POS1452-PARE RESULTS OF THE FIRST ONLINE SURVEY OF THE CHILEAN NETWORK OF RHEUMATIC PATIENTS
Authors: G. Tobar Carrizo, C. D. González Quintana, R. Atenas, E. Rocuant, C. Quijada, M. Villalobos
Journal: Annals of the Rheumatic Diseases (2024)

<h3>Background:</h3> This article presents the results of the first online survey conducted by the Chilean Network of Rheumatic Patients, in collaboration with various organizations and experts. The main objective is to characterize the experience of individuals with rheumatic diseases in Chile. <h3>Objectives:</h3> Main Objective: Characterize the experience of individuals with rheumatic diseases in Chile.Secondary Objectives: Characterize sociodemographic variables, Characterize the patient's perception of their health status, Identify and analyze relevant points of the most prevalent pathologies in the study from the patient's perspective. <h3>Methods:</h3> The national survey, conducted over three months, covered patients from Arica to Punta Arenas. Statistical analysis focused on a comprehensive exploratory approach, identifying patterns and emerging trends in the collected information. <h3>Results:</h3> A total of 1159 rheumatic patients nationwide participated in the survey, providing valuable information on their sociodemographic characteristics and key aspects of health perception and patient-reported experience. In each of these aspects, statistically significant differentiating features were highlighted (p &lt; 0.001). The majority of participants were women (94.5%), predominantly in the 31 to 45 age range (48%). Common use of antirheumatic drugs and supplements was observed, with 21% of patients using cannabis as part of their treatment. <b>Characterization by Pathology:</b> The study presents specific data for different rheumatic pathologies, key information. <h3>Conclusion:</h3> The study calls for personalized, gender-specific healthcare approaches to address the diversity of rheumatic pathologies and sociodemographic variations. Recommendations include improving doctor-patient communication, addressing financial challenges, and enhancing formal social support. Emphasizing adaptable strategies to tackle work inactivity and improve overall quality of life is vital. Advocacy for formal social support tailored to identified needs from a patient and gender perspective is crucial. In summary, the study underscores the complexity of rheumatic conditions in Chile, urging comprehensive strategies in the socio-health system for enhanced self-management and better quality of life. <h3>REFERENCES:</h3> [1] Intriago, M., Maldonado, G., Cárdenas, J., &amp; Ríos, C. (2019). Clinical Characteristics in Patients with Rheumatoid Arthritis: Differences between Genders. TheScientificWorldJournal, 2019, 8103812. https://doi.org/10.1155/2019/8103812. [2] Kvien, T. K., Uhlig, T., Ødegård, S., &amp; Heiberg, M. S. (2006). Epidemiological aspects of rheumatoid arthritis: the sex ratio. Annals of the New York Academy of Sciences, 1069, 212–222. https://doi.org/10.1196/annals.1351.019. [3] LADINO R., M., LIRA W., L., &amp; TALESNIK G., E. (2023). Reumatología Pediátrica en Chile. Subespecialidad de la Pediatría con aprobación de CONACEM. Revista Chilena De Reumatología, 35(2), 59–60. https://doi.org/10.58450/rcr.v35i2.47. [4] Maranini, B., Bortoluzzi, A., Silvagni, E., &amp; Govoni, M. (2022). Focus on Sex and Gender: What We Need to Know in the Management of Rheumatoid Arthritis. Journal of personalized medicine, 12(3), 499. https://doi.org/10.3390/jpm12030499. [5] Riedemann, P. (2004). Epidemiology of rheumatic diseases in the elderly. Medwave, 4(08), e3228. https://doi.org/10.5867/medwave.2004.08.3228. [6] Sociedad Chilena de Reumatología. (s.f.). AUGE GES. Recuperado de https://sochire.cl/reumatologos/auge-ges/. [7] Y. El Miedany, M. El Gaafary, I. Ahmed, M. Hegazi, &amp; D. Palmer. (2013). AB0197 The arthritic patients' perspective of measuring treatment efficacy: Patient reported experience measures (prems) as a quality tool. Annals of the Rheumatic Diseases, 72(Suppl 3), A846. https://doi.org/10.1136/annrheumdis-2013-eular.2520. [8] Bilbeny, N. (2019). DOLOR CRÓNICO EN CHILE. Revista Médica Clínica Las Condes, 30, 397-406. https://doi.org/10.1016/j.rmclc.2019.08.002. <h3>Acknowledgements:</h3> Thanks to the rheumatic patients of Chile. <h3>Disclosure of Interests:</h3> <b>None declared.</b>