 In Your Area Contact us Prader-Willi syndrome What is Prader-Willi syndrome? Prader-Willi syndrome is a very rare genetic condition affecting approximately 2000¹ adults in the UK. It is caused by a defect of chromosome 15 and affects the brain in a number of ways. This has a significant impact on the mental, physical and behavioural well-being of people with Prader-Willi syndrome. It can lead to the development of a variety of complex needs including learning disabilities, physical symptoms and behavioural problems. Normally diagnosed shortly after birth, it is most commonly associated with an excessive appetite and overeating, weight gain, a lack of muscle tone and delayed growth. There is no cure for Prader-Willi syndrome. How we support people with Prader-Willi syndrome A person living with Prader-Willi syndrome can still lead a healthy, fulfilling life when they have consistent support from people who understand the condition. As part of our dedication to providing tailored care and support for each person living with the syndrome, we have developed our Prader-Willi syndrome specialism. This includes a Prader-Willi syndrome professionals group, who drive continuous improvement in this area. We also provide specific Prader-Willi syndrome training for our staff teams. Our staff work to the highest standards of best practice, recognising that every person with the condition has their own unique qualities, interests and challenges. To learn more about how we support people with Prader-Willi syndrome, visit our dedicated webpage. We are also proud to have recently become Gold members of the PWSA. Commitment to quality We pride ourselves on providing great quality care for the people we support and as part of this, we ensure that all managers and staff are kept up to date with ongoing standards for the delivery of care via our internal quality mark which our care homes and community support hubs will work towards gaining. Our Care Quality Commission ratings are sector-leading, with 94% of our locations, including our Prader-Willi specialism services, rated as either Good or Oustanding². This is much higher than the national average. To find out more about our commitment to quality, visit our dedicated webpage. ¹ Figure taken from PWSA. ² Data correct as of June 2021 How we support people with Prader-Willi syndrome How we train our staff to support you The Voyage Care Prader-Willi syndrome professionals group Enquire about Prader-Willi syndrome support Find out where we can support you Choose a location + 10 Miles + 20 Miles + 50 Miles Choose your needs Select an option Autism Brain injury non-rehabilitation Brain injury rehabilitation Children's services Learning disabilities Mental health Prader-Willi syndrome Huntington's Disease How to access support Select an option Support Living / Community Day opportunities Nurse-led homecare Nursing care home Respite care Residential care home More search options > Residential care home Brain injury service Specialist service Community support Children's service Group of services If you need further advice, call our friendly enquiry line on 0800 035 3776 or email referrals@voyagecare.com More success stories View all success stories > Make An Enquiry   Key pages Home In Your Area Paying an invoice About Voyage Care Stories News & Info Jobs Jargon Buster Information for Investors Supporting you Autism support Brain injury Huntington’s disease Prader-Willi syndrome Transition Specialist behavioural support Learning disabilities Brain injury non-rehab Children’s complex care Where to live Care Homes Day opportunities Nursing care homes Respite care Supported living Support to live at home Nurse-led home care Our approach Commitment to quality How to make an enquiry Case management Positive behavioural support Personal budgets & direct payments COVID-19 resource area Contact us Web accessibility Terms of use Privacy and cookies Cookie declaration Modern slavery statement Ⓒ 2021 Voyage Care