Want better care? Make your voice heard! Take part today Donate Now Home > About Us > Our publications > Finding Myself in Your Hands Finding Myself in Your Hands: The Reality of Brain Tumour Treatment and Care 29 people are diagnosed with a brain tumour every day and to help us reach our goal of halving the harm for those affected, we've made it our priority to ensure equal access to the best treatment and care. It's for this reason that we've commissioned research into what life is really like for adults living with a brain tumour and what their experience of NHS treatment and care has been. Finding Myself in Your Hands: The Reality of Brain Tumour Treatment and Care is the sister report to Losing Myself: The Reality of Life with a Brain Tumour which outlines the day-to-day struggles faced by those affected. Finding Myself in Your Hands focuses specifically on peoples interactions with the NHS, healthcare professionals and their treatment, and gives us an honest insight into experiences across the UK. Finding Myself in Your Hands is the most comprehensive study of its kind and draws on the same survey of over 1,000 people affected by a brain tumour as used for the Losing Myself report. Respondents included people affected by high grade and low grade tumours. The findings within this report sadly mirror those from NHS cancer patient experience surveys (which only survey high grade patients); although some aspects of treatment and care are positive for some respondents, many of those with a brain tumour report a poor experience: 31% visited a healthcare professional five or more times prior to diagnosis People with a high grade tumour were more likely to say they have a single point of contact than those with a low grade tumour 55% of terminal patients said they had not been given end-of-life care options In the report, we make a number of recommendations to politicians to improve diagnosis, support and data collection. We will use this as a basis for our discussions with policy makers over the next year or so as part of our work to improve the NHS experience for people with a brain tumour. The report contains content that some readers may find distressing. Download Finding Myself - PDF This report focuses specifically on peoples interactions with the NHS, healthcare professionals and their treatment. In this section Recommended reading Our Strategy Our Research Strategy How the NHS works Get support Need help? Whether you've been diagnosed with a brain tumour, or a family member or friend has, we are here to help. Call 0808 800 0004 Donate Now Sign up to our newsletter We promise to keep your data safe and you can unsubscribe at any time in the future. More information is in our Privacy Policy. Subscribe The Brain Tumour Charity on Facebook The Brain Tumour Charity on Twitter The Brain Tumour Charity on YouTube The Brain Tumour Charity on Pinterest The Brain Tumour Charity on Instagram © The Brain Tumour Charity 2021 Registered Charity no. 1150054 (England and Wales) SC045081 (Scotland) Company no. 08266522 Privacy Policy | Contact Us | Sitemap