Lok Sabha Question No. 165 (STARRED), answered on 2021-07-30
Subject: Framework for Organ Transplantation
Ministry: HEALTH AND FAMILY WELFARE
Asked by: Arvind Kumar Sharma

## GOVERNMENT OF INDIA MINISTRY OF HEALTH AND FAMILY WELFARE DEPARTMENT OF HEALTH AND FAMILY WELFARE

## LOK SABHA STARRED QUESTION NO. 165 TO BE ANSWERED ON THE 30 TH JULY , 2021 FRAMEWORK FOR ORGAN TRANSPLANTATION

## *165. DR. ARVIND KUM AR SHARMA:

Will the Minister of HEALTH AND FAMILY WELFARE be pleased to state:

- (a) whether the Government is aware that around four lakh people die in year waiting for an organ transplant and if so, the details thereof;
- (b) whether the Government has taken note of various difficulties being receiver viz., finances for transplant, post transplant medication, leg non uniform definitions, lack of necessary infrastructure, information g he donor like lack of awareness;
- (c) if so, the details thereof;
- (d)  whether  the  Government  has  formulated/proposes  to  formulate  any framework to facilitate organ transplant; and
- (e) if so, the details thereof and the steps/measures taken in t his regard?

## ANSWER THE MINISTER OF HEALTH AND FAMILY WELFARE ( SHRI MANSUKH MANDAVIYA)

- (a)to (e )A Statement is laid on the Table of the House.

## STATEMENT REFERRED TO IN REPLY TO LOK SABHA STARRED QUESTION NO. 165* FOR 30 TH JULY , 202 1

(a) to (e) The Government of India has taken note of difficulties posed by availability of organs for transplantation in the country and has taken v to address the same.

The Government has enacted Transplantation of Human Organs (Amend ment) Act  2011  to  amend  the  Transplantation  of  Human  Organs  Act  (THOA),  1994 notified Transplantation of Human Organs and Tissues Rules 2014. The afor and Rules have various provisions for increasing the pool of organ donor away wit h legal complexities as well as non - uniform definitions.

Government  is  implementing  the  National  Organ  Transplant  Progr (NOTP)  for  augmenting  organ  donation  and  transplantation  in  the  country level framework of networking organisations with N OTTO at National level, Regiona Organ and Tissue Transplant Organisation (ROTTO) at regional level and St and  Tissue  Transplant  Organisation  (SOTTO)  at  State  level,  has  been  s providing  an  efficient  and  organized  system  of  organ  and  tiss ue  procurement  from deceased donors and their allocation to the waiting recipients.

So far, NOTTO at New Delhi, 5 ROTTOs (at Chandigarh, Mumbai, Chenn Kolkata and Guwahati) and 14 SOTTOs (in the State of Andhra Pradesh, Bih Gujarat, Haryana, Hi machal Pradesh, Jammu & Kashmir, Jharkhand, Kerala, Madh Pradesh, Odisha, Punjab, Rajasthan, Uttar Pradesh) have been established. 595 centres (503 transplant centres and 50 retrieval centre and 42 tiss linked with the National R egistry maintained by NOTTO.

NOTP has various provisions which include:

- Financial  assistance  for  setting  up  of  State  Organ  and  Tissue Organisations (SOTTOs) in each State/UT.
- Financial assistance for setting up of Bio - material centres.
- Financial assistance  for  establishing  new  Organ  Transplant/retrieval and strengthening of existing Organ Transplant/retrieval facilities.
- Training to Manpower including surgeons, physicians, anesthetists, coordinators, etc.
- Financial assistanc e for hiring of Transplant Coordinators to medical and trauma centres.
- Financial assistance for maintenance of bodies of deceased donor.
- Financial  assistance  to  Below  Poverty  Line  (BPL)  transplant  recip have  undergone transplant  in  a Government  Hospital,  for  post - transplant medications.

A National Bio - material Centre has been set up at NOTTO, New Delhi a Regional Bio - material centre has been established at ROTTO, Tamil Nadu. F funds have been released to the State of Bihar a nd Maharashtra for establishment Bio- material Centre. Funds have also been released to the State of Bihar establishing  new  Organ  Transplant/retrieval  facilities  and  strengthenin Organ Transplant/retrieval facilities.

Further, un der Rastriya Arogya Nidhi, financial assistance is being p poor patients who are suffering from life threatening diseases relating t liver, etc. for their treatment including respective organ transplantatio Government hospitals/institutes having super specialties facilities.

As far as creating awareness activities are concerned the NOTTO, ROT SOTTOs  carry  out  awareness  and  disseminate  relevant  information  abou donation to the public. A website www.notto.gov.in and a 24x7 call centre with free  helpline  number  (1800114770)  have  been  made  operational.  A  num activities, for generating awareness are carried out from time to time. celebration of Indian Organ Donation Day ev ery year, seminars, workshops, debat display  boards  on  organ  donation  awareness  in  the  hospitals,  spor walkathons, participation in marathons, nukkad natak, etc. Social media used to create awareness about organ donation among th e citizens.

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