Lok Sabha Question No. 370 (STARRED), answered on 2024-12-20
Subject: Institute for Treatment of Sickle Cell Disease
Ministry: HEALTH AND FAMILY WELFARE
Asked by: Shri Brijmohan Agrawal

## GOVERNMENT OFINDIA MINISTRY OF HEALTH AND FAMILY WELFARE DEPARTMENTOFHEALTH AND FAMILYWELFARE

## LOKSABHA STARRED QUESTION NO. 370 TO BE ANSWERED ON THE 20 TH DECEMBER, 2024

## INSTITUTE FOR TREATMENT OF SICKLE CELLDISEASE

## †*370. SHRI BRIJMOHAN AGRAWAL:

Will the Minister of HEALTH AND FAMILY WELFARE be pleased to state:

- (a) whether there is any institute for treatment of sickle cell disease (sickle cell anaemia) in Chhattisgarh, if so, the details thereof along with the time since such institute has become operational;
- (b) whether the Government has approved the establishment of any institute for the said disease, if so, the details along with the category of the institute established for this purpose;
- (c) whether the Government has sanctioned any funds for treatment of the said disease and establishment of the institute and if so, the amount of funds sanctioned along with the heads under which the said funds have been allocated; and
- (d) the action taken/proposed to be taken by the Government for prevention and ease of treatment of sickle cell anaemia patients in view of the extensive spread of the said disease in Chhattisgarh?

## ANSWER THE MINISTER OF HEALTH AND FAMILY WELFARE

## (SHRI JAGAT PRAKASH NADDA)

- (a) to (d) A Statement is laid on the Table of the House.

## STATEMENT REFERRED TO IN REPLY TO LOK SABHA STARRED QUESTION NO. 370 FOR 20 TH DECEMBER, 2024

(a) Sickle cell Institute Chhattisgarh (SCIC), Raipur, a specialized institute focusing on treatment, research, counseling, and training related to sickle cell disease (SCD), has been established by Government of Chhattisgarh and is operational since 2013.

(b) to (d) To eliminate Sickle Cell Disease (SCD), National Sickle Cell Anaemia Elimination Mission (NSCAEM) has been launched by Hon ' ble Prime Minister from Madhya Pradesh on 1st July, 2023. The objectives of the Mission are provision of affordable, accessible and quality care to all Sickle Cell Diseased patients, reduction in the prevalence of SCD through awareness creation, targeted screening of 7 crore people till year 2025-26 in the age group of 0-40 years in affected districts of tribal areas and counselling through collaborative efforts of central ministries and State governments. Under NSCAEM, screenings are conducted at all health facilities from District Hospitals upto Ayushman Arogya Mandir (AAM) level. As on 15.12.2024, a total of 4,84,24,580 population, including 1,45,53,398 population in Chhattisgarh, have been screened in the tribal dominated areas of 17 identified States.

Hydroxyurea has been included in NHM Essential Drugs List at Sub-Health Centres, Primary Health Centres (PHC)/ Urban PHC, Community Health Centres (CHC) and District Hospitals to address the issue of access to medicine.

This Ministry provides technical and financial support to the States/UTs for conducting screenings and procurement of drugs for sickle cell anaemia, based on the proposals received in the form of Programme Implementation Plans (PIPs) under National Health Mission (NHM). Details of budgetary allocation for screening of blood disorders including NSCAEM in affected States is at Annexure.

MoHFW has issued guidelines for cost norms for establishment of Centres of Excellence (CoE) on SCD funded by Ministry of Tribal Affairs (MoTA) in various states. As on date, 15 CoEs have been approved in the country by MoTA with a total cost of Rs. 38.38 cr including Rs. 2.016 cr for CoE in AIIMS Raipur, Chhattisgarh.

Statement showing State/UT wise State Programme Implementation Plan (SPIP) Approvals for Screening for Blood Disorders including sickle cell screening under NHM for F.Y. 2023-24

|       |                | (Rs. in lakhs)          |
|-------|----------------|-------------------------|
| S.No. | State/UT       | SPIPApprovals (2023-24) |
|      | Andhra Pradesh | 798.83                  |
|      | Assam          | 31.20                   |
|      | Bihar          | 50.00                   |
|      | Chhattisgarh   | 1,536.36                |
|      | Gujarat        | 505.68                  |
|      | Jharkhand      | 407.50                  |
|      | Karnataka      | 225.39                  |
|      | Kerala         | 3,848.40                |
|      | Madhya Pradesh | 1,210.00                |
|      | Maharashtra    | 2,017.10                |
|      | Odisha         | 2,475.38                |
|      | Rajasthan      | 251.47                  |
|      | Tamil Nadu     | 12,279.60               |
|      | Telangana      | -                       |
|      | Uttar Pradesh  | 15,193.24               |
|      | Uttarakhand    | 482.19                  |
|      | West Bengal    | 777.96                  |

## Note:

1. The above data is as per available reports as submitted by States/UTs and is provisional.