Who we are Our history Shire around the world News from Shire Therapeutic areas Products Patient Support Home Therapy Psychological support Social responsability Working in Shire Contact us Print Share on Twitter Home therapy Gaucher disease, Fabry disease and Hunter syndrome are rare diseases, with a chronic, progressive and degenerative course: they are all diseases caused by lysosomal accumulation and even if they are very different from each other from a clinical point of view, they require a similar treatment, enzyme replacement therapy (ERT), which supplies the patient with the missing enzyme. In Gaucher and Fabry diseases, the enzyme is administered every two weeks, while young patients with Hunter Syndrome must have ERT every week, performing an intravenous infusion that can last up to 4 hours. In Italy, the first free home administration service of enzyme replacement therapies was born in 2008 thanks to the initiative of Shire that launched the ert @ home project , which took shape the following year with the fabry @ home service , for patients suffering from Fabry disease. ; in 2010, home support is extended to patients with Gaucher disease, thanks to gaucher @ home . Finally, since 2012, even young patients with Hunter Syndrome can take advantage of home therapy with the launch of the hunter @ home service . The care model offered by Shire is built around the needs of the patient and offers care with levels of safety similar to hospital treatment but characterized by a personalized approach. Patients are treated at home, in close collaboration with the Clinical Center of reference, by the highly qualified staff of Caregiving Italia , a company specialized in the design and management of out-of-hospital therapeutic services. The staff employed (doctors and nurses) periodically follow refresher courses and all activities are provided in compliance with the ISO 9001 Quality System and in full compliance with the Privacy legislation. The advantages Very often the need to reach the Centers and hospitals to carry out the therapy involves costs and inconveniences that further burden the already difficult condition of patients and their families. Home therapy overcomes these drawbacks, ensuring home delivery of the drug and giving patients and their families the opportunity to: avoid the inconvenience of traveling, with less loss of days of work or study and a saving of time and money; treat yourself at home at your preferred times and days while respecting adherence to therapy; take advantage of personalized support with dedicated resources; maintain safe assistance through defined protocols and specialized personnel; improve their quality of life. L'home care offerta da ert@home genera una serie di vantaggi anche per i Centri Clinici, in termini di: migliore compliance terapeutica; azzeramento dei costi legati alle infusioni; ottimizzazione dell'utilizzo delle risorse ospedaliere; focalizzazione delle risorse specialistiche al follow-up di malattia. Per ulteriori informazioni: http://www.caregiving.it/it/servizi/fabry-home http://www.caregiving.it/it/servizi/gaucher-home http://www.caregiving.it/it/servizi/hunter-home © 2021 Shire Italia S.p.A. Sede in Piazza della Repubblica, 6 – Firenze Cap. Soc. € 795.870,00 P. IVA 05104850481 C.F. 00643730419 R.E.A. 518825 (FI) Contattaci | Privacy | Termini di utilizzo Questo sito web è destinato all'uso da parte di persone residenti in Italia. Sito aggiornato il 17 Giugno 2014