Lok Sabha Question No. 2308 (UNSTARRED), answered on 2026-02-13
Subject: National Sickle Cell Anaemia Elimination Mission
Ministry: HEALTH AND FAMILY WELFARE
Asked by: Shri Ananta Nayak, Smt. Smita Uday Wagh, Shri Vijay Kumar Dubey, Dr. Nishikant Dubey, Shri Bhojraj Nag, Smt. Aparajita Sarangi, Dr. Bhola Singh, Shri Manoj Tiwari, Shri Chandra Prakash Joshi, Dr. Hemant Vishnu Savara, Shri Godam Nagesh, Shri Tapir Gao, Shri Jagdambika Pal, Smt. Vijaylakshmi Devi, Shri Vijay Baghel, Shri Anil Firojiya, Shri Praveen Patel, Shri Naba Charan Majhi, Shri Ramesh Awasthi, Shri Manish Jaiswal, Shri Alok Sharma, Shri Pradeep Kumar Singh, Shri Kali Charan Singh, Smt. Mahima Kumari Mewar, Shri Damodar Agrawal, Shri P P Chaudhary, Dr. Manna Lal Rawat, Smt. Sanjna Jatav, Shri Balabhadra Majhi

## GOVERNMENT OFINDIA MINISTRY OF HEALTH AND FAMILY WELFARE DEPARTMENT OFHEALTH AND FAMILY WELFARE

## LOK SABHA UNSTARRED QUESTION NO. 2308 TO BE ANSWERED ON 13 th FEBRUARY, 2026

## NATIONALSICKLE CELLANAEMIAELIMINATION MISSION

## 2308. SHRI ANANTANAYAK:

SHRI P P CHAUDHARY:

SHRI ALOK SHARMA:

SHRI VIJAY KUMAR DUBEY:

SHRI RAMESH AWASTHI:

SHRI PRADEEPKUMAR SINGH:

SHRI PRAVEEN PATEL:

SHRI MANOJ TIWARI:

SMT. VIJAYLAKSHMI DEVI:

DR. MANNALALRAWAT:

SHRI BHOJRAJ NAG:

SMT. SANJNA JATAV:

SMT. MAHIMA KUMARI MEWAR:

SHRI TAPIR GAO:

SMT. SMITA UDAY WAGH:

SHRI JAGDAMBIKAPAL:

SMT. APARAJITA SARANGI:

SHRI GODAM NAGESH:

SHRI BALABHADRAMAJHI:

DR. NISHIKANT DUBEY:

DR. BHOLASINGH:

SHRI MANISH JAISWAL:

SHRI DAMODAR AGRAWAL:

SHRI ANIL FIROJIYA:

SHRI VIJAY BAGHEL:

SHRI KALI CHARAN SINGH:

SHRI CHANDRAPRAKASH JOSHI:

DR. HEMANT VISHNU SAVARA:

SHRI NABACHARAN MAJHI:

Will the Minister of HEALTH AND FAMILYWELFARE be pleased to state:

- (a) the total number of individuals screened for Sickle Cell Disease (SCD) under the National Sickle Cell Anaemia Elimination up to December 2025, State/UT-wise and district-wise;
- (b) the number of individuals identified as "Carriers" (Sickle Cell Trait) and "Patients"

(Sickle Cell Disease) respectively, based on the said screenings, State/UT-wise and district -wise;

- (c) whether the Government has achieved the target of screening seven crore individuals by the end of the year 2025 and if so, the details thereof, along with the number of individuals who have been issued Sickle Cell Genetic Status Cards, State/UT-wise and district-wise;
- (d) the number of fully functional Centres of Excellence (CoE) for the treatment of the said disease in seventeen high prevalence States as of December 2025, State/UT-wise;
- (e) the total financial assistance provided by the Government for the procurement of Point-ofCare (PoC) testing kits in tribal-dominated districts up to December 2025, district-wise; and
- (f) the progress of screening coverage, referral facilities and availability of treatment services, State/UT-wise?

## ANSWER THE MINISTER OFSTATE IN THE MINISTRY OF HEALTH AND FAMILY WELFARE (SMT. ANUPRIYAPATEL)

(a) to (f): Under National Sickle Cell Anaemia Elimination Mission (NSCAEM), screenings in the targeted age group of 0-40 years are conducted at all health facilities from District Hospitals (DH) upto Ayushman Arogya Mandir (AAM) level in affected 17 tribal states for diagnosis of Sickle Cell Disease (SCD). As per SCD portal, more than 6.83 crore screenings have been conducted in tribal dominated areas of the country, as on 03.02.2026. A total of 2,37,981 individuals have been identified as diseased and 19,32,500 as carriers of SCD, as on 03.02.2026. State-wise total number of individuals screened, the number of individuals identified as "Carriers" and "Patients" and number of Genetic Status Cards distributed, as on 03.02.2026, is at Annexure-I.

Ministry of Health and Family Welfare has devised the cost norms for establishment of Centres of Excellence (CoE) on SCD funded by Ministry of Tribal Affairs (MoTA) in various states. 17 COE in 15 states have been approved by MoTA. State-wise details of CoE are enclosed as Annexure-II.

State Programme Implementation Plan (SPIP) approvals towards screening for Blood Disorders under National Health Mission (NHM) from F.Y. 2022-23 to F.Y. 2025-26 in the country is as follows:

## (Rs. in Lakhs)

| 2022-23   | 28,991.84   |
|-----------|-------------|
| 2023-24   | 44,855.32   |
| 2024-25   | 44,754.53   |
| 2025-26   | 53,904.10   |

Patients living with SCD are provided with the following services/ facilities for improving their quality of life through AAMs:

- Follow-up of diseased individuals at frequent intervals.
- Counseling regarding lifestyle management, pre-marriage and pre-natal decisions.
- Nutritional supplementation support through distribution of folic acid tablets.
- Conducting yoga and wellness sessions.
- Management of crisis symptoms and referral to higher facilities.

Hydroxyurea has been included in NHM Essential Drugs List at Sub-Health Centres, Primary Health Centres (PHC)/ Urban PHC, Community Health Centres (CHC) and DHs to address the issue of access to medicine. This Ministry provides technical and financial support to the States/UTs for conducting screenings and procurement of drugs for sickle cell anaemia, based on the proposals received in the form of PIPs under NHM.

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Annexure referred to in reply to parts (a) to (f) of Lok Sabha Unstarred Question No. 2308 for reply on 13.02.2026

Annexure-I State-wise total number of individuals screened, the number of individuals identified as

"Carriers" and "Patients" and number of Genetic Status Cards distributed, as on 03.02.2026

| S.No.   | State Name     | Total Screenings conducted   | No. of Carrier   | No. of Diseased   | No. of Genetic Status Cards Distributed   |
|---------|----------------|------------------------------|------------------|-------------------|-------------------------------------------|
| 1       | Chhattisgarh   | 1,70,30,846                  | 3,38,774         | 27,600            | 1,02,90,081                               |
| 2       | Madhya Pradesh | 1,29,92,449                  | 2,37,473         | 37,885            | 1,13,61,858                               |
| 3       | Maharashtra    | 93,79,701                    | 2,06,967         | 27,719            | 21,46,504                                 |
| 4       | Gujarat        | 80,05,852                    | 5,41,088         | 30,883            | 79,15,506                                 |
| 5       | Odisha         | 60,83,323                    | 5,43,015         | 1,01,865          | 30,05,123                                 |
| 6       | Rajasthan      | 37,06,689                    | 8,453            | 2,885             | 17,11,440                                 |
| 7       | Jharkhand      | 27,83,758                    | 3,888            | 2,314             | 2,943                                     |
| 8       | West Bengal    | 24,81,557                    | 3,697            | 890               | 381                                       |
| 9       | Andhra Pradesh | 14,79,777                    | 21,679           | 2,272             | 4,78,186                                  |
| 10      | Assam          | 11,72,328                    | 1,522            | 330               | 1,34,982                                  |
| 11      | Telangana      | 11,27,762                    | 7,445            | 568               | 4,44,393                                  |
| 12      | Uttar Pradesh  | 7,64,879                     | 86               | 38                | 4,41,639                                  |
| 13      | Tamil Nadu     | 4,40,276                     | 8,685            | 656               | 3,98,385                                  |
| 14      | Karnataka      | 3,55,449                     | 4,543            | 578               | 4,241                                     |
| 15      | Bihar          | 2,40,331                     | 1                | 9                 | 63                                        |
| 16      | Uttarakhand    | 1,53,668                     | 69               | 6                 | 1,51,507                                  |
| 17      | Kerala         | 1,77,314                     | 5,115            | 1,483             | 20,234                                    |
|         | Total          | 6,83,75,959                  | 19,32,500        | 2,37,981          | 3,85,07,466                               |

Annexure-II State-wise details of Centres of Excellence (CoE) established

|   S.N o. | State          | Institution Name                                                                         |
|----------|----------------|------------------------------------------------------------------------------------------|
|        1 | Telangana      | Nizams Institute of Medical Science                                                      |
|        2 | Uttarakhand    | AIIMS Rishikesh, Uttarakhand                                                             |
|        3 | Kerala         | Kozhikode Medical College, Kerala                                                        |
|        4 | Andhra Pradesh | King George Hospital, Vishakhapatnam, Andhra Pradesh                                     |
|        5 | Jharkhand      | AIIMS Deoghar                                                                            |
|        6 | Maharashtra    | AIIMS Nagpur                                                                             |
|        7 | Chhattisgarh   | AIIMS Raipur                                                                             |
|        8 | Karnataka      | Mysore Medical College &Research Institute, Karnataka                                    |
|        9 | Madhya Pradesh | MGMMedical College, Indore                                                               |
|       10 | Madhya Pradesh | Bhopal Memorial Hospital and Research Centre (BMHRC)                                     |
|       11 | Assam          | Assam Medical College, Dibrugarh, Assam                                                  |
|       12 | Gujarat        | New Civil Hospital and Medical College, Surat                                            |
|       13 | Odisha         | SCB Medical College Hospital, Cuttack, Odisha                                            |
|       14 | Rajasthan      | RNT Medical College, Rajasthan                                                           |
|       15 | Tamil Nadu     | Institute of Child Health and Hospital for Children - Madras Medical College, Tamil Nadu |
|       16 | Andhra Pradesh | AIIMS Mangalagiri                                                                        |
|       17 | West Bengal    | N.R.S. Medical College                                                                   |

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