Home About OFCP Contact Programs Resources Donate to OFCP WORLD CP DAY This Wednesday, October 6th, the OFCP will celebrate and support people living with cerebral palsy on World CP Day. Cerebral palsy affects more than 17 million people worldwide, making it vital to create a more inclusive and accessible world as we move forward. That is why the OFCP strives to address the needs of people with cerebral palsy in the province of Ontario. Please consider joining us in supporting those with cerebral palsy this World CP Day. CN Tower and 3D Toronto Sign will be lit green to honor October 6th - World Cerebral Palsy Day. On World CP Day, the OFCP is happy to announce that we have created and will be selling a shirt or hoodie to thank everyone in Ontario and around the world that worked so hard to keep us safe. The OFCP and our members greatly appreciate your compassion, understanding, and caring during these unprecedented times. All profit from sales will go towards supporting our members. LIMITED TIME ONLY (Oct 6th - Nov 30) Visit our Shopify Store NOW. OFCP Recognizes Canada's first National Day for Truth and Reconciliation This week, OFCP will observe Canada's first National Day for Truth and Reconciliation. This is an opportunity for our organization to honour the resilience of Indigenous people in the face of ongoing injustice. An important part of doing so is to acknowledge and mourn the enduring trauma suffered by Indigenous Peoples because of Residential Schools and many other forms of colonization. As a country, we have much more work to do in addressing the current realities of colonization. This day of recognition is designed to educate and provide opportunities for reflection that promote healing for Indigenous people, and to learn to educate our employees and members about the truth that is the foundation of reconciliation. OFCP is committed to acknowledging the suffering of Indigenous people and educating ourselves as well as our members, staff, governors and the wider world about the history and cultures of local Indigenous Nations, as well as Indigenous Peoples and organizations across Turtle Island (North America). To learn more about the Truth and Reconciliation Commission, the reports can be found here: https://nctr.ca/records/reports/ Residential school survivor stories: https://legacyofhope.ca/wherearethechildren/stories/ We would also like to acknowledge that the Ontario Federation for Cerebral Palsy is located on the traditional territory of the Haudenosaunee, Huron-Wendat, Anishnaabeg, and the Mississaugas of the Credit. These Nations have been stewards to the land and waterways for generations and continue to care for the land. We also acknowledge that Toronto is covered by Treaty 13. About Cerebral Palsy Guide to CP What is CP Publications OFCP Videos Other Resources & Links Funding Activity Funding Assistive Devices Scholarships & Awards Research Grants Our Programs Planning Children & Families Membership What's New e-Bulletin Announcements & Press Studies Research Participants Calendar of Events Ontario Federation for Cerebral Palsy Grants Safehaven $100,000 to Expand Infection Prevention and Control Programming The Ontario Federation for Cerebral Palsy assists regional not-for-profit organization in expanding and improving the services delivered to vulnerable individuals. OFCP is excited and honoured to partner with Safe Haven, building on the leadership and expertise they have clearly demonstrated in the past 20 months of the pandemic. Prevention and safety are the cornerstones of infection control. Providing training and support to vulnerable people will positively impact our members and their families. We look forward to the outcomes of this initiative and a safe future for us all. For more information and to read the joint press release, please click here. CURRENT OFCP FUNDING PROGRAMS: Program: Vaccine Support Fund Status: ACTIVE – OPEN NOW (until funds are utilized) Who qualifies: OFCP Members (click here to learn more) Type of funding: One time assistance up to $200 to help members cover additional expenses with receiving the vaccine How to apply: Online at ofcp.ca – CLICK HERE TO APPLY Program: Assistive Devices Funding Status: ACTIVE – OPEN NOW (until funds are utilized) Who qualifies: OFCP Members (click here to learn more) Type of funding: Funding to access life-changing assistive devices and equipment up to $2000 How to apply: Online at ofcp.ca – CLICK HERE TO APPLY Program: Life Emergency Action Fund (LEAF) Status: ACTIVE – OPEN NOW (until funds are utilized) Who qualifies: OFCP Members (click here to learn more) Type of funding: One time assistance up to $400 to help members access financial assistance to enrich, enhance or augment an activity the member currently participates in or is interested in. OFCP will try and accommodate each request as it pertains to the COVID-19 emergency situation How to apply: Online at ofcp.ca – CLICK HERE TO APPLY Program: Member Group Emergency Fund Status: ACTIVE – OPEN NOW (until funds are utilized) Who qualifies: OFCP Member Groups (click here to learn more) Type of funding: One-time amount per Essential Business Agency up to $5,000 to assist with the costs associated with COVID-19 How to apply: Online at ofcp.ca – CLICK HERE TO APPLY View Latest OFCP e-Bulletin ONTARIO FEDERATION FOR CEREBRAL PALSY POSITION STATEMENT ON COVID – 19 VACCINATION Posted March 11th, 2021 Many of our members have contacted us to inquire about the priority framework in Ontario for vaccination, and when people with disabilities will have the opportunity to receive the vaccine. Although OFCP does not sit at those decision-making tables, we encourage our members to: 1) Check “Populations Eligible for Phase Two COVID-19 Vaccination - Phase Two to Vaccinate Groups Based on Age and Risk” - released by the Ontario Government on March 5th, 2021 at https://news.ontario.ca/en/backgrounder/60570/populations-eligible-for-phase-two-covid-19-vaccination 2) Contact your local Public Health unit to access information specific to that geographic location. To learn more about COVID-19 vaccines that have been approved for use in Canada, please check "Vaccines Explained" at https://ofcp.ca/wp-content/uploads/2021/04/Vaccines-Explained.pdf Once eligible to receive the vaccine, we encourage our members to access COVID-19 Vaccine Support Fund at https://www.ofcp.ca/programs/funding to assist in costs related to vaccine access. If you think you may be experiencing symptoms of COVID-19, please take the self-assessment at www.ontario.ca/coronavirus and follow all directions from your medical provider or your local health unit at one of the following phone numbers: Telehealth Ontario: 1-866-797-0000 Toronto Public Health: 416-338-7600 Important Announcement for OFCP Lifetime Members NEW COVID 19 – VACCINE SUPPORT FUND Opening March 15th, 2021 OFCP is working hard to anticipate and support our members in accessing services, PPE and other supports as we all navigate through the COVID 19 pandemic and the issues that face people with disabilities. As you know, we developed funding opportunities like the LEAF Life Emergency Action Fund, assisting members to purchase food, supplements, PPE and cleaning supplies to help address scarce inventory and address higher costs for these items. We then established the Life Enriching Education Fund, assisting members in addressing barriers to accessing supports related to online or in person schooling. Both have been so well received and members have told us how instrumental these funds were in helping them and their families. In that spirit of anticipating where future barriers may lie, we are opening a new funding opportunity to assist our members in accessing the vaccine, if they choose to do so. This fund is called the COVID Vaccine Support Fund. The purpose of this fund is to provide one time assistance to help members cover additional expenses related to costs associated with receiving the vaccine. These eligible expenses include but are but not limited to transportation costs, attendant services, parking, or other related costs. Our members will be able to access up to $200.00 per application, beginning March 15th, 2021, until the funds are utilized. For more information and instructions on how to access the funds, see link below. COVID 19 Vaccine Support Fund Application Form If you have any questions or concerns please contact us at 416-244-9686, Ext. 221 or toll free 1-877-244-9686, Ext. 221 or email at leaf@ofcp.ca Yours Truly, Gordana Skrba Executive Director (Interim) WE HAVE MOVED TO A NEW LOCATION - IMPORTANT ANNOUNCEMENT To Our Members, Our Stakeholders, and the Public We are pleased to announce that we have moved to a new location as of April 1st, 2021. Our New Address is: 4211 Yonge Street, Suite #316 Toronto, Ontario M2P 2A9 Our contact information including emails and telephones will remain the same and will be fully operational during the moving process and you will not experience any changes. Our staff will be available to answer any emails and phone calls, and we are asking you to please contact us directly by email or by phone. The staff contact information is available on our website here. The health, safety and well being of our Members and Employees is our top priority. As we continue to take measures to help prevent the transmission of COVID 19 and reduce the risk of exposure to our Members and Employees, please note that our offices will remain closed to public until further notice. We encourage you to use all necessary precautions to keep safe from contracting the virus. For information and updates on the Coronavirus, please visit the Public Health Agency of Canada and the Ontario Government websites. We apologize for any inconvenience this may cause. Sincerely, Gordana Skrba, Executive Director (Interim) IMPORTANT ANNOUNCEMENT To Our Members, Our Stakeholders and the Public I am writing to inform you about OFCP's response to the recent and evolving situation surrounding the Coronavirus (COVID-19). There is no higher priority for us than the health, safety and well being of our Members and Employees. We are monitoring all communication from the Government of Canada, Government of Ontario, Public Health Agency of Canada, Ontario Public Health, the World Health Organization (WHO) and government agencies, to stay on top of this evolving situation. We continue to take measures to help reduce the potential exposure risk to our Members and Employees. To help prevent the spread of virus infections, Ontario Federation for Cerebral Palsy has made the difficult decision to close our offices to the public as of Tuesday, March 17th, 2020, until further notice. However, our staff will be available to answer any emails and phone calls, and we are asking you to please contact us by email at info@ofcp.ca or call us at 416-244-9686 or Toll Free 1-877-244-9686. Your calls will be returned within 24 hours. This decision was made with you, our members and staff well-being in mind, the utmost importance to us and will continue to be our top priority moving forward. We encourage you to use all necessary precautions to keep safe from contracting the virus. We apologize for any inconvenience this may cause. For information and updates on the Coronavirus, please visit the Public Health Agency of Canada website. Gordana Skrba, Executive Director, Interim Resources Across My Province (RAMP) RAMP is a provincial resource tool that provides information and links to the many service providers, organizations, and programs that individuals, families and professionals are looking for that are specific to cerebral palsy. RAMP will provide you with a starting point to search and navigate through the many resources and services you may find useful. Brain Disorders in Ontario: Prevalence, Incidence and Costs from Health Administrative Data OFCP is pleased to share the final report of Brain Disorders in Ontario: Prevalence, Incidence, and Costs from Health Administrative Data. This Report is the culmination of a two-year collaboration between the Ontario Brain Institute and the Institute for Clinical Evaluative Sciences which involved the contributions from clinicians, patients, and advocates. OFCP was very proud to be involved and to have an opportunity to contribute in this major undertaking. Below is an info-graphic, followed by the briefing note, followed by the link to the report. It is all about the brain. All the various conditions in the scope of mental health and neurologic disease manifest in a change of brain function. This report examines these otherwise disparate conditions collectively as ‘brain disorders’- an integrated approach to view them as diseases of a single organ. This is a necessary first step to bring greater awareness and attention to the health consequences and care needs of those affected by all disorders of the brain. As a group, the brain disorders included in this report demonstrate the breadth and diversity of conditions affecting Ontarians. Although those included in this report are only a subset of the hundreds of brain disorders, they represent many of the most common and impactful disorders affecting the healthcare system and society. There are many conditions missing, including highly prevalent disorders such as autism, depression, and addiction, but over time methods will be developed to measure these as well. Brain disorders are a big issue that will continue to get bigger. Individuals with brain disorders represent a large and growing population, which will increase as our population continues to age. Brain disorders are a growing public health concern: they exist as chronic conditions with no known cures and individuals with brain disorders often require lifelong treatment and care. This can also be very hard on caregivers who support individuals living with brain disorders – the economic and societal impact is multiplied, reaching far beyond those directly affected. The growing prevalence and tremendous economic and societal impact of brain disorders is why it is critical that the Government of Ontario continue to place a strong focus on brain research and innovation by supporting the Ontario Brain Institute and other groups working towards improving brain health. A baseline measurement of brain disorders is needed to improve care and support. To date, there have been no region-specific estimates of the prevalence and economic impact of brain disorders. Defining brain disorders, and measuring them from the perspective of the healthcare system, helps estimate the needs of affected individuals and their caregivers. This report lays the groundwork necessary for the healthcare system to respond to these needs by planning or building services and support, and by creating greater capacity for care in areas of need. By documenting the sheer number of individuals affected by brain disorders, this report confirms the need for more research and better care for individuals living with brain disorders which is why the OBI was established. Health administrative data can be used for disease surveillance. The methods used in this report to measure prevalence, incidence, and cost provide several advantages over survey or other self-report data sets: the large number of individuals contained in the data holdings improves precision and generalizability of estimates, and the longitudinal aspect of the data allows the examination of time trends in data. This approach is a starting point to better understand the present issues but it is not without limitations. This report only captures those who have interacted with the healthcare system in the year of measure (2010), and requires that individuals also receive a diagnosis or drug therapy related to their brain disorder. Therefore the results may underestimate the true number of individuals with each disorder for various reasons including stigma, lack of access to care, or temporary lack of need of care. As a new resource, this report was created with the following objectives: To estimate the prevalence and incidence of brain disorders from population-based health administrative data To provide an overview of costs associated with all publically provided health care services used by individuals with brain disorders To present evidence to inform program and resource planning, policy and decision-making regarding brain disorders in the Ontario health system The report contains data on thirteen brain disorders: Brain tumor (benign and primary malignant), cerebral palsy, dementia including Alzheimer’s disease, epilepsy, motor neuron disease, multiple sclerosis, parkinsonism including Parkinson’s disease, schizophrenia, spina bifida, spinal cord injury, stroke and transient ischemic attack, and traumatic brain injury Number and proportion of persons with the selected brain disorder by sex, age group, rural or urban residence, and neighbourhood income quintile (as of 2010/11) Age- and sex-adjusted prevalence and incidence of the selected brain disorder (from 2004/05 to 2010/11 in Ontario and by Local Health Integration Network) Crude prevalence of the selected brain disorder, by sex and age group (from 2004/05 to 2010/11) Distribution of the costs associated with one year of health system use for persons with the selected brain disorder, by age group Proportion of costs associated with one year of health system use for persons with the selected brain disorder, by type of health care service and age group Here is the link to the report: https://www.ices.on.ca/Publications/Atlases-and-Reports/2015/Brain-Disorders-in-Ontario OFCP Website Quick Links Programs Assistive Devices Activity Funding Children & Families Funding Membership Planning About OFCP Contact OFCP About OFCP Privacy AODA Policy Disclaimer Donate to OFCP Website Directory Resources Henson Trust Information ODSP Information RDSP Information Publications Tax Tips Videos About Cerebral Palsy Partners for Planning The OFCP is proud to be a member of the following organizations: United Way Toronto Neurological Health Charities Canada Canada Helps AdvantAge Ontario The Community Ethics Network (CEN) Federated Health Charities The OFCP is not associated with OCPSA - The Ontario Cerebral Palsy Sports Association. 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