Dear Rebecca:  God bless you and help you to see that you did not create this heart!  You carried this beautiful baby but God created her heart.  
My son was born with tricuspid atresia, ventricular septal defect and pulmonary stenosis.  I remember when the doctor discovered this shortly after he was born I said "OK God whatever you have in store."  
It's been one crazy ride but I wouldn't change it for a minute.  My son is now 28, he had his second open heart surgery at 22 (20 years to the day from his first surgery).  
I know that God has allowed this for a reason and I am so thankful that my son is still with us.
You are an awesome mom and please continue to stay strong for your beautiful daughter.
Sincerely,
Brenda