POS0803-HPR DEVELOPMENT OF A PATIENT-CENTERED MULTIMODAL DISEASE MANAGEMENT PLATFORM FOR THE FIBROMYALGIA-LIKE POST-COVID19 SYNDROME
Authors: M. Blanchard, T. Hügle, P. Ming Azevedo
Journal: Annals of the Rheumatic Diseases (2023)

<h3>Background</h3> About 30% of patients with post-COVID19 syndrome satisfy the ACR survey criteria for fibromyalgia. The most common symptoms are chronic fatigue, generalized pain, sleep impairment, anxiety and depression. A substantial part of the patients already suffered from similar symptoms before infection. Digital health solutions have shown efficiency for fibromyalgia, offering specific disease monitoring and multimodal interventions and thus may work in patients with post-Covid19 syndrome. <h3>Objectives</h3> To develop a multimodal, multi-interventional self-management platform for post-COVID19 and potentially other post-viral syndromes patients. To ensure a patient-centric development and evaluate the usability of this solution by performing qualitative user experience research. <h3>Methods</h3> We developed a web-based user interface with a horizontal basic navigation menu consisting of patient reported outcomes, symptoms evolution and interventions. The therapeutic content was created by rheumatologists, psychiatrists, physiotherapists and occupational therapists and included educational content, physical-, respiratory- and olfactory exercises, cognitive behavioral therapy, mindfulness, relaxation training, therapeutic stories and art therapy. Usability and satisfaction surveys have been conducted among 53 post-COVID19 patients and qualitative interviews have been performed. <h3>Results</h3> The frontend design of the platform is shown in Figure 1. 90% of the patients preferred a regular symptoms list questionnaire over a chatbot to collect patient reported outcomes. Longitudinal symptom evaluation is shown in the 'my results' section. 81% of patients expressed their wish that their symptoms are displayed with a benchmark of all other patients and to learn what has helped other patients with similar symptoms. A majority of them were also interested in links to patient communities (63%), so an anonymized discussion forum has been added. Patients preferred active training programs (63%) and information (59%) over interactive and gamified content like quizzes (15%). Interactivity on the web-app was created by accordion function and horizontal navigation within each treatment module. An administrator content management dashboard has been implemented to ensure a flexible and reactive supervision of the platform. <h3>Conclusion</h3> We present a functioning, patient-centered app tailored for patients with post-COVID19 syndrome. Further clinical studies on user experience, adherence, adoption driving factors and efficacy are ongoing. <h3>References</h3> [1]Ursini F, Ciaffi J, Mancarella L, et al. Fibromyalgia: a new facet of the post-COVID-19 syndrome spectrum? Results from a web-based survey RMD Open 2021: e001735. [2]Blanchard M, Backhaus L, Ming Azevedo P, Hügle T. An mHealth App for Fibromyalgia-like Post-COVID-19 Syndrome: Protocol for the Analysis of User Experience and Clinical Data. JMIR Res Protoc. 2022 Feb 4;11(2):e32193. doi: 10.2196/32193. <h3>Acknowledgements</h3> We thank the Fundation for Innovation and Technology (FIT) in Lausanne (VD) for supporting this project. <h3>Disclosure of Interests</h3> Marc BLANCHARD Shareholder of: ATREON SA (board member), Thomas Hügle Shareholder of: ATREON SA (Scientific board member), Pedro Ming Azevedo: None declared.