AB1478 RELIABILITY AND CONTENT VALIDITY OF THE PORTUGUESE VERSION OF THE COMMISSIONING FOR QUALITY IN RHEUMATOID ARTHRITIS PATIENT-REPORTED EXPERIENCE MEASURE (CQRA-PREM): PRELIMINARY RESULTS
Authors: D. Santos Oliveira, R. Rainho, M. Bernardes, C. Vaz, L. Costa, J. A. Fonseca, C. Jácome
Journal: Annals of the Rheumatic Diseases (2022)

Background The CQRA-PREM has been developed in the United Kingdom to evaluate the perspective of patients with rheumatoid arthritis (RA) about the care provided in rheumatology units of the National Health Service (1). This PREM might also be feasible to be used in Portugal, yet an adaptation and validation process is needed. Objectives We aimed to translate and cross-cultural adapt CQRA-PREM to Portuguese and evaluate the reliability and content validity of this version. Methods A study combining qualitative and quantitative approaches was conducted with patients with RA from a single rheumatology center. The translation and cultural adaptation of Portuguese CQRA-PREM included initial translation and cultural adaptation by 2 native Portuguese researchers, evaluation of this initial translation by a panel of 5 experts during an online meeting and back translation by 1 bilingual researcher. Authors of the original version approved this initial translation. CQRA-PREM includes 7 domains for patient-centered care: Needs and preferences (5 items); Coordination of care and communication (4 items); Information, education, and self-care (4 items); Daily living and physical comfort (2 items); Emotional support (2 items); Family and friends (1 item); Access to care (5 items) and 1 question for the overall experience with the care provided. Answers are given on a 5-point Likert scale (strongly disagree-1 to strongly agree-5). A total of 21 patients were invited to participate in online focus groups and 14 accepted. Patients were then asked to fill in a consent form and the preliminary version of the CQRA-PREM. The focus groups were transcribed and analyzed using thematic analysis. Questionnaire responses were analyzed with descriptive statistics and reliability (internal consistency) with the Cronbach´s alpha (α). Results A total of 12 patients (53±9y; 92% female) with a mean disease duration of 14±9 years participated in 2 focus groups (duration 95±7min). The focus groups revealed that patients considered CQRA-PREM “simple” and “objective” and that all questions were easy to understand. Nevertheless, patients suggested the addition of synonyms for certain terms and of daily living examples to clarify some items. The “Needs and preferences” and “Access to care” were the domains with better experience (Table 1). The Cronbach’s alpha was 0.94 for the total questionnaire and between 0.71 and 0.91 for the domains. Table 1. Median’s responses and quartile (Q) for each domain (1-Strongly disagree; 2-Disagree; 3-Neither agree nor disagree; 4-Agree; 5- Strongly agree). CQRA-PREM domains Median (Q1-Q3 ) 1.Needs and preferences 4.5(4.25-4.5) 2.Coordination of care and communication 4(3.25-4.5) 3.Information, Education and Self-care 3(2-4) 4.Daily living and physical comfort 3.25 5.Emotional support 3.25 6.Family and friends 4(3-4) 7.Access to care 4.5(2.5-5) Conclusion Our findings suggest that both content validity and internal consistency of the Portuguese version of CQRA-PREM are acceptable. In future, a field-testing study to assess other psychometric properties (e.g., test-reliability and validity) should be conducted. We believe this PREM will contribute to optimize patient-centered care in Portugal. References [1]Bosworth A, et al. Curr. Rheumatol. Rev. 2015;11. Disclosure of Interests None declared