tbuckley/cabot-search huggingface dataset:
AB1708 SOCIAL MEDIA AS A SOURCE OF INFORMATION AMONG MOROCCAN PATIENTS WITH CHRONIC INFLAMMATORY RHEUMATIC DISEASES
Authors: N. El Mansouri, F. Z. Taik, R. Bensaid, H. Fouzia, N. Soba, M. Fourtassi, F. E. Abourazzak
Journal: Annals of the Rheumatic Diseases (2023)

<h3>Background</h3> Little research has been conducted on the use of different type of social media as a source information by Moroccan patients with chronic inflammatory rheumatic diseases and on the evaluation of the quality of this information that give an impact on the quality of life which that still poorly known in our context. <h3>Objectives</h3> The objective of our study is to evaluate the use of different type of social media by our patients and to identify the factors that may be associated with them. <h3>Methods</h3> This is a cross-sectional study that included any patient followed in our rheumatology department for chronic inflammatory rheumatic diseases. Sociodemographic data, comorbidities, chronic inflammatory rheumatic diseases related findings (type, pain assessment, disease activity and treatment) were collected. Patient's beliefs and attitudes regarding the various social media were assessed by a questionnaire. A list of 7 type of social media was provided, for which patients were asked to indicate the type of social media used and their confidence in them, followed by their experience with the usefulness of the sources used. Catastrophizing, trust in physician, and concerns about medicines were assessed by the validated Moroccan versions of the pain catastrophizing scale (PCS), trust in physician scale (TPS), and beliefs about medicines questionnaire (BMQ specific concerns). <h3>Results</h3> we included 189 patients. The average age was 47.49 ±13.7, 75.7% of patients were women, 52.4% had comorbidities, and 49.2% were illiterate. The median duration of the disease was 8 [3-16.75]. Mean pain VAS was 4.77 ±2.76. 37.6% of patients were in remission. 56.1% of the patients declared to look for information related to their chronic inflammatory rheumatic diseases on social media as a source of information. The 3 main sources were: Youtube (30.7%), Google (25.9%) and Facebook (16.9%). 19% have already applied some of this information. Only 20.1% discussed the information they found with their treating physicians and 67.2% would like to have health professionals in their virtual spaces to answer their questions. In univariate and multivariate analysis (Table1), age, education level, comorbidity, and concerns about medication were statistically significantly associated with the use of social media. <h3>Conclusion</h3> Our study showed that Moroccan patients with chronic inflammatory rheumatic diseases especially are actively seeking information about their disease in social media. Moroccan rheumatologists need to be more involved, especially in virtual spaces, to meet these demands. <h3>REFERENCES:</h3> NIL. <h3>Acknowledgements:</h3> NIL. <h3>Disclosure of Interests</h3> None Declared.
AB1821-HPR FUNCTIONAL CAPACITY AND WORK ABILITY IN PATIENTS WITH COMMON SCIATICA
Authors: H. Bejaoui, A. Feki, I. Sellami, S. Ben Jemaa, M. Ezzeddine, M. H. Kallel, H. Fourati, R. Akrout, S. Baklouti
Journal: Annals of the Rheumatic Diseases (2023)

<h3>Background</h3> Spinal radicular syndromes are a serious healthcare issue in the society nowadays. A common form of ailments related to the syndromes is sciatica, manifesting with severe pain radiating along the course of the sciatic. In many patients the pain limits the ability to perform daily routine at work and at home [1]. <h3>Objectives</h3> The aim of study was to assess the functional capacity in patients with sciatica and its influence on their quality of life, their ability to function in daily life and at work. <h3>Methods</h3> We conducted a cross-sectional study including patients suffering from documented common sciatica evolving for more than 3 months collected in a rheumatology department over a period of 3 years. The Quality-of-life SF-36 questionnaire - Short Form Health Survey was used in the study, along with a supplement specifying the study group, with an indication of the pain location and the patients' occupations. Additionally, the Oswestry Disability Index, the work ability index (WAI) -and the Visual Analogue Scale (VAS) were applied. <h3>Results</h3> The study covered 104 patients, both male and female (71 women and 33 men with sex ratio male/female of 0.46). The mean age of our patients was 55.4 years-old (23-74). The most common etiology of sciatica was herniated disc, followed by lumbar spinal stenosis and spondylolisthesis. The root path was L5 in 74 cases and S1 in 30 cases. the average duration of sciatica was 6.4 months. The mean oswestry score was 25(15-38). The mean of the VAS was 7.4(4-9). The mean of WAI was 25.2(15-38). The Quality-of-Life index, at a statistically significant level (α &lt; 0,05), is higher (hence the quality of life is lower) in females suffering from sciatica. The duration of sciatica was a factor strongly correlated with the intensity of pain - the Oswesty score and the WAI were negatively correlated with age (p&lt;0.05, r= -0.6 and r=-0.4 respectively). <h3>Conclusion</h3> In our series sciatica affects the quality of life of the female patients studied in this research to a greater extent than the male patients. The intensity of pain associated with sciatica duration. WAI and Oswestry were negatively associated with age. <h3>Reference</h3> [1] Patrick DL, Deyo RA, Atlas SJ, Singer DE, Chapin A, Keller RB. Assessing health-related quality of life in patients with sciatica. Spine (Phila Pa 1976). 1995 Sep 1;20(17):1899-908; discussion 1909. doi: 10.1097/00007632-199509000-00011. PMID: 8560339. <h3>Acknowledgements:</h3> NIL. <h3>Disclosure of Interests</h3> None Declared.
AB1706 THE USE OF SELF-MEDICATION BY PATIENTS ADMITTED TO RHEUMATOLOGY
Authors: H. Tebaa, F. E. Bennani, H. Arabi, A. Mougui, I. El Bouchti
Journal: Annals of the Rheumatic Diseases (2023)

<h3>Background</h3> Self-medication is a frequent practice, especially in patients with painful and chronic pathologies. This is favored by the easy access to medication. <h3>Objectives</h3> The objective of this study was to evaluate the different aspects of self-medication among patients admitted in rheumatology departmen.t. <h3>Methods</h3> We realized a monocentric transversal study including 88 patients. The data were collected by a questionnaire including sociodemographic conditions, background pathology, drugs used, and resulting risk attitudes. Data processing was done with SPSS version 2021. <h3>Results</h3> A total of 88 patients were included, 54 women and 34 men. The mean age was 43.1 ± 10.1 years. Rheumatoid arthritis (RA) was found in 39%. Spondyloarthritis (SpA) in 19%, gonarthrosis in 20%, chronic mechanical low back pain in 9%, cervicobrachial neuralgia in 7%, gout in 3%, degenerative shoulder pathology in 5% and mechanical talalgia in 2%. The average duration of the disease was 6 ± 3 years. Self-medication was reported in 63% of patients. Concerning the type of self-medication, 88% of the patients used a treatment not prescribed in the initial prescription, 9% increased the doses of treatments already prescribed and 3% prolonged the duration. The most frequently used self-medication drugs were level 1 analgesics (66.7%), level 2 analgesics (6.1%), general non-steroidal anti-inflammatory drugs (NSAIDs) (39.4%), topical NSAIDs (30.3%), proton pump inhibitors (PPI) (12.1%) and corticosteroids (36%). Risk attitudes were detected in 32% of patients, of whom 6% exceeded 4 g per day of paracetamol, 15% combined 2 systemic NSAIDs, 2% took long-term NSAIDs, and 9% used PPIs for a long time without indication. The use of self-medication was not associated with sex (p = 0.5), level of education (p = 0.6) or professional activity (p = 0.58). Only one significant association was found with the duration of the disease (p 0.025). <h3>Conclusion</h3> Self-medication is practiced by the majority of our patients, motivated by various reasons and concerns the various analgesic drugs. The objective would be to rationalize the easy access to medication, to include therapeutic education in our medical practice in order to avoid the potential risks incurred. <h3>REFERENCES:</h3> NIL. <h3>Acknowledgements:</h3> NIL. <h3>Disclosure of Interests</h3> None Declared.
AB1823-HPR VALIDATION OF THE LUPUS IMPACT TRACKER IN ARGENTINA
Authors: P. D. Ibañez Peña, L. Garcia, M. Cosentino, F. Arizpe, A. Seewald, J. M. Dapeña, V. I. Bellomio, G. Rausch, S. Ornella, J. Scafati, B. Virasoro, M. V. Collado, N. Zamora, M. García
Journal: Annals of the Rheumatic Diseases (2023)

<h3>Background</h3> The Lupus Impact Tracker (LIT) is a patient reported outcome (PRO) questionnaire. The results demonstrated their reliability in clinical practice for evaluation and follow-up. <h3>Objectives</h3> To validate the LIT and the degree of correlation with other scores in SLE patients in Argentina. <h3>Methods</h3> Observational, analytical and multicenter study. Patients older than 18 years with SLE (2019 ACR/EULAR criteria) were included. In the first stage, we evaluated the reproducibility in a period of 7 days measured by intraclass correlation (ICC) as well as the time to answer the questionnaire. In a second stage, the scores LIT, LupusQoL, PGA, SLEDAI and SLICC SDI were calculated for each patient and the Spearman correlation coefficient between scores was analyzed. <h3>Results</h3> Initially the LIT was performed in 10 patients. The average time to complete the questionnaire was 2,1 minutes. The mean of LIT (T0) was 57,1 (SD 24,2) and 51,5 (SD 25,5) seven days later. The ICC was 0,808 (95% CI 0,431 – 0,948). In the second stage, 100 SLE patients were included consecutively. Table 1 shows the main characteristics of the patients. The Spearman correlation coefficient between LIT/ LupusQol was 0.71, LIT/ SLEDAI was 0.13, and LIT/SLICC was 0.26 (Graphic 1). <h3>Conclusion</h3> The median of the LIT questionnaire was 37 points. LIT demonstrated test-retest reliability and linear correlation with LupusQol. There was no correlation with SLE activity. LIT is a practical, quick and easy tool to evaluate he patient's perspective in relation to the disease in daily practice. <h3>Reference</h3> [1] Jolly M. Spanish LupusPRO: cross-cultural validation study for lupus. Lupus. 2013 Apr;22(5):431-6. doi: 10.1177/0961203313476359. PMID: 23554032. <h3>Acknowledgements</h3> To Karen Roberts who did the statistical analysis and the UNISAR for the support. <h3>Disclosure of Interests</h3> None Declared.
AB1737-PARE IN WHAT EXTENT DO RHEUMATOLOGISTS DISCUSS PHYSICAL ACTIVITY (PA) WITH THEIR PATIENTS AFFECTED BY KNEE OSTEOARTHRITIS AND WHAT ARE THE PATIENTS’ EXPECTATIONS?
Authors: S. Ez-Zaoui, H. Rkain, S. Bahloul, T. Latifa, F. El Joumani, I. Bensaghir, R. Honsali, S. Farih, F. Kronbi, N. Hajjaj-Hassouni, F. Allali
Journal: Annals of the Rheumatic Diseases (2023)

<h3>Background:</h3> <h3>Objectives</h3> To Assess the level of communication between patient and rheumatologist and to identify patients' expectations and needs in terms of PA. <h3>Methods</h3> This is a cross-sectional study conducted on 130 Knee osteoarthritis patients. Physical activity was measured using the IPAQ-SF (the international physical activity questionnaire - short form). We asked patients if their rheumatologist has ever discussed or encouraged them or even explained how to do adapted PA. Patients' preferences for PA practice were collected by specifying if patients preferred to practice it at home or outside, single or in groups. Finally, we also asked them about their needs for both audiovisual supports on adapted physical activity and participation in educational workshop. <h3>Results</h3> The mean age of the patients included was 59.9+/-10 years with 110 (84.6%) females. The PA level was low with a mean IPAQ-SF score of 130 (0.500) MET.Min/week. The topic of PA was discussed by rheumatologists with 49.2% of patients. Rheumatologists advised patients to practice adapted PA and show them how to practise it, in respectively 40 and 39.8% of cases. Figure 1 illustrated patients' expectations on PA. <h3>Conclusion</h3> This study shows a lack of rheumatologist-patient communication on PA and a significant need for PA education. Hence there shoud be greater involvement of rheumatologists in patient education about physical activity to fight against sedentary behavior in Knee Osteoarthritis patients. <h3>REFERENCES:</h3> NIL. <h3>Acknowledgements:</h3> NIL. <h3>Disclosure of Interests</h3> None Declared.
AB1807-HPR INVESTIGATION OF RELATIONSHIP BETWEEN NUTRITIONAL STATUS AND PHYSICAL ACTIVITY LEVEL IN RHEUMATIC DISEASES
Authors: M. S. Karacil Ermumcu, S. Y. Cetin, S. Yardim, A. Ayan
Journal: Annals of the Rheumatic Diseases (2023)

<h3>Background</h3> Rheumatic diseases are chronic diseases that negatively affect the quality of life. Ankylosing spondylitis (AS) and rheumatoid arthritis (RA) are the most common clinical manifestations. Non-pharmacological treatments include exercise, healthy and balanced diet recommendations [1,2]. <h3>Objectives</h3> The aim of this study was to investigate nutritional status and the physical activity level and relationship between those in patients with rheumatic diseases. <h3>Methods</h3> 108 patients (64 AS, 22 RA and 22 others (Sjogren, scleroderma, psoriatic arthritis)) with rheumatic diseases (47.92±12.26 years) were included in the study. The International Physical Activity Questionnaire (IPAQ) was used to assess physical activity. Food consumption records of the patients included in the study were recorded using a 24-hour retrospective reminder method. The adherence of the patients to the Mediterranean diet was evaluated using the 'Mediterranean Diet Scale' and their diet quality was evaluated with the Healthy Eating Index. <h3>Results</h3> The majority of patients (67.6%) were adapting to the Mediterranean diet and 56.5% had poor overall diet quality. Patients with AS had the worst adherence to the Mediterranean diet 8.21±1.99), while patients with RA had the worst overall diet quality (51.19±14.47, Graph 1). The physical activity level of the patients was inactive (n:49, 39.8%) and there was no significant relationship between nutritional status and physical activity level (p&lt;0.05). <h3>Conclusion</h3> According to the results of the study, although the majority of patients had adherence to the Mediterranean diet, the overall diet quality was poor and the level of physical activity was low. These results show that patients cannot be fed adequately and in moderation. Since these patients live in the Mediterranean region, although the consumption rate of vegetables and fruits is high, they cannot be fed with high quality. It is recommended that future studies be conducted in different regions with larger numbers of patients with rheumatic diseases. These results show that patients should also be evaluated in terms of balanced and healthy nutrition. <h3>References</h3> [1] Li S, Micheletti R.Role of diet in rheumatic disease. Rheum Dis Clin North Am. 2011 Feb;37(1):119-33. [2] Fasting, intestinal permeability and <i>rheumatoid arthritis</i>. <i>Rheumatic Diseases</i> Clinics of North America 17(2):363-371, 1991. <h3>Acknowledgements:</h3> NIL. <h3>Disclosure of Interests</h3> None Declared.
AB1721-PARE PATIENT REVIEWERS OF APPLICATIONS FOR RESEARCH FUNDING - A PILOT STUDY
Authors: H. Thorseng, C. Ziegler
Journal: Annals of the Rheumatic Diseases (2023)

<h3>Background</h3> Each year the Danish Rheumatism Association supports research in the field of rheumatology with approx. 1.5-2 Million EUR to strengthen the basis for developing better prevention strategies and treatment and thus increase the quality of life for many people. Since 2014 it has been mandatory for researchers applying for funding from the research committee of The Danish Rheumatism Association to indicated whether and how they involve patient representatives in their research. Our annual measurements show that involvement of patient representatives by researchers receiving a grant from The Danish Rheumatism Association has increased from 14 % in 2015 up to 65 % in 2021. To strengthen the patient involvement in research further The Danish Rheumatism Association would like patients to have a say in the research funding decisions by reviewing applications for research funding to the research committee of the Danish Rheumatism Association. <h3>Objectives</h3> To carry out a pilot study with patients as reviewers of applications for research funding to The Danish Rheumatism Association. <h3>Methods</h3> Three patients, one man and two women, with different RMDs participated in the pilot study and were requested to try to represent all patients with RMDs. The study was carried out from August to December 2022. The Danish Rheumatism Association provided the patients with an online introduction to the work as patient reviewer, they were provided with information material and The Danish Rheumatism Association supported them throughout their time with us. The patients reviewed a summary of 6-26 research funding applications in plain language at home individually. The applications were scored from zero to five, where zero was the lowest score and five the highest. The research committee of The Danish Rheumatism Association was presented the patients mean score of the applications and comments from one or more patients before their meetings and oral on the meetings in September 2022 and December 2022 respectively. <h3>Results</h3> When the research committee met to decide which research should receive funding, they took the patients mean score and comments for each application reviewed into their decision as with other parameters like methodology, research outcome, involvement of patient representatives in the research etc. <h3>Conclusion</h3> The patients in the pilot study represented patients with RMDs. They reviewed the applications for the research committee of The Danish Rheumatism Association based on their experience of being a patient and had a say in research funding decisions. In spring 2023 the pilot study will be evaluated and it is expected that patients with RMDs will be involved in the future research funding decisions in The Danish Rheumatism Associations and maybe in a larger scale than in the pilot study. <h3>REFERENCES:</h3> NIL. <h3>Acknowledgements:</h3> NIL. <h3>Disclosure of Interests</h3> None Declared.
AB1709 AWARENESS OF EDUCATIONAL AND RESEARCH OFFERINGS OF EULAR AND EMEUNET AMONG YOUNG RHEUMATOLOGISTS WORKING IN TURKEY
Authors: M. Oztas, G. Ayan, E. Bilgin, E. C. Bolek, U. İlgen
Journal: Annals of the Rheumatic Diseases (2023)

<h3>Background</h3> EULAR (European Alliance of Associations for Rheumatology) has various educational and research offerings for physicians working in rheumatology. Emerging EULAR Network (EMEUNET) aims to address educational needs and promote the research interests of aspiring young academics. A considerable number of young physician work or train in rheumatology in Turkey. <h3>Objectives</h3> To assess the awareness of the educational and research offerings of EULAR and EMEUNET among young rheumatologists working in Turkey. <h3>Methods</h3> We sent an e-mail to rheumatology trainees and consultant rheumatologists below the age of 40 years. We surveyed the general information about the offerings of the EULAR School of Rheumatology and EMEUNET. Data were analyzed descriptively. <h3>Results</h3> The response rate of 61% (116/190) was obtained. A slightly over half of the respondents were female (n=62,53.5%). Most of the respondents (n=75, 65%) were rheumatology fellows in training, and the remaining respondents were consultant rheumatologists. EULAR School of Rheumatology courses and EULAR research webinar series were well known (74% and 59%, respectively) among the participants (Table 1). However, less than half of the respondents who were aware of these events attended to a course or a research webinar previously (37.5% and 43%, respectively). The major obstacles to participation in these events were lack of enough time due to the clinical duties (50%) and language barrier (35%). Only 14% and 25% of the respondents were aware of the EULAR research consultation service and the EULAR scientific grant. 76 (65%) participants were aware of EMEUNET while only 13 (17%) of them were attended an EMEUNET event previously. <h3>Conclusion</h3> Educational offerings of EULAR and EMEUNET were well known by the young rheumatologists in Turkey. However, participation rate was not satisfactory. Majority of the respondents were unaware of the EULAR research offerings. Conducting a survey across Europe could show the main obstacles in a larger scale, thereby it helps to disseminate further offerings among young rheumatologists. <h3>REFERENCES:</h3> NIL. <h3>Acknowledgements:</h3> NIL. <h3>Disclosure of Interests</h3> None Declared.
AB1716 TREATMENT MODALITIES IN ANTI-MDA5 DERMATOMYOSITIS: A CASE SERIES FROM SOUTH INDIA
Authors: D. R. Puligari, S. C. Veeravalli
Journal: Annals of the Rheumatic Diseases (2023)

<h3>Background</h3> Anti-MDA 5 antibody – associated DM presents with rapidly progressive interstitial lung disease (RP-ILD), and is known to have poor prognosis. Early detection of ILD,given the risk of rapid deterioration and best treatment guidelines are of extreme importance due to high disease burden and mortality. As we encountered different cases of DM in our OPD at a renowned tertiary care centre in Hyderabad, India, we too had tailor-made diverse treatment regime based on patients' condition and their circumstances, and henceforth we present 10 of such cases wherein the customized treatment plan brought about significant relief in their condition. <h3>Objectives</h3> To study and report 10 cases of Anti -MDA5 ILD and treatment outcomes. <h3>Methods</h3> Among 10 patients newly diagnosed with Anti- MDA5 ILD at our hospital, 5 patients had RP-ILD, out of which 3 suffered with refractory ILD. Among the varied treatments given 2 patients required IVIG and Plasma Exchange was used as an adjunct to standard treatment in 1 refractory ILD patient as salvage therapy. All patients were followed at least for six months post management and 7 patients reported significant improvement with maximum reversal of HRCT findings. <h3>Results:</h3> <h3>Conclusion</h3> Taking into account the clinical features with which patients presented to our OPD as well as our personal experience in managing such troublesome cases, we also had to custom-make the therapeutic regimes and include different therapeutic modalities, so as to not only relieve them of their symptoms but to also ameliorate their quality of life as well as afford them with an early and sustained period of remission. <h3>References</h3> [1]Nombel A, Fabien N, Coutant F. Dermatomyositis With Anti-MDA5 Antibodies:Bioclinical Features, Pathogenesis and Emerging Therapies. Front Immunol.2021;12:773352. Published 2021 Oct 20. doi:10.3389/fimmu.2021.773352 [2]DeWane ME, Waldman R, Lu J. Dermatomyositis: Clinical features andpathogenesis. J Am Acad Dermatol. 2020;82(2):267-281.doi:10.1016/j.jaad.2019.06.1309 [3]Bolko L, Gitiaux C, Allenbach Y. Dermatomyosites Nouveaux anticorps, nouvelle classification [Dermatomyositis: new antibody, new classification]. Med Sci (Paris).2019;35 Hors série n° 2:18-23. doi:10.1051/medsci/2019178 [4]Case RA, Patel V, Mejia-Otero C, Siroy AE, Patel DC. Anti-MDA-5 Dermatomyositis With Development of Drug-Mediated Necrolytic Skin Lesions. JInvestig Med High Impact Case Rep. 2020;8:2324709620940496.doi:10.1177/2324709620940496 [5]Gupta R, Kumar S, Gow P, Hsien-Cheng Chang L, Yen L. Anti-MDA5-associateddermatomyositis. Intern Med J. 2020;50(4):484-487. doi:10.1111/imj.14789 [6]Dick M, Martin J, Tugnet N. Management of MDA-5 antibody-positive dermatomyositis with interstitial lung disease-an Auckland case series. RheumatolAdv Pract. 2021;5(1):rkab024. Published 2021 Apr 7. doi:10.1093/rap/rkab024 <h3>Acknowledgements:</h3> NIL. <h3>Disclosure of Interests</h3> None Declared.