FIND US Donate Now! Search Form LEARN LIVING WITH EPILEPSY MAKE A DIFFERENCE CONNECT ABOUT US You Are Here About Us / The Epilepsy Learning Healthcare System (ELHS) The Epilepsy Learning Healthcare System (ELHS) About Us Learning Healthcare System What is a Learning Healthcare System (LHS)? Who Makes Up the Epilepsy LHS? The ELHS Community Research and the Epilepsy Learning Health System Network Growth & Publications QI Science Leadership Consortium Advocacy Research and New Therapies Our Programs Find Your Local Epilepsy Foundation About the Foundation Careers Our Impact EPILEPSY LEARNING HEALTHCARE SYSTEM NEWSLETTER Check out the latest ELHS Newsletters: January 2021 November 2020 September 2020 July 2020 June 2020 May 2020 April 2020 March 2020 February 2020 January 2020 December 2019 November 2019 October 2019 September 2019 August 2019 GET THE NEWS! Join our mailing list to stay to date about programs, events, and news about epilepsy. SUBMIT Imagine building a learning health system in which all people – family and community members, clinicians, researchers and health system leaders - work together. They design, implement, and share the results of collaborative research and quality improvement efforts. And this work leads to better health outcomes and increased quality, experience, and value in care. A learning health system approach can dramatically accelerate the ability to generate new knowledge and put it into practice. In 2018, the Epilepsy Foundation was awarded a PCORNet Learning Health System Network Pilot Collaborative grant to establish an Epilepsy Learning Healthcare System. Learn more about the ELHS Read the news release ELHS Vision Our vision is for all people with epilepsy to live their highest quality of life, striving for freedom from seizures and side effects, and we won’t stop until we get there. ELHS Mission Our mission is to design and implement a system of co-production that will improve outcomes for people with epilepsy and their families/caregivers in the following specific ways: Improve quality of life Improve seizure control Improve seizure freedom Co-production means that patients, families and health care professionals work together towards similar ends. Patients and families are part of the whole process. “We want to change healthcare and research for the better, for all people with epilepsy.” ELHS Leadership The Epilepsy Learning Healthcare System central leadership team is composed of: Brandy Fureman, PhD, ELHS Network Coordinating Center Lead Kathleen Farrell, MB BCh BAO, ELHS Program Director Susan Herman, MD, ELHS Clinical Core Lead Jeffrey Buchhalter, MD, PhD, Quality Improvement Lead Alison Kukla, MPH, ELHS Program Manager and ELHS Community Core Lead Lidia Moura, MD, ELHS Data Core Co-Lead Nick Abend, MD, ELHS Data Core Co-Lead Deepika Dass, MPH, ELHS Data Analyst M. Andrea Donahue, MD, ELHS Data Program Manager Join Us Learn more about the ELHS Community Core Find Your Local Epilepsy Foundation on 08/2018 Reviewed By: Kathleen Farrell MB, BCh, BAO Alison Kukla MPH on Thursday, January 28, 2021 Our Mission The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives. Follow Us 3540 Crain Highway, Suite 675, Bowie, MD 20716 | 1.800.332.1000 LEARN COVID-19 and Epilepsy About Epilepsy: The Basics Types of Seizures Types of Epilepsy Syndromes Epilepsy Due to Specific Causes Triggers of Seizures Diagnosis Treating Seizures and Epilepsy Managing Your Epilepsy Developmental and Epileptic Encephalopathy LIVING WITH EPILEPSY Our Training and Education Healthy Living Driving and Transportation Independent Living Legal Help EF My Seizure Diary Toolbox Epilepsy and ... Schools and Seizure Preparedness Seizure First Aid and Safety MAKE A DIFFERENCE Join our Grassroots Advocacy Walk to END EPILEPSY® Care and Cure Institute: END EPILEPSY in Children Get Involved eJourney Ways to Give Online Store Merchandise Online Store Educational Materials GIVE 26 to END EPILEPSY Public Awareness CONNECT Get Social! 24/7 Helpline Community Forums Seizure and Epilepsy News Contact Us Find an Epilepsy Specialist Find a Clinical Trial Epilepsy Foundation Terms of Use Privacy Policy ABOUT US Advocacy Research and New Therapies Our Programs Learning Healthcare System Find Your Local Epilepsy Foundation About the Foundation Careers Our Impact Copyright © 2020. Epilepsy Foundation of America®, d/b/a Epilepsy Foundation®, is a non-profit organization with a 501(c)(3) tax-exempt status. All rights reserved. P Get the Latest Epilepsy News * Submit