UNDERSTANDING EB ABOUT PROGRAMS & SERVICES FAMILY CENTER TAKE ACTION EVENTS DONATE #ItWontHurtToWatch ATTEND AN EVENT The 18th Annual debra of America Benefit October 24, 2016 The 18th Annual debra of America Benefit will be held on Monday, October 24 from 6:00pm to 10:00 pm at Gotham Hall in New York City. Click here for more details on this evening of honors and celebrations. The debra Care Conference The 2016 debra Care Conference (formerly the PCC) was held just outside Dallas at the Gaylord Texan Resort & Convention Center in Grapevine, Texas from July 24-27, 2016. Thank you to the 550 people who attended, including our speakers, sponsors, and volunteers who helped make the event possible. Find an Event Near You GET INVOLVED E-News Sign Up Our E-News shares important updates, family stories, recent news and research articles, details on local awareness events around the country, promotions on our special merchandise, and information on debra of America events. Click here to sign up for E-News from debra of America. Read our EB, etc. Blog Active Clinical Trials SUPPORT EB Make a Donation Today Your support improves the quality of life for thousands living with EB; it helps us provide free bandages to EB patients, through one of our many programs, and allows us to fund groundbreaking research – research that is already pointing towards a cure! Click here to support debra of America and make an impact among the EB Community today! Start Fundraising Now Visit Our Shop Epidermolysis Bullosa (EB) is a rare genetic connective tissue disorder in which children do not produce a vital protein to allow their skin to adhere to itself. 1 out of every 20,000 births in the United States are affected by the disease. Children with EB are often referred to as "Butterfly Children" because their skin is extremely fragile and can blister or tear from any friction. Internal organs can also be seriously affected by the disease. EB is painful, often debilitating, and is in some cases lethal. There is no treatment or cure. Daily wound care, pain management, and protective bandaging are the only options available. Click to learn more. ABOUT LEARN MORE STAY UPDATED 75 Broad Street, Suite 300 New York, NY 10004 About debra of America Contact Us Privacy Policy What is EB Take Action Programs & Services New Families Events © Copyright 2016, Debra of America (Dystrophic Epidermolysis Bullosa Research Association of America), All Rights Reserved | Debra of America is a registered 501(c)(3) tax exempt organization. | All Trademarks and Brands are Property of Their Respective Owners. Debra does not endorse any drugs, tests, or treatments that we may report. This website is for informational purposes, always check with your physician before adopting any medical treatment. | CFC#: 11990