English: Did you say my name then? Yes. I couldn't hear you. Your microphone was muted. Okay, thank you very much, Deputy Presiding Officer. I welcome the debate here today, and I'd like to thank Peter Fox for bringing it forward; it is absolutely crucial that we talk about this. Although rare, there are few conditions as devastating as motor neurone disease, a rapidly progressing condition in the majority of cases, which is always fatal. Sufferers will usually experience losing the ability to speak, swallow and the use of their limbs. It is because of this that accessible housing and housing adaptations are most important to provide the best quality of life and to maintain a level of dignity and independence as the disease progresses. Unfortunately, due to the lack of accessible housing, waiting lists for home adaptations, and the costs of those adaptations, many people with motor neurone disease are trapped in their houses, which do not meet their needs. Considering that a third of people die within one year of that diagnosis, it is an injustice to sufferers, their families and carers that some people have had to wait up to 40 weeks for adaptations to be completed. Because of these difficulties, many people with MND have had to spend prolonged periods of time in hospital, as their homes are not suitable or because they have sustained injuries such as falls or fractures. When this disease itself robs people of their quality of life, it is appalling that they have to wait such a length of time. The Equality and Human Rights Commission found that only one out of Wales's 22 local authorities have actually set targets for accessible and adaptable housing. In the twenty-first century, when we're so acutely aware now of the need for adaptations - as Rhun said and as Peter said - a postcode lottery across Wales is just not on any more and it needs to be urgently addressed. An overly complex grants application system to install home adaptations only exacerbates these inequalities that people with disabilities face. There is a significant way to go to support people with MND and other disabilities, and we must see reactive measures from this Welsh Government to provide the best quality of life possible for these people. We welcome the Welsh Government's announcement of the £15 million investment for NHS organisations to help undertake more clinical trials in areas such as MND, and the Conservative UK Government, who have created a £50 million research fund with the aim of curing MND. But more needs to be done, and more needs to be done now. We can't continue letting down people with MND and their families who are suffering horrendously day on day. We must do more and I urge you, everyone in this Chamber, to support this motion today, which will go some way to creating long-term help for these people.
Welsh: A ddywedoch chi fy enw nawr? Do. Ni allwn eich clywed. Roedd eich meicroffon wedi'i ddiffodd. Iawn, diolch yn fawr iawn, Ddirprwy Lywydd. Rwy'n croesawu'r ddadl yma heddiw, a hoffwn ddiolch i Peter Fox am ei chyflwyno; mae'n gwbl hanfodol ein bod yn siarad am hyn. Er ei fod yn brin, nid oes llawer o gyflyrau mor ddinistriol â chlefyd niwronau motor, cyflwr sy'n datblygu'n gyflym yn y rhan fwyaf o achosion, ac mae bob amser yn angheuol. Fel arfer, bydd dioddefwyr yn colli'r gallu i siarad a llyncu, a defnydd o'u coesau a'u breichiau. Oherwydd hyn, mae addasiadau tai a thai hygyrch yn eithriadol o bwysig i ddarparu'r ansawdd bywyd gorau ac i gynnal lefel o urddas ac annibyniaeth wrth i'r clefyd ddatblygu. Yn anffodus, oherwydd prinder tai hygyrch, rhestrau aros ar gyfer addasiadau i'r cartref, a chostau'r addasiadau hynny, mae llawer o bobl â chlefyd niwronau motor wedi'u caethiwo mewn tai nad ydynt yn diwallu eu hanghenion. O ystyried bod traean o bobl yn marw o fewn blwyddyn i'r diagnosis, mae'n annheg i ddioddefwyr, eu teuluoedd a'u gofalwyr fod rhai pobl wedi gorfod aros hyd at 40 wythnos i addasiadau gael eu cwblhau. Oherwydd yr anawsterau hyn, mae llawer o bobl â chlefyd niwronau motor wedi gorfod treulio cyfnodau hir yn yr ysbyty, gan nad yw eu cartrefi'n addas neu am eu bod wedi cael anafiadau fel cwympiadau neu dorri esgyrn. Pan fo'r clefyd hwn yn amddifadu pobl o ansawdd bywyd, mae'n warthus fod yn rhaid iddynt aros mor hir. Canfu'r Comisiwn Cydraddoldeb a Hawliau Dynol mai dim ond un o'r 22 awdurdod lleol yng Nghymru sydd wedi gosod targedau ar gyfer tai hygyrch ac addasadwy. Yn yr unfed ganrif ar hugain, a ninnau mor ymwybodol yn awr o'r angen am addasiadau - fel y dywedodd Rhun ac fel y dywedodd Peter - nid yw loteri cod post ledled Cymru yn ddigon da mwyach ac mae angen mynd i'r afael â hyn ar frys. Mae system ymgeisio rhy gymhleth am grantiau i wneud addasiadau i'r cartref yn gwaethygu'r anghydraddoldebau y mae pobl ag anableddau yn eu hwynebu. Mae ffordd bell i fynd i gefnogi pobl â chlefyd niwronau motor ac anableddau eraill, a rhaid inni weld mesurau ymatebol gan Lywodraeth Cymru i ddarparu'r ansawdd bywyd gorau posibl i'r bobl hyn. Rydym yn croesawu cyhoeddiad Llywodraeth Cymru am y buddsoddiad o £15 miliwn i sefydliadau'r GIG i helpu i gynnal mwy o dreialon clinigol mewn meysydd fel clefyd niwronau motor, a Llywodraeth Geidwadol y DU, sydd wedi creu cronfa ymchwil gwerth £50 miliwn gyda'r nod o wella clefyd niwronau motor. Ond mae angen gwneud mwy, ac mae angen gwneud mwy yn awr. Ni allwn barhau i wneud cam â phobl â chlefyd niwronau motor a'u teuluoedd sy'n dioddef yn ofnadwy o un diwrnod i'r llall. Rhaid inni wneud mwy ac rwy'n eich annog, bawb yn y Siambr hon, i gefnogi'r cynnig hwn heddiw, a fydd yn mynd beth o'r ffordd tuag at greu cymorth hirdymor i'r bobl hyn.