Lok Sabha Question No. 77 (UNSTARRED), answered on 2024-02-02
Subject: Prevention of Sickle Cell Disease
Ministry: HEALTH AND FAMILY WELFARE
Asked by: Gajendra Singh Patel

## GOVERNMENT OFINDIA MINISTRY OF HEALTH AND FAMILY WELFARE DEPARTMENTOFHEALTHAND FAMILYWELFARE

## LOK SABHA UNSTARRED QUESTION NO. 77 TO BE ANSWERED ON 02 ND FEBRUARY, 2024

## PREVENTION OF SICKLE CELLDISEASE

## 77. SHRI GAJENDRASINGH PATEL:

Will the Minister of HEALTHAND FAMILYWELFARE be pleased to state:

(a) the details of the States which have been awarded by the National Health Authority for their best performance in adopting best practices and innovations in the country;

- (b) the details of the schemes being implemented to provide best health benefits to women under the National Health Mission scheme in the country;
- (c) the efforts being taken/proposed to be taken by the Government to prevent sickle cell disease in tribal areas across the country; and
- (d) the details of health-related schemes implemented/proposed to be implemented in Khargone Barwani district under the Sampurna Kayakalp campaign in the country?

## ANSWER THE MINISTER OFSTATE IN THE MINISTRY OF HEALTH AND FAMILY WELFARE (PROF. S. P. SINGH BAGHEL)

(a) to (d): National Health Authority (NHA) organized ' Arogya Manthan 2023 ' on September 2023 to mark the completion of 5 years of implementation of Ayushman Bharat -Pradhan Mantri Jan Arogya Yojana (AB-PMJAY) and 2 years of Ayushman Bharat Digital Mission (ABDM).

During ' Arogya Manthan 2023 ' , NHArecognised the efforts of different States in implementation of AB-PMJAY and ABDM. The States of Assam, Gujarat, Kerala, Tamil Nadu and Uttarakhand were recognised for the best practices related to different aspects of implementation of ABPMJAY. The State of Assam was recognised for the adoption of best practices related to Ayushman card saturation in the State.

The State of Tamil Nadu was recognized for the best practices regarding increasing the overall performance of public hospitals under AB-PMJAY. The State of Kerala was recognised for disabled-friendly Information, Education, and Communication (IEC) interventions for making AB

-PMJAY more accessible and inclusive. The State of Gujarat was recognised for the best practices regarding adoption of anti-fraud initiatives. The State of Uttarakhand was recognised for innovations related to efficient and quality adjudication of claims. The State of Uttar Pradesh was recognised for deployment of Ayushman Kiosks in empanelled hospitals and adopting Green Channel payment on a large scale in the State.

With respect to ABDM, following States/UTs have been awarded under respective categories in Arogya Manthan, September 2023:

|   S.No | Award Description                                               | State/UT                                   |
|--------|-----------------------------------------------------------------|--------------------------------------------|
|      1 | Top UT in Linking Health Records with ABHA: Rank 1              | Ladakh                                     |
|      2 | Top UT in Linking Health Records with ABHA: Rank 2              | DNH DD                                     |
|      3 | Early adopter for roll-out of the Microsite in the State        | Mizoram                                    |
|      4 | Early adopter for roll-out of the Microsite in the State        | Andhra Pradesh, Goa , Maharashtra          |
|      5 | Top State in Linking Health Records with ABHA: Rank 1           | Mission Directorate, ABDM, Andhra Pradesh  |
|      6 | Top State in Linking Health Records with ABHA: Rank 2           | Mission Directorate, ABDM, Karnataka       |
|      7 | Top State/UT in Generation of ABHAScan and Share tokens: Rank 1 | Mission Directorate, ABDM, Uttar Pradesh   |
|      8 | Top State/UT in Generation of ABHAScan and Share tokens: Rank 2 | Mission Directorate, ABDM, Karnataka       |
|      9 | Top State/UT in Generation of ABHAScan and Share tokens: Rank 3 | Mission Directorate, ABDM, Jammu & Kashmir |

Various health schemes implemented by the Government of India under NHM for all including women, including operationalisation of Ayushman Arogya Mandir (erstwhile Ayushman BharatHealth and Wellness Centres) by transforming the existing Sub Centres and Primary Health Centre, support for engaging of health human resource on contractual basis. National Ambulance Services, Mobile Medical Units, ASHAs, Infrastructure strengthening, 24 x 7 Services and First Referral facilities, Mera Aspataal, Kayakalp Award Scheme, Prime Minister's National Dialysis Programme, National Quality Assurance Standards implementation and related Activities, LaQshya Certification, Biomedical Equipment Maintenance and Management Programme, Free Diagnostics Service Initiative and Free Drugs Service Initiative.

Further, initiatives such as Mission Parivar Vikas, Adolescent Friendly Health Clinics (AFHCs), Weekly Iron Folic Acid Supplementation (WIFS), Menstrual Hygiene Scheme, Facility Based Newborn Care (FBNC), Home Based Newborn Care Program, Social Awareness and Actions to Neutralize Pneumonia Successfully (SAANS), Home Based Care for Young Child (HBYC), Rashtriya Bal Swasthya Karyakram (RBSK), Rashtriya Kishor Swasthya Karyakram (RKSK), Early Childhood Development (ECD), Comprehensive Abortion Care (CAC), Anemia Mukt Bharat (AMB) strategy, Pradhan Mantri TB Mukt Bharat Abhiyaan (PMTBMBA), Nutrition Rehabilitation Centre (NRC) program and Universal Immunization programme have been undertaken.

Government is also implementing following schemes especially for pregnant women: Surakshit Matritva Aashwasan (SUMAN), Janani Suraksha Yojana (JSY), Janani Shishu Suraksha Karyakram (JSSK), Pradhan Mantri Surakshit Matritva Abhiyan (PMSMA), Extended Pradhan Mantri Surakshit Matritva Abhiyan (EPMSMA) strategy, Pradhan Mantri Matru Vandana Yojana (PMMVY).

To eliminate sickle cell disease by the year 2047, Sickle Cell Anaemia Elimination Mission has been launched by Hon'ble Prime Minister from Madhya Pradesh on 01.07.2023. The objectives of the Mission are provision of affordable, accessible and quality care to all Sickle Cell Diseased patients, reduction in the prevalence of Sickle Cell Disease through awareness creation, targeted screening of 7 crore people till year 2025-26 in the age group of 0-40 years in affected 278 districts of tribal areas and counselling through collaborative efforts of Central ministries and State governments.

Ministry of Health and Family Welfare has launched a National Sickle cell portal i.e. https://sickle.nhm.gov.in where achievement of screening can be accessed.

Through Ministry of Tribal Affairs, awareness and counseling material have been developed. IEC and media activities are adopted for propagation of awareness of disease, screening and management. State Governments have to play an important role in implementation of mission activities.

The Sampoorna Kayakalp Abhiyan was implemented in all over the State of Madhya Pradesh aiming towards the maintenance of the infrastructure. In this Abhiyan, funds were allotted to all block medical officers maintenance works. These funds were allotted to the districts based on their primary requirements and estimates prepared as per the directions of the Sampoorna Kayakalp Abhiyan. The details of funds allotted are at Annexure .

*****

Annexure

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|   Sl. No. | Division   | District   | Development Block   | Name of institution   | Received amount   |   Physical progress of work (in percentage) | Repair work completed in health institutions   |
|-----------|------------|------------|---------------------|-----------------------|-------------------|---------------------------------------------|------------------------------------------------|
|         1 | INDORE     | BARWANI    | SELAWAD             | PHC TALWADA BUJURG    | ₹250,000.00       |                                         100 | Yes                                            |
|         2 | INDORE     | BARWANI    | RAJPUR              | PHC NAGALWADI         | ₹489,000.00       |                                         100 | Yes                                            |
|         3 | INDORE     | BARWANI    | RAJPUR              | PHC UPLA              | ₹486,000.00       |                                         100 | Yes                                            |
|         4 | INDORE     | BARWANI    | NIWALI              | CHC NIWALI            | ₹500,000.00       |                                         100 | Yes                                            |
|         5 | INDORE     | BARWANI    | NIWALI              | PHC JOGWADA           | ₹498,000.00       |                                         100 | Yes                                            |
|         6 | INDORE     | BARWANI    | NIWALI              | PHC CHATLI            | ₹125,000.00       |                                         100 | Yes                                            |
|         7 | INDORE     | BARWANI    | PANSEMAL            | PHC RAKHI BUJURG      | ₹497,000.00       |                                         100 | Yes                                            |
|         8 | INDORE     | BARWANI    | PANSEMAL            | PHC KHETIA            | ₹125,000.00       |                                         100 | Yes                                            |
|         9 | INDORE     | BARWANI    | PATI                | CHC PATI              | ₹500,000.00       |                                         100 | Yes                                            |
|        10 | INDORE     | BARWANI    | PATI                | PHC GANDHAWAL         | ₹125,000.00       |                                         100 | Yes                                            |
|        11 | INDORE     | BARWANI    | PATI                | PHC ROSHAR            | ₹125,000.00       |                                         100 | Yes                                            |
|        12 | INDORE     | BARWANI    | PATI                | PHC BOKRATA           | ₹125,000.00       |                                         100 | Yes                                            |
|        13 | INDORE     | BARWANI    | RAJPUR              | CHC RAJPUR            | ₹500,000.00       |                                         100 | Yes                                            |
|        14 | INDORE     | BARWANI    | RAJPUR              | PHC-OZAR              | ₹125,000.00       |                                         100 | Yes                                            |
|        15 | INDORE     | BARWANI    | RAJPUR              | PHC JULWANIYA         | ₹125,000.00       |                                         100 | Yes                                            |
|        16 | INDORE     | BARWANI    | RAJPUR              | PHC INDRAPUR          | ₹125,000.00       |                                         100 | Yes                                            |
|        17 | INDORE     | BARWANI    | SELAWAD             | CHC SELAWAD           | ₹500,000.00       |                                         100 | Yes                                            |
|        18 | INDORE     | BARWANI    | SELAWAD             | PHC BHAWTI            | ₹125,000.00       |                                         100 | Yes                                            |
|        19 | INDORE     | BARWANI    | SENDHWA             | CH SENDHWA            | ₹500,000.00       |                                         100 | Yes                                            |
|        20 | INDORE     | BARWANI    | SENDHWA             | CHC WARLA             | ₹500,000.00       |                                         100 | Yes                                            |
|        21 | INDORE     | BARWANI    | SENDHWA             | PHC CHACHARIYA PATI   | ₹495,000.00       |                                         100 | Yes                                            |
|        22 | INDORE     | BARWANI    | SENDHWA             | PHC DHAWALI           | ₹490,000.00       |                                         100 | Yes                                            |
|        23 | INDORE     | BARWANI    | SENDHWA             | PHC JHOPALI           | ₹489,000.00       |                                         100 | Yes                                            |
|        24 | INDORE     | BARWANI    | SENDHWA             | PHC BABDAD            | ₹487,000.00       |                                         100 | Yes                                            |
|        25 | INDORE     | BARWANI    | SENDHWA             | PHC DHANORA           | ₹495,000.00       |                                         100 | Yes                                            |
|        26 | INDORE     | BARWANI    | SENDHWA             | PHC BALWADI           | ₹500,000.00       |                                         100 | Yes                                            |

|   27 | INDORE   | BARWANI   | SILAWAD    | PHC MENIMATA              | ₹494,000.00   |   100 | Yes   |
|------|----------|-----------|------------|---------------------------|---------------|-------|-------|
|   28 | INDORE   | BARWANI   | THIKRI     | CH ANJAD                  | ₹500,000.00   |   100 | Yes   |
|   29 | INDORE   | BARWANI   | THIKRI     | CHC THIKRI                | ₹500,000.00   |   100 | Yes   |
|   30 | INDORE   | BARWANI   | THIKRI     | PHC TALWADA DAB           | ₹497,000.00   |   100 | Yes   |
|   31 | INDORE   | BARWANI   | THIKRI     | PHC BARUPHATAK            | ₹488,000.00   |   100 | Yes   |
|   32 | INDORE   | BARWANI   | THIKRI     | PHC DAWANA                | ₹500,000.00   |   100 | Yes   |
|   33 | INDORE   | BARWANI   | THIKRI     | PHC UCHAWAD               | ₹483,000.00   |   100 | Yes   |
|   34 | INDORE   | BARWANI   | THIKRI     | PHC BRAHMAN GOAN          | ₹125,000.00   |   100 | Yes   |
|   35 | INDORE   | BARWANI   | BARWANI    | DISTRICT HOSPITAL BARWANI | ₹500,000.00   |   100 | Yes   |
|   36 | INDORE   | BARWANI   | PANSEMAL   | CHC PANSEMAL              | ₹500,000.00   |   100 | Yes   |
|   37 | INDORE   | BARWANI   | PANSEMAL   | PHC MOYDA                 | ₹498,000.00   |   100 | Yes   |
|   38 | INDORE   | BARWANI   | PANSEMAL   | PHC BANDHARA BUJURG       | ₹125,000.00   |   100 | Yes   |
|   39 | INDORE   | KHARGONE  | SENGAON    | RKS KELI                  | ₹980,000.00   |   100 | Yes   |
|   40 | INDORE   | KHARGONE  | BADWAH     | PHC KANAPUR               | ₹490,000.00   |   100 | Yes   |
|   41 | INDORE   | KHARGONE  | BADWAH     | RKS DHAKALGAON            | ₹486,000.00   |   100 | Yes   |
|   42 | INDORE   | KHARGONE  | BARWAH     | CH SANAWAD                | ₹500,000.00   |   100 | Yes   |
|   43 | INDORE   | KHARGONE  | BARWAH     | PHC MARDANA               | ₹487,000.00   |   100 | Yes   |
|   44 | INDORE   | KHARGONE  | BARWAH     | PHC JETHWAY               | ₹485,000.00   |   100 | Yes   |
|   45 | INDORE   | KHARGONE  | BARWAH     | PHC BADUD                 | ₹495,000.00   |   100 | Yes   |
|   46 | INDORE   | KHARGONE  | BARWAH     | PHC BALWADA               | ₹487,000.00   |   100 | Yes   |
|   47 | INDORE   | KHARGONE  | BARWAH     | PHC BANGARDA              | ₹495,000.00   |   100 | Yes   |
|   48 | INDORE   | KHARGONE  | BHIKANGAON | PHC ANDAD                 | ₹493,000.00   |   100 | Yes   |
|   49 | INDORE   | KHARGONE  | BHIKANGAON | PHC BAMNALA               | ₹489,000.00   |   100 | Yes   |
|   50 | INDORE   | KHARGONE  | GOGAWA     | PHC KOTHA KHURD           | ₹495,000.00   |   100 | Yes   |
|   51 | INDORE   | KHARGONE  | GOGAWA     | PHC NAGJHIRI              | ₹500,000.00   |   100 | Yes   |
|   52 | INDORE   | KHARGONE  | KASRAWAD   | PHC MULTHAN               | ₹490,000.00   |   100 | Yes   |
|   53 | INDORE   | KHARGONE  | KASRAWAD   | PHC BALAKWADA             | ₹495,000.00   |   100 | Yes   |

|   54 | INDORE   | KHARGONE   | KHARGONE    | PHC OON               | ₹485,000.00   |   100 | Yes   |
|------|----------|------------|-------------|-----------------------|---------------|-------|-------|
|   55 | INDORE   | KHARGONE   | KHARGONE    | PHC RAIBIDPURA        | ₹495,000.00   |   100 | Yes   |
|   56 | INDORE   | KHARGONE   | KHARGONE    | PHC GHEGAWA           | ₹490,000.00   |   100 | Yes   |
|   57 | INDORE   | KHARGONE   | KHARGONE    | PHC MENGAON           | ₹490,000.00   |   100 | Yes   |
|   58 | INDORE   | KHARGONE   | KHARGONE    | PHC DONGARGAON        | ₹500,000.00   |   100 | Yes   |
|   59 | INDORE   | KHARGONE   | MAHESHWAR   | CHC MAHESHWAR         | ₹500,000.00   |   100 | Yes   |
|   60 | INDORE   | KHARGONE   | MAHESHWAR   | PHC PIPLIYA BUJURG    | ₹490,000.00   |   100 | Yes   |
|   61 | INDORE   | KHARGONE   | MAHESHWAR   | PHC DHARGAON          | ₹485,000.00   |   100 | Yes   |
|   62 | INDORE   | KHARGONE   | MAHESHWAR   | PHC BADDIYA           | ₹486,000.00   |   100 | Yes   |
|   63 | INDORE   | KHARGONE   | BADWAH      | CIVIL HOSPITAL BADWAH | ₹500,000.00   |   100 | Yes   |
|   64 | INDORE   | KHARGONE   | BADWAH      | PHC KATKUT            | ₹495,000.00   |   100 | Yes   |
|   65 | INDORE   | KHARGONE   | BADWAH      | PHC BEDIYA            | ₹490,000.00   |   100 | Yes   |
|   66 | INDORE   | KHARGONE   | BADWAH      | CHC BAGOD BADWAH      | ₹500,000.00   |   100 | Yes   |
|   67 | INDORE   | KHARGONE   | BHAGWANPUR  | RKS BHAGYAPUR         | ₹490,000.00   |   100 | Yes   |
|   68 | INDORE   | KHARGONE   | BHAGWANPURA | PHC BHAGWANPUR        | ₹500,000.00   |   100 | Yes   |
|   69 | INDORE   | KHARGONE   | BHAGWANPURA | PHC DEVNALIYA         | ₹495,000.00   |   100 | Yes   |
|   70 | INDORE   | KHARGONE   | BHAGWANPURA | PHC PIPALJHHOPA       | ₹490,000.00   |   100 | Yes   |
|   71 | INDORE   | KHARGONE   | BHAGWANPURA | PHC MANDAVKHEDA       | ₹482,000.00   |   100 | Yes   |
|   72 | INDORE   | KHARGONE   | BHAGWANPURA | PHC MOHANA            | ₹490,000.00   |   100 | Yes   |
|   73 | INDORE   | KHARGONE   | BHIKANGAON  | CHC BHIKANGAON        | ₹500,000.00   |   100 | Yes   |
|   74 | INDORE   | KHARGONE   | BHIKANGAON  | PHC GORADIYA          | ₹497,000.00   |   100 | Yes   |
|   75 | INDORE   | KHARGONE   | BHIKANGAON  | PHC RODIYA            | ₹491,000.00   |   100 | Yes   |
|   76 | INDORE   | KHARGONE   | BHIKANGAON  | PHC KALDHA            | ₹489,000.00   |   100 | Yes   |
|   77 | INDORE   | KHARGONE   | GOGANWA     | CHC GOGAWANA          | ₹500,000.00   |   100 | Yes   |
|   78 | INDORE   | KHARGONE   | GOGANWA     | PHC BISTAN            | ₹495,000.00   |   100 | Yes   |
|   79 | INDORE   | KHARGONE   | GOGANWA     | PHC BEHRAMPUR         | ₹480,000.00   |   100 | Yes   |
|   80 | INDORE   | KHARGONE   | GOGAWA      | PHC BADGAO            | ₹480,000.00   |   100 | Yes   |

|   81 | INDORE   | KHARGONE   | GOGAWA    | PHC UMARKHALI    | ₹480,000.00   |   100 | Yes   |
|------|----------|------------|-----------|------------------|---------------|-------|-------|
|   82 | INDORE   | KHARGONE   | JHIRNIYA  | RKS CHC ZIRNIYA  | ₹500,000.00   |   100 | Yes   |
|   83 | INDORE   | KHARGONE   | JHIRNIYA  | PHC RAYALBERA    | ₹496,000.00   |   100 | Yes   |
|   84 | INDORE   | KHARGONE   | JHIRNIYA  | PHC HELAPARAVA   | ₹490,000.00   |   100 | Yes   |
|   85 | INDORE   | KHARGONE   | JHIRNIYA  | PHC SHIVANA      | ₹490,000.00   |   100 | Yes   |
|   86 | INDORE   | KHARGONE   | JHIRNYA   | RKS RATANPUR     | ₹490,000.00   |   100 | Yes   |
|   87 | INDORE   | KHARGONE   | KASARAWAD | PHC BALSAMUN     | ₹495,000.00   |   100 | Yes   |
|   88 | INDORE   | KHARGONE   | KASRAVAD  | PHC KHAMKHEDA    | ₹497,000.00   |   100 | Yes   |
|   89 | INDORE   | KHARGONE   | KASRAWAD  | CHC KASRAVAD     | ₹500,000.00   |   100 | Yes   |
|   90 | INDORE   | KHARGONE   | kasrawad  | PHC SATKOOR      | ₹485,000.00   |   100 | Yes   |
|   91 | INDORE   | KHARGONE   | KHARGON   | PHC TEMLA        | ₹495,000.00   |   100 | Yes   |
|   92 | INDORE   | KHARGONE   | KHARGONE  | DH KHARGONE      | ₹500,000.00   |   100 | Yes   |
|   93 | INDORE   | KHARGONE   | KHARGONE  | URBAN SUKHPURI   | ₹482,000.00   |   100 | Yes   |
|   94 | INDORE   | KHARGONE   | KHARGONE  | URBAN INDRANAGAR | ₹480,000.00   |   100 | Yes   |
|   95 | INDORE   | KHARGONE   | KHARGONE  | CHC BARUD        | ₹500,000.00   |   100 | Yes   |
|   96 | INDORE   | KHARGONE   | MAHESHWAR | PHC KAKRADA      | ₹497,000.00   |   100 | Yes   |
|   97 | INDORE   | KHARGONE   | MAHESHWAR | PHC PADALYA      | ₹495,000.00   |   100 | Yes   |
|   98 | INDORE   | KHARGONE   | MAHESHWAR | PHC CHOLI        | ₹490,000.00   |   100 | Yes   |
|   99 | INDORE   | KHARGONE   | MAHESHWAR | PHC KAVDIYA      | ₹490,000.00   |   100 | Yes   |
|  100 | INDORE   | KHARGONE   | MAHESHWAR | PHC SOMAKHERI    | ₹489,000.00   |   100 | Yes   |
|  101 | INDORE   | KHARGONE   | MAHESHWAR | PHC NANDRA       | ₹486,000.00   |   100 | Yes   |
|  102 | INDORE   | KHARGONE   | MAHESHWAR | PHC KARHI        | ₹490,000.00   |   100 | Yes   |
|  103 | INDORE   | KHARGONE   | MAHESHWAR | CHC MANDLESHWAR  | ₹500,000.00   |   100 | Yes   |
|  104 | INDORE   | KHARGONE   | MAHESHWAR | PHC ASHAPUR      | ₹495,000.00   |   100 | Yes   |
|  105 | INDORE   | KHARGONE   | SEGAON    | CHC SEGAON       | ₹500,000.00   |   100 | Yes   |
|  106 | INDORE   | KHARGONE   | SEGAON    | PHC SHRIKHANDI   | ₹493,000.00   |   100 | Yes   |