UNDERSTANDING EB ABOUT PROGRAMS & SERVICES FAMILY CENTER TAKE ACTION EVENTS DONATE #ItWontHurtToWatch ATTEND AN EVENT 20th debra of America Benefit The 20th Annual debra of America Benefit will take place on Thursday, October 25 at Guastavino's. Stay tuned for more exciting details! The debra Care Conference The 2018 debra Care Conference was held at the Sheraton Grand at Wild Horse Pass: A Phoenix Family Resort in Chandler, AZ from July 22-25, 2018. Thank you to the 650 people who attended, including our speakers, sponsors, and volunteers who helped make the event possible. Join TEAM DEBRA in Events Across the Nation in 2018 TEAM DEBRA is for marathon runners, cyclists, and everything in-between. What unites TEAM DEBRA is our commitment to spread EB awareness and raise funds to find a cure and treatment for EB. Click here to learn more about TEAM DEBRA and to see the events we are partnered with. GET INVOLVED Announcing the first-ever Adult-Only EB and Skin Cancer Clinic Philadelphia, PA Read our EB, etc. Blog Active Clinical Trials SUPPORT EB Make a Donation Today Your support improves the quality of life for thousands living with EB; it helps us provide free bandages to EB patients, through one of our many programs, and allows us to fund groundbreaking research – research that is already pointing towards a cure! Click here to support debra of America and make an impact among the EB Community today! Start Fundraising Now Visit Our Shop Find an Event Near You Epidermolysis Bullosa (EB) is a rare genetic connective tissue disorder in which children do not produce a vital protein to allow their skin to adhere to itself. 1 out of every 20,000 births in the United States are affected by the disease. Children with EB are often referred to as "Butterfly Children" because their skin is extremely fragile and can blister or tear from any friction. Internal organs can also be seriously affected by the disease. EB is painful, often debilitating, and is in some cases lethal. There is no treatment or cure. Daily wound care, pain management, and protective bandaging are the only options available. Click to learn more. ABOUT LEARN MORE STAY UPDATED 75 Broad Street, Suite 300 New York, NY 10004 About debra of America Contact Us Privacy Policy What is EB Take Action Programs & Services New Families Events © Copyright 2018, Debra of America (Dystrophic Epidermolysis Bullosa Research Association of America), All Rights Reserved | Debra of America is a registered 501(c)(3) tax exempt organization. | All Trademarks and Brands are Property of Their Respective Owners. Debra does not endorse any drugs, tests, or treatments that we may report. This website is for informational purposes, always check with your physician before adopting any medical treatment.