Second International Guidelines for the Diagnosis and Management of Hereditary Hemorrhagic Telangiectasia
Authors: Marianne S. Clancy, Sara Palmer, Scott Olitsky, Claudia Crocioni, Beth Plahn
Journal: Annals of Internal Medicine (2021)

LettersJuly 2021Second International Guidelines for the Diagnosis and Management of Hereditary Hemorrhagic TelangiectasiaMarianne S. Clancy, RDH, MPA, Sara Palmer, PhD, Scott Olitsky, MD, MBA, Claudia Crocioni, Beth Plahn, RN, BA, MHAMarianne S. Clancy, RDH, MPACure HHT, Monkton, Maryland, Sara Palmer, PhDBaltimore, Maryland, Scott Olitsky, MD, MBACure HHT, Monkton, Maryland, Claudia CrocioniHHT Europe, Rome, Italy, Beth Plahn, RN, BA, MHASioux Falls, South DakotaAuthor, Article, and Disclosure Informationhttps://doi.org/10.7326/L21-0068 SectionsAboutFull TextPDF ToolsAdd to favoritesDownload CitationsTrack CitationsPermissions ShareFacebookTwitterLinkedInRedditEmail IN RESPONSE: Over 25 years of conferences, physicians and patients have reported witnessing hundreds of families whose first "symptom" of HHT is a stroke. The resources necessary to obtain a magnetic resonance imaging scan of the brain during childhood are a fraction of those incurred to treat a catastrophic stroke and its lifelong effects.The relief felt by a patient who knows they do not have a brain VM is a substantial psychological benefit. The anxiety about a known brain VM that cannot be treated is not necessarily worse than that of not knowing whether one is at risk from ... Author, Article, and Disclosure InformationAffiliations: Cure HHT, Monkton, MarylandBaltimore, MarylandCure HHT, Monkton, MarylandHHT Europe, Rome, ItalySioux Falls, South DakotaDisclosures: Disclosures can be viewed at www.acponline.org/authors/icmje/ConflictOfInterestForms.do?msNum=M20-1443. PreviousarticleNextarticle Advertisement FiguresReferencesRelatedDetailsSee AlsoSecond International Guidelines for the Diagnosis and Management of Hereditary Hemorrhagic Telangiectasia Marie E. Faughnan , Johannes J. Mager , Steven W. Hetts , Valerie A. Palda , Kelly Lang-Robertson , Elisabetta Buscarini , Erik Deslandres , Raj S. Kasthuri , Andrea Lausman , David Poetker , Felix Ratjen , Mark S. Chesnutt , Marianne Clancy , Kevin J. Whitehead , Hanny Al-Samkari , Murali Chakinala , Miles Conrad , Daniel Cortes , Claudia Crocione , Jama Darling , Els de Gussem , Carol Derksen , Sophie Dupuis-Girod , Patrick Foy , Urban Geisthoff , James R. Gossage , Adrienne Hammill , Ketil Heimdal , Katharine Henderson , Vivek N. Iyer , Anette D. Kjeldsen , Masaki Komiyama , Kevin Korenblatt , Jamie McDonald , Jack McMahon , Justin McWilliams , Mary E. Meek , Meir Mei-Zahav , Scott Olitsky , Sara Palmer , Rose Pantalone , Jay F. Piccirillo , Beth Plahn , Mary E.M. Porteous , Marco C. Post , Ivan Radovanovic , Paul J. Rochon , Josanna Rodriguez-Lopez , Carlo Sabba , Marcelo Serra , Claire Shovlin , Dennis Sprecher , Andrew J. White , Ingrid Winship , and Roberto Zarrabeitia Second International Guidelines for the Diagnosis and Management of Hereditary Hemorrhagic Telangiectasia Urban Geisthoff Second International Guidelines for the Diagnosis and Management of Hereditary Hemorrhagic Telangiectasia Marie E. Faughnan , Johannes J. Mager , Steven W. Hetts , Valerie A. Palda , and Felix Ratjen Metrics Cited byJuvenile polyposis: Focus on less described manifestations July 2021Volume 174, Issue 7Page: 1036KeywordsAnemiaBrainCase seriesChildrenComputed axial tomographyHemoglobinHemorrhageIron deficiency anemiaLiverPregnancy ePublished: 20 July 2021 Issue Published: July 2021 Copyright & PermissionsCopyright © 2021 by American College of Physicians. All Rights Reserved.PDF downloadLoading ...