English: Communication about delivery to stakeholders and the wider public needs to be improved. Establishing a national communication platform is critically important, cascading information to the people who are actually on the ground. Key management data in terms of readmission rates, waiting times, length of stay in hospital and so on is collected and analysed at local health board level, but all-Wales data of this kind was not provided as evidence to this inquiry. Lack of management data related to the outcome indicators of the plan and the delivery of diagnosis, treatment, services and support for people with neurological conditions is a significant problem. It's impossible to track improvements over time without a properly resourced mechanism to gather and publish this kind of data. The removal of the requirement for individual health boards to publish annual neurological delivery plans and annual reports has resulted in it being more difficult to consistently consider progress generally or at an individual health board level. Local health board integrated medium-term plans have not been effective at driving change on NCDP priorities. They often lack neurological-specific sections and any neurological service references can be dispersed under different IMTP sections. Patients and carers have not been genuinely given the opportunity to take part in service improvement. Financial restraints have had a negative impact on neurological services, access to treatment, services and support. This has increased travel time and costs for individuals with neurological conditions, which has a very negative physical, emotional and financial impact on people, and can result in them not accessing that treatment and care that they all need. The cross-party group on neurological conditions urges Welsh Government to accept the recommendations and commit to taking the necessary actions identified in the report. These include ending the chronic underfunding of neurological services within investment in health and social care services to meet the needs of people in Wales, and creating a new neurological condition strategy and action plan, with clearer outcomes and a stronger accountability structure. Due to the low starting baseline, the NCIG has yet to deliver anything like the scale of change required to ensure that people with neurological conditions across the whole of Wales have safe, timely and equitable access to treatment, services and support. While the current approach has begun to yield positive results, it will not be possible to create the step change that is needed without wider strategic commitment from across NHS Wales, from Welsh Government and from local authorities at a senior level. Improving services and support for people with neurological conditions must be sustained if we're to make real change to people's lives. It's also evident that people with neurological conditions and carers must be partners in this process. While the focus on increasing support for rehabilitation in the community is welcomed, the poor experiences that are reported show that sustained focus and continued investment is necessary. This is urgently required given the damaging impact of shielding or self-isolating due to the coronavirus pandemic on many people living with a neurological condition. The Wales Neurological Alliance survey on the impact of the coronavirus pandemic revealed that it has significantly impacted on people living with neurological conditions, and has had major ramifications on the provision of health and social care services for them. Although people with neurological conditions have needed to continue to access specialist services during the outbreak and beyond to maintain their well-being, isolation and shielding has increased anxiety and impacted on the mental health of people living with neurological conditions, triggering or exacerbating their symptoms or condition. Rehabilitation and mental health services have not adapted to meet the meet the needs of people living with neurological conditions. Services and treatment have been delayed or stopped during the pandemic. The NHS in Wales must apply strong leadership and set out its priorities for restarting services for people living with neurological conditions as soon as it is clinically safe to do so. Our report is based entirely upon the extensive written and oral evidence we received from a wide range of stakeholders, including individuals living with neurological conditions and carers, charities representing people affected by neurological conditions, specialist clinicians, the royal colleges, the Wales Neurological Alliance and the neurological conditions implementation group. We commend our report to the Welsh Government and we look forward to their response. Thank you. Diolch.
Welsh: Mae angen gwella cyfathrebu ynghylch cyflawni i randdeiliaid a'r cyhoedd yn ehangach. Mae sefydlu llwyfan cyfathrebu cenedlaethol yn hollbwysig, i raeadru gwybodaeth i'r bobl sydd ar lawr gwlad. Cesglir a dadansoddir data rheoli allweddol ar gyfraddau aildderbyn, amseroedd aros, hyd arhosiad yn yr ysbyty ac yn y blaen ar lefel byrddau iechyd lleol, ond ni ddarparwyd data Cymru gyfan o'r math hwn fel tystiolaeth i'r ymchwiliad. Mae diffyg data rheoli sy'n gysylltiedig â dangosyddion canlyniadau'r cynllun a darparu diagnosis, triniaeth, gwasanaethau a chymorth i bobl â chyflyrau niwrolegol yn broblem sylweddol. Mae'n amhosibl olrhain gwelliannau dros amser heb fecanwaith ag adnoddau priodol i gasglu a chyhoeddi'r math hwn o ddata. Mae dileu'r gofyniad i fyrddau iechyd unigol gyhoeddi cynlluniau cyflawni niwrolegol blynyddol ac adroddiadau blynyddol wedi golygu ei bod yn anos ystyried cynnydd yn gyson ar lefel gyffredinol neu ar lefel byrddau iechyd unigol. Nid yw cynlluniau tymor canolig integredig byrddau iechyd lleol wedi llwyddo'n effeithiol i sbarduno newid mewn perthynas â blaenoriaethau'r cynllun cyflawni. Yn aml, nid oes ganddynt adrannau niwrolegol benodol a gellir gwasgaru unrhyw gyfeiriadau at wasanaeth niwrolegol o dan wahanol adrannau'r cynlluniau tymor canolig integredig. Nid yw cleifion a gofalwyr wedi cael cyfle go iawn i gymryd rhan yn y broses o wella gwasanaethau. Mae cyfyngiadau ariannol wedi cael effaith negyddol ar wasanaethau niwrolegol, mynediad at driniaeth, gwasanaethau a chymorth. Mae hyn wedi cynyddu amser teithio a chostau i unigolion â chyflyrau niwrolegol, sy'n cael effaith gorfforol, emosiynol ac ariannol negyddol iawn ar bobl, a gall olygu na fyddant yn cael y driniaeth a'r gofal sydd eu hangen arnynt. Mae'r grŵp trawsbleidiol ar gyflyrau niwrolegol yn annog Llywodraeth Cymru i dderbyn yr argymhellion ac ymrwymo i weithredu'r camau angenrheidiol a nodwyd yn yr adroddiad. Mae'r rhain yn cynnwys rhoi diwedd ar danariannu cronig ym maes gwasanaethau niwrolegol o fewn y buddsoddiad mewn gwasanaethau iechyd a gofal cymdeithasol i ddiwallu anghenion pobl yng Nghymru, a chreu strategaeth a chynllun gweithredu newydd ar gyflyrau niwrolegol, gyda chanlyniadau cliriach a strwythur atebolrwydd cryfach. Oherwydd y llinell sylfaen isel, hyd yma nid yw'r grŵp gweithredu wedi cyflawni unrhyw beth yn debyg i raddfa'r newid sydd ei angen i sicrhau bod pobl â chyflyrau niwrolegol ledled Cymru yn cael mynediad diogel, amserol a theg at driniaeth, gwasanaethau a chymorth. Er bod y dull presennol o weithredu wedi dechrau arwain at ganlyniadau cadarnhaol, ni fydd yn bosibl creu'r newid sylweddol sydd ei angen heb ymrwymiad strategol ehangach o bob rhan o GIG Cymru, Llywodraeth Cymru ac awdurdodau lleol ar lefel uwch. Rhaid cynnal y gwelliant i wasanaethau a chymorth i bobl â chyflyrau niwrolegol os ydym am sicrhau newid go iawn i fywydau pobl. Mae hefyd yn amlwg fod yn rhaid i bobl â chyflyrau niwrolegol a gofalwyr fod yn bartneriaid yn y broses hon. Er bod y ffocws ar gynyddu'r gefnogaeth i adsefydlu yn y gymuned i'w groesawu, mae'r profiadau gwael yr adroddwyd yn eu cylch yn dangos bod angen ffocws cyson a buddsoddiad parhaus. Mae angen hyn ar frys o ystyried effaith niweidiol gwarchod neu hunanynysu yn sgil y pandemig coronafeirws ar lawer o bobl sy'n byw gyda chyflwr niwrolegol. Datgelodd arolwg Cynghrair Niwrolegol Cymru ar effaith y pandemig coronafeirws ei fod wedi effeithio'n sylweddol ar bobl sy'n byw gyda chyflyrau niwrolegol, a bod iddo oblygiadau mawr o ran darparu gwasanaethau iechyd a gofal cymdeithasol ar eu cyfer. Er bod angen i bobl â chyflyrau niwrolegol barhau i allu manteisio ar wasanaethau arbenigol yn ystod yr argyfwng a thu hwnt er mwyn cynnal eu lles, mae ynysu a gwarchod wedi cynyddu gorbryder ac wedi effeithio ar iechyd meddwl pobl sy'n byw gyda chyflyrau niwrolegol, gan ysgogi neu waethygu eu symptomau neu eu cyflwr. Nid yw gwasanaethau adsefydlu ac iechyd meddwl wedi addasu i ddiwallu anghenion pobl sy'n byw gyda chyflyrau niwrolegol. Mae gwasanaethau a thriniaeth wedi'u gohirio neu eu hatal yn ystod y pandemig. Rhaid i'r GIG yng Nghymru roi arweiniad cryf a nodi ei flaenoriaethau ar gyfer ailgychwyn gwasanaethau i bobl sy'n byw gyda chyflyrau niwrolegol cyn gynted ag y bydd yn glinigol ddiogel iddo wneud hynny. Mae ein hadroddiad wedi'i seilio'n gyfan gwbl ar y dystiolaeth ysgrifenedig a llafar helaeth a gawsom gan ystod eang o randdeiliaid, gan gynnwys unigolion sy'n byw gyda chyflyrau niwrolegol a gofalwyr, elusennau sy'n cynrychioli pobl yr effeithir arnynt gan gyflyrau niwrolegol, clinigwyr arbenigol, y colegau brenhinol, Cynghrair Niwrolegol Cymru a'r grŵp gweithredu ar gyflyrau niwrolegol. Rydym yn cymeradwyo ein hadroddiad i Lywodraeth Cymru ac edrychwn ymlaen at eu hymateb. Diolch.