Want better care? Make your voice heard! Take part today Donate Now Home > About Us > Our publications > Losing Myself Losing Myself: The Reality of Life with a Brain Tumour At The Brain Tumour Charity we are only too aware that a brain tumour diagnosis has a dramatic impact on the quality of life of those affected. Until now, we have been unable to quantify those impacts. We commissioned research to find out what life was really like for adults living with a brain tumour diagnosis. 1,004 people completed a comprehensive survey, 15 people were selected to take part in face to face interviews and 25 were asked to keep on-line diaries over 7 days.This is the most comprehensive study of its kind globally and the results are compelling. 9 out of 10 people said their tumour had affected their emotional or mental health. 1 in 2 experience memory problems. 1 in 2 people experience financial difficulty. The research has provided the evidence to illustrate what we have been hearing first hand from those affected and has led to 'Defeating Brain Tumours' our five year strategic Plan. Download Losing Myself - PDF This report outlines the daily struggles faced by the majority of those affected and contains statistical information and accounts of daily life that some people may find distressing. In this section I struggle to work Tasmin is a single mother of three children, and lives in Cheshire. She was diagnosed with a meningioma in 2013 and underwent a craniotomy. She is a midwife but has struggled with work and finances since the onset of her tumour. Recommended reading Our Strategy Our Research Strategy Need help? Whether you've been diagnosed with a brain tumour, or a family member or friend has, we are here to help. Call 0808 800 0004 Donate Now Sign up to our newsletter We promise to keep your data safe and you can unsubscribe at any time in the future. More information is in our Privacy Policy. Subscribe The Brain Tumour Charity on Facebook The Brain Tumour Charity on Twitter The Brain Tumour Charity on YouTube The Brain Tumour Charity on Pinterest The Brain Tumour Charity on Instagram © The Brain Tumour Charity 2021 Registered Charity no. 1150054 (England and Wales) SC045081 (Scotland) Company no. 08266522 Privacy Policy | Contact Us | Sitemap