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Home Insights ICON Webinar Channel ICON Webinar Channel Rare Disease Registries: Practical Ways to Build Trust with Patient Advocacy Groups With the right planning and understanding, collaboration between drug development companies and patient advocacy groups (PAGs) can be mutually beneficial in a number of key areas. Play Video Rare Disease Registries: Practical Ways to Build Trust with Patient Advocacy Groups 1:02:03 With the right planning and understanding, collaboration between drug development companies and patient advocacy groups (PAGs) can be mutually beneficial in a number of key areas. View More SHARE Share on Facebook Tweet this video Share on LinkedIn Share via Email RELATED VIDEOS In Therapeutic Webinars Play video Panel discussion - Setting the roadmap for optimizing cancer clinical trials Panel discussion - Setting the roadmap for optimizing cancer clinical trials 59:59 Play video The changing face of cell and gene therapy Impacts on planning and executing trials The changing face of cell and gene therapy Impacts on planning and executing trials 32:11 Play video Webinar: Rare diseases: Natural history studies for drug development Webinar: Rare diseases: Natural history studies for drug development 1:00:36 Play video The importance of early planning in cell & gene therapy commercialization The importance of early planning in cell & gene therapy commercialization 1:01:11 Play video Reflections on paediatric assent: Have we outgrown this concept? Reflections on paediatric assent: Have we outgrown this concept? 1:02:52 Play video Implementing novel development strategies for cell & gene therapy clinical trials Implementing novel development strategies for cell & gene therapy clinical trials 1:00:47 Contact About ICON Results & Reports For Clients Therapeutics Services Insights Innovation Content Preferences ICON For Investigators Volunteers Investors Jobs & Careers Suppliers News & Events Press Releases Mediakit Events Social Media Dashboard Coronavirus Observatory LinkedIn Twitter Facebook Youtube © 2018 ICON plc Disclaimer Privacy Site Cookies