English: Diolch, Dirprwy Lywydd. The first thing I'd like to do is to thank David Melding for creating an opportunity for me and, as he said, 50 per cent of the Assembly Members, to meet two fantastic families and their very courageous children, and also for creating an opportunity for us here today to recognise their condition and to ask for some support in that regard. That event was called 'Too Young for Arthritis?', and it would be in all of our minds, if we were talking about rheumatology, we wouldn't necessarily be putting that with children. So, it came as a real eye-opener, I think, to most people, to actually meet young people and to talk about paediatric rheumatology. I was certainly - I will put my hands up to being one of those people. They are living with a condition and receiving treatment for juvenile idiopathic arthritis, and I will refer to it as JIA from here on. Many people have spoken about Aimee, and all of us met her, but I also met Aaron, who was 12 years old, and both of them had travelled up from Pembrokeshire, from my area. And they did share their stories and their experiences very willingly and, I feel, very bravely with all of us. One of the things that I would like to add was the social isolation that they also talked about with me and the fact that, on a good day, they couldn't actually access anywhere where they could socialise with other people very easily, due to access and due to understanding that maybe they could join a club this week, but not go to it next week. The inconsistencies of their day-to-day life and the interruption of their pattern within school, within their social life, and with their own family life, couldn't actually be overstated, and I wanted to bring that to the table. As somebody who travels from Pembrokeshire to Cardiff every single week, just about, and back home, I understand that it is a long journey and, mostly, it will take two hours, and sometimes it'll take a lot longer, depending on the time of day. But for somebody who is suffering such a painful condition to have to undertake that journey on a sometimes fairly frequent basis, the pain and the discomfort must be something very difficult to bear indeed. I listened to them, as we all did, and they were asking for a specialist tertiary centre for paediatric rheumatology in Cardiff's children's hospital. As a consequence, and hoping that that might happen, they were looking forward to a satellite centre or hub where they might be able then to receive some treatment closer to home when that is appropriate. And they know and recognise that that would only be possible if there was that specialist tertiary centre opened in the first place. Many here have said today that there isn't such a service available to those individuals in Wales, and I really feel we need to look at providing that treatment here. Of course, around that, we would need some specialist multidisciplinary teams that would include doctors, nurses, occupational therapists, and physiotherapists, and I think, again, that I would call for that support. It cannot be understated that, if you live with a condition like this and you have to travel to access that treatment, it has a really serious impact on your day-to-day life, but, when you add youth to it, and the expectation that, as a young person, you would live your life, I think that we all here need to do all we can to improve their lot.
Welsh: Diolch, Dirprwy Lywydd. Y peth cyntaf yr hoffwn ei wneud yw diolch i David Melding am greu cyfle i mi ac fel y dywedodd, i 50 y cant o Aelodau'r Cynulliad, gyfarfod â dau deulu gwych a'u plant dewr iawn, a hefyd am greu cyfle i ni yma heddiw i gydnabod eu cyflwr ac i ofyn am rywfaint o gefnogaeth yn hynny o beth. Enw'r digwyddiad yw 'Rhy Ifanc i Arthritis?', a byddai ym meddwl pawb ohonom, pe baem yn sôn am rewmatoleg, na fyddem o reidrwydd yn cysylltu hynny â phlant. Felly, roedd yn agoriad llygad go iawn, rwy'n meddwl, i'r rhan fwyaf o bobl, i gyfarfod â phobl ifanc ac i siarad am rewmatoleg bediatrig. Roedd i mi'n sicr - rwy'n codi fy llaw i gyfaddef fy mod i'n un o'r bobl hynny. Maent yn byw gyda chyflwr ac yn cael triniaeth ar gyfer arthritis idiopathig ieuenctid, a byddaf yn cyfeirio ato fel AII o hyn ymlaen. Mae llawer o bobl wedi siarad am Aimee, ac mae pob un ohonom wedi cyfarfod â hi, ond cyfarfûm ag Aaron hefyd, a oedd yn 12 oed, ac roedd y ddau ohonynt wedi teithio o Sir Benfro yn fy ardal i. Ac fe wnaethant rannu eu straeon a'u profiadau'n barod iawn ac yn ddewr iawn, rwy'n teimlo, gyda phob un ohonom. Un o'r pethau yr hoffwn ei ychwanegu oedd yr ynysu cymdeithasol roeddent yn sôn wrthyf amdano a'r ffaith, ar ddiwrnod da, na allent ddod o hyd i unman mewn gwirionedd lle y gallent gymdeithasu â phobl eraill yn hawdd, oherwydd problemau mynediad ac oherwydd eu bod yn deall y gallent efallai ymuno â chlwb yr wythnos hon, a methu mynd iddo yr wythnos nesaf. Ni ellir gorbwysleisio'r anghysonderau yn eu bywydau o ddydd i ddydd a'r torri ar eu patrwm yn yr ysgol, yn eu bywydau cymdeithasol, ac yn eu bywyd teuluol eu hunain, ac roeddwn eisiau sôn am hynny. Fel rhywun sy'n teithio o Sir Benfro i Gaerdydd bob un wythnos fwy neu lai, ac yn ôl adref, rwy'n deall ei bod yn daith hir ac at ei gilydd, bydd yn cymryd dwy awr, ac weithiau bydd yn cymryd llawer mwy o amser, yn dibynnu ar yr adeg o'r dydd. Ond i rywun sy'n dioddef o gyflwr mor boenus ac sy'n gwneud y daith yn weddol aml weithiau, mae'n rhaid bod y boen a'r anghysur yn anodd iawn i'w dioddef. Gwrandewais arnynt, fel y gwnaeth pawb ohonom, ac roeddent yn gofyn am ganolfan drydyddol arbenigol ar gyfer rhewmatoleg bediatrig yn yr ysbyty plant yng Nghaerdydd. O ganlyniad, ac yn y gobaith y gallai hynny ddigwydd, roeddent yn edrych ymlaen at ganolfan loeren neu ganolbwynt lle y gallent gael triniaeth wedyn yn agosach at adref pan fo hynny'n briodol. Ac maent yn gwybod ac yn cydnabod na fyddai hynny ond yn bosibl os oedd yna ganolfan drydyddol arbenigol o'r fath yn agor yn y lle cyntaf. Mae llawer yma wedi dweud heddiw nad oes gwasanaeth o'r fath ar gael i'r unigolion hyn yng Nghymru, ac rwy'n teimlo o ddifrif fod angen i ni edrych ar ddarparu'r driniaeth honno yma. Wrth gwrs, yn gysylltiedig â hynny, byddai angen timau amlddisgyblaethol arbenigol a fyddai'n cynnwys meddygon, nyrsys, therapyddion galwedigaethol, ffisiotherapyddion ac rwy'n meddwl, unwaith eto, y byddwn yn galw am y gefnogaeth honno. Ni ellir gorbwysleisio, os ydych yn byw gyda chyflwr fel hwn a bod yn rhaid i chi deithio i gael y driniaeth, mae'n effeithio'n ddifrifol iawn ar eich bywyd o ddydd i ddydd, ond ychwanegwch ieuenctid ato, a'r disgwyliad y byddech, fel person ifanc, yn byw eich bywyd, credaf fod angen i bawb ohonom yma wneud popeth yn ein gallu i wella pethau iddynt.