Facebook Twitter Instagram YouTube Go to... Go to... About Archivist PHA This author has not yet filled in any details. So far Archivist PHA has created 835 blog entries. A Message from PHA’s Scientific Leadership Council Chair on COVID-19 March 12th, 2020 Dear Pulmonary Hypertension Community, All of us in the pulmonary hypertension community have a shared concern over the spread of a new respiratory illness called COVID-19, caused by the novel coronavirus, “SARS-CoV-2.” The health and safety of our patients, caregivers, family members and health care professionals are the top priority of the Pulmonary Hypertension Read More 4 Ways the Affordable Care Act Has Helped People With PH March 12th, 2020 “Before the ACA, I watched the lifetime coverage cap very closely. My daughter with pulmonary hypertension (PH) and heart disease had used almost half her cap before the passage of the ACA, and she was a toddler. I didn't know what we'd do if she hit the cap, which she would have done in Read More Tap Into Your Creative Side: Submit Your Work for the PHA 2020 Art Gallery March 12th, 2020 The much-anticipated Art Gallery returns to PHA 2020 International PH Conference and Scientific Sessions June 12-14 in Anaheim, California. The Art Gallery’s successful debut was at the 2018 PHA Conference in Orlando, Florida. The Art Gallery will feature original artwork created by members of the pulmonary hypertension (PH) community. Submissions for the Art Gallery Read More How Chelsea Kennedy’s PH Diagnosis Changed Her Life March 12th, 2020 “There is light at the end of the tunnel, and you are more than just PH. We will fight and we will win!” Chelsea Kennedy, 27, has been living with pulmonary hypertension (PH) since 2018. She lives with her five children, husband and three dogs in Winston-Salem, North Carolina. She is studying cardiovascular Read More Q: What’s a fun way to raise PH awareness? A: Trivia Night March 5th, 2020 The Pulmonary Hypertension Association (PHA) will host the annual PHA St. Louis Area Trivia Night Friday, March 27, in Maryland Heights, Missouri. The trivia night will bring together people with pulmonary hypertension (PH), friends, family and health care providers for fun, friendly competition. Teams will work together to answer eight rounds of trivia questions. Read More How a PHA Support Group Helped Patient Advocate for His Health March 5th, 2020 “If I didn’t advocate for myself and put matters in my own hands, I would still be suffering until this day.” By Robert Stewart On March 17, 2017, I could hardly breathe as I played my third day straight of tennis. My tennis partner thought I was having a heart attack. On Read More Discover This Support Group Leader’s Passion for Helping Others March 5th, 2020 Tara Suplicki decided to start volunteering when she learned she had pulmonary hypertension (PH). Today, she leads the Morristown, New Jersey, Pulmonary Hypertension Association (PHA) support group with Patrick Mellin. Tara describes how she got involved: “I was in the hospital with a stroke and this illness. My mother said, ‘You can either go Read More CEO Update: Help Raise PH Awareness for Rare Disease Day February 27th, 2020 Dear PH Community,Every year, the Pulmonary Hypertension Association (PHA) participates in a global campaign to draw attention to rare diseases. We mark Rare Disease Day – the last day in February – by engaging the PH community and joining more than 800 other organizations from 70 countries on social media to draw attention to rare Read More Meet Vlogger Quinland Folkestad, Who Thrives With PH February 27th, 2020 “I thought my life was over, but through the PHA and friends and family and doctors, I found the help I needed.” In recognition of Rare Disease Day and American Heart Month in February, the Pulmonary Hypertension Association’s (PHA’s) The Right Heart blog brings you a video featuring Quinland Folkestad. Quinland has pulmonary arterial Read More Volunteer Spotlight: Holly Szmutko: A PH Advocate for Herself and Others February 27th, 2020 Holly Szmutko is a passionate volunteer and advocate on behalf of the pulmonary hypertension (PH) community. She became involved after she was diagnosed with pulmonary hypertension in January 2019 after several misdiagnoses. Then she had to try multiple therapy options before finding a combination that made her feel better instead of worse. She was Read More 1 2 Next ADDRESS AND PRIVACY Pulmonary Hypertension Association 8401 Colesville Road, Suite 200 Silver Spring, MD 20910 Support Line: 1-800-748-7274 301-565-3004 Webmaster@PHAssociation.org Privacy Policy | Terms of Use SEARCH THIS SITE Search for: DISCLAIMER: The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs. PHA does not endorse or recommend any commercial products or services. LOGIN Username or E-mail Password Remember Me Forgot Password A login is no longer needed to access your general PHA membership benefits. The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas © 2020 Pulmonary Hypertension Association. All Rights Reserved. Facebook Twitter Instagram YouTube