Lok Sabha Question No. 2023 (UNSTARRED), answered on 2019-11-29
Subject: Unavailability of Organs
Ministry: HEALTH AND FAMILY WELFARE
Asked by: Unmesh Bhaiyyasaheb Patil

## GOVERNMENT OF INDIA MINISTRY OF HEALTH AND FAMILY WELFARE DEPARTMENT OF HEALTH AND FAMILY WELFARE

## LOK SABHA UNSTARRED QUESTION NO. 2023 TO BE ANSWERED ON 29 TH NOVEMBER, 2019

## UNAVAILABILITY OF OR GANS

## 2023. SHRI UNMESH BHAIYYA SAHEB PATIL:

Will the Minister of HEALTH AND FAMILY WELFARE be pleased to state:

- (a) whether around 5 lakh people die every year in the country due to unavailability of human organs and if so, the reaction of the Government ther to;
- (b) whether it  is  a  fact  that  lack  of knowledge, awareness and infrastructure are the main reasons hampering organ donation in the country and if so, the details thereof;
- (c) whether it is a fact that nearly 2 lakh patients require kidneys every year in the country, while only 15,000 kidneys are available and about 1 lakh people die of liver disease and only 1,000 get liver transplant;
- (d) if so, the details thereof and the reasons for not being able to get organs from cadavers; and
- (e) the steps taken by the Gover nment to ensure more and more availability of organs for the people?

## ANSWER THE MINISTER OF STATE IN THE MINISTRY OF HEALTH AND FAMILY WELFARE (SHRI ASHWINI KUMAR CHOUBEY)

- (a) : The data regarding number of people who died due to unavailability of organs is maintained by the Ministry of Health and Family Welfare.
- (b)to(d) : There are many reasons hampering organ donation in the country including lack of knowledge, awarene ss and infrastructure. Patients registered in the waiting list National Organ and Tissue Transplant Organisation (NOTTO) for kidney and liver transpl during last three years and data regarding kidney and liver transplants during last th is given at Table 'A' and Table 'B' respectively of Annexure.
- (e) : To improve access to the transplantation for needy patients by promoting decea organ  donation,  the  Government  is  implementing  National  Organ  Transplant  Programme (NOTP).  Under  this programme,  an  apex  level  National  Organ  and  Tissue  Transplant Organisation  (NOTTO)  at  New  Delhi  and  Five  Regional  Organ  and  Tissue  Transplant Organizations  (ROTTOs)  at  Chandigarh,  Mumbai,  Chennai,  Kolkata  and  Guwahati  have been  set  up.  The  Government  has  r eleased  funds  to  establish  State  Organ  and  Tissue Transplant  Organizations  (SOTTOs)  in  the  States  of  Madhya  Pradesh,  Kerala,  Rajastha Haryana,  Goa,  Jammu  &  Kashmir,  Odisha,  Uttar  Pradesh,  Punjab  Bihar  and  Gujarat  t o organize  an  efficient  mechanism  for  or gan  and  tissue  procurement/retrieval  to  promote deceased organ and tissue donation.

Further, to improve infrastructure for human organ and tissue retrieval, stora transplantation in all parts of the country, the Government has:

- Set up National/ R egional Bio - material Centres;
- Provided financial support for establishing new Organ Transplant/retrieval faci and strengthening of existing Organ Transplant/retrieval facilities.
- Provided  training  to  transplant  experts  including  surgeons,  physicians, transplant coordinators, etc.
- Provided  financial  support  for  provision  of  Transplant  Coordinators  to  medi colleges and trauma centres.

National Organ and Tissue Transplant Organisation (NOTTO), Regional Organ and Tissue  Transplant  Organizations  (ROTTO s)  and  State  Organ  and  Tissue  Transplant Organizations (SOTTOs) disseminate relevant information in the public. A 24x7 call ce with  a  toll  free  helpline  number  (1800114770)  has  been  made  operational.  A  number activities, for generating awareness and for imparting training to all those associated with transplant  activities  including  doctors  and  transplant  coordinators,  such  as  celebr Indian  Organ  Donation  Day  every  year,  seminars,  workshops,  debates,  sports  event walkathons, participation in marathons, nukkad Natak, etc. are organized at different place in the country. Audio - visual messages to promote cadaver organ donation are also telecast o Doordarshan and other television channels.

Patients  registered  in  the  waiting  list with  NOTTO  for  kidney  and  liver  transplant during last three year:

| TABLE 'A'   | TABLE 'A'   | TABLE 'A'   |
|-------------|-------------|-------------|
| Year        | Kidney      | Liver       |
| 9094        | 2669        | 2016        |
| 11395       | 3419        | 2017        |
| 12758       | 4173        | 2018        |

Data with NOTTO regarding Kidney and Liver Transplant during last three years:

| TABLE 'B'   | TABLE 'B'          | TABLE 'B'          | TABLE 'B'          | TABLE 'B'         | TABLE 'B'         | TABLE 'B'   |
|-------------|--------------------|--------------------|--------------------|-------------------|-------------------|-------------|
|             | Kidney Transplants | Kidney Transplants | Kidney Transplants | Liver Transplants | Liver Transplants | Years       |
|             | Deceased Donors    | Living Donors      | Total              | Deceased Donors   | Living Donors     | Total       |
| 1261        | 5722               | 6983               |                    | 694               | 1059 1753         | 2016        |
| 1169        | 6225               | 7394               |                    | 579               | 1264 1843         | 2017        |
| 1164        | 6820               | 7984               | 631                | 1313              | 1944              | 2018        |