New Jersey Administrative Code › Title 8 - HEALTH › Chapter 20 - BIRTH DEFECTS REGISTRY › Subchapter 2 - AUTISM › Section 8:20-2.3 - Reporting requirements

Current through Register Vol. 56, No. 14, July 15, 2024
(a) A health care
				professional shall report to the Department any person, from birth through 21 years
				of age, who is a resident of the State of New Jersey and is diagnosed with autism
				based on DSM criteria, and who is not known to be previously registered.
(b) The health care professional shall send the
				report required by (a) above to the Department on the SCH-0 form available on the
				Registry website at
http://www.state.nj.us/health/fhs/sch/schr.shtml
,
				either electronically, as described on the website, or by mail to the following
				address: Special Child Health and Early Intervention Services
Early Identification and Monitoring/Autism Registry
PO Box 364
Trenton, New Jersey 08625-0364
(c) The administrative officer of every health
				care facility shall establish procedures for reporting to the Department the
				information required by (d) below for any person from birth through 21 years of age
				who is diagnosed with autism.
(d) The
				report shall be in writing on the SCH-O form and shall include the name, age,
				race/ethnicity, and address of the person with the diagnosis of autism, registration
				type, insurance information, child's birth information, diagnosis information,
				diagnostician's information and contact information for the person submitting the
				form.
(e) Pursuant to N.J.S.A.
				26:2-188c, nothing in this act shall be construed to compel a child with the
				diagnosis of autism who has been reported to submit to medical or health examination
				or supervision by the Department.
(f)
				Every health care facility and independent clinical laboratory shall allow access
				to, or provide necessary information on persons with autism for any studies
				conducted by the Department after appropriate review for assuring protection of
				human subjects by the Department's Institutional Review Board.
(g) Any agency designated by the Commissioner to
				receive autism reports shall send to the Department, in the manner prescribed in (b)
				above, any updated diagnostic and/or demographic information in writing on the SCH-O
				form.
(h) A health care professional
				shall not report to the Department the personal identifying information of a child
				diagnosed with autism if the child's parent, legal guardian or custodian objects to
				the reporting and a health care professional shall not report to the Department the
				personal identifying information of an individual through age 21 diagnosed with
				autism, if the individual through age 21 objects to the reporting.
(i) At the time of diagnosis or prior to
				submitting the report required by (b) above, the health care professional shall
				inform the parent, legal guardian, custodian or individual through age 21 of the
				right to refuse to report identifying information to the Autism Registry and shall
				provide the parent, legal guardian, custodian or individual through age 21 with a
				written statement that includes the following:
1.
				A parent, legal guardian, custodian or individual through age 21 diagnosed with
				autism who refuses to report identifying information to the Autism Registry must
				sign the statement;
2. The statement
				shall become part of the permanent medical record; and
3. When a parent, legal guardian, custodian or
				individual through age 21 diagnosed with autism refuses to provide identifying
				information, the diagnosed individual's sex, county of residence, race, ethnicity,
				month and year of birth, diagnosis and the diagnostician information shall be
				submitted to the Autism Registry.