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. Goals are easiest to achieve when they are specific, measurable, attainable, relevant, and time-bound (SMART). Setting goals that are too vaguely defined or overly ambitious can lead to frustration for you and your child. For example, instead of setting a goal like "Katie will learn to walk," try something like "Let's talk to Katie's physical therapist about trying that 14-week power training program, and see if that improves her mobility." It's important that kids with CP feel empowered and involved in their own treatment and development. Talk to your child about what goals they want to achieve for themselves, and work with them and their care team to develop strategies for attaining those goals. Help your child formulate goals by asking them questions and encouraging them to talk about areas of their life that are important to them (e.g., socializing, sports, or play). For example, you might ask your child, "What's something new you'd like to try at school this year?" As you work toward your goals together, keep track of how your child is doing. Make note of any major successes or setbacks, and discuss them in meetings with members of your child's care team. If your child is struggling to meet a particular goal, talk about the possibility of trying a different approach. Sometimes, it may be necessary to revise your goals or adjust your expectations. Brainstorm with your child's care team, and discuss new approaches to the problem. If your child is old enough, involve them in discussions with their care team. They may be able to provide important insights into what works for them and what doesn't. . Your child may struggle to meet their goals, or it may take them longer to accomplish a particular goal than you anticipated. You and your child may both become frustrated along the way, and that's okit's perfectly normal. Stop what you are doing and take a break, if you need to. Always praise your child for working toward a goal, even if they don't have much success at first. Let them know that you are always there for them and want to support them in any way you can. Setbacks and challenges are an inevitable part of working toward any goal. Help your child deal with their feelings of disappointment, frustration and stress by: Observing your child's moods and noticing when they are experiencing stress or negative emotions related to difficulty meeting their goals. Encouraging your child to talk about how they are feeling, and recognizing their feelings without judgment. Listening actively to your child and validating their feelings. You might say something like, "It sounds like you feel really frustrated right now. It's okay to feel that way. I'm proud of you for trying so hard." Offering positive touch (such as hugs, high-fives, or pats on the back), when your child wants it. Acknowledging your child's progress and achievements can help them feel empowered and increase their sense of well-being. Focus your praise on the effort your child is putting in toward achieving a goal, rather than on the end result. This will encourage them to keep working toward their goals and pushing their boundaries. For example, you might say, "Wow, you're getting better and better at using your crutches! All that work you've been putting in is really paying off!" Helping a child with CP can be challenging and stressful. If you find yourself getting overwhelmed, reach out to friends and family for help and support. Ask your child's doctor to recommend a support group for parents of kids with cerebral palsy. If you are really struggling emotionally, or if you need practical advice on time management and coping skills, consider seeing a therapist.
Make your goals SMART Ask you child to set their own goals. Work with your child's care team to assess their progress. Be patient Help your child cope with setbacks and disappointments. Celebrate your child's progress. Turn to your support network when you need extra help.