Our Dream Big campaign runs until 7 December - click here to donate! PRIVACY NOTICE What is the purpose of this document? SCI Foundation (SCIF) is a registered UK charity. SCIF is committed to protecting the privacy and security of your personal information. This privacy notice describes how we collect and use personal information about you during and after your relationship with us, in accordance with the applicable data protection legislation (including the Data Protection Act 2018 and the General Data Protection Regulations, referred to as the “GDPR”). SCIF is a "data controller". This means that we are responsible for deciding how we hold and use personal information about you. We are required under data protection legislation to notify you of the information contained in this privacy notice. This notice applies to members of the public who donate to SCIF. This notice does not form part of any contract of employment or other contract to provide services. We may update this notice at any time. It is important that you read this notice, together with any other privacy notice we may provide on specific occasions when we are collecting or processing personal information about you, so that you are aware of how and why we are using such information. Data protection principles We will comply with data protection law. This says that the personal information we hold about you must be: Used lawfully, fairly and in a transparent way. Collected only for valid purposes that we have clearly explained to you and not used in any way that is incompatible with those purposes. Relevant to the purposes we have told you about and limited only to those purposes. Accurate and kept up to date. Kept only as long as necessary for the purposes we have told you about. Kept securely. The kind of information we hold about you Personal data, or personal information, means any information about an individual from which that person can be identified. It does not include data where the identity has been removed (anonymous data). There are “special categories” of more sensitive personal data which require a higher level of protection. We may collect, store, and use the following categories of personal information about you: Contact and communications information, such as: Your contact details Your communication preferences Records of communications and interactions we have had with you Biographical information, such as: Your name, gender, nationality and date of birth Your family and partner/spousal details Your professional activities and employment, including work contact details Information you have publicly shared on social media Financial information, such as: Your donation history, including gift amount, purpose, date, method of payment, cheque numbers or other payment references Your bank account number, name and sort code (used for processing Direct Debits) Tax status and Gift Aid declaration information Details of financial transactions e.g. event tickets purchased Our assessment of your ability and willingness to make donations, including considerations of income Donations to other organisations Please note that we do not collect or store any credit/debit card details in our database, if you have used these in transactions with SCIF. How is your personal information collected? We collect most of the personal information about you through information you provide with your donation, and/or mailing lists subscriptions. How we will use information about you and the legal basis for processing your data under the GDPR We will only use your personal information when the law allows us to. Most commonly, we will use your personal information in the following circumstances: Where we need to perform the contract we have entered into with you or in order to take steps at your request prior to the entry into a contract.* Where we need to comply with a legal obligation.** Where it is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in us.*** Where it is necessary for our legitimate interests (or those of a third party) and your interests and fundamental rights do not override those interests.**** Where it is necessary in order to protect your vital interests or someone else’s vital interests.***** Where you have consented to the processing.****** In the next section we have indicated by [asterisks] the purpose or purposes for which we are processing or will process your personal information Situations in which we will use your personal information We need all the categories of information in the list above (see ‘The Kind of information we hold about you') primarily to allow us to perform our contract with you[*], as part of a process in providing you a service which you have requested[******] and to enable us to comply with legal obligations[**]. In some cases we may use your personal information to pursue legitimate interests of ours, provided your interests and fundamental rights do not override those interests. The situations in which we will process your personal information are listed below. This data is used by SCIF to support a full range of activities for and in relation to our supporters. These include: Providing you with information about our work and our activities. This might include sending you publications, e-newsletters, invitations to events and details of fundraising opportunities**** Conducting surveys, focus groups and other research**** Internal record keeping, including the management of any feedback or complaints****** Administrative purposes e.g. regarding a donation you have made or an event you have registered for or attended* Furthering our charitable objectives, including to help us raise money or by asking you to donate money to SCIF**** Transfer to HM Revenue and Customs in respect of any Gift Aid claims** Wealth screening, profiling and research to gain a better understanding of our supporters, inform our fundraising strategy and target our communications more effectively and appropriately**** To send you our newsletter or information about the work of SCIF, see ‘Mailing list’ below****** Mailing list SCIF provide emails about stories, events, fundraising activities, and newsletters. The below information explains how we use your personal data when you sign up to our mailing list. Why we process your information If you opt-in to receiving emails, we will ask for your: first and last name email address Our legal basis for processing your personal data for the purposes of sending you emails is based on your consent - by consenting to receiving emails you are giving us permission to process your personal data specifically for the purpose of sending you emails. You may withdraw consent at any time by clicking unsubscribe on any email or by asking to be removed from the mailing list by emailing info@schisto.org.uk. Some of the above grounds for processing will overlap and there may be several grounds which justify our use of your personal information. If you fail to provide personal information If you fail to provide certain information when requested, we will not be able to contact you to keep you up-dated on our work or perform the contract we have entered into with you. We will however inform you when such actions will occur. Change of purpose We will only use your personal information for the purposes for which we collected it, unless we reasonably consider that we need to use it for another reason and that reason is compatible with the original purpose. If we need to use your personal information for an unrelated purpose, we will notify you and we will explain the legal basis which allows us to do so. Please note that we may process your personal information without your knowledge or consent, in compliance with the above rules, where this is required or permitted by law Our obligations Research, profiling and ‘wealth screening’ To ensure that our communications are relevant to you and your interests and to assess your likely ability to make, and interest in making, donations to SCIF, we may use additional information such as geographical information and measures of affluence where available from external sources to assist us. This will be a combination of publicly available information, for example drawn from company resources and news media, with what you have provided to us, such as past donations and career information. We may use the services of external screening/profiling companies, and publicly available data from social media sites like LinkedIn, Facebook and Twitter, depending on your privacy settings and/or interaction with us. This may be carried out by automated or manual processes and enables us to better understand you as our supporter and make appropriate requests for support. A list of publicly available sources of information used by SCIF for the purposes detailed is available on request. If you do not wish SCIF to undertake this activity, please email info@schisto.org.uk Please note however that before seeking or accepting major donations we are required to conduct a minimum level of due diligence, including reviewing publicly available personal data relating to criminal convictions and offences. Due diligence is conducted in accordance with the SCIF Fundraising Policy and Counter Fraud, Anti-Bribery and Anti-corruption Policy. Data sharing We may have to share your data with third parties, including third-party service providers. We require third parties to respect the security of your data and to treat it in accordance with the law. We may transfer your personal information outside the EU. If we do, you can expect a similar degree of protection in respect of your personal information. Why might you share my personal information with third parties? We may share your personal information with third parties where required by law, where it is necessary to administer the relationship with you or where we have another legitimate interest in doing so. Which third-party service providers process my personal information? "Third parties" includes third-party service providers (including contractors and designated agents). The following activities are carried out by third-party service providers: Torchbox Limited who take care of our digital marketing, Bluefrog Fundraising who handle our postal marketing, MailChimp (whose legal name is The Rocket Science Group LLC) who provide tools that assist us with email distribution to our subscribers, and Raiser’s Edge, a fundraising and relationship management solution. Except as explained above, we will not share your information with anyone, unless where required by law, where it is necessary to administer our relationship with you or where we have another legitimate interest in doing so. How secure is my information with third-party service providers and other entities in our group? All our third-party service providers are required to take appropriate security measures to protect your personal information in line with our policies. We do not allow our third-party service providers to use your personal data for their own purposes. We only permit them to process your personal data for specified purposes and in accordance with our instructions. What about other third parties? We may share your personal information with other third parties, for example in the context of the possible sale or restructuring of the business and operations of SCIF. We may also need to share your personal information with a regulator or to otherwise comply with the law. Data security We have put in place measures to protect the security of your information. Third parties will only process your personal information on our instructions and where they have agreed to treat the information confidentially and to keep it secure. We have put in place appropriate security measures to prevent your personal information from being accidentally lost, used or accessed in an unauthorised way, altered or disclosed. In addition, we limit access to your personal information to those employees, agents, contractors and other third parties who have a business need to know. They will only process your personal information on our instructions and they are subject to a duty of confidentiality. We have put in place procedures to deal with any suspected data security breach and will notify you and any applicable regulator of a suspected breach where we are legally required to do so. Data retention How long will you use my information for? We will only retain your personal information for as long as necessary to fulfil the purposes we collected it for, including for the purposes of satisfying any legal, accounting, or reporting requirements. Details of retention periods for different records the SCI holds are available in our Data Processing Policy. To determine the appropriate retention period for personal data, we consider the amount, nature, and sensitivity of the personal data, the potential risk of harm from unauthorised use or disclosure of your personal data, the purposes for which we process your personal data and whether we can achieve those purposes through other means, and the applicable legal requirements. In this case, we expect to retain your personal information for 6 years. In some circumstances we may anonymise your personal information so that it can no longer be associated with you, in which case we may use such information without further notice to you. Rights of access, correction, erasure, and restriction Your duty to inform us of changes It is important that the personal information we hold about you is accurate and current. Please keep us informed if your personal information changes during your relationship with us. Your rights in connection with personal information Under certain circumstances, by law you have the right to: Request access to your personal information (commonly known as a “data subject access request”). This enables you to receive a copy of the personal information we hold about you and to check that we are lawfully processing it. Request correction of the personal information that we hold about you. This enables you to have any incomplete or inaccurate information we hold about you corrected. Request erasure of your personal information. This enables you to ask us to delete or remove personal information where there is no good reason for us continuing to process it. You also have the right to ask us to delete or remove your personal information where you have exercised your right to object to processing (see below). Object to processing of your personal information where we are relying on a legitimate interest (or those of a third party) and there is something about your particular situation which makes you want to object to processing on this ground. You also have the right to object where we are processing your personal information for direct marketing purposes. Request the restriction of processing of your personal information. This enables you to ask us to suspend the processing of personal information about you, for example if you want us to establish its accuracy or the reason for processing it. Request the transfer of your personal information to another party. If you want to review, verify, correct or request erasure of your personal information, object to the processing of your personal data, or request that we transfer a copy of your personal information to another party, please contact the SCIF Data Protection Officer in writing. No fee usually required You will not have to pay a fee to access your personal information (or to exercise any of the other rights). However, we may charge a reasonable fee if your request for access is clearly unfounded or excessive. Alternatively, we may refuse to comply with the request in such circumstances. What we may need from you We may need to request specific information from you to help us confirm your identity and ensure your right to access the information (or to exercise any of your other rights). This is another appropriate security measure to ensure that personal information is not disclosed to any person who has no right to receive it. Right to withdraw consent In the limited circumstances where you may have provided your consent to the collection, processing and transfer of your personal information for a specific purpose, you have the right to withdraw your consent for that specific processing at any time. To withdraw your consent, please contact the SCIF Data Protection Officer. Once we have received notification that you have withdrawn your consent, we will no longer process your information for the purpose or purposes you originally agreed to, unless we have another legitimate basis for doing so in law. Data Protection Officer We have appointed a Data Protection Officer to oversee compliance with this privacy notice. If you have any questions about this privacy notice or how we handle your personal information, please contact the Data Protection Officer at: SCI Foundation Data Protection Officer Edinburgh House 170 Kennington Lane London SE11 5DP email: dpo@schisto.org.uk You have the right to make a complaint at any time to the Information Commissioner's Office (ICO), the UK supervisory authority for data protection issues. Changes to this privacy notice We reserve the right to update this privacy notice at any time, and we will provide you with a new privacy notice when we make any substantial updates. We may also notify you in other ways from time to time about the processing of your personal information. Cookies Cookies are small pieces of data that are used to optimise your browsing experience. Below is a list of the types of cookies we use on our site. Functional and required cookies These are necessary for the website to function correctly when you navigate the site and make certain requests, such as filling in forms. You can set your browser to block or alert you about these types of cookies, but some parts of the site will not work. These cookies don’t store any personally identifiable information. Cookie name Duration Purpose Crumb Session Prevents cross-site request forgery (CSRF). CSRF is an attack vector that tricks a browser into taking unwanted action in an application when someone’s logged in. RecentRedirect 30 minutes Prevents redirect loops if a site has custom URL redirects. CART 2 weeks Shows when a visitor adds a product to their cart hasCart 2 weeks Indicates that the visitor has a cart. Locked Session Prevents the password-protected screen from displaying if a visitor enters the correct site-wide password. SiteUserInfo 3 years Identifies a visitor who logs into a customer account SiteUserSecureAuthToken 3 years Authenticates a visitor who logs into a customer account Commerce-checkout-state Session Stores state of checkout while the visitor is completing their order. squarespace-popup-overlay Persistent Prevents the Promotional Pop-Up from displaying if a visitor dismisses it squarespace-announcement-bar Persistent Prevents the Announcement Bar from displaying if a visitor dismisses it Test Session Investigates if the browser supports cookies and prevents errors. Analytics and performance cookies These cookies collect information about how you interact with our site and count visits and traffic sources. They enable us to measure and improve the performance of our site and help us identify which pages are the most and least popular. This data is completely anonymous but you can disable these cookies. Cookie name Duration Purpose _ga 2 years Used to distinguish users. _gid 24 hours Used to distinguish users. _gat 1 minute Used to throttle request rate. AMP_TOKEN 30 seconds to 1 year Used to retrieve a Client ID from AMP Client ID service. gac 90 days Contains campaign related information for the user. utma 2 years Used by Google Analytics to identifying unique visitors. utmt 10 minutes Used to throttle request rate. utmb 30 minutes Used by Google Analytics to determine visitor session. utmc Session Used by Google Analytics to determine visitor session. utmz 6 months Used by Google Analytics to track traffic sources and navigation. utmv 2 years Used to store visitor-level custom variable data. ss_cid 2 years Identifies unique visitors and tracks a visitor’s sessions on a site. ss_cvr 2 years Identifies unique visitors and tracks a visitor’s sessions on a site. ss_cvisit 30 minutes Identifies unique visitors and tracks a visitor’s sessions on a site. ss_cvt 30 minutes Identifies unique visitors and tracks a visitor’s sessions on a site. ss_cpvisit 2 years Identifies unique visitors and tracks a visitor’s sessions on a site. ss_cookieAllowed 30 days Remembers if a visitor agreed to placing Analytics cookies on their browser if a site is restricting the placement of cookies. Targeting and marketing cookies These may be set through our site by our advertising partners, such as Facebook Pixel and Google Analytics. We use data from Google’s Remarketing and Advertising Reporting features to collect interest and demographics-based advertising or third-party audience data (such as age, gender and interests) to inform our marketing strategy. This data and the cookies active on our site are used to deliver ads relevant to you in and outside of our site and measure the effectiveness of social media advertising. They also limit the number of times that you see an ad and help us measure the effectiveness of our marketing campaigns. It's never our intention to spam you, just to provide you with content we think you'd like to see. They do not store any personally identifiable information and expire after 90 days. You can turn off all these cookies at any time. This can be done through the settings of your browser. If you do, you may notice that the site doesn’t work as well and you may not be able to use every service. To opt out of any Google Analytics features used on this site, you can use Google Analytics’ opt-out tool. DONATE NEWS JOBS SIGN UP TO OUR MAILING LIST Follow us: Contact us Jobs Join our mailing list Safeguarding Privacy Policy Media Centre SCI Foundation is recommended by: SCI Foundation is a charity registered in England & Wales SCI Foundation, Edinburgh House, 170 Kennington Lane, London, SE11 5DP | Registered company number 11775313 | Registered charity number 1182166 © SCI Foundation 2021 We’ve placed functionality cookies on your device to help our website run effectively. By clicking OK, you agree to our use of cookies. See our Privacy Policy for full info and how to disable these cookies through your browser settings. If you don’t click OK, we’ll restrict the use of analytics cookies. OK