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Q: SECTION 1. SHORT TITLE.
This Act may be cited as the ''Johnson-O'Malley Supplemental Indian
Education Program Modernization Act''.
SEC. 2. INDIAN EDUCATION PROGRAM STUDENT COUNT UPDATE.
The Act of April 16, 1934 (25 U.S.C. 5342 et seq.) (commonly
referred to as the Johnson-O'Malley Act) is amended by adding at the
end the following:
''SEC. 7. COMPUTATION OF STUDENT COUNT.
''(a) Definitions.--For the purposes of this Act, the following
definitions apply:
''(1) Contracting party.--The term 'contracting party' means an
entity that has a contract through a program authorized under this
Act.
''(2) Eligible entity.--The term 'eligible entity' means an
entity that is eligible to apply for a contract for a supplemental
or operational support program under this Act, as outlined in
section 1.
''(3) Existing contracting party.--The term 'existing
contracting party' means a contracting party that has a contract
under this Act that is in effect on the date of enactment of the
JOM Modernization Act.
''(4) JOM modernization act.--The term 'JOM Modernization Act'
means the Johnson-O'Malley Supplemental Indian Education Program
Modernization Act.
''(5) New contracting party.--The term 'new contracting party'
means an entity that enters into a contract under this Act after
the date of enactment of the JOM Modernization Act.
''(6) Secretary.--The term 'Secretary' means the Secretary of
the Interior.
''(b) Determination of the Number of Eligible Indian Students.--
''(1) Initial determinations.--
''(A) In general.--The Secretary shall make an initial
determination of the number of eligible Indian students served
or potentially served by each eligible entity in accordance
with subparagraph (B).
''(B) Process for making the initial determination.--
''(i) Preliminary report.--Not later than 180 days
after the date of enactment of the JOM Modernization Act,
the Secretary shall publish a preliminary report describing
the number of eligible Indian students served or
potentially served by each eligible entity, using the most
applicable and accurate data (as determined by the
Secretary in consultation with eligible entities) from the
fiscal year preceding the fiscal year for which the initial
determination is to be made from--

''(I) the Bureau of the Census;
''(II) the National Center for Education
Statistics; or
''(III) the Office of Indian Education of the
Department of Education.

''(ii) Data reconciliation.--To improve the accuracy of
the preliminary report described in clause (i) prior to
publishing, the Secretary shall reconcile the data
described in the preliminary report with--

''(I) each existing contracting party's data
regarding the number of eligible Indian students served
by the existing contracting party for the fiscal year
preceding the fiscal year for which the initial
determination is made; and
''(II) identifiable tribal enrollment information.

''(iii) Comment period.--After publishing the
preliminary report under clause (i) in accordance with
clause (ii), the Secretary shall establish a 60-day comment
period to gain feedback about the preliminary report from
eligible entities, which the Secretary shall take into
consideration in preparing the final report described in
clause (iv).
''(iv) Final report.--Not later than 120 days after
concluding the consultation described in clause (iii), the
Secretary shall publish a final report on the initial
determination of the number of eligible Indian students
served or potentially served by each eligible entity,
including justification for not including any feedback
gained during such consultation, if applicable.
''(2) Subsequent academic years.--For each academic year
following the fiscal year for which an initial determination is
made under paragraph (1) to determine the number of eligible Indian
students served or potentially served by a contracting party, the
Secretary shall determine the number of eligible Indian students
served by the contracting party based on the reported eligible
Indian student count numbers identified through the reporting
process described in subsection (c).
''(c) Contracting Party Student Count Reporting Compliance.--
''(1) In general.--For each academic year following the fiscal
year for which an initial determination is made under subsection
(b) to determine the number of eligible Indian students served or
potentially served by a contracting party, the contracting party
shall submit to the Secretary a report describing the number of
eligible Indian students who were served using amounts allocated to
such party under this Act during the previous fiscal year. The
report shall also include an accounting of the amounts and purposes
for which the contract funds were expended.
''(2) Failure to comply.--A contracting party that fails to
submit a report under paragraph (1) shall receive no amounts under
this Act for the fiscal year following the academic year for which
the report should have been submitted.
''(3) Notice.--The Secretary shall provide contracting parties
with timely information relating to--
''(A) initial and final reporting deadlines; and
''(B) the consequences of failure to comply outlined in
paragraph (2).
''(4) Technical assistance.--The Secretary, acting through the
Director of the Bureau of Indian Education, shall provide technical
assistance and training on compliance with the reporting
requirements of this subsection to contracting parties.
''(d) Annual Report.--
''(1) In general.--The Secretary shall prepare an annual
report, including the most recent determination of the number of
eligible Indian students served by each contracting party,
recommendations on appropriate funding levels for the program based
on such determination, and an assessment of the contracts under
this Act that the Secretary--
''(A) may include in the budget request of the Department
of the Interior for each fiscal year;
''(B) shall submit to--
''(i) the Committee on Indian Affairs of the Senate;
''(ii) the Subcommittee on Interior, Environment, and
Related Agencies of the Committee on Appropriations of the
Senate;
''(iii) the Committee on Education and the Workforce of
the House of Representatives; and
''(iv) the Subcommittee on Interior, Environment, and
Related Agencies of the Committee on Appropriations of the
House of Representatives; and
''(C) shall make publicly available.
''(2) Manner of preparation.--The Secretary shall prepare the
report under paragraph (1) in a manner so as to prevent or minimize
new administrative burdens on contracting parties receiving funds
under this Act.
''(e) Hold Harmless.--
''(1) Initial hold harmless.--
''(A) In general.--Except as provided under subparagraph
(B) and subject to subparagraphs (C) and (D), for a fiscal
year, an existing contracting party shall not receive an amount
under this Act that is less than the amount that such existing
contracting party received under this Act for the fiscal year
preceding the date of enactment of the JOM Modernization Act.
''(B) Exceptions.--
''(i) In general.--An existing contracting party shall
receive an amount under this Act for a fiscal year that is
less than the amount that the existing contracting party
received under this Act for the fiscal year preceding the
date of enactment of the JOM Modernization Act, if one or
more of the following conditions is met:

''(I) Failure to report.--The existing contracting
party failed to submit a complete report described in
subsection (c) that was most recently due from the date
of the determination.
''(II) Violations of contract or law.--The
Secretary has found that the existing contracting party
has violated the terms of a contract entered into under
this Act or has otherwise violated Federal law.
''(III) Student count decrease.--The number of
eligible Indian students reported by such existing
contracting party under subsection (c) has decreased
below the number of eligible Indian students served by
the existing contracting party in the fiscal year
preceding the date of enactment of the JOM
Modernization Act.

''(ii) Amount of funding reduction for existing
contracting parties reporting decreased student counts.--A
reduction in an amount pursuant to clause (i)(III) shall
not be done in such a manner that the existing contracting
party receives an amount of funding per eligible Indian
student that is less than the amount of funding per
eligible Indian student such party received for the fiscal
year preceding the date of enactment of the JOM
Modernization Act.
''(C) Ratable reductions in appropriations.--If the funds
available under this Act for a fiscal year are insufficient to
pay the full amounts that all existing contracting parties are
eligible to receive under subparagraph (A) for the fiscal year,
the Secretary shall ratably reduce those amounts for the fiscal
year.
''(D) Sunset.--This paragraph shall cease to be effective 4
years after the date of enactment of the JOM Modernization Act.
''(2) Maximum decrease after 4 years.--Beginning 4 years after
the date of enactment of the JOM Modernization Act, no contracting
party shall receive for a fiscal year more than a 10 percent
decrease in funding per eligible Indian student from the previous
fiscal year.
''(f) Funding Allocation and Reform.--
''(1) Funding reform.--The Secretary may make recommendations
for legislation to increase the amount of funds available per
eligible Indian student through contracts under this Act to equal
to or greater than the amount of funds that were available per
eligible Indian student through contracts under this Act for fiscal
year 1995, and attempt to identify additional sources of funding
that do not reallocate existing funds otherwise utilized by Indian
students served--
''(A) by the Bureau of Indian Education; or
''(B) under title VI of the Elementary and Secondary
Education Act of 1965 (20 U.S.C. 7401 et seq.).
''(2) Increases in program funding.--
''(A) In general.--Subject to subsection (e) and
subparagraph (B), for any fiscal year for which the amount
appropriated to carry out this Act exceeds the amount
appropriated to carry out this Act for the preceding fiscal
year, the excess amounts shall--
''(i) be allocated only to those contracting parties
that did not receive their full per student funding
allocation for the previous fiscal year; and
''(ii) be allocated first to new contracting parties
that did not receive their full per student funding
allocation for the previous fiscal year.
''(B) Parity in funding.--Subparagraph (A) shall have no
effect after the first fiscal year for which each contracting
party receives their full per student funding allocation.
''(g) Increased Geographical and Tribal Participation in the
Johnson-O'Malley Supplementary Education Program.--To the maximum
extent practicable, the Secretary shall consult with Indian tribes and
contact State educational agencies, local educational agencies, and
Alaska Native organizations that have not previously entered into a
contract under this Act--
''(1) to determine the interest of the Indian tribes, State
educational agencies, local educational agencies, and Alaska Native
organizations, in entering into such contracts; and
''(2) to share information relating to the process for entering
into a contract under this Act.
''(h) Rulemaking.--
''(1) In general.--Not later than 1 year after the date of
enactment of the JOM Modernization Act, the Secretary, acting
through the Director of the Bureau of Indian Education, shall
undertake and complete a rulemaking process, following the
provisions of subchapter II of chapter 5 of title 5, United States
Code, to--
''(A) determine how the regulatory definition of 'eligible
Indian student' may be revised to clarify eligibility
requirements for contracting parties under this Act;
''(B) determine, as necessary, how the funding formula
described in section 273.31 of title 25, Code of Federal
Regulations (as in effect on the day before the date of
enactment of the JOM Modernization Act) may be clarified and
revised to ensure full participation of contracting parties and
provide clarity on the funding process under this Act; and
''(C) otherwise reconcile and modernize the rules to
comport with the activities of the contracting parties under
this Act as of the date of enactment of the JOM Modernization
Act.
''(2) Report.--Not later than 30 days after the date the
rulemaking under paragraph (1) is complete, the Secretary shall
submit a report to Congress describing the results of such
rulemaking and necessary recommendations to ensure the full
implementation of such rulemaking.
''(i) Student Privacy.--The Secretary shall ensure that data is
collected and each report is prepared under this section in a manner
that protects the rights of eligible Indian students in accordance with
section 444 of the General Education Provisions Act (commonly referred
to as the Family Educational Rights and Privacy Act of 1974) (20 U.S.C.
1232g).
''(j) GAO Report.--Not later than 18 months after the final report
described in subsection (b)(1)(B)(iv) is published, the Comptroller
General shall--
''(1) conduct a review of the implementation of this section
during the preceding 2-year period, including any factors
impacting--
''(A) the accuracy of the determinations of the number of
eligible Indian students under this section;
''(B) the communication between the Bureau of Indian
Education and contracting parties; and
''(C) the efforts by the Bureau of Indian Education to
ensure accurate and sufficient distribution of funding for
Indian students;
''(2) submit a report describing the results of the review
under paragraph (1) to--
''(A) the Committee on Indian Affairs of the Senate;
''(B) the Subcommittee on Interior, Environment, and
Related Agencies of the Committee on Appropriations of the
Senate;
''(C) the Subcommittee on Indian, Insular and Alaska Native
Affairs of the Committee on Natural Resources of the House of
Representatives; and
''(D) the Subcommittee on Interior, Environment, and
Related Agencies of the Committee on Appropriations of the
House of Representatives; and
''(3) make such report publicly available.
''(k) Effect.--Nothing in this section--
''(1) creates a new program or duplicates program activities
under this Act; or
''(2) replaces or diminishes the effect of regulations to carry
out this Act existing on the day before the date of enactment of
the JOM Modernization Act, unless expressly provided in this
section.''.

Speaker of the House of Representatives.

Vice President of the United States and
President of the Senate.

A: Johnson-O'Malley Supplemental Indian Education Program Modernization Act This bill requires the Department of the Interior to annually update the count of Indian students eligible for the Johnson-O'Malley Program (JOM Program). The JOM Program awards contracts to tribal organizations, schools, states, and others to support the cultural and academic needs of Indian students. The contract amounts are based on the number of students served. Contracting parties must annually report to Interior on the number of students they serve. If they fail to submit the report, then Interior may not give them program funds for the next fiscal year. The bill sets forth a process to revise funding allocations provided under the program. Interior must consult with Indian tribes and state and local education agencies that have not participated in the program to determine their interest in entering into contracts. The Bureau of Indian Education must determine how: (1) the regulatory definition of eligible student may be clarified for contracting parties, and (2) the program funding formula may be updated to ensure the full participation of contracting parties and provide clarity on the funding process.
****
Q: SECTION 1. SHORT TITLE.

This Act may be cited as the ''Medicare Home Health Rebasing Relief
and Reassessment Act''.

SEC. 2. RELIEF AND REASSESSMENT OF THE REBASING OF MEDICARE HOME HEALTH
PROSPECTIVE PAYMENT AMOUNTS.

(a) Suspension of Rebasing.--Section 1895(b)(3)(A)(iii) of the
Social Security Act (42 U.S.C. 1395fff(b)(3)(A)(iii)) is amended--
(1) in subclause (I), in the first sentence, by striking
''subclause (II)'' and inserting ''subclauses (II) and (III)'';
(2) in subclause (II), in the first sentence, by striking
''The Secretary'' and inserting ''Subject to subclause (III),
the Secretary''; and
(3) by adding at the end the following new subclause:
''(III) Special rule.--Subclauses
(I) and (II) shall not apply for the
12-month period beginning on the date
of the enactment of this subclause. For
periods beginning after the period
described in the previous sentence, the
Secretary shall apply such subclauses
as if the previous sentence had not
been enacted.''.
(b) Revision of Home Health Outlier Adjustment.--Section
1895(b)(5)(A) of the Social Security Act (42 U.S.C. 1395fff(b)(5)(A))
is amended, in the second sentence, by inserting ''(or, in the case of
each of the years 2015 through 2023, 2.25 percent)'' after ''2.5
percent''.
(c) Study and Report.--
(1) Study.--
(A) In general.--The Secretary of Health and Human
Services, in consultation with representatives of
Medicare home health agencies and beneficiaries, shall
conduct a study on alternative methods for determining
the appropriate adjustment under section
1895(b)(3)(A)(iii) of the Social Security Act (42
U.S.C. 1395(b)(3)(A)(iii)), including methods offered
by stakeholders. Such study shall include an analysis
of each of the following:
(i) The projected impact on Medicare
beneficiary access to care during each of 2014
through 2017 of applying section 1895(b)(3)
during each of such years without application
of subparagraph (A)(iii) of such section,
compared to the projected impact on such access
during each of such years of applying such
section during each of such years with
application of such subparagraph.
(ii) The number and share of home health
agencies that are projected to experience
negative Medicare margins by 2017, including
the location, size, and type of such agencies.
(iii) With respect to home health agencies
described in clause (ii)--
(I) the total number, average age,
average income, and average number of
activities of daily living of the
Medicare beneficiaries such agencies
serve;
(II) the number of staff such
agencies employ;
(III) the number and location of
counties in which such agencies serve
as the sole provider of Medicare home
health services; and
(IV) to the extent practicable, the
payer mix of such agencies.
(iv) The impact of the adjustment on small
home health agencies, as defined by the United
States Small Business Administration small
business size standards, consistent with the
principles of the Regulatory Flexibility Act,
which requires Federal agencies, including the
Department of Health and Human Services, to
fully consider during the rulemaking process
the economic impact of regulatory provisions,
as well as less burdensome regulatory
alternatives, to small entities.
(v) Any other areas determined appropriate
by the Secretary.
(B) Requirement for alternative methods and other
considerations.--For purposes of the analysis under
subparagraph (A)--
(i) the alternative methods described in
such subparagraph shall cover each of the years
in which the rebasing adjustment under such
section 1895(b)(3)(A)(iii) is to be applied;
and
(ii) the Secretary shall include a
cumulative analysis of other Medicare home
health reimbursement reductions established by
statute or regulation, consistent with the
requirements of Executive Order 13563.
(2) Report.--Not later than 6 months after the date of the
enactment of this Act, the Secretary of Health and Human
Services shall submit to Congress a report on the study
conducted under paragraph (1), together with such
recommendations as the Secretary determines appropriate based
on the findings of such study. Such report shall include--
(A) a determination by the Secretary as to whether,
as a result of the findings of such study, the
Secretary intends to use the authority under section
1871 of the Social Security Act (42 U.S.C. 1395hh) to
modify the adjustment described in paragraph (1)(A) and
the extent of any such modification; and
(B) in the case the Secretary determines not to use
such authority, the rationale for such determination.

A: Medicare Home Health Rebasing Relief and Reassessment Act - Amends title XVIII (Medicare) of the Social Security Act, with respect to the system for prospective payments for home health services, to suspend for a 12-month period a specified adjustment to (rebasing of) Medicare home health prospective payment amounts. Revises the home health outlier adjustment to equal not to exceed 2.25% (currently, 2.5%) for 2015 through 2023. Directs the Secretary of Health and Human Services (HHS) to study alternative methods for determining the appropriate adjustment for 2014 and subsequent years to the prospective payment for home health services, including methods offered by stakeholders.
****
Q: SECTION 1. SHORT TITLE.

This Act may be cited as the ''Congenital Heart Futures Act''.

SEC. 2. FINDINGS.

Congress finds the following:
(1) Congenital heart defects are the most common and most
deadly group of birth defects and affect nearly 1 percent of
all live births, approximately 36,000 births a year. A child is
born with a congenital heart defect every 15 minutes.
(2) Congenital heart disease is a rapidly growing national
health problem. Childhood survival has risen from below 20
percent in 1950 to more than 90 percent today. Due to the
increase in childhood survival, the congenital heart disease
population increases by an estimated 5 percent every year.
(3) Approximately 800,000 children and 1,000,000 adults in
the United States are now living with congenital heart disease
and require highly specialized life-long cardiac care.
(4) There is no cure for congenital heart disease. Even
survivors of successful childhood treatment can face life-long
risks from congenital heart disease, including heart failure,
rhythmic disorders, stroke, renal dysfunction, and
neurocognitive dysfunction.
(5) Less than 10 percent of adults living with complex
congenital heart disease currently receive recommended cardiac
care. Many individuals with congenital heart disease are
unaware that they require life-long specialized health
surveillance. Delays in care can result in premature death and
disability.
(6) The estimated life expectancy for those with congenital
heart disease is significantly lower than for the general
population. The life expectancy for those born with moderately
complex heart defects is 55, while the estimated life
expectancy for those born with highly complex defects is
between 35 and 40.
(7) Despite the prevalence and seriousness of the disease,
Federal research, data collection, education, and awareness
activities are limited.
(8) The strategic plan of the National Heart, Lung, and
Blood Institute completed in 2007 notes that ''successes over
several decades have enabled people with congenital heart
diseases to live beyond childhood, but too often inadequate
data are available to guide their treatment as adults''.
(9) The strategic plan for the Division of Cardiovascular
Diseases at the National Heart, Lung, and Blood Institute,
completed in 2008, set goals for congenital heart disease
research, including understanding the development and genetic
basis of congenital heart disease, improving evidence-based
care and treatment of children with congenital and acquired
pediatric heart disease, and improving evidence-based care and
treatment of adults with congenital heart disease.

SEC. 3. PUBLIC EDUCATION AND AWARENESS OF CONGENITAL HEART DISEASE.

Title III of the Public Health Service Act (42 U.S.C. 241 et seq.)
is amended by adding at the end the following:

''PART S--PROGRAMS RELATING TO CONGENITAL HEART DISEASE

''SEC. 399HH. PUBLIC EDUCATION AND AWARENESS OF CONGENITAL HEART
DISEASE.

''(a) In General.--The Secretary, acting through the Director of
the Centers for Disease Control and Prevention and in collaboration
with appropriate congenital heart disease patient organizations and
professional organizations, may, directly or through grants,
cooperative agreements, or contracts to eligible entities, conduct,
support, and promote a comprehensive public education and awareness
campaign to increase public and medical community awareness regarding
congenital heart disease, including the need for life-long treatment of
congenital heart disease survivors.
''(b) Eligibility for Grants.--To be eligible to receive a grant,
cooperative agreement, or contract under this section, an entity shall
be a State or private nonprofit entity and shall submit to the
Secretary an application at such time, in such manner, and containing
such information as the Secretary may require.''.

SEC. 4. NATIONAL CONGENITAL HEART DISEASE REGISTRY.

Title III of the Public Health Service Act (42 U.S.C. 241 et seq.),
as amended by section 3, is further amended by adding at the end the
following:

''SEC. 399II. NATIONAL CONGENITAL HEART DISEASE REGISTRY.

''(a) In General.--The Secretary, acting through the Director of
the Centers for Disease Control and Prevention, may--
''(1) enhance and expand infrastructure to track the
epidemiology of congenital heart disease and to organize such
information into a comprehensive, nationwide registry of actual
occurrences of congenital heart disease, to be known as the
'National Congenital Heart Disease Registry'; or
''(2) award a grant to one eligible entity to undertake the
activities described in paragraph (1).
''(b) Purpose.--The purpose of the Congenital Heart Disease
Registry shall be to facilitate further research into the types of
health services patients use and to identify possible areas for
educational outreach and prevention in accordance with standard
practices of the Centers for Disease Control and Prevention.
''(c) Content.--The Congenital Heart Disease Registry--
''(1) may include information concerning the incidence and
prevalence of congenital heart disease in the United States;
''(2) may be used to collect and store data on congenital
heart disease, including data concerning--
''(A) demographic factors associated with
congenital heart disease, such as age, race, ethnicity,
sex, and family history of individuals who are
diagnosed with the disease;
''(B) risk factors associated with the disease;
''(C) causation of the disease;
''(D) treatment approaches; and
''(E) outcome measures, such that analysis of the
outcome measures will allow derivation of evidence-
based best practices and guidelines for congenital
heart disease patients; and
''(3) may ensure the collection and analysis of
longitudinal data related to individuals of all ages with
congenital heart disease, including infants, young children,
adolescents, and adults of all ages, including the elderly.
''(d) Coordination With Federal, State, and Local Registries.--In
establishing the National Congenital Heart Registry, the Secretary may
identify, build upon, expand, and coordinate among existing data and
surveillance systems, surveys, registries, and other Federal public
health infrastructure, including--
''(1) State birth defects surveillance systems;
''(2) the State birth defects tracking systems of the
Centers for Disease Control and Prevention;
''(3) the Metropolitan Atlanta Congenital Defects Program;
and
''(4) the National Birth Defects Prevention Network.
''(e) Public Access.--The Congenital Heart Disease Registry shall
be made available to the public, including congenital heart disease
researchers.
''(f) Patient Privacy.--The Secretary shall ensure that the
Congenital Heart Disease Registry is maintained in a manner that
complies with the regulations promulgated under section 264 of the
Health Insurance Portability and Accountability Act of 1996.
''(g) Eligibility for Grant.--To be eligible to receive a grant
under subsection (a)(2), an entity shall--
''(1) be a public or private nonprofit entity with
specialized experience in congenital heart disease; and
''(2) submit to the Secretary an application at such time,
in such manner, and containing such information as the
Secretary may require.''.

SEC. 5. ADVISORY COMMITTEE ON CONGENITAL HEART DISEASE.

Title III of the Public Health Service Act (42 U.S.C. 241 et seq.),
as amended by section 4, is further amended by adding at the end the
following:

''SEC. 399JJ. ADVISORY COMMITTEE ON CONGENITAL HEART DISEASE.

''(a) Establishment.--The Secretary, acting through the Director of
the Centers for Disease Control and Prevention, may establish an
advisory committee, to be known as the 'Advisory Committee on
Congenital Heart Disease' (referred to in this section as the 'Advisory
Committee').
''(b) Membership.--The members of the Advisory Committee may be
appointed by the Secretary, acting through the Centers for Disease
Control and Prevention, and shall include--
''(1) at least one representative from--
''(A) the National Institutes of Health;
''(B) the Centers for Disease Control and
Prevention; and
''(C) a national patient advocacy organization with
experience advocating on behalf of patients living with
congenital heart disease;
''(2) at least one epidemiologist who has experience
working with data registries;
''(3) clinicians, including--
''(A) at least one with experience diagnosing or
treating congenital heart disease; and
''(B) at least one with experience using medical
data registries; and
''(4) at least one publicly or privately funded researcher
with experience researching congenital heart disease.
''(c) Duties.--The Advisory Committee may review information and
make recommendations to the Secretary concerning--
''(1) the development and maintenance of the National
Congenital Heart Disease Registry established under section
399II;
''(2) the type of data to be collected and stored in the
National Congenital Heart Disease Registry;
''(3) the manner in which such data is to be collected;
''(4) the use and availability of such data, including
guidelines for such use; and
''(5) other matters, as the Secretary determines to be
appropriate.
''(d) Report.--Not later than 180 days after the date on which the
Advisory Committee is established and annually thereafter, the Advisory
Committee shall submit a report to the Secretary concerning the
information described in subsection (c), including recommendations with
respect to the results of the Advisory Committee's review of such
information.''.

SEC. 6. CONGENITAL HEART DISEASE RESEARCH.

Subpart 2 of part C of title IV of the Public Health Service Act
(42 U.S.C. 285b et seq.) is amended by adding at the end the following:

''SEC. 425. CONGENITAL HEART DISEASE.

''(a) In General.--The Director of the Institute may expand,
intensify, and coordinate research and related activities of the
Institute with respect to congenital heart disease, which may include
congenital heart disease research with respect to--
''(1) causation of congenital heart disease, including
genetic causes;
''(2) long-term outcomes in individuals with congenital
heart disease, including infants, children, teenagers, adults,
and elderly individuals;
''(3) diagnosis, treatment, and prevention;
''(4) studies using longitudinal data and retrospective
analysis to identify effective treatments and outcomes for
individuals with congenital heart disease; and
''(5) identifying barriers to life-long care for
individuals with congenital heart disease.
''(b) Coordination of Research Activities.--The Director of the
Institute may coordinate research efforts related to congenital heart
disease among multiple research institutions and may develop research
networks.
''(c) Minority and Medically Underserved Communities.--In carrying
out the activities described in this section, the Director of the
Institute shall consider the application of such research and other
activities to minority and medically underserved communities.''.

SEC. 7. AUTHORIZATION OF APPROPRIATIONS.

There are authorized to be appropriated to carry out the amendments
made by this Act such sums as may be necessary for each of fiscal years
2010 through 2014.

A:
Congenital Heart Futures Act - Amends the Public Health Service Act to authorize the Secretary of Health and Human Services (HHS), acting through the Director of the Centers for Disease Control and Prevention (CDC) in collaboration with appropriate congenital heart disease patient organizations and professional organizations, to conduct, support, and promote a comprehensive public education campaign to increase awareness regarding congenital heart disease, including the need for lifelong treatment.

Authorizes the Secretary to: (1) award a grant to one entity to enhance and expand infrastructure to track the epidemiology of congenital heart disease and to organize such information into a comprehensive National Congenital Heart Disease Registry with the purpose of facilitating research into the types of health services patients use and identifying possible areas for educational outreach and prevention; and (2) establish an Advisory Committee on Congenital Heart Disease.

Authorizes the Director of the National Heart, Lung, and Blood Institute to expand, intensify, and coordinate research and related activities of the Institute regarding congenital heart disease.
****