Home About Us Get Involved Patient information Contact us Home About Us How we work with others Pan Berkshire Child Death Overview Panel Bereavement Support Bereavement Support Child Death Reviews The death of a child is always tragic, and leaves families with a sense of shock, devastation and loss. If you have experienced the loss of a child in your family, then we understand that talking and thinking about this will be a sensitive and painful subject. All child deaths must be reviewed by local Child Death Overview Panels. The main purpose is to improve support to bereaved families and to try and prevent future deaths. The Lullaby Trust has produced a booklet for parents and carers of any child that has died to explain the review process. The loss of a child: The loss of a child is one of the most difficult things that can happen. If you are a parent or family member who has experienced the loss of a child then there is no right or wrong way for you to feel. People grieve in different ways and at different rates, and in some cases you might find that it is difficult to support each other through this sad and difficult time. There are a number of different organisations that can provide additional help and support, some of which are listed below. The loss of a sibling: It can be difficult to know how to talk to children about the death of a sibling, for fear of upsetting them further. However, avoiding talking can leave children with further fears and anxieties. Being honest and including children as much as is possible (bearing in mind their age) is often helpful. For example children may want the opportunity to say goodbye to their sibling or to be involved with funeral plans. You should not be afraid to show your feelings to your children. There are a number of helpful books, for children of all ages, which look at the loss of a sibling. Your local library or bookshop will be able to provide some advice if you want to choose a book that is suitable for your family. There are also a number of support services for children dealing with the loss of a sibling, some of which are listed below. Daisy’s Dream supports children and their families who have been affected by the life threatening illness or bereavement of someone close to them. Their Helpline is 0118 934 2604. Further information can also obtained be from their website: www.daisysdream.org.uk The Lullaby Trust: Provides information, support, guidance and signposting for bereaved families. They have produced a series of booklets that help explain the complex thoughts and feelings of grief, as well as the practicalities of an infant bereavement. Their Helpline staff can post these to you, or you can download them from their website Helpline: 0808 802 6868. Website: www.lullabytrust.org.uk The Child Death Helpline: A free, confidential helpline for anyone affected by the death of a child. The helpline is staffed by volunteer parents who have also experienced the loss of a child. Helpline: 0800 282986 or 0808 800 6019 if calling from a mobile. BLISS: Provides support for parents of babies in Special or Intensive Care Units, as well as for bereaved parents. Helpline: 0500 618140 Website: www.bliss.org.uk The Child Bereavement Charity: Provides specialised support, information and training to all those affected when a baby or child dies, or when a child is bereaved. Support and information line: 0800 02 888 40 Website www.childbereavement.org.uk Childhood Bereavement Network: Provides information and signposting around child bereavement for parents, children and young people, families, and other caregivers. Website: www.childhoodbereavementnetwork.org.uk Stillbirth and Neonatal Death Society (SANDS): Provides support for bereaved parents when their baby dies at, or soon after, birth. Helpline: 020 7436 5881 Website: www.sands.org.uk Winston’s Wish: Offers practical support and guidance to families, professionals and anyone concerned about a grieving child, as well as telephone help and advice for bereaved children and siblings. Helpline: 0845 203 0405 Website: www.winstonswish.org.uk About Us Who we are Our Responsibilities How we work with others Berkshire West Integrated Care Partnership (ICP) Health and Wellbeing Boards BOB Integrated Care System (ICS) Voluntary Sector Partnerships The Local Transformation Plan Berkshire Transforming Care Programme Berkshire West Multi-Agency Safeguarding Arrangements Pan Berkshire Child Death Overview Panel New CDOP Arrangements - June 2019 About Joint Agency Response – About CDOP Membership/Terms of Reference Reporting a child death via eCDOP Pan Berkshire CDOP Data & Newsletters Bereavement Support News & events Key Worker Primary Care Our Public Meetings Publications & Policies If you need medical help and are unsure what to do, call NHS 111 for help and advice. They are available 24 hours a day. 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