Abstract 6301: Mapping survivor-specific supportive care resources: A digital landscape analysis of NCI-designated cancer centers
Authors: Alexis Taylor, Katherine Sterba, Evan Graboyes
Journal: Cancer Research (2024)

Abstract Background: Optimal care for cancer survivors requires a comprehensive array of supportive care services to address the multitude of physical, psychological, social, financial, and health promotion needs of this population. To understand options to address their unique needs, survivors and their caregivers may seek information from online sources. Although National Cancer Institute-Designated Cancer Centers (NCIDCCs) serve as leaders in cancer treatment and care delivery, as well as credible sources for survivors to receive information on their recovery, no study has characterized the digital landscape of survivorship offerings on their website. This study aims to characterize the supportive care services offered to cancer survivors on NCIDCCs. Methods: Of the 72 NCIDCCs, 65 provide clinical care. We reviewed the webpage of each to identify supportive care offerings. Services were categorized based on the four domains of the quality-of-life model: (1) physical well-being, (2) psychological well-being, (3) social well-being, and (4) spiritual well-being. Supportive care services were classified as survivor-specific if the online description included information that specifically catered to cancer survivors. Results: Of the 65 clinical NCIDCC websites, 100% offer supportive care services and 54% offer supportive care services specific to survivors (Table). The most common supportive care service offered was nutrition (90.6%) and the least commonly offered was caregiver support (7.9%). Behavioral medicine was offered most frequently for survivors (28.3%) and caregiver support was offered the least (0%). Out of the four domains of the quality-of-life model, spiritual well-being services were offered the least at NCIDCCs. Conclusion: More than half of the NCIDCC websites provided survivor-specific supportive care services. Supportive care services on websites of NCI-Designated or Comprehensive Cancer Centers (N = 65) Supportive Care Service (n) % Supportive Care Service Specific to Cancer Survivors (n) % Physical Well Being Services Nutrition 58 90.6 14 24.1 Genetics 53 82.8 5 9.4 Pain and Palliative Care 52 81.3 8 15.4 Complementary and Alternative Medicine 49 75.4 6 12.2 Integrative Medicine 47 73.4 9 19.1 Occupational Therapy 45 70.3 6 13.3 Fertility Preservation 43 66.2 6 14 Tobacco Cessation 38 58.5 6 15.8 Speech 36 56.3 3 8.3 Exercise 29 45.3 5 17.2 Primary Care 6 9.2 3 50 Psychological Well-Being Services Behavioral Medicine 53 81.5 15 28.3 Recreational Therapy 36 58.1 5 13.9 Social Well-Being Services Oncology Social Work 56 87.5 5 8.9 Patient Navigation 33 51.6 3 9.1 Financial Counseling 32 50 4 12.5 Self-Image 27 41.5 3 11.1 Reproductive and Sexual Health 22 33.8 5 22.7 Caregiver Support 5 7.9 0 0 Spiritual Well-Being Services Pastoral Services 49 75.4 5 10.2 Citation Format: Alexis Taylor, Katherine Sterba, Evan Graboyes. Mapping survivor-specific supportive care resources: A digital landscape analysis of NCI-designated cancer centers [abstract]. In: Proceedings of the American Association for Cancer Research Annual Meeting 2024; Part 1 (Regular Abstracts); 2024 Apr 5-10; San Diego, CA. Philadelphia (PA): AACR; Cancer Res 2024;84(6_Suppl):Abstract nr 6301.