Become a member Home About us Vision and mission » Our team Our mum's panel Jobs Our corporate supporters GDUK network Genetic disorders database Grant programme Newsroom Fundraising Get involved Make a donation Become a member Contact us About genetic disorders For parents of affected children For affected adults For support groups & charities FREEPHONE 0800 987 8987 VISION AND MISSION Our vision Our vision is to improve the lives of individuals and families affected by genetic disorders. Our mission Our mission is to be the leading source of information and support for individuals and families affected by genetic disorders in the UK. We will achieve this by: Providing individuals and families with the knowledge they need to feel armed and ready to face the challenges ahead of them Enabling disorder-specific support groups and charities to access best practise, funding and services to ensure they are able to support their families the best they can Bringing together individuals, families and disorder-specific support groups and charities so that those affected by a genetic disorder feel part of a wider community of support Ensuring a greater public understanding of genetic disorders so that those affected by them feel less isolated by their peers Our guiding principles We live genetic disorders on a daily basis and are informed by our personal experiences We believe that while every genetic disorder is different, the challenges that we face as individuals and families affected by genetic disorders are the same We know that by harnessing our collective experience, we can create a much stronger and more effective support network for all of us SHARE THIS PAGE Tweet BECOME A MEMBER Receive news of our activities and the people we're helping GRANT PROGRAMME Funding for support groups and charities JEANS FOR GENES DAY Wear your Jeans on Friday 18th September 2015 ABOUT US Vision and mission Our team Our mum's panel Jobs Our corporate supporters GDUK NETWORK 48XXYY Syndrome Blepharophimosis Ptosis Epicanthus Inversus Syndrome (BPES) Peters Plus syndrome Rhizomelic Chondrodysplasia Punctata (RCDP) WELCOME TO THE GENETIC DISORDERS DATABASE Genetic disorders database GRANT PROGRAMME Grants from Jeans for Genes Day 2014 Previous grant recipients Our 2014 grant panel Grants for families NEWSROOM Our news Genetic disorders in the news Genetic disorders on TV and radio The Sun Real life stories in the news Blogs FUNDRAISING Running challenges Cycling challenges Trekking challenges Other challenges Fundraising tools and downloads Special events GET INVOLVED MAKE A DONATION Make a donation online Donate by post Make a regular donation Gift Aid ABOUT GENETIC DISORDERS Films about genetic disorders Basic terms Patterns of inheritance Glossary Genetic testing FOR PARENTS OF AFFECTED CHILDREN Newly diagnosed Living with a genetic disorder Managing healthcare Benefits, grants and other funding Support available locally Education Working families Handy Resources FOR AFFECTED ADULTS FOR SUPPORT GROUPS AND CHARITIES How to write a 'Best Practice' guide Events CONTACT US REGISTER Site map | Accessibility | Terms of use | Privacy statement | Cookie policy © 2014 Genetic Disorders UK. All rights reserved. Registered charity number 1141583.