A descoberta 
Autor: Amanda | Publicado: 2012-12-11T02:02:00-08:00


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Após a entrada na U.T.I. geral pouco se passou e meu caso se
agravou, minha mãe recebe um telefonema apenas informando uma hemorragia alveolar
de grandes proporções no pulmão e a necessidade de intubação para ventilação
mecânica, e novamente a agonia começa.&nbsp;
Foram 18 dias nesta situação, até que é dada a noticia de que uma
traqueostomia é importantíssima no momento para evitar maiores complicações,
que felizmente foi feita com sucesso. 



A gravidade da situação era clara a todos os familiares e
amigos, e digo que poucas felicidades tive, uma delas é saber que tive amigos
ao meu lado a quem dedico todo o meu carinho, por não me abandonarem nunca, em
especial Guilherme, Fabinho, Mirella, Gustavo, Maria Alice, Irineu, Sonia, Val,
que estiveram ao meu lado, me dando forças pra reagir. 



A consequência de cargas altíssimas de medicamento e a falta
de diagnóstico rápido e suposições, levaram os médico a trabalhar inicialmente
no quadro de LES, Lúpus Eritematoso Sistêmico, consequentemente a sessões de Pulso
terapia, associada a cargas de sedativos para evitar qualquer agitação, mas
nada resolveu, a hemorragia permaneceu, chegaram as sessões de Imuno Globulina,
da mesma forma sem resultados, pois felizmente o primeiro diagnóstico estava
errado. Uma broncoscopia é solicitada com urgência, é solicitada biópsia do
pulmão como surge a notícia após quase 30 dias na U.T.I. de que um fungo havia
comprometido toda minha função pulmonar , imediatamente começaram com cargas de
Polimixina B, associada a outros antibióticos, a medicação era apenas
emergencial até a chegada o Voriconazol.



Pedidos de ajuda foram feitos de todas as formas, o
medicamento de altíssimo, estava fora de qualquer chance de compra, o convênio
não queria liberar de forma alguma, uma vez que já havia colaborado com a Imuno
que da mesma forma tem custo elevado, o desespero toma conta da equipe médica,
e de todos os meus familiares, foram necessárias algumas brigas e mais brigas
até que finalmente disponibilizam a medicação.