Search Main navigation Intro to CF Managing CF Research & Clinical Trials Support Community Blog News GET INVOLVED DONATE Blog CF Community Blog The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives -- the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story. FEATURED Making Tough Decisions To Keep Our Daughter Safe Having to isolate from our loved ones after the birth of our first child -- right as the COVID-19 outbreak hit our community -- was doubly difficult, but with a little education, our support network came through for us. Trista Escobedo Oct. 21, 2021 | 9 min read LEARN MORE More community posts Search All topics Social Life and Relationships Parents & Guardians Emotional Wellness Get Involved Lung Transplantation Diagnosis Care Team Advocacy Fundraising School CFTR Modulators About the CF Foundation Coronavirus (COVID-19) Adult Care North American CF Conference Nutrition Fitness Clinical Trials Fertility and Reproductive Health Hospitalization Infection Prevention and Control Teen Care CF Related Health Conditions Insurance Our Research Approach Research Traveling with CF Workplace Caring for a Child With CF Drug Pipeline In Memoriam Care Centers Medications Family Planning & Parenting Clinician Resources Our Advocacy Work Germs Great Strides Patient Registry Working with Your Child's School Researcher Resources Airway Clearance Infant Care In the Spotlight Patient Assistance Choosing Coverage Cystic Fibrosis Foundation Therapeutics (CFFT) Therapeutics Development Network Antibiotics Genetics Health Care Reform Treatment Plan Clinical Care Guidelines BLOG Children With CF and COVID-19 As a community, we are very good at masking and keeping a safe distance to reduce risk from germs. And just like we have highly effective therapies to treat CF, we now have highly effective vaccines to protect our kids from COVID-19. Lael Yonker, MD Nov. 18, 2021 | 5 min read BLOG How Finding Other Mothers to Share the Good and Bad of CF Helped Me Being a parent to a child with cystic fibrosis is hard. You need to hear from someone else in your shoes that it’s OK to grieve for the life you thought you were going to have with your child. Kelsey Scott Nov. 17, 2021 | 7 min read BLOG After a Lung Infection and a Pandemic, I Finally Ran the Boston Marathon I’ve been a runner for most of my life. After having to drop out of three previous marathons because of my CF, I was finally ready to run this year’s Boston Marathon. Katie O'Grady Nov. 15, 2021 | 6 min read BLOG Coping With Comparisons on Social Media When You Have CF When I scroll through my social media accounts, it’s hard not to compare myself to other people and feel like I could have accomplished so much more had it not been for my cystic fibrosis. Instead of getting depressed, I now rely on therapy, positive affirmations, and being kind to myself to preserve my mental health Lauren Vignola Nov. 12, 2021 | 5 min read BLOG Expanding Treatment Options for Everyone Who Has CF I was pleased to see that the third plenary session at the North American Cystic Fibrosis Conference included patient stories that reflected the diverse experiences of those with cystic fibrosis. I also like that it focused on the need for bold action to help those who can't benefit from modulators and centered on the full ecology of treatment innovations that can benefit every person with CF. Alexandra “Xan” Nowakowski Nov. 5, 2021 | 7 min read BLOG Expanding the Scientific Frontier to the Next Generation of Therapies After watching the second plenary of the 2021 North American Cystic Fibrosis Conference, I was incredibly impressed by the level of support the Cystic Fibrosis Foundation is providing to the development of the next generation of therapeutics. Developing genetic therapies -- especially those as complex as gene editing -- will take a long time and a lot of collaboration. Art Brace Nov. 4, 2021 | 7 min read LOAD MORE POSTS Footer LIFE WITH CF CF COMMUNITY FOR PROFESSIONALS ABOUT US HELP Sign up for The Foundation's newsletter SIGN UP Facebook Twitter Youtube Instagram Contact Footer legal Privacy Email Opt Out Terms of Use Disclosures Jump back to top