MENU DONATE Featured Personal Stories Each family who is on this journey or has finished this journey has learned a great deal, often with much frustration and effort. Caregivers or family members often draw satisfaction by sharing their stories. Contact Us To Share Your Story Patricia Richardson Laurence Richardson, war hero, corporate executive and late-in-life musician, was another tragic victim of PSP. His daughter Patricia Richardson, well-known actress of stage and screen, tells his moving story. Read Patricia’S Story Kathryn Leigh Scott Geoff Miller, founding editor of Los Angeles Magazine, the first city magazine, and lover of jazz, good beer and the good life, passed away after a battle with PSP. Here his wife, actress and author Kathryn Leigh Scott, tells their story. Read Kathryn’S Story Mary Lou Burhoe Mary Lou Burhoe, wife of CurePSP Board Chair Emeritus John Burhoe, passed away from PSP after almost 45 years of marriage. Here, her husband tells the moving story of their life together and the poignant last years of their patient journey. Read Mary Lou'S Story Samuel Feldman Samuel Feldman was an attorney, golfer, husband, and most importantly, a father. Debra Feldman tells the story of her family’s “new normal” after her husband PSP diagnosis and the ways her loved ones worked to stay connected with Samuel during his last years. Read Debra'S Story Carroll Brent Suzanne Brent was the first to notice that something was wrong with her father Carroll Brent. Here she tells the story of the difficult journey their family went on, from misdiagnoses to failed treatments, that eventually concluded with PSP. Read Suzanne'S Story Mary Richard Jean-Paul Richard tells his wife Mary’s story and reflects back to figure out when the symptoms of her CBD started. From a change in speech to sudden falls, things that seemed innocuous individually all add up to this diagnosis. Read Jean-Paul'S Story More Personal Stories Eileen Nixon Read Eileen'S Story Jackie Myers Read Jackies Story Bob Pitt Read Bob'S Story Doug Tannenbaum Read Doug'S Story Bernice Gunderman Read Bernice'S Story John R. Hays Read John'S Story Caleb Blanton Read Caleb'S Story Shakeela Subramany Read Shakeela'S Story Millard Bachman Read Millard'S Story Truman Poole Read Truman'S Story Ming Chi Read Ming'S Story Jon Bolstad Read Jon'S Story Herbert Levin Read Herbert'S Story Gail Butler Read Gail'S Story Pat Adams Read Pat'S Story Ginny Mueller Read Ginny'S Story Robert Chiappini Read Robert'S Story Richard Straub Read Richard'S Story Nancy Tate Read Nancy'S Story George Oravits Read George'S Story Sandra Nentwig Read Sandra'S Story Ali Clagett Read Ali'S Story Karen Bordo Read Karen'S Story Sandra Magnus Read Sandra'S Story Ilene Veltman Read Ilene'S Story Ken Jennings Read Ken'S Story Ed Chidakel Read Ed'S Story Susan's Story Read Susan'S Story Al Wissink Read Al'S Story Dorothy MacDonald Read Dorothy'S Story Leslie Riopel Read Leslie'S Story Rita Grabinski Read Rita'S Story Marlene Knutson Read Marlene'S Story Colette Bednarczyk Read Colette'S Story Ajit Shukla Read Ajit'S Story Linda Henry Read Linda'S Story See Our Full Network Of Support Choose Topic 1216 Broadway 2nd Floor New York, NY 10001 Toll-Free: 800-457-4777 Phone: 347-294-2873 (CURE) Fax: 410-785-7009 Email: info@curepsp.org ©2021 CurePSP, Inc., unless attribution otherwise noted. CurePSP, Unlocking the Secrets of Brain Disease, and Because Hope Matters are registered trademarks of CurePSP, Inc. Join Our Mailing List