WE CAN'T FIND YOUR CONTENT. We recommend that you perform a search or return to the home page. TO RESEARCH IN THE SPOTLIGHT 24/11/21 AAP FMR / AFM Telethon: “Proof of innovative therapeutic concepts” Letter of intent in English before 12/22/21 before 5 p.m. (Paris time) Drepa31: Aging with sickle cell anemia 11/19/21 5th MCGRE Association Day - November 26, 2026 11/17/21 HAS - Call for user applications 10/26/21 New inter-sector booklet ALL THE NEWS AGENDA 03 DEC 2021 SICKLE CELL DISEASE AND EDUCATION 06-08 DEC 2021 28th PEDIADOL DAYS - CHILD'S PAIN 06-07 JAN 2022 Francophone Days of Blood Diseases 01-04 FEB 2022 Human and Medical Genetics Conference ALL EVENTS Legal Notice Sitemap Axeptio consents

LIVING WITH A RARE DISEASE Discover the animated infographic set up by the rare diseases health sectors and Rare Diseases Info Services. This infographic provides clear information as well as access to useful resources in the face of the many issues raised by rare diseases. It is divided into several categories: to be treated in hospital to be treated in town live with your disability continue schooling to lead his professional life know the host and support institutions get around by transport evolve on a daily basis accompany a sick person as a caregiver The animated infographic website LA PLACE DES AIDANTS Qu’est-ce qu’un aidant ?, vidéo réalisée par la filière MCGRE, l’AP-HP Paris et Centre, et l’Inserm, mai 2021 RESSOURCES SUPPLÉMENTAIRES Vivre avec une maladie rare en France- Aides et prestations, Les Cahiers d’Orphanet, Série Politique de santé, décembre 2020 Comment faire une demande à la MDPH ?, CNSA, 2019 Guide interactif du parcours avec une maladie rare, Alliance maladies rares Le site de Maladies Rares Info Services À LA UNE 24/11/21 AAP FMR/AFM Téléthon : « Preuves de concepts thérapeutiques innovants » Lettre d’intention en anglais avant le 22/12/21 avant 17h (heure de Paris) Drepa31: Vieillir avec la drépanocytose 19/11/21 5th MCGRE Association Day - November 26, 2026 11/17/21 HAS - Call for user applications 10/26/21 New inter-sector booklet ALL THE NEWS AGENDA 03 DEC 2021 SICKLE CELL DISEASE AND EDUCATION 06-08 DEC 2021 28th PEDIADOL DAYS - CHILD'S PAIN 06-07 JAN 2022 Francophone Days of Blood Diseases 01-04 FEB 2022 Human and Medical Genetics Conference ALL EVENTS Legal Notice Sitemap Axeptio consents