Rare Acromegaly affects approximately 50 to 70 people per million. It is estimated that 3 to 11 people out of every million develop acromegaly each year. Because symptoms often develop slowly, diagnosis may be delayed by years or decades, making it difficult to determine the total number of people with the disease.1 Metabolic In 98% of all reported cases, acromegaly is caused by an adenoma (i.e., benign tumour) of the pituitary gland that secretes excessive growth hormone (GH).2 Serious Serious health conditions are associated with the progression of acromegaly, including type 2 diabetes, hypertension, cardiac disorders, arthritis and bowel polyps which can progress into bowel cancer if left untreated.3 Treatable Treated through surgery, radiation and injectable or oral medication. In some instances acromegaly is curable.3 References 1. National Organisation for Rare Disorders (NORD). Acromegaly. Available at: https://rarediseases.org/rare-diseases/acromegaly/#:~:text=Acromegaly%20is%20a%20rare%20disorder%20that%20affects%20males%20and%20females,develop%20the%20disorder%20each%20year. Last accessed July 2021 2. Acromegaly Support. What causes acromegaly? Available at: https://acromegalysupport.com/what-causes-acromegaly/ Last accessed July 2021 3. NHS. Acromegaly. Available at: https://www.nhs.uk/conditions/acromegaly/. Last accessed July 2021 AMYT/ALL/005 August 2021 We transform the lives of people affected by rare, debilitating conditions by providing innovative medicines that bring hope to those in greatest need. Privacy policy | Terms and Conditions Cookie policy | Fraud warning Accessibility | Sitemap Website Last updated: 04/08/2021 | Copyright © 2021 Amryt Pharma plc We use cookies on our website to give you the most relevant experience by remembering your preferences and repeat visits. By clicking “Accept All”, you consent to the use of ALL the cookies. However, you may visit "Cookie Settings" to provide a controlled consent. Cookie Settings Accept All