POS0065-PARE EDUCATION FOR PATIENTS, DESIGNED BY PATIENTS: THE EXPERIENCE IN THE DESIGN OF A RHEUMATOID ARTHRITIS PRIMER
Authors: F. Rodriguez, L. Realpe, Z. Castaño, G. S. Rodríguez-Vargas, A. Rojas-Villarraga, P. Santos-Moreno
Journal: Annals of the Rheumatic Diseases (2023)

<h3>Background</h3> In 2018, thanks to the support of a government entity, the UniversitAR multi-component educational program was launched; which trained more than 300 patients and certified 50 expert patients in Rheumatoid Arthritis in 2021. In this educational process, patients received training in various knowledge topics for disease care: definitions, signs and symptoms, treatment, medical team, therapeutic adherence, quality of life and transformation of personal behavior to manage relationships and situations. As a result, the educational program proposed the design of educational material that would be useful for the patient population. <h3>Objectives</h3> The objective of this project was to design a primer for patients with rheumatoid arthritis, which helps them understand the disease and the importance of long-term treatment, understand and apply therapeutic adherence, and change the way in which patients assume their role in treatment. <h3>Methods</h3> An editorial committee was created to write the primer. This committee was made up of 8 patient experts in rheumatoid arthritis, 1 rheumatologist, a coordinator of education programs for chronic patients, and a team of content reviewers. The writing of the primer began with a selection of the thematic contents with the greatest impact in their educational process and the writing of the initial manuscript began (by patients for patients). Afterwards, a first revision of the manuscript was made and some contents were adjusted according to the clinimetric standards for international rheumatology. Finally, the manuscript was submitted for review by the team of rheumatologists and the interdisciplinary team, thus creating the final version of the primer. <h3>Results</h3> In December 2022, an event for patients with Rheumatoid Arthritis was held. In this event the primer was presented and its purposes were explained. The primer gathers topics such as: disease definitions, signs and symptoms, diagnosis and treatment, disease impact, therapeutic adherence, myths and beliefs, the medical team, health literacy, and expert patients (See figure 1). In 2023, this primer will be delivered to all patients so that they can have a source of consultation and information. <h3>Conclusion</h3> It is important to support the dissemination of educational content so that patients have reliable, accurate and oriented information to improve their participation with medical teams in shared decision-making to achieve therapeutic objectives together. <h3>Acknowledgements</h3> We thank the Ministry of Science, Technology and Innovation MINCIENCIAS for allowing us to design this primer and for being able to train our patients. Also, we thank the patients who are part of the editorial committee that designed this primer. <h3>Disclosure of Interests</h3> Fernando Rodriguez: None declared, Liliana Realpe: None declared, Zohelia Castaño: None declared, Gabriel-Santiago Rodríguez-Vargas: None declared, Adriana Rojas-Villarraga: None declared, Pedro Santos-Moreno Speakers bureau: Abbvie, Abbott, Biopas-UCB, Bristol, Janssen, Pfizer, Roche, Sanofi, Grant/research support from: Abbvie, Abbott, Biopas-UCB, Bristol, Janssen, Pfizer, Roche, Sanofi.