OP0264 QUALITY AND CHARACTERISTICS OF PEDIATRIC RHEUMATOLOGY CONTENT ON SOCIAL MEDIA: A PILOT STUDY
Authors: S. La Bella, A. DI Ludovico, F. Mainieri, F. Lauriola, L. Silvestrini, F. Ciarelli, G. DI Donato, F. Chiarelli, M. Attanasi, L. Breda
Journal: Annals of the Rheumatic Diseases (2024)

<h3>Background:</h3> Social media has become an extremely common form of online interaction. TikTok is one of the most popular video-sharing social media platforms on a global scale, especially among young people, with over 1 billion monthly users worldwide. Pediatric rheumatology represents the focus of several social media content by patients, caregivers, and healthcare professionals (HPs). "TeleEducation" was recently proposed as a current and useful tool for pediatric rheumatology, highlighting the opportunity for HPs to educate patients and caregivers through online channels [1]. <h3>Objectives:</h3> This study aimed to examine pediatric rheumatology-related content on the social media platform TikTok as a pilot assessment of the entire social media content on pediatric rheumatology. <h3>Methods:</h3> 1440 videos were evaluated, and 847 were included. The top 40-liked videos from 25 TikTok hashtags on the most relevant pediatric rheumatology topics were systematically searched between November 15 and 30, 2023. We grouped hashtags into four categories: (A) autoinflammatory diseases; (B) autoimmune diseases; (C) vasculitis; and (D) others (D). Videos published in Italian and English were included; photo sequences, duplicates, and non-relevant videos were excluded. The following variants were evaluated: video creator type as HPs (pediatric rheumatologists, paediatricians, rheumatologists, other physicians, non-medical healthcare providers, medical students) or non-healthcare professionals (NHPs; patients, caregivers, influencers, and sellers), video metrics, misinformation, and sentiment (in videos from patients and caregivers). "The Patient Education Materials Assessment Tool for Audiovisual Materials" (PEMAT-A/V) for understandability and actionability, and "the Journal of the American Medical Association Benchmark Score" (JAMAS) were utilized to evaluate the comprehensibility, actionability, and quality of the educational videos, respectively. <h3>Results:</h3> More than 279 million views and 24 million interactions were documented (Figure 1). The most liked hashtag was "autoimmunedisease" (17.7 million likes). Significant differences were found among groups (Group A vs B vs C vs D) for video duration, views, misinformation, creator type, interactions, and mean JAMAS (p&lt;0.001, Figure 2). Healthcare professionals (HPs) represented a minority of content creators (N=107, 12.7%). Educational videos represented a considerable portion of the sample (N=220, 26.0%). Misinformation was statistically related to the video's creator type in educational videos (p=0.007). HPs provided higher percentages of educational videos without misinformation than NHPs (89, 92.7% vs. 103, 83.1%). Videos published by NHPs were more often commented on than those provided by HPs (27.5 (0-9047) vs. 17.5 (0-2208), p=0.034). HPs offered longer (median, range 5—95%) (58 (7-414) sec. vs. 44 (4-202) sec.; p=0.003), more comprehensive (mean PEMAT-A/V understandability score 82.6% ± 17.1 vs. 72.3% ± 20.6; p&lt;0.001), and better-quality (mean JAMAS 2.9 ± 0.4 vs. 2.7 ± 0.5; p=0.001) educational content than NHPs. Actionability was higher in videos from HPs but with no statistically relevant difference (mean PEMAT-A/V actionability score 43.4% ± 31.6 vs. 37.4% ± 32.9; p=0.179). In the multivariable linear regression analysis (absolute value difference (CI 95%)), HPs provided educational videos with higher JAMAS (0.17 (0.05, 0.30)) and PEMAT-A/V for understandability (7.33 (2.43, 12.23)) than NHPs. <h3>Conclusion:</h3> There is a large amount of pediatric rheumatology-related content on social media. Videos from patients and caregivers most often wanted to share personal experience, usually with a neutral or negative sentiment. HPs shared educational videos with a longer duration, less misinformation, and better understandability and quality than NHPs. The potential for pediatric rheumatologists to educate patients through these channels is enormous. The medical community should take a decisive step in this field of education. <h3>REFERENCES:</h3> [1] Khubchandani R et al. Towards telehealth delivery in pediatric rheumatology practice. Pediatr Rheumatol Online J 2023;21(1):145. <h3>Acknowledgements:</h3> <b>NIL.</b> <h3>Disclosure of Interests:</h3> <b>None declared.</b>