S HOSPITAL 
HTA APPLICATION (22ND JANUARY)SOUTHAMPTON 
ADDENBROOKES 
GOS PICU 
ALDER HAY 
ST. MARY’S 
BETWEEN 2010 AND 2015 
14/01/2016 
MELPO KAPETANSTRATAKI 
YES 

44 
PICANet Annual Report Appendices 2017 
REQUEST DATE: 
NAME, POSITION AND 
PLACE OF WORK/STUDY: 
AIM OF DATA REQUEST: 
DATA 
PROVIDED? 
DATA PROVIDED BY: 
REQUEST CLOSED? 
17/12/2015 
ALISON KEMP, 
PROFESSOR OF CHILD 
HEALTH, CARDIFF 
UNIVERSITY  
TO COVER GEOGRAPHICAL REGIONS OF ENGLAND, SCOTLAND, WALES AND 
NORTHERN IRELAND BETWEEN 01/01/2004 AND 31/12/2014. THIS NATIONAL 
PROGRAMME CONTINUES THE WORK OF THE CONFIDENTIAL ENQUIRY INTO CHILD 
HEALTH (CMACE) AND MORE RECENTLY THE CHILD HEALTH REVIEWS – UK 
UNDERTAKEN BY THE ROYAL COLLEGE OF PAEDIATRICS AND CHILD HEALTH. THIS 
NEW PROGRAMME WILL BE UNDERTAKEN IN PARTNERSHIP WITH SWANSEA 
UNIVERSITY AND WILL ADD TO THE PREVIOUS WORK TO DEFINE THE FULL PATHWAY 
OF CARE AND ACCESS TO SERVICES FOR CHILDREN. THE PROGRAMME WILL LOOK AT 
ROUTINELY COLLECTED DATASETS (E.G. PICANET). WHERE WE CAN, WE WILL 
LINK ADMINISTRATIVE HEALTH CARE DATA, WHICH OFFERS A SOURCE OF DATA TO 
PROVIDE A POPULATION BASED OVERVIEW OF ADOLESCENT MENTAL HEALTH AND 
CHILDHOOD NEURODISABILITY (WE DO NOT INTENT TO LINK PICANET DATA WITH 
ANY OTHER ROUTINELY COLLECTED DATA HOWEVER) . THE DATA REQUESTED IN 
THIS FORM IS FOR THE CHILD NEURODISABILITY ASPECT OF THE PROJECT, AND WILL 
EXPLORE ROUTINELY COLLECTED ADMINISTRATIVE HEALTHCARE DATA. CEREBRAL 
PALSY HAS BEEN SELECTED AS AN INDEX CONDITION FOR CHRONIC 
NEURODISABILITY. 
30/11/2016 
MELPO KAPETANSTRATAKI 
YES 

45 
PICANet Annual Report Appendices 2017 
REQUEST DATE: 
NAME, POSITION AND 
PLACE OF WORK/STUDY: 
AIM OF DATA REQUEST: 
DATA 
PROVIDED? 
DATA PROVIDED BY: 
REQUEST CLOSED? 
16/12/2015 
ANN JOHN, ASSOCIATE 
PROFESSOR, SWANSEA 
UNIVERSITY (FARR 
INSTITUTE) 
TO INCLUDE DATA FOR ENGLAND, WALES, SCOTLAND AND IRELAND 2004-2014. 
THIS NATIONAL PROGRAMME CONTINUES THE WORK OF THE CONFIDENTIAL 
ENQUIRY INTO CHILD HEALTH (CMACE) AND MORE RECENTLY THE CHILD HEALTH 
REVIEWS – UK UNDERTAKEN BY THE ROYAL COLLEGE OF PAEDIATRICS AND CHILD 
HEALTH. THIS NEW PROGRAMME WILL BE UNDERTAKEN IN PARTNERSHIP WITH 
CARDIFF UNIVERSITY AND WILL ADD TO THE PREVIOUS WORK TO DEFINE THE FULL 
PATHWAY OF CARE AND ACCESS TO SERVICES FOR CHILDREN. THE PROGRAMME 
WILL LINK ADMINISTRATIVE HEALTH CARE DATA, WHICH OFFERS A SOURCE OF DATA 
TO PROVIDE A POPULATION BASED OVERVIEW OF ADOLESCENT MENTAL HEALTH 
AND CHILDHOOD NEURODISABILITY, WITH CONFIDENTIAL CASE NOTE REVIEWS, 
WHICH ARE DETAILED ENOUGH TO EXPLORE COMPLEX PATHWAYS OF CARE, 
BETWEEN PRIMARY AND SECONDARY CARE, HEALTH AND SOCIAL CARE, AND ACCESS 
TO EDUCATIONAL NEEDS. IN ADDITION TO THIS TWO SURVEYS WILL BE 
UNDERTAKEN: ONE TO LOOK AT THE ORGANISATION OF CARE AND ONE TO GAIN 
THE VIEWS OF PATIENTS, RELATIVES AND ASSOCIATED GROUPS. THE DATA 
REQUESTED IN THIS FORM IS FOR THE ADOLESCENT MENTAL HEALTH ASPECT OF THE 
PROJECT, AND WILL EXPLORE ROUTINELY COLLECTED ADMINISTRATIVE HEALTHCARE 
DATA. 
30/11/2016 
MELPO KAPETANSTRATAKI 
YES 
15/12/2015 
PATRICK DAVIES, 
CONSULTANT PICU, 
NOTTINGHAM 
UNIVERSITY HOSPITALS 
NATIONALLY BETWEEN THE DATES 01/01/2010 AND 31/12/2014: TO 
INVESTIGATE THE OUTCOME OF THESE BABIES AND TRY TO WORK OUT WHAT THEIR 
PATHWAYS ARE 
26/01/2016 
MELPO KAPETANSTRATAKI 
YES 
25/11/2015 
P RAMNARAYAN, 
CONSULTANT IN 
PICU/RETRIEVAL, 
CATS, GREAT ORMOND 
STREET HOSPITAL 
TO DESCRIBE CHANGES OVER THE PAST DECADE IN CLINICAL OUTCOMES 
(MORTALITY, LOS, LOV, VFD-28, ICU FREE DAYS AT 28 DAYS) FOR THE 3 MAIN 
TYPES OF PICU ADMISSIONS (PLANNED, UNPLANNED FROM SAME HOSPITAL AND 
UNPLANNED FROM OTHER HOSPITAL), INCLUDING CHANGES IN THE PIM-2 SCORE 
BETWEEN THE GROUPS OVER THE PAST DECADE. 01/01/2005-31/12/2014 
ENGLAND & WALES - NHS PICUS ONLY 
04/12/2015 
MELPO KAPETANSTRATAKI 
YES 
 

 
 
 
UNIVERSITY OF LEEDS 
 
ROGER PARSLOW 
MELPO KAPETANSTRATAKI 
LEE NORMAN 
SOPHIE BUTLER 
 
 
 
PICANet 
SCHOOL OF MEDICINE 
UNIVERSITY OF LEEDS 
8.49 WORSLEY BUILDING 
LEEDS 
LS2 9JT 
 
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UNIVERSITY OF LEICESTER 
 
ELIZABETH DRAPER 
CAROLINE LAMMING 
MARTIN PERKINS 
TRACY HARRIS 
RUTH MATTHEWS 
 
 
PICANet 
DEPARTMENT OF HEALTH SCIENCES 
UNIVERSITY OF LEICESTER 
CENTRE FOR MEDICINE 
UNIVERSITY ROAD 
LEICESTER 
LE1 7RH 
xxx@xxx.xx 
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WWW.PICANET.ORG.UK 
 
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