Lok Sabha Question No. 792 (UNSTARRED), answered on 2021-02-05
Subject: Kidney Diseases
Ministry: HEALTH AND FAMILY WELFARE
Asked by: Poonamben Hematbhai Maadam, Ranjeeta Koli, Rajeshbhai Naranbhai Chudasama

## GOVERNMENT OF INDIA MINISTRY OF HEALTH AND FAMILY WELFARE DEPARTMENT OF HEALTH AND FAMILY WELFARE

## LOK SABHA UNSTARRED QUESTION NO. 792 TO BE ANSWERED ON 5 TH FEBRUARY, 2021

## KIDNEY DISEASES

## 792. SHRIMATI POONAMBEN M AADAM: SHRIMATI RANJEETA KO LI: SHRI RAJESBHAI CHUDASAMA:

Will the Minister of HEALTH AND FAMILY WE LFARE be pleased to state:

- (a) whether the number of kidney patients have doubled during the last 25 years and the kidney failure cases have increased every year;
- (b) if so, the reaction of the Government thereto;
- (c) the strategy being adopted by the Government for prevention of such disease;
- (d) whether the Government is considering to simplify the process of organ donation, if so, the details thereof; and
- (e) the time by which a final decision in this regard is likely to be taken?

## ANSWER

## THE MINISTER OF STATE IN THE MINISTRY OF HEALTH AND FAMILY WELFARE (SHRI ASHWINI KUMAR CHOUBEY)

- (a) & (b): As per Indian Council of Medical Research( ICMR), Disability Adjusted Life Years (DALY) related to chronic kidney diseases has increased by 12 % between 1990 to 2016, as the Global Burden of Disease -India Study. However, it is anticipated that with increase in ca of Diabetes & Hypertension as well as awareness about kidney diseases, more cases are gettin reported in hospitals. The ICMR conducted a prevalence study of CKD in the Indian Popula with centres at Delhi, Jaipur, Hyderabad, Bhubneshwar, Kolkata, Guwahati and Mumbai. Th initial trend of data indicates a community prevalence of CKD on first screening ranging f 5.5%-18.2% with average prevalence of 11.4 % on first screening.
- (c):Public Health is a State subject.  However, the Central Government supplements the ef of  S tates/UTs  through  technical  and  financial  support.    The  Government  of  India implementing National Programme for Prevention and Control of Cancer, Diabetes, Cardiovascular Diseases and Stroke (NPCDCS) for interventions up to District level unde Nati onal Health Mission (NHM). It focuses on awareness generation for behaviour and life - style

changes, screening and early diagnosis of persons with high level of risk factors and thei to  higher  facilities  for  appropriate  management  of  common  Non - Co mmunicable  Diseases (NCDs) including diabetes and hypertension, which are two known causes of kidney diseas For  early  diagnosis,  population - based  screening  for  common  NCDs  including  diabetes  and hypertension has been initiated by Government of India by utilizing the services of the frontline health - workers under existing Primary Healthcare System.

(d) & (e): Transplantation of Human Organs and Tissues Act, 1994 (as amended in 2011), i provide for regulation of removal, storage and transplantation of human organs and tissues for therapeutic purposes and for prevention of commercial dealings in human organs and tissu matter connected therewith or incidental thereto.

Under the amended Act, the Transplantation of Human Organs and Tissues Rules have been notified in 2014.

The Amended Act and Rules have made following provisions for increasing th e pool of organ donors and easing the process of organ donation.

'Near relative' definition has been expanded to include grandchildren, grandparents.

1. Swap Donor (Donor  Exchange)  Transplant  has  been  permitted  among  near  relative donors.
2. The requirement of No Objection Certificate or approval for donor and recipients respective domicile State, in cases where donor, recipient and place of transplanta are from different States, has been done away with, in the aforesaid Rules notified in 2
3. It is now mandatory to have transplant coordinators in transplant and retrieval hosp encourage family members for organ donation from deceased donors and to explain the process of organ donation to them.
4. It is now also mandatory to request for donation from potential deceased donors adm in Intensive Care Units (ICU)
5. Central Government has been given the mandate to establish National Human Organs and Tissues  removal  and  Storage  network  and  maintain  a  national  registry  of  donors recipients. Government of India is implementing National Organ Transplant Programm (NOTP), for establishing an efficient and transparent organ procurement and distrib system  in  the  country.  For  this  purpose, National  Organ  and  Tissue  Transplant Organization  (NOTTO)  at  national  level,  5  Regional  Organ  and  Tissue  Transplan Organizations  (ROTTO)  at  regional  level  and  13  State  Organ  and  Tissue  Transplan Organizations(SOTTO ) at State level have been set up
6. National Registry for organ donation and transplantation including the registry of patients waiting for organ transplant and those who wish to pledge for organ donation after The same is being maintained by NOTTO.