Louisiana Administrative Code › Title 48 - PUBLIC HEALTH-GENERAL › Part I - General Administration › Subpart 3 - Licensing and Certification › Chapter 80 - Children's Respite Care Centers › Subchapter A - General Provisions › Section I-8001 - Definitions

Current through Register Vol. 50, No. 6, June 20, 2024
Activities of Daily Living (ADL's)
-the
						following functions or tasks performed either independently or with supervision
						or assistance:
1. mobility;
2. transferring;
3. walking;
4. grooming;
5. bathing;
6. dressing and undressing;
7. eating;
8. toileting.
Advance Directives
-an instruction given
						to the patient's family (see definition of family) such as a durable power of
						attorney for health care, a directive pursuant to patient self-determination
						initiatives, a living will, or an oral directive which either states a person's
						choices for medical treatment, or in the event the person is unable to make
						treatment choices, designates who shall make those decisions.
Attending/Primary Physician
-a person
						who is a doctor of medicine or osteopathy fully licensed to practice medicine
						in the state of Louisiana, who is designated by the patient as the physician
						responsible for his/her medical care.
Bereavement Services
-organized services
						provided under the supervision of a qualified professional to help the family
						cope with death related grief and loss issues. This is to be provided for at
						least one year following the death of the patient.
Branch
-a location or site from which a
						children's respite care center (CRCC) agency provides services within a portion
						of the total geographic area served by the parent agency. The branch office is
						part of the parent CRCC agency and is located within a 50-mile radius of the
						parent agency and shares administration and supervision.
Bureau
-the Bureau of Health Services
						Financing of the Department of Health and Hospitals.
Care Giver
-the person whom the patient
						designates to provide his/her emotional support and/or physical care.
Children's Respite Care Center
(CRCC)-an autonomous, centrally administered, pediatric medical respite program
						providing a continuum of home, outpatient, and homelike inpatient care for
						children living with life-limiting illnesses and their families. The CRCC
						employs an interdisciplinary team to assist in providing palliative and
						supportive care combined with curative treatment to meet the special needs
						arising out of physical, emotional, spiritual, social, and economic stresses
						experienced during life-limiting illnesses as well as during dying and
						bereavement if a cure is not attained.
Contracted Services
-services provided
						to a CRCC provider or its patients by a third party under a legally binding
						agreement that defines the roles and responsibilities of the CRCC and service
						provider.
Core Services
-medical respite program
						services, nursing services, physician services, social work services,
						counseling services, including bereavement counseling, pastoral counseling, and
						any other counseling services provided to meet the needs of the individual and
						family, and support services including trained volunteers. These services must
						be provided by employees of the CRCC, through contracted services and/or
						volunteers.
CRCC Premises
-the physical site where
						the CRCC maintains staff to perform administrative functions, maintains
						personnel records, maintains client service records, provides a homelike
						environment for inpatient respite care, and holds itself out to the public as
						being a location for receipt of client referrals.
CRCC Services
-a coordinated program of
						a continuum of care to children with life-threatening conditions, their
						families and caregivers, which allows access to palliative care while
						continuing with aggressive and curative treatment from the time of admission
						through bereavement, in the child's home, at the CRCC, and/or in medical
						facilities.
Department
-the Department of Health and
						Hospitals (DHH).
Discharge
-the point at which the
						patient's active involvement with the CRCC program is ended and the program no
						longer has active responsibility for the care of the patient.
Do Not Resuscitate Orders
-orders
						written by the patient's physician which stipulate that in the event the
						patient has a cardiac or respiratory arrest, no cardiopulmonary resuscitation
						will be initiated or carried out.
Emotional Support
-counseling provided
						to assist the individual and/or family in coping with stress, grief, and
						loss.
Employee
-an individual whom the CRCC
						pays directly for services performed on an hourly or per visit basis and the
						CRCC is required to issue a form W-2 on his/her behalf. If a contracting
						service or another agency pays the individual, and is required to issue a form
						W-2 on the individual's behalf, or the individual is self-employed, the
						individual is not considered a CRCC employee. An individual is also considered
						a CRCC employee if the individual is a volunteer under the jurisdiction of the
						CRCC.
Family
-a group of two or more
						individuals related by ties of blood, legal status, or affection who consider
						themselves a family.
Geographic Area
-the area around the
						location of a licensed agency which is within a 50-mile radius of the agency
						premises. Each CRCC must designate the geographic area in which the agency will
						provide services.
Governing Body
-the person or group of
						persons that assumes full legal responsibility for determining, implementing
						and monitoring policies governing the CRCC's total operation. The governing
						body must designate an individual who is responsible for the day-to-day
						management of the CRCC program, and must also insure that all services provided
						are consistent with accepted standards of practice. Written minutes and
						attendance of governing body meetings are to be maintained.
Home
-a person's place of
						residence.
Informed Consent
-a documented process
						in which information regarding the potential and actual benefits and risks of a
						given procedure or program of care is exchanged between provider and
						patient/family.
Inpatient Services
-care available for
						treatment, pain control, symptom management and/or respite purposes that are
						provided in a participating facility.
Interdisciplinary Team (IDT)
-an
						interdisciplinary group designated by the CRCC, composed of representatives
						from all the core services. The
IDT
must include at least a
						doctor of medicine or osteopathy, a registered nurse, a social worker, and a
						pastoral or other counselor. The
interdisciplinary team
is
						responsible for:
1. participation in the establishment of the plan of
						care;
2. provision or supervision of CRCC care and
						services;
3. periodic review and updating of the plan of care for
						each individual receiving CRCC care; and
4. establishment of policies governing the day-to-day
						provision of CRCC care and services.
License (CRCC)
-a document permitting an
						organization to provide children's respite care for a specific period of time
						under the rules and policies set forth by the state of Louisiana.
Life-Limiting Illness-
a medical
						prognosis of limited expected survival because of ailment, illness, disease, or
						misfortune including, but not limited to:
1. injury;
2. accident;
3. cancer;
4. heart disease; and
5. congenital and chronic obstructive pulmonary
						disease.
Medical Director
-a person who is a
						doctor of medicine or osteopathy, currently and legally authorized to practice
						medicine in the state of Louisiana who will:
1. serve as a consultant to the interdisciplinary
						team;
2. write orders in the event of an emergency in which the
						child's primary physician cannot be reached; and
3. attend monthly IDT meetings.
Medical Respite Care
-the temporary care
						and supervision of a child living with a life-limiting illness so that the
						primary caregiver can be relieved of such duties. Such services may be
						performed in the home of the child or in a facility owned or leased by the
						children's respite care center.
Medical Social
						Services
-includes:
1. a comprehensive psychosocial assessment;
2. ongoing support for the patient and family; and
3. assistance with coping skills, anticipatory grief, and
						grief reactions.
Non-Core Services
-services provided
						directly by the CRCC employees, under arrangement, or through referral which
						include, but are not limited to:
1. home health aide;
2. physical therapy services;
3. occupational therapy services;
4. speech-language pathology services;
5. in-patient care for pain control and symptom
						management and respite purposes; and
6. medical supplies and appliances, including drugs and
						biologicals.
Palliative Care
-the reduction or
						abatement of pain or other troubling symptoms by appropriate coordination of
						the interdisciplinary team required to achieve needed relief of
						distress.
Pastoral Services
-providing the
						availability of clergy as needed to address the patient's/family's spiritual
						needs and concerns.
Pediatric
-birth through age 20.
Plan of Care (POC)
-a written document
						established and maintained for each individual admitted to a CRCC program. Care
						provided to an individual must be in accordance with the plan. The plan
						includes an assessment of the individual's needs and identification of the
						services including the management of discomfort and symptom relief.
Representative
-a person authorized
						under state law to act on behalf of an individual.
AUTHORITY NOTE:
						Promulgated in accordance with
						R.S.
						40:2175.14(B).