SP0185 DON”T DELAY, CONNECT TODAY IN TWELVE VIDEO”S: HOW TO GET EARLY DIAGNOSIS OF RMD”S ON THE TABLE IN POLAND
Authors: Jolanta Grygielska
Journal: Annals of the Rheumatic Diseases (2019)

<h3>Background:</h3> Early diagnosis and appropriate treatment is a mile stone in future progress of rheumatic and musculoskeletal disease (RMD), especially inflammatory. We know from our experiences that delays of diagnosis are connected with knowledge and attitude of patient, of primary care physician (fast referral to rheumatologist) and with access to rheumatologist. New EULAR campaign "Don"t delay, connect today" gives an opportunity to pay attention to the problem of RMDs, increase public awareness and remind persons about responsibility for their own health. <h3>Objectives:</h3> Aim of our project was to increase public awareness about RMDs and self-awareness of patients, to present how important is a role of everybody being face to face with progressing disease. It was most important to reach to younger people believing that rheumatic diseases are typical only for older people. Lack of knowledge about RMDs and faith in myths are a first step to loose a time from first symptoms of diseases to appropriate diagnosis. The first step was translation of EULAR campaign slogan into Polish and preparing of Polish version of logo. It was done very fast after launching EULAR campaign. <h3>Methods:</h3> We have many ideas which subject are more important for people around diagnosis. We decided to start with choice of subjects and connecting them with the first letter of Polish names of months. We tried to order them in logical process: from self-awareness to the sin of neglect though subject like for example medicine, physician, medication, choice, love, return. After decision about subjects we invited speakers for every subject. There were rheumatologists from National Institute of Geriatrics, Rheumatology and Rehabilitation in Warsaw and from other rheumatological clinics in Poland, mainly co-operating with our member associations. Every invited speaker received only a subject and main message to present in his/her film. Form, place and comments were suggested by speaker and discussed with a team preparing videos. Part of films were supported with our regional member associations. Forms of videos prepared in regions were decided by associations. In two films members of associations present their opinions and experiences to give a strength for new rheumatic persons to live with RMD and avoid unnecessary health situations. One video was enriched by physical exercises presented by students of physiotherapy under supervise of rheumatologist. All videos were filmed and prepared by our member, translation was done by another our member - both are professionals on their fields and with experiences of living with RMD. It gives added value to our campaign. After that videos were posted on our channel on YouTube and information about them was shared by our websites, facebook and Twitter. We sent information by e-mail to our colleagues and supporters. We invite every viewer to subscribe our channel to have easy access to our newest films. <h3>Results:</h3> "Video for every month" is a series but every video can be used separately. Order of videos watching can be optional according to the viewer"s choice. At the same time when videos were posted one by one, project on early diagnosis of rheumatoid arthritis supported by European founds and with our partnership start in Poland. Thanks to this our message "Don"t delay, connect today" is stronger. Parallel our new project "RA - don"t resign" starts from World Arthritis Day 2018. All actions give an occasion to focus on early diagnosis and appropriate treatment of RMDs. <h3>Conclusion:</h3> Every aim can be achieve in co-operation and engagement of main players. We involve in our project members of regional associations, rheumatologists, students. During realization of other projects we used every occasion to share information about our videos. All subjects of videos are overtime. Every patient with RMD can receive new knowledge about her/his disease from reliable source everywhere and at every time in two languages versions Polish (voice) and English (subtitles). We are planning to use this form of information in next project. <h3>Disclosure of Interests:</h3> None declared