tbuckley/cabot-search huggingface dataset:
AB1729-PARE BEING “THE HEALTHY ONE”: THE HARD LIVING WITH A SICK BROTHER/SISTER
Authors: U. Viora, G. Mascarino, D. Rava, D. Romagnolo, M. T. Mascarino
Journal: Annals of the Rheumatic Diseases (2023)

<h3>Background</h3> In 2019 our project "A paw? Yes, thank you", in which even healthy brothers and sisters of patients with JIA (Juvenile Idiopathic Arthritis) could benefit from playing with dogs and cats and live the same experience, highlighted their (more or less disguised) discomfort. All attention, even by the patients' associations, is focused on the needs of the sick people and nobody take care of brothers, sisters and relatives who feel neglected. <h3>Objectives</h3> AMaR Piemonte (Rheumatic Patients Association of Piedmont) would like to know exactly the unmet needs of these young people to help them to overcome their condition and have the best possible quality of life. <h3>Methods</h3> A Psychologist developed two different questionnaires - one for children (easier and more intuitive) and one for the teenagers - to assess the discomfort and the unmet needs of healthy brothers and sisters living with a sick one. The questionnaires will be administered online on the websites and social media of the association (www.amarpiemonte.org – Facebook: @amarpiemonte – Instagram: amarpiemonte) since February 2023 for 6 months to reach as many contacts as possible. Teenagers will be asked also to share posts, videos, papers, podcast on an dedicated platform, created to preserve their anonymity. <h3>Results</h3> Preliminary results will be available in September 2023 and the final report will be ready in October. <h3>Conclusion</h3> Healthy brothers and sisters are nearly always neglected by their parents, whose attention is mostly focused on the specific needs of their sick sons/daughters. The quality of life of these children and teenagers is poor and they are ashamed to show their discomfort, often ending up feeling negative feelings towards their sick brother/sister and their family. With this survey we expect to have a broad and clear picture of the discomfort and poor quality of life of these people, to design specific projects in order to help their families to overcome this unintentional discrimination and to help them to restrict it and to speak about it with their parents without fear of creating further problems for them. <h3>REFERENCES:</h3> NIL. <h3>Acknowledgements:</h3> NIL. <h3>Disclosure of Interests</h3> None Declared.
AB1671 COMORBIDITIES AND CARDIOVASCULAR RISK FACTORS IN A MEXICAN MESTIZO COHORT OF RHEUMATOID ARTHRITIS PATIENTS
Authors: D. Á. Galarza-Delgado, I. J. Colunga-Pedraza, J. R. Azpiri-López, V. Gonzalez-Gonzalez, V. M. Beltran-Aguilar, A. G. Arias Peralta, N. De Avila Gonzalez, J. A. Cardenas-de la Garza, G. García-Arellano
Journal: Annals of the Rheumatic Diseases (2023)

<h3>Background</h3> Rheumatoid arthritis (RA) has been associated with a 3 to 10 years life expectancy reduction as compared to general population, with atherosclerotic disease being the leading cause of death [1]. <h3>Objectives</h3> To determine the prevalence of comorbidities and associated cardiovascular risk factors in Mexican patients with rheumatoid arthritis. <h3>Methods</h3> Observational, prospective, cross-sectional, and analytic study. Patients aged 40 to 75 years who met the ACR/EULAR 2010 Classification Criteria for the diagnosis of Rheumatoid Arthritis in a period from August 2014 to December 2022 were included. Patients with a history of cardiovascular disease (myocardial infarction, cerebrovascular event, or peripheral arterial disease) were excluded. The distribution was evaluated with the Kolmogorov-Smirnov test. Normally distributed variables were described with mean and standard deviation (SD) and the 25<sup>th</sup> and 75<sup>th</sup> percentiles (p25-p75) were used to report variables without normal distribution. <h3>Results</h3> A total of 487 patients were included. The mean age was 55.3 ±8.9 years, women 92.2%. The median for disease duration was 7.0 (2.8-14.5) years. In this cohort, 163 (33.3%) of patients were in remission, 67 (13.8%) had low, 198 (40.7%) moderate and 60 (12.3%) high disease activity according to DAS28-CRP. Of these patients, 401 (82.3%) were on methotrexate, 296 (60.8%) were on prednisone (median dose of 5.0 mg per day), and 260 (53.4%) were in both. The cardiovascular risk factors with the highest prevalence were overweight in 208 (42.9%) and obesity in 153 (31.4%). The most prevalent comorbidity was dyslipidemia in 150 (30.9%), the rest are shown in Table 1. <h3>Conclusion</h3> Although patients with rheumatoid arthritis have a lower prevalence of traditional cardiovascular risk factors and comorbidities compared to the general Mexican population, they continue to have a higher cardiovascular risk and increased mortality at 3 – 10 years, which raises the question: should RA be included as a cardiovascular risk factor? <h3>Reference</h3> [1]Myasoedova E, Davis JM, Crowson CS, Gabriel SE. Epidemiology of rheumatoid arthritis: Rheumatoid arthritis and mortality, Curr Rheumatol Rep. 2010;12(5):379–385. <h3>Acknowledgements:</h3> NIL. <h3>Disclosure of Interests</h3> None Declared.
AB1783-HPR VALIDATION OF AN ELECTRONIC VISUAL ANALOG SCALE APP FOR PAIN EVALUATION IN CHILDREN AND ADOLESCENTS WITH SYMPTOMATIC HYPERMOBILITY: CROSS-SECTIONAL STUDY
Authors: M. Maarj, V. Pacey, L. Tofts, X. Garcia, M. Clapham, A. Coda
Journal: Annals of the Rheumatic Diseases (2023)

<h3>Background</h3> Rapid advances in mobile apps for clinical data collection for pain evaluation have resulted in more efficient data handling and analysis than traditional paper-based approaches. As paper-based visual analogue scale (p-VAS) scores are commonly used to assess pain levels, new emerging apps need to be validated prior to clinical application with symptomatic children and adolescents. <h3>Objectives</h3> This study aimed to assess the validity and reliability of an electronic visual analogue scale (e-VAS) method via a mobile health (mHealth) App in children and adolescents diagnosed with hypermobility spectrum disorder/hypermobile Ehlers-Danlos syndrome (HSD/HEDS) in comparison with the traditional p-VAS. <h3>Methods</h3> Children diagnosed with HSD/HEDS aged 5-18 years were recruited from a sports medicine center in Sydney (New South Wales, Australia). Consenting participants assigned in random order to the e-VAS and p-VAS platforms were asked to indicate their current lower limb pain level and completed pain assessment e-VAS or p-VAS at one time point. Instrument agreement between the 2 methods was determined from the intraclass correlation coefficient (ICC) and through Bland-Altman analysis. <h3>Results</h3> In total, 43 children with HSD/HEDS aged 11 (SD 3.8) years were recruited and completed this study. The difference between the 2 VAS platforms of median values was 0.20. Bland-Altman analysis revealed a difference of 0.19 (SD 0.95) with limits of agreement ranging -1.67 to 2.04. An ICC of 0.87 (95% CI 0.78-0.93) indicated good reliability. <h3>Conclusion</h3> These findings suggest that the e-VAS mHealth App is a validated tool and a feasible method of collecting pain recording scores when compared with the traditional paper format in children and adolescents with HSD/HEDS. The e-VAS App can be reliably used for pediatric pain evaluation, and it could potentially be introduced into daily clinical practice to improve real-time symptom monitoring. Further research is warranted to investigate the usage of the app for remote support in real clinical settings. <h3>REFERENCES:</h3> NIL. <h3>Acknowledgements:</h3> NIL. <h3>Disclosure of Interests</h3> None Declared.
AB1701 HOW TO MAKE A VIRTUAL PRESENTATION USING ARTIFICIAL INTELLIGENCE?
Authors: A. C. Genç, F. Turkoglu Genc, Z. N. Kaya, E. Gönüllü
Journal: Annals of the Rheumatic Diseases (2023)

<h3>Background</h3> Virtual presentations have become increasingly common due to the COVID-19 pandemic and advancements in technology. However, it is not yet clear how to effectively use artificial intelligence (AI) in virtual presentations to enhance their effectiveness. <h3>Objectives</h3> The aim of this study is to investigate the current state of AI in virtual presentations and to develop practical guidelines for using AI to enhance the effectiveness of virtual presentations. <h3>Methods</h3> ChatGPT is an artificial intelligence chatbot [1]. The final version contains information up to years of 2021. We wrote to ChatGPT: "I want to submit a study for the European League Against Rheumatism (EULAR) 2023. Title: "How to make a virtual presentation using artificial intelligence?". Prepare a summary consisting of background and objectives sections for me.". The texts generated by ChatGPT were transferred to another virtual platform to be converted to audio and video. The text in the background and objectives sections in this abstract was voiced by the speaking avatar [2]. <h3>Results</h3> ChatGPT wrote the background and objectives part of this abstract. As the authors, we have not made any changes in order to be objective. Thanks to another artificial intelligence, the content in this text was voiced by an avatar and turned into a video (Figure 1). <h3>Conclusion</h3> In the near future, artificial intelligence will be used more effectively in the preparation and presentation of scientific articles. In this way, artificial intelligence will help scientists to use their time more efficiently. Developing technology also offers equal opportunities for scientists with social phobia and visual or speech disabilities. <h3>References</h3> [1]GPT-3 [Software]. Retrieved from https://openai.com/ [2]synthesia. Retrieved from https://synthesia.ai/ <h3>Acknowledgements:</h3> NIL. <h3>Disclosure of Interests</h3> None Declared.
AB1784-HPR COMPARISON OF POSTURAL CHANGES AND FUNCTIONAL LEVELS AMONG DIFFERENT SUB-TYPES OF AXIAL SPONDYLOARTHRITIS PATIENTS
Authors: Y. Akkubak, T. Duger, A. Kucuk
Journal: Annals of the Rheumatic Diseases (2023)

<h3>Background</h3> Axial Spondyloarthritis (axSpA) is divided into two sub-types as radiographic axSpA which is commonly known as ankylosing spondylitis, and non-radiographic axSpA which defines no structural radiographic damage in sacroiliac joints. The systemic, inflammatory nature of axSpA, chronic pain, inflammatory cytokines, changes in the bone and ligaments of the spine may affect spine posture and functional level. <h3>Objectives</h3> The aim was to compare spine posture and functional levels differences among radiographic axSpA, non-radiographic axSpA patients and healthy controls. <h3>Methods</h3> Twenty patients with radiographic axSpA (mean age; 39.95± 9.75, 15 female), 20 patients with non-radiographic axSpA (mean age; 38.55± 2.74, 15 female), and 20 age and sex-matched healthy controls (15 female) were included in the study. The patients were evaluated with Bath Ankylosing Spondylitis Metrology Index, Bath Ankylosing Spondylitis Disease Activity Index, Bath Ankylosing Spondylitis Functional Index, Ankylosing Spondylitis Quality of Life Questionnaire. Thoracic and lumbar curvature tests were measured with a digital inclinometer (Acumar, Dual Digital Inclinometer, Lafayette Instrument Company, IN, USA). <h3>Results</h3> No differences were detected in disease activity level, disease-related functional status, disease-related quality of life between radiographic and non-radiographic axSpA patients (p&gt;0.05). However, time since onset of symptoms, spinal mobility were higher in radiographic axSpA patients (p&lt;0.05, Table 1). Radiographic axSpA patients showed higher thoracic curvature degree compared to non-radiographic axSpA patients and healthy controls (p&lt;0.05, Table 1). Radiographic and non-radiographic axSpA patients presented lower lumbal lordosis degree compared to healthy controls (p&lt;0.001, Table 1). <h3>Conclusion</h3> The results of the present study suggest that disease sub-types of axSpA may affect the spine posture, in particular thoracic curvature degree. Every effort should be taken to impove spine postüre in axSpA patients; however, sub-type specific considerations should be kept in mind for planning exercise/physical activity programs. <h3>References</h3> [1]Rudwaleit, M., Van Der Heijde, D., Landewé, R., Listing, J., Akkoc, N., Brandt, J.,... &amp; Sieper, J. (2009). The development of Assessment of SpondyloArthritis international Society classification criteria for axial spondyloarthritis (part II): validation and final selection. Annals of the rheumatic diseases, 68(6), 777-783. [2]Mangone, M., Paoloni, M., Procopio, S., Venditto, T., Zucchi, B., Santilli, V.,... &amp; Bernetti, A. (2020). Sagittal spinal alignment in patients with ankylosing spondylitis by rasterstereographic back shape analysis: An observational retrospective study. Eur. J. Phys. Rehabil. Med, 56(2), 191-196. <h3>Acknowledgements:</h3> NIL. <h3>Disclosure of Interests</h3> None Declared.
AB1752-PARE THE RATE OF COVID-19 VACCINATION IN PATIENTS WITH RHEUMATOID ARTHRITIS. SINGLE-CENTER CROSS-SECTIONAL PILOT STUDY
Authors: H. Elhani, L. Taoubane, N. EL Ouardi, H. Taoufik, A. Majjad, A. Bezza
Journal: Annals of the Rheumatic Diseases (2023)

<h3>Background</h3> The rate of COVID-19 vaccination in patients with rheumatoid arthritis. Single-center cross-sectional pilot study. <h3>Objectives</h3> Morocco was the first country in Africa to launch the COVID19 vaccination campaign. Vaccination of immunocompromised subjects was recommended from the beginning by the Moroccan Society of Rheumatology. The primary objective of this study was to assess the vaccination rate of patients with rheumatoid arthritis two years after the start of the pandemic. The secondary objective was to investigate factors associated with vaccination. <h3>Methods</h3> This was a 3-month monocentric cross-sectional study from 31.05.22 to 31.08.22, including patients whose age was greater than 18 years, who have rheumatoid arthritis according to ACR/EULAR 2009 criteria. Socio-demographic data, comorbidities and disease characteristics were collected by the attending physician at the time of the consultation using a questionnaire. Statistical analysis was performed using JAMOVI software. <h3>Results</h3> The study included 73 patients, 82.2% of whom were women. The mean age was 57±11years, with a median disease progression of 8 years. 58 patients (80.6%) were vaccinated against COVID19. Among the vaccinated patients, 30 (51.7%) were illiterate, 8 patients (13.8%) had primary education, 11 (19%) had secondary education and 9 (15.5%) had higher education 53 (91.4%) patients were previously on or on corticosteroids, 8 patients (14, 3%) had a history of tuberculosis, 10 patients (17.5%) had diffuse interstitial lung disease routinely detected on computed Tomography (CT) Scan of the Chest, 26 patients (45.6%) had received a pneumococcal vaccination (p=0.24), and 21 (36.2%) had received an influenza vaccination. 15 patients (25.8%) were on Tumor necrosis factor-alpha inhibitors, 25 patients (43.1%) were on Rituximab, 6 patients (10.3%) were on Tocilizumab, 4 patients (6.9%) were on Methotrexate, 1 patient (1.7%) was on Leflunomide, 1 patient (1.7%) was on Salazopyrine, 2 patients (3.4%) were on csDMARD combinations, and 4 patients (6.9%) were not on any disease-modifying treatment.Only the level of education was statistically significantly different between vaccinated and non-vaccinated patients (p=0.06). <h3>Conclusion</h3> In this study, almost 80% of patients were vaccinated. Further studies are needed to develop population-specific education programs. <h3>REFERENCES:</h3> NIL. <h3>Acknowledgements:</h3> NIL. <h3>Disclosure of Interests</h3> None Declared.
AB1754-PARE INFLAMMATORY RHEUMATIC DISEASES AND RELIGIOUS RITUALS: WHICH IMPACT?
Authors: K. Maatallah, R. Ben Aissa, H. Ferjani, D. Ben Nessib, D. Kaffel, W. Hamdi
Journal: Annals of the Rheumatic Diseases (2023)

<h3>Background</h3> Religious events are privileged occasions for sharing and conviviality. In a joyful atmosphere, festive meals are shared with family, neighbors, and friends, and gifts are exchanged. Little is known about the impact of chronic inflammatory rheumatic diseases on patients' celebrations of religious events. <h3>Objectives</h3> To study the satisfaction of patients with their religious rituals during Islamic holidays. <h3>Methods</h3> We conducted a transversal study, including patients with rheumatoid arthritis (RA) and spondyloarthritis (SpA). Patients were invited to answer to a satisfaction scale (SS) composed of four domains: prayer practice, religious food preparation, family visits, and satisfaction with spiritual fulfillment. For each domain, there were 6 degrees of satisfaction (extremely satisfied, satisfied, slightly satisfied, slightly dissatisfied, dissatisfied, extremely dissatisfied) rated from 1 to 6 from best to worst satisfaction. The sub-SS for each domain ranged from 1 to 6, and the global SS ranged from 4 to 24. <h3>Results</h3> Seventy-one patients (45 females) answered the SS with a median age of 48±13 [20-81] years. Thirty-three patients had RA and thirty-eight SpA with a mean disease duration of 8±7.3 [0.04-36] years. The RA and SpA were active according to DAS28 and BASDAI in, respectively, 78% and 47% of cases. The mean global SS was 13.2±3.1 [6-23] and the mean sub-SS for prayer practice was 3.3±1.3 [1-6], for religious food preparation was 4±1.4 [1-6], for family visits was 3±1.3 [2-6] and for satisfaction for spiritual fulfillment was 3.3±1.4 [1-6]. A better satisfaction with prayer practice and religious food preparation was correlated with age (p=0.04, p=0.043, respectively) and married marital status (p=0.021, p=0.008, respectively). SpA patients reported less satisfaction with prayer practice than RA patients (sub-SS means 3.44 versus 3.13), but this did not reach a statistically significant level (p=0.337). Patients with inactive disease reported better satisfaction with family visits than those with active disease (sub-SS means 2.46 versus 3.04) but without statistically significant difference (p=0.178). The satisfaction with spiritual fulfillment correlated with age (p=0.001), whereas there were no associations with gender (p=0.216), type of the rheumatism (p=0.653) and disease activity (0.516). There was no correlation between the global SS and the type of rheumatism, disease activity, and gender (p=0.631, p=0.403, p=0.569, respectively). <h3>Conclusion</h3> Our study showed that RA and SpA affect negatively patients' religious practices, especially prayer practice, religious food preparation, and spiritual fulfillment. Therefore, the impact on religious rituals should be taken into account when assessing the quality of life of patients with rheumatic diseases. <h3>REFERENCES:</h3> NIL. <h3>Acknowledgements:</h3> NIL. <h3>Disclosure of Interests</h3> None Declared.
AB1726-PARE IN WHAT EXTENT DO RHEUMATOLOGISTS DISCUSS PHYSICAL ACTIVITY WITH THEIR PATIENTS AFFECTED BY CHRONIC INFLAMMATORY RHEUMATIC DISEASE AND WHAT ARE THE PATIENTS’ EXPECTATIONS?
Authors: S. Bahloul, H. Rkain, S. Ez-Zaoui, F. El Joumani, F. Kronbi, R. Honsali, S. Farih, I. Bensaghir, C. Nouri, T. Latifa, H. H. Najia, F. Allali
Journal: Annals of the Rheumatic Diseases (2023)

<h3>Background:</h3> <h3>Objectives</h3> To assess the level of communication about physical activity (PA) between rheumatologists and their patients and to identify patients' needs in this topic. <h3>Methods</h3> This is a cross-sectional study conducted on 140 patients (mean age of 47.1 ± 14.6 years, 68% females) followed for CIRD (Rheumatoid arthritis 56.4%, ankylosing spondylarthritis 32.1%, psoriatic arthritis 8.6% and juvenile idiopathic arthritis 2.9%). Physical activity was measured using the IPAQ-SF (the international physical activity questionnaire - short form). We asked patients if their rheumatologist has ever discussed or encouraged them or even explained how to do adapted physical activity. Patients ' preferences for physical activity practice were collected by specifying if patients preferred to practice it at home or outside, single or in groups. Finally, we also asked them about their needs for both audiovisual support on adapted physical activity and participation in an educational workshop. <h3>Results</h3> The physical activity level was low with a mean IPAQ-SF score of 413 (0,760) MET-min/week. The topic of PA was discussed by rheumatologists with 37.1% of patients. Rheumatologists advised patients to practice adapted PA and show them how to practice it, in respectively 38 and 21.4% of cases. Figure 1 illustrated patients' expectations of PA. <h3>Conclusion</h3> This study shows the lack of rheumatologist-patient communication on PA and the significant need for PA education. Hence there should be greater involvement of rheumatologists in patient education about physical activity to fight against sedentary behavior in CIRD patients. <h3>Disclosure of Interests:</h3> <h3>None declared</h3>
AB1691 BURDEN OF AFFECTED FACE IN PATIENTS WITH SYSTEMIC SCLEROSIS: A TRANSLATION AND VALIDATION STUDY IN TURKISH
Authors: F. Sarİ, Z. Bazancİr Apaydİn, H. Apaydin, M. Kayaalp, A. Erden, S. C. Güven, B. Armagan, A. Omma, O. Küçükşahin
Journal: Annals of the Rheumatic Diseases (2023)

<h3>Background</h3> Facial involvement is crucial for patients' quality of life in patients with systemic sclerosis (SSc). The effect of the facial signs on health-related quality of life is assessed the several questionnaires, however, these are not specific to assess disability involving the face in SSc patients. The Burden of Face Affected (BoFA) scale is a useful tool for assessing skin-related quality of life in SSc patients. <h3>Objectives</h3> The aim of this study was to evaluate the reliability and validity of an adapted Turkish version of the BoFA. <h3>Methods</h3> The translation and cross-cultural adaptation of the French version of the BoFA was conducted, all steps of the cross-cultural adaptation process were performed by Beaton guidelines. The Turkish version of the BoFA, the Mouth Handicap in Systemic Sclerosis (MHISS), the Rosenberg Self-Esteem Scale (RSS), and Perceived Stress Scale (PSS) were performed to the 49 patients with SSc patients. Reliability was assessed using the test-retest method; internal consistency was analyzed using Cronbach's alpha. Construct validity was assessed by correlating the BoFA with the MHISS, RSS, and PSS questionnaires. <h3>Results</h3> The BoFA showed excellent test/retest reliability with an intraclass correlation coefficient of 0.96 for total score. Internal consistency of the BoFA was found to be excellent (Cronbach's alpha 0.96). The BoFA demonstrated good construct validity with the MHISS (r = 0.55, p &lt; 0.001), the RSS (r=0.53, p &lt; 0.001), and the PSS (r=0.50, p &lt; 0.001). Also, the factor analysis showed the BoFA has four-factor subgroup by scree plot graph. There were no BFAs found to be related to the floor and ceiling effects. <h3>Conclusion</h3> The Turkish version of the BoFA to assess the skin related quality of life in SSc patients was found to have good validity, excellent reliability, and high internal consistency. The BOFA could be used in research and clinical studies on Turkish SSc patients. <h3>Reference</h3> [1]Doutre MS, Godard D, Benani M, Taieb C. Création et validation d'un outil d'évaluation du handicap lié à l'atteinte du visage de la sclérodermie systémique [Development and validation of a questionnaire to assess facial handicap in systemic sclerosis]. Ann Dermatol Venereol. 2020 Oct;147(10):595-601. French. doi: 10.1016/j.annder.2020.04.023. <h3>Acknowledgements:</h3> NIL. <h3>Disclosure of Interests</h3> None Declared.