Lok Sabha Question No. 5556 (UNSTARRED), answered on 2025-04-04
Subject: Elimination of Sickle Cell Diseases
Ministry: HEALTH AND FAMILY WELFARE
Asked by: Shri Damodar Agrawal, Dr. Manna Lal Rawat

## GOVERNMENT OFINDIA MINISTRY OF HEALTH AND FAMILY WELFARE DEPARTMENT OFHEALTH AND FAMILY WELFARE

LOK SABHA UNSTARRED QUESTION NO. 5556 TO BE ANSWERED ON 4 TH APRIL, 2025

## ELIMINATION OF SICKLE CELLDISEASES

## †5556. DR. MANNA LAL RAWAT: SHRI DAMODAR AGRAWAL:

Will the Minister of HEALTH AND FAMILYWELFARE be pleased to state:

(a) whether any scheme is being implemented by the Government for the elimination of sickle cell disease in the country and if so, the details thereof;

(b) the actions being taken by the Government under the said scheme;and

(c) whether a number of persons have been screened for sickle cell disease in the State of Rajasthan including Bhilwara district under the said scheme during the last three years and if so, the details thereof and the results obtained from the said screening there, district-wise, year-wise and category-wise including SC/ST?

## ANSWER

## THE MINISTER OFSTATE IN THE MINISTRY OF HEALTH AND FAMILY WELFARE

## (SMT. ANUPRIYAPATEL)

(a) and (b): National Sickle Cell Anaemia Elimination Mission (NSCAEM) has been launched by Hon'ble Prime Minister from Madhya Pradesh on 1st July, 2023. The objectives of the Mission are provision of affordable, accessible and quality care to all Sickle Cell Diseased patients, reduction in the prevalence of SCD through awareness creation, targeted screening of 7 crore people till year 2025-26 in the age group of 0-40 years in affected districts of tribal areas and counselling through collaborative efforts of central ministries and State governments.

Under NSCAEM, screenings are conducted at all health facilities from District Hospitals upto Ayushman Arogya Mandir (AAM) level. Patients living with SCD are provided with the following services/ facilities for improving their quality of life through AAM- Sub Health Centres (SHC) and AAM- Primary Health Centres (PHCs):

- Follow-up of diseased individuals at frequent intervals.
- Counseling regarding lifestyle management, pre-marriage and pre-natal decisions.

- Nutritional supplementation support through distribution of folic acid tablets.
- Conducting yoga and wellness sessions.
- Management of crisis symptoms and referral to higher facilities.

Hydroxyurea has been included in National Health Mission (NHM) Essential Drugs List at Sub-Health Centres, Primary Health Centres (PHC)/ Urban PHC, Community Health Centres (CHC) and District Hospitals to address the issue of access to medicine. Under NHM, financial support is provided for the procurement of Hydroxyurea and routine diagnostics, to reduce the out-of-pocket expenditure borne by sickle cell anaemia patients.

Through Ministry of Tribal Affairs, awareness and counseling material have been developed. IEC and media activities are adopted for propagation of awareness of disease, screening and management. Awareness activities are also provided in each sickle cell screening camp. State Governments play an important role in implementation of mission activities including awareness drive.

(c): Details of total screenings conducted, total number of diseased and carrier identified through screening in the State of Rajasthan, district-wise, under NSCAEM, as on 27.03.2025, is attached at Annexure .

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Annexure Annexure referred to in reply to part (c) of Lok Sabha admitted Unstarred Question No. 5556 for answer on 4.4.2025

| Details of total screenings conducted, No. of diseased and carrier identified through screening in the State of Rajasthan in year 2023, 2024 and 2025   | Details of total screenings conducted, No. of diseased and carrier identified through screening in the State of Rajasthan in year 2023, 2024 and 2025   | Details of total screenings conducted, No. of diseased and carrier identified through screening in the State of Rajasthan in year 2023, 2024 and 2025   | Details of total screenings conducted, No. of diseased and carrier identified through screening in the State of Rajasthan in year 2023, 2024 and 2025   | Details of total screenings conducted, No. of diseased and carrier identified through screening in the State of Rajasthan in year 2023, 2024 and 2025   | Details of total screenings conducted, No. of diseased and carrier identified through screening in the State of Rajasthan in year 2023, 2024 and 2025   | Details of total screenings conducted, No. of diseased and carrier identified through screening in the State of Rajasthan in year 2023, 2024 and 2025   | Details of total screenings conducted, No. of diseased and carrier identified through screening in the State of Rajasthan in year 2023, 2024 and 2025   |
|---------------------------------------------------------------------------------------------------------------------------------------------------------|---------------------------------------------------------------------------------------------------------------------------------------------------------|---------------------------------------------------------------------------------------------------------------------------------------------------------|---------------------------------------------------------------------------------------------------------------------------------------------------------|---------------------------------------------------------------------------------------------------------------------------------------------------------|---------------------------------------------------------------------------------------------------------------------------------------------------------|---------------------------------------------------------------------------------------------------------------------------------------------------------|---------------------------------------------------------------------------------------------------------------------------------------------------------|
| District Name                                                                                                                                           | Screenings                                                                                                                                              | Screenings                                                                                                                                              | Screenings                                                                                                                                              | Screenings                                                                                                                                              | Screenings                                                                                                                                              | Total No. of Diseased*                                                                                                                                  | Total No. of Carrier*                                                                                                                                   |
| District Name                                                                                                                                           | ST including PVTG                                                                                                                                       | SC                                                                                                                                                      | OBC                                                                                                                                                     | Others                                                                                                                                                  | Total                                                                                                                                                   | Total No. of Diseased*                                                                                                                                  | Total No. of Carrier*                                                                                                                                   |
| Banswara                                                                                                                                                | 860595                                                                                                                                                  | 58030                                                                                                                                                   | 38132                                                                                                                                                   | 78781                                                                                                                                                   | 1035538                                                                                                                                                 | 622                                                                                                                                                     | 3237                                                                                                                                                    |
| Baran                                                                                                                                                   | 87478                                                                                                                                                   | 291                                                                                                                                                     | 704                                                                                                                                                     | 1618                                                                                                                                                    | 90091                                                                                                                                                   | 1                                                                                                                                                       | 5                                                                                                                                                       |
| Barmer                                                                                                                                                  | -                                                                                                                                                       | -                                                                                                                                                       | 2                                                                                                                                                       | 5                                                                                                                                                       | 7                                                                                                                                                       | -                                                                                                                                                       | -                                                                                                                                                       |
| Bhilwara                                                                                                                                                | -                                                                                                                                                       | -                                                                                                                                                       | -                                                                                                                                                       | 1                                                                                                                                                       | 1                                                                                                                                                       | -                                                                                                                                                       | -                                                                                                                                                       |
| Bikaner                                                                                                                                                 | -                                                                                                                                                       | -                                                                                                                                                       | -                                                                                                                                                       | 3                                                                                                                                                       | 3                                                                                                                                                       | -                                                                                                                                                       | -                                                                                                                                                       |
| Chittorgarh                                                                                                                                             | 9409                                                                                                                                                    | 1622                                                                                                                                                    | 1794                                                                                                                                                    | 532                                                                                                                                                     | 13357                                                                                                                                                   | -                                                                                                                                                       | 1                                                                                                                                                       |
| Dausa                                                                                                                                                   | -                                                                                                                                                       | -                                                                                                                                                       | 1                                                                                                                                                       | -                                                                                                                                                       | 1                                                                                                                                                       | -                                                                                                                                                       | -                                                                                                                                                       |
| Dungarpur                                                                                                                                               | 652107                                                                                                                                                  | 39179                                                                                                                                                   | 54832                                                                                                                                                   | 55695                                                                                                                                                   | 801813                                                                                                                                                  | 857                                                                                                                                                     | 138                                                                                                                                                     |
| Jaipur                                                                                                                                                  | -                                                                                                                                                       | -                                                                                                                                                       | 2                                                                                                                                                       | -                                                                                                                                                       | 2                                                                                                                                                       | -                                                                                                                                                       | -                                                                                                                                                       |
| Jaisalmer                                                                                                                                               | -                                                                                                                                                       | -                                                                                                                                                       | 1                                                                                                                                                       | 1                                                                                                                                                       | 2                                                                                                                                                       | -                                                                                                                                                       | -                                                                                                                                                       |
| Jalore                                                                                                                                                  | -                                                                                                                                                       | -                                                                                                                                                       | -                                                                                                                                                       | 1                                                                                                                                                       | 1                                                                                                                                                       | -                                                                                                                                                       | -                                                                                                                                                       |
| Jhalawar                                                                                                                                                | -                                                                                                                                                       | -                                                                                                                                                       | -                                                                                                                                                       | 1                                                                                                                                                       | 1                                                                                                                                                       | -                                                                                                                                                       | -                                                                                                                                                       |
| Jodhpur                                                                                                                                                 | 1432                                                                                                                                                    | 1087                                                                                                                                                    | 1690                                                                                                                                                    | 1590                                                                                                                                                    | 5799                                                                                                                                                    | -                                                                                                                                                       | 61                                                                                                                                                      |
| Nagaur                                                                                                                                                  | 1                                                                                                                                                       | -                                                                                                                                                       | -                                                                                                                                                       | 7                                                                                                                                                       | 8                                                                                                                                                       | -                                                                                                                                                       | -                                                                                                                                                       |
| Pali                                                                                                                                                    | 36864                                                                                                                                                   | 4290                                                                                                                                                    | 32                                                                                                                                                      | 30                                                                                                                                                      | 41216                                                                                                                                                   | 49                                                                                                                                                      | 309                                                                                                                                                     |
| Pratapgarh                                                                                                                                              | 411223                                                                                                                                                  | 10619                                                                                                                                                   | 2763                                                                                                                                                    | 1222                                                                                                                                                    | 425827                                                                                                                                                  | 30                                                                                                                                                      | 3001                                                                                                                                                    |
| Rajsamand                                                                                                                                               | 11311                                                                                                                                                   | 891                                                                                                                                                     | 378                                                                                                                                                     | 493                                                                                                                                                     | 13073                                                                                                                                                   | -                                                                                                                                                       | 1                                                                                                                                                       |
| Sikar                                                                                                                                                   | -                                                                                                                                                       | -                                                                                                                                                       | -                                                                                                                                                       | 1                                                                                                                                                       | 1                                                                                                                                                       | -                                                                                                                                                       | -                                                                                                                                                       |
| Sirohi                                                                                                                                                  | 55437                                                                                                                                                   | 32740                                                                                                                                                   | 40179                                                                                                                                                   | 35551                                                                                                                                                   | 163907                                                                                                                                                  | 30                                                                                                                                                      | 132                                                                                                                                                     |
| Udaipur                                                                                                                                                 | 925020                                                                                                                                                  | 55959                                                                                                                                                   | 53052                                                                                                                                                   | 77389                                                                                                                                                   | 1111420                                                                                                                                                 | 1117                                                                                                                                                    | 1560                                                                                                                                                    |
| Grand Total                                                                                                                                             | 30,50,877                                                                                                                                               | 2,04,708                                                                                                                                                | 1,93,562                                                                                                                                                | 2,52,921                                                                                                                                                | 37,02,068                                                                                                                                               | 2,706                                                                                                                                                   | 8,445                                                                                                                                                   |

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