MENU Ce site utilise des cookies pour Google Analytics. En continuant à naviguer, vous nous autorisez à déposer un cookie à des fins de mesure d'audience. Accepter En savoir plus Search ... WELCOME TO THE CYSTIC FIBROSIS-CFTR NETWORK SITE Last Updated: 07 August 2019 The field of expertise of the Cystic Fibrosis-CFTR Network covers cystic fibrosis and all of the disorders related to a CFTR (cystic fibrosis transmembrane conductance regulator) protein abnormality not considered within the typical forms of cystic fibrosis (CFTR-related disorders and CFTR Metabolic Syndrome). The network comprises a number of actors: rare disease reference centers (centre de référence maladie rare, CRMR), cystic fibrosis resource and skills centers (centres de ressources et de compétences de la mucoviscidose, CRCM), laboratories, etc. For further information on its organization, missions, and action plan, the Cystic Fibrosis-CFTR network explains everything. If you are a healthcare professional or researcher, you may be interested in the education page (with a presentation on the cystic fibrosis days: scientific days and French-language days), therapy education, research, and documentation. You can download the Cystic Fibrosis-CFTR Network in PDF format. USEFUL LINKS French CF Association Facebook Twitter IN PRACTICE Events Search Contact SUBSCRIBE TO OUR NEWSLETTER Filière MUCO-CFTR - Hôpital Femme – Mère – Enfant - 59 Boulevard Pinel 69677 Bron Cedex - FRANCE - Tél : 04 27 85 62 57 (C) 2021 CYSTIC FIBROSIS-CFTR NETWORK

Aller au contenu principal Aller au menu principal ESPACE MEMBRES QUI SOMMES-NOUS ? PRESSE EN Who are we ? Vaincre la Mucoviscidose association Created in 1965, Vaincre la Mucoviscidose has been officially recognized public interest organization since 1978. It is authorised to receive bequests, donations and life insurances and is approved to represent users. Demand, expertise, and volunteering • The board of directors is mainly comprised of parents and patients waiting for concrete results, as well as physicians, researchers and supporters, all of whom are volunteers. The demand for results and expertise are at the heart of our organisation. • Paid professionals implement actions aimed at the association's 4 missions (to heal, provide care, improve the quality of life and increase awareness). They rely on a network of committed volunteers all over France. • Vaincre la Mucoviscidose has 30 regional delegations run by volunteers. There are therefore more than 5,000 people mobilised throughout the year across France, and up to 30,000 on the Virades de l’espoir yearly event. Je COLLECTE Je COLLECTE Je deviens BÉNÉVOLE Je deviens ADHÉRENT ACCÉDER DIRECTEMENT AU SITE