English: It gives me great pleasure to speak in support of this particular petition. Now, the organiser of this petition is Helen Reeves-Graham, who is a constituent of mine and is a formidable campaigner for improving services for people with Tourette's syndrome in Wales, and I'm proud to have people like Helen living in my constituency. As the Chair of the Petitions Committee said, it's thought that around one in 100 children in Wales are living with Tourette's syndrome, and the condition shows itself differently in different people. One person may have involuntary head jerks, another may have vocal tics, and so there's no one-size-fits-all snapshot of how Tourette's syndrome looks. As we know, symptoms can range from mild to severe, and, in the case of physical tics, these symptoms can sometimes be painful. Now, living with a complex condition like Tourette's can be overwhelming, particularly for children, and so it's absolutely crucial that there is access to specialist care within Wales. Some parents are turning to the internet to help find information on how best to support their children with Tourette's, and the reliability of some of that information is, of course, questionable. But it really shouldn't have come to that. There should be support services in Wales available from the onset of diagnosis, and it's really worrying to read reports of children and their families feeling alone after being diagnosed, and we have to take action now to ensure that this does not continue. Dirprwy Lywydd, we know that more and more children across the UK are being diagnosed with tics and Tourette's, as experts at Great Ormond Street Hospital in London have recorded a rise in the number of children and teenagers experiencing tic symptoms and tic attacks since the beginning of the pandemic. Now, before the COVID pandemic, the Great Ormond Street Hospital would normally receive four to six referrals a year, but, by January 2021, they received three to four referrals per week. And so, as the number of referrals grows, the demand for more support and understanding does too, and so it's vital that the Welsh Government intervenes and ensures that children have access to vital physical, mental and emotional support here in Wales. Not accessing the appropriate medical care and support can lead to long-term mental health problems, and, as the petitioner has rightly highlighted, people with Tourette's syndrome can have difficulties with anxiety, sleep, rage and social isolation. Therefore I sincerely hope that the Welsh Government will reflect on the very serious impact that not having support and services is having on children living with Tourette's syndrome in Wales and their families. Now, as the chair of the Petitions Committee has already said, the Welsh Government is working to improve assessment and support services for all neurodevelopmental conditions, and that work will be informed by the outcomes of a demand and capacity review. I hope, in responding to this afternoon's debate, the Deputy Minister will give us an update on that specific work. Nevertheless, I'm really pleased to hear that the Deputy Minister has met with Helen Reeves-Graham to discuss what the Welsh Government can do better to support families here in Wales, and, whilst that engagement is extremely positive, time is of the essence for children living with Tourette's, and the longer that they go without support and services, the more serious the impact is on their lives. That's why we need to see action now, and why we need to see Tourette's being prioritised and not simply grouped with other neurodevelopmental conditions. A one-size-fits-all approach just won't adequately address the needs of people with Tourette's. Instead, the Welsh Government must get on with the job of establishing a specialist centre for people living with Tourette's syndrome in Wales so that they can access support, therapy and, indeed, the care that they need. People living with Tourette's in Wales, and in particular children, shouldn't have to travel across the border to access specialist treatments, and, at the very least, the Welsh Government should commit to providing more aftercare and support post diagnosis. The Welsh Government has said that regional partnership boards are rolling out a new framework to improve access to the right support, and I hope that, in responding to this afternoon's debate, the Deputy Minister will tell us more about how that work is also progressing. So, in closing, Dirprwy Lywydd, can I pay tribute to the hard work and determination of Helen Reeves-Graham in circulating this petition and ensuring that Tourette's syndrome is on the Welsh political agenda? Your voice, and the voice of families across Wales living with Tourette's syndrome, has been heard. Therefore, Dirprwy Lywydd, we have an opportunity to get this right, and I sincerely hope the Welsh Government will work to ensure that children living in Wales with Tourette's will be able to access specialist services in Wales sooner rather than later. Thank you.
Welsh: Mae'n bleser mawr gennyf siarad o blaid y ddeiseb arbennig hon. Nawr, trefnydd y ddeiseb hon yw Helen Reeves-Graham, sy'n un o fy etholwyr ac mae'n ymgyrchydd aruthrol dros wella gwasanaethau i bobl â syndrom Tourette yng Nghymru, ac rwy'n falch o gael pobl fel Helen yn byw yn fy etholaeth. Fel y dywedodd Cadeirydd y Pwyllgor Deisebau, credir bod tua un o bob 100 o blant yng Nghymru yn byw gyda syndrom Tourette, ac mae'r cyflwr i'w weld yn wahanol mewn gwahanol bobl. Efallai y bydd gan un person symudiadau pen anwirfoddol, efallai y bydd gan un arall diciau lleisiol, ac felly ni cheir un darlun sy'n gymwys i bawb o ran sut y mae syndrom Tourette yn edrych. Fel y gwyddom, gall symptomau amrywio o fod yn ysgafn i fod yn ddifrifol, ac yn achos ticiau corfforol, gall y symptomau hyn fod yn boenus weithiau. Nawr, gall byw gyda chyflwr cymhleth fel syndrom Tourette fod yn llethol, yn enwedig i blant, ac felly mae'n gwbl hanfodol fod gofal arbenigol ar gael yng Nghymru. Mae rhai rhieni'n troi at y rhyngrwyd am gymorth i ddod o hyd i wybodaeth am y ffordd orau o gefnogi eu plant gyda syndrom Tourette, ac mae dibynadwyedd peth o'r wybodaeth honno, wrth gwrs, yn amheus. Ond ni ddylai fod wedi dod i hynny mewn gwirionedd. Dylai fod gwasanaethau cymorth ar gael yng Nghymru o ddiagnosis ymlaen, ac mae darllen adroddiadau am blant a'u teuluoedd yn teimlo'n unig ar ôl cael diagnosis yn destun pryder gwirioneddol, ac mae'n rhaid inni weithredu yn awr i sicrhau nad yw hyn yn parhau. Ddirprwy Lywydd, gwyddom fod mwy a mwy o blant ledled y DU yn cael diagnosis o diciau a syndrom Tourette, gan fod arbenigwyr yn Ysbyty Great Ormond Street yn Llundain wedi cofnodi cynnydd yn nifer y plant a phobl ifanc yn eu harddegau sy'n profi symptomau tic a phyliau tic ers dechrau'r pandemig. Nawr, cyn y pandemig COVID, byddai Ysbyty Great Ormond Street fel arfer yn derbyn pedwar i chwe atgyfeiriad y flwyddyn, ond erbyn mis Ionawr 2021, roeddent yn cael tri i bedwar atgyfeiriad yr wythnos. Ac felly, wrth i nifer yr atgyfeiriadau gynyddu, mae'r galw am fwy o gymorth a dealltwriaeth hefyd yn cynyddu, ac felly mae'n hanfodol fod Llywodraeth Cymru yn ymyrryd ac yn sicrhau bod plant yn gallu cael gafael ar gymorth corfforol, meddyliol ac emosiynol hanfodol yma yng Nghymru. Gall peidio â chael gafael ar y gofal a'r cymorth meddygol priodol arwain at broblemau iechyd meddwl hirdymor, ac fel y mae'r deisebydd wedi nodi'n briodol, gall pobl â syndrom Tourette gael anawsterau gyda gorbryder, trafferthion cysgu, cynddaredd ac ynysu cymdeithasol. Felly, rwy'n mawr obeithio y bydd Llywodraeth Cymru yn ystyried yr effaith ddifrifol iawn y mae diffyg cymorth a gwasanaethau yn ei chael ar blant sy'n byw gyda syndrom Tourette yng Nghymru a'u teuluoedd. Nawr, fel y dywedodd cadeirydd y Pwyllgor Deisebau eisoes, mae Llywodraeth Cymru yn gweithio i wella gwasanaethau asesu a chymorth ar gyfer pob cyflwr niwroddatblygiadol, a bydd y gwaith hwnnw'n cael ei lywio gan ganlyniadau'r adolygiad gallu a galw. Wrth ymateb i'r ddadl y prynhawn yma, rwy'n gobeithio y bydd y Dirprwy Weinidog yn darparu'r wybodaeth ddiweddaraf i ni am y gwaith penodol hwnnw. Serch hynny, rwy'n falch iawn o glywed bod y Dirprwy Weinidog wedi cyfarfod â Helen Reeves-Graham i drafod yr hyn y gall Llywodraeth Cymru ei wneud yn well i gefnogi teuluoedd yma yng Nghymru, ac er bod yr ymgysylltu'n gadarnhaol iawn, mae amser yn hanfodol i blant sy'n byw gyda syndrom Tourette, a pho hiraf y byddant yn mynd heb gymorth a gwasanaethau, y mwyaf difrifol fydd yr effaith ar eu bywydau. Dyna pam y mae angen inni weld camau gweithredu yn awr, a pham y mae angen inni weld syndrom Tourette yn cael ei flaenoriaethu yn hytrach na'i grwpio gyda chyflyrau niwroddatblygiadol eraill. Ni fydd dull un ateb i bawb yn mynd i'r afael ag anghenion pobl â syndrom Tourette yn ddigonol. Yn hytrach, rhaid i Lywodraeth Cymru fwrw ymlaen â'r gwaith o sefydlu canolfan arbenigol ar gyfer pobl sy'n byw gyda syndrom Tourette yng Nghymru er mwyn iddynt allu cael gafael ar gymorth, therapi a'r gofal sydd ei angen arnynt. Ni ddylai pobl sy'n byw gyda syndrom Tourette yng Nghymru, a phlant yn enwedig, orfod teithio dros y ffin i gael triniaethau arbenigol, a fan lleiaf, dylai Llywodraeth Cymru ymrwymo i ddarparu mwy o ôl-ofal a chymorth ar ôl cael diagnosis. Mae Llywodraeth Cymru wedi dweud bod byrddau partneriaeth rhanbarthol yn cyflwyno fframwaith newydd i wella mynediad at y cymorth cywir, ac wrth ymateb i'r ddadl y prynhawn yma, rwy'n gobeithio y bydd y Dirprwy Weinidog yn dweud mwy wrthym am y ffordd y mae'r gwaith hwnnw'n mynd rhagddo hefyd. Felly, i gloi, Ddirprwy Lywydd, a gaf fi dalu teyrnged i waith caled a phenderfyniad Helen Reeves-Graham yn dosbarthu'r ddeiseb hon a sicrhau bod syndrom Tourette ar agenda wleidyddol Cymru? Rydym wedi clywed eich llais, a llais teuluoedd ledled Cymru sy'n byw gyda syndrom Tourette. Felly, Ddirprwy Lywydd, mae gennym gyfle i wneud hyn yn iawn, ac rwy'n mawr obeithio y bydd Llywodraeth Cymru yn gweithio i sicrhau y bydd plant sy'n byw gyda syndrom Tourette yng Nghymru yn gallu cael mynediad at wasanaethau arbenigol yng Nghymru yn gynt yn hytrach nag yn hwyrach. Diolch.