Resolve, to Direct the
Maine Legislature, Session 132, LD 1540
Committee Amendment CA_A_S394 (Senate)

COMMITTEE AMENDMENT" 
,, to S.P. 624, L.D. 1540, "Resolve, to Direct the 
Department of Health and Human Services, Office of MaineCare Services to Create the 
Complex Care Assistant Training Program,, 
Amend the resolve by striking out the title and substituting the following: 
'Resolve, Directing the Maine Developmental Disabilities Council to Examine the 
Unmet Needs of Children Who Need Skilled Medical Care' 
Amend the resolve by striking out all of the emergency preamble. 
Amend the resolve by striking out everything after the title and inserting the following: 
'Sec. 1. Maine Developmental Disabilities Council to convene work group 
to examine needs of families of children who need skilled medical care. 
Resolved: That the Maine Developmental Disabilities Council, established by the Maine 
Revised Statutes, Title 5, section 12004-1, subsection 66, referred to in this resolve as "the 
council," shall convene a work group, referred to in this resolve as "the work group,
to 
examine the unmet needs of children in the State who need skilled medical care and 
families of those children. Working in partnership with the children and youth with special 
health care needs program within the Depattment of Health and Human Services, Maine 
Center for Disease Control and Prevention, the work group shall: 
l. Determine the number of children in the State with special health care needs who 
requfre skilled nursing; 
2. Determine the nmnbe1· of children with special health care needs under department 
rule Chapter 101: MaineCare Benefits Manual, Chapters II and III, Section 40 and Section 
who are: 
A. Eligible for skilled medical suppo1t; 
B. Currently receiving services; 
C. Receiving a different number of hours of services per week compa1·ed to the number 
to which the children are entitled and what the difference is; 
Page I - 132LR1416(02) 
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"10 S.P. 624, L.D. 1s4o{SJqq) 
D. On waiting lists for services in each county; and 
E. On more than one waiting list under pal'agraph D and how many; 
3. Recommend a method to collect data systematically for any data components in 
subsection 2 that are not available; 
4. Identify the variety of unmet needs fo1· children with special health care needs and 
families of those children and develop recommendations so that those children are able to 
get their needs met; 
5. Identify the best method to compensate families with children who need skilled 
medical care who are unable to find appropriate professionals to provide care resulting in 
parents providing services themselves; 
6. Consider benefits and disadvantages to amending Depa1t111ent of Health and Human 
Services rule Chapter 101: MaineCare Benefits Manual, Chapters II and III, Section 40 or 
Section 96, developing a federal waiver for children with complex medical needs or a 
combination of these strategies or other methods; and 
7. Develop recommendations to ensure that medical assessments are conducted on 
children who need them through existing or expanded services or funding streams. 
Sec. 2. Work group membership. Resolved: That the work group convened 
pursuant to section 1 must include, but is not limited to, members appointed by the council 
as follows: 
1. A representative from the child1·en and youth with special health care needs progrnm 
within the Department of Health and Human Services, Maine Center for Disease Control 
and Prevention; 
2. A rnpresentative from the Depattment of Health and Human Services, Maine Center 
for Disease Control and Prevention, Division of Public Health Nmsing; 
3. A representative from the Department of Health and Human Services, Office of 
MaineCare Services with expe11ise in the early and periodic screening, diagnostic treatment 
program; 
4. Two parents or guardians of children who require complex medical care; 
5. A representative of an agency providing home health services; 
6. A representative of an agency providing private duty nursing services; 
7. A physician, physician
1s assistant 01· nurse practitioner who takes care of pediatric 
patients with complex medical needs; 
8. A representative from children's behavioral health services within the Depa1tment 
of Health and Human Services; 
9. A representative from the State Board of Nursing; and 
10. A representative from the council. 
Sec. 3. Convening of work group; staffing assistance; funding. Resolved: 
That the council shall provide the necessary resources to organize and support the work of 
the work group convened pursuant to this resolve, including convening and providing any 
necessary staffing services for the work group. 
COMMITTEE AMENDMENT 
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COMMl'l1'EB AMENDMENT •:A- " to S, P. 624, L.D. !540 ( s, .3 "} ~ 
Sec. 4. Repol't, Resolved: That the council shall submit a report, no later than 
Janua1y 31, 2026, that includes a summaiy of the findings of the work group along with 
recommendations and any suggested legislation to the Joint Standing Committee on Health 
and Human Services, The committee shall review the findings and recommendations of 
the repo1t and may report out legislation to implement recommendations related to the 
repmt in the Second Regular Session of the 132nd Legislature.'. 
Amend the resolve by striking out all of the emergency clause. 
Amend the resolve by relettering or renumbering any nonconsecutive Part letter or 
section number to read consecutively. 
SUMMARY 
This amendment replaces the resolve, changes the title and removes the emergency 
preamble and emergency clause, The amendment requires the Maine Developmental 
Disabilities Council to convene a work gl'Oup to examine the unmet needs of children who 
require skilled medical care and families of those children. The council must submit a 
report to the Joint Standing Committee on Health and Human Services no later than Janua1y 
31, 2026. The committee is authol'ized to repott out legislation related to the report to the 
FISCAL NOTE REQUIRED 
(See attached) 
COMMITTEE AMENDMENT 
Approved: 06/01/25 l-Rl-
LD 1540 
LR 1416(02) 
Resolve, to Direct the Department of Health and Human Services, Office of lVIaineCare Services to 
C1·eate the Complex Care Assistant Training Program 
Fiscal Note for Bill as Amended by Committee Amendment ,~, ls,., 3 q~ 
Committee: Health and Human Services 
J 
Fiscal Note Required: Yes 
Fiscal Note 
Minor cost increase - General Fund 
Minor cost increase - Other Special Revenue Funds 
Fiscal Detail and Notes 
Any additional ·costs to the Maine Developmental Disabilities Council to convene a work group and report back I 
e 
legislature are. expected to be minor and can be absorbed within existing budgeted resources. 
Any additional costs to the Department of Health and Human Services and the Maine Board ofNUl'sing to serve on the 
work group are expected to be minor and can be absorbed within existing budgeted resources. 
LRl 416(02) ~ Fiscal Note~ Page l of 1