Lok Sabha Question No. 3985 (UNSTARRED), answered on 2023-03-24
Subject: Population based Cancer Registry Programme
Ministry: HEALTH AND FAMILY WELFARE
Asked by: Dushyant Singh

## GOVERNMENT OF INDIA MINISTRY OF HEALTH AND FAMILY WELFARE DEPARTMENT OF HEALTH AND FAMILY WELFARE

## LOK SABHA UNSTARRED QUESTION NO. 3985 TO BE ANSWERED ON 24 th  MARCH, 2023

## POPULATION BASED CANCER REGISTRY PROGRAMME

## 3985.    SHRI DUSHYANT SINGH:

Will the MINISTER OF HEALTH AND FAMILY WELFARE be pleased to state:

- (a) whether the Government intends to designate cancer as a 'notifiable' disease;
- (b) if so, the details thereof and if not, the reasons therefor;
- (c) the total population covered by the Population based Cancer Registry Programme, State/UT-wise, especially in Rajasthan; and
- (d) the steps taken/proposed to be taken by the Government to take measures to expand the scope of the Population-Based Cancer Registry (PBCR) and ensure conducting more rural-based PBCRs to get accurate information about the incidence and types of cancer across the country?

## ANSWER THE MINISTER OF STATE IN THE MINISTRY OF HEALTH AND FAMILY WELFARE (DR. BHARATI PRAVIN PAWAR)

(a) and (b):

1. A notifiable disease is any disease that is required by law to be reported to government authorities. The World Health Organization's International Health Regulations consider infectious diseases to be included  in  order  to  help  with  its  global  surveillance  and  advisory  role.  Making  a  disease  legally notifiable by doctors and health professionals allows for intervention to control the spread of infectious diseases. Cancer is a type of noncommunicable disease and not an infectious disease.
2. However, the National Cancer Registry Programme (NCRP) under the Indian Council of Medical Research  (ICMR)  with  its  network  of  cancer  registries  provides  the  data  on  cancer  incidence, mortality,  pattern,  trend  and  geo-pathological  distribution  of  cancers.  It  also  helps  to  formulate  and implement policies and programmes, monitor and evaluate the cancer control activities.
3. (c) The list of 38 Population Based Cancer Registries Facilities is attached at Annexure 1.

(d)

1. The National Cancer Registry Programme coverage in India is 16.4%.
2. There are 38 Population Based Cancer Registries (PBCRs), of which 35 PBCRs' are located in 20 states, and 3 PBCRs are in three UTs.
3.  To  expand  the  network,  Indian  Council  of  Medical  Research  -  National  Centre  for  Disease Informatics and Research (ICMR-NCDIR) have signed MoUs for three years with the Government of Rajasthan and Andhra Pradesh to set up cancer atlases in the states.
4. There are 215 Hospital Based Cancer Registries (HBCRs) across the country.

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Table: List of 38 PBCR Facilities State/UTs wise

|   S. No. | PBCR Facilities         | States/UTs        |
|----------|-------------------------|-------------------|
|        1 | Ahmedabad Rural         | Gujarat           |
|        2 | Ahmedabad Urban         | Gujarat           |
|        3 | Aligarh Urban           | Uttar Pradesh     |
|        4 | Gautam Buddh Nagar      | Uttar Pradesh     |
|        5 | Allahabad               | Uttar Pradesh     |
|        6 | Aurangabad              | Maharashtra       |
|        7 | Nagpur Rural            | Maharashtra       |
|        8 | Wardha District         | Maharashtra       |
|        9 | Pune                    | Maharashtra       |
|       10 | Nagpur                  | Maharashtra       |
|       11 | Mumbai                  | Maharashtra       |
|       12 | Barshi Rural            | Maharashtra       |
|       13 | Bangalore               | Karnataka         |
|       14 | Osmanabad &Beed         | Telangana         |
|       15 | Hyderabad District      |                   |
|       16 | Bhopal                  | Madhya Pradesh    |
|       17 | Cachar District         | Assam             |
|       18 | Karimganj               | Assam             |
|       19 | Kamrup district         | Assam             |
|       20 | Dibrugarh - Upper Assam | Assam             |
|       21 | Chennai                 | Tamil Nadu        |
|       22 | Delhi                   | Delhi             |
|       23 | Kashmir Province        | Jammu and Kashmir |
|       24 | Kolkata                 | West Bengal       |
|       25 | Kollam District         | Kerala            |
|       26 | Thiruvananthapuram      | Kerala            |
|       27 | Malabar                 | Kerala            |
|       28 | Manipur State           | Manipur           |
|       29 | Meghalaya               | Meghalaya         |
|       30 | Mizoram State           | Mizoram           |
|       31 | Nagaland                | Nagaland          |
|       32 | West Arunachal          | Arunachal Pradesh |
|       33 | Pasighat                |                   |
|       34 | Patiala District        | Punjab            |
|       35 | Patna                   | Bihar             |
|       36 | Sikkim State            | Sikkim            |
|       37 | Tripura State           | Tripura           |
|       38 | Rishikesh-Haridwar      | Uttarakhand       |