AB1447-HPR Biopsychosocial status of jia patients: perspectives of daily living activities, disease activity and family impact
Authors: E Ünal, E.D. Batu Akal, E.H. Sönmez, Z.S. Arıcı, P. Kısacık, G. Arın, N.B. Karaca, D. Aydın Haklı, R. Alpar, Y. Bilginer, S. Özen
Journal: Annals of the Rheumatic Diseases (2018)

<h3>Background</h3> Juvenile Idiopathic Arthritis (JIA) is the most frequent chronic rheumatic disease during childhood. It can result in disabilities, loss of quality of life and mood changes.<sup>1</sup> Furthermore, literature reviewing the effects of arthritis on children and family is inonsistent, with studies showing significant difference or not, compared to healthy children.<sup>2</sup> <h3>Objectives</h3> The purpose of this study is to present results regarding the functional status, psychosocial status and disease activity of children with JIA and their effects on the child's family. The second aim is to present the correlations between these parameters. <h3>Methods</h3> The study included children diagnosed with JIA who applied to Hacettepe University İhsan Doğramacı Children's Hospital Rheumatology Department. After demographic data was collected, all children were assessed with Child Health Assessment Questionnaire (CHAQ) for daily living activities, with the Juvenile Arthritis Disease Activity Score (JADAS) for disease activity and with a newly developed scale from Hacettepe University Faculty of Health Sciences Department of Physiotherapy and Rehabilitation for children with rheumatism by Edibe Ünal(<sup>3</sup> for functional and psychosocial status. Cut-off point was accepted as ≤2.7 for disease activity.<sup>4</sup> The Family Impact Scale (FIS) was used to assess perspective of parents. <h3>Results</h3> A hundred and ninety-six children were included in the study. The mean age of children was 12,44±3,97 and female/male ratio was 55,6/44,4. Although the mean JADAS score was 3,33±4,21, it only detected active disease in 81 children. There was a moderate correlation between CHAQ (Pain) and functional scores of Ünal's scale and JADAS score. CHAQ total score was well correlated with function and psychosocial scores. The correlation between FIS and other scales was very low. <h3>Conclusions</h3> Our results show that pain and function alter disease activity in children with JIA. It is seen that psychosocial states of children and their functional states expressed by their own knowledges also affect their daily life. These changes did not affect the wievpoint of the family. <h3>References</h3> [1] Spiegel L, Kristensen KD, et al. Juvenile idiopathic arthritis characteristics: Etiology and pathophysiology. <i>Seminars in</i> Orhodontics2015, 21(2); 77–83 [2] Susan T. Reisine. Arthritis and the Family. Arthritis Rheum1995, 8(4);265–271. [3]. Kısacık Pınar,Ünal Edibe, et al. Juvenil İdiyopatik Artritli Hastalarda Çok Yönlü Bir Değerlendirme SistemiOluşturulması Delphi Çalışması. 2016, Annals Of Paediatric Rheumatology. [4] Bulasovic Calasan M, De Vries LD, et al. Interpretation of the Juvenile Arthritis Disease Activity Socre: responsiveness, clinically important differences and levels of disease activity in prospective cohorts of patients wiht juvenile idiopathic arhritis. Rheumatology(Oxford)2014, 53(2); 307–312. <h3>Disclosure of Interest</h3> None declared