Lok Sabha Question No. 2494 (UNSTARRED), answered on 2018-03-09
Subject: Non-Availability of Organs
Ministry: HEALTH AND FAMILY WELFARE
Asked by: HARISH CHANDRA MEENA

## GOVERNMENT OF INDIA MINISTRY OF HEALTH AND FAMILY WELFARE DEPARTMENT OF HEALTH AND FAMILY WELFARE

## LOK SABHA UNSTARRED QUESTION NO. 2494 TO BE ANSWERED ON 9 TH MARCH, 2018

## NON - AVAILABILITY OF ORGA NS

## 2494. SHRI HARISH MEENA:

Will the Minister of HEALTH AND FAMILY WELFARE be pleased to state:

- (a) whether nearly five lakh people die because of non - availability of organs and almost ten lakh people suffer from corneal blindness and await transplant in the country every year;
- (b) if so, the details thereof and the steps taken or proposed to be taken to increase the organ donation in the country;
- (c)  the  details  of  the  Government hospitals  where  surgical  facilities  for  organ transplant procedure/retrieval operation are available in v arious parts of the country;
- (d) whether there is any mismatch be ween demand and supply of various organ and tissue transplantations due to lack of awareness and enabling policies; and
- (e) if so, the details thereof?

## ANSWER THE MINISTER OF STATE IN THE MINISTRY OF HEALTH AND FAMILY WELFARE (SMT. ANUPRIYA PATEL )

(a) & (b): Health  is  a  State  subject.  The  data  regarding  number  of  people  who  d because of non - availability of organs is not maintained centrally. As per the estimates Rapid Assessment of Avoidable Blindness (RAAB) Survey (2006 - 07) conducted under the Nation al Programme for Control of Blindness and Visual Impairment (NPCB & VI), there were around 1,20,000 bilaterally corneal blind persons in the country. Apart from this 20,000 new cases of corneal blindness are added up every year.

The Government is implementing the National Organ Transplant Programme (NOTP) to  promote  organ  donation  across  the  country. An  apex  level  organization  viz.  National Organ and Tissue Transplant Organization (NOTTO) has been set - up at Safdarjung Hospital, New Delhi for nation al networking, national registry, and distribution of donated Organs Tissues  from  deceased  persons.  In  addition,  a  National  Biomaterial  Centre  has  also established  at  NOTTO  and  made  functional. Five  other  Regional  Organ  and  Tissue Transplant Organis ations (ROTTOs) have also been set up under NOTP.

The Government of India has taken a series of measures to promote cadaver org donation. The website of the NOTTO, viz. www.notto.nic.in contains information pertinent to the activities relating to organ donation. A 24x7 call centre with a toll free helpl (1800114770) has been set up. Further, a number of activities are carried out through year for generating awareness abo ut cadaver organ donation and for imparting training to al those  associated  with  transplant  activities  including  doctors  and  transplant  coord Activities such as celebration of Indian organ donation day every year, seminars, work debates, spo rts events, walkathons, participation in marathons, nukkad natak, etc. are organized  at  different  places  in  the  country  to  disseminate  information  and  in awareness. Audio - visual  messages  to  promote  cadaver  organ  donation are also telecast o Doo rdarshan and other Television channels.

Further, NOTP has provisions for establishment of State Organ and Tissue Transpl Organisations  (SOTTO)  in  every  State/UT,  establishment  of  10  Biomaterial  Centre financial assistance for d eveloping new and stre ngthening the existing retrieval and transplant units  in  Government  medical  colleges  of  all  States  /UTs  and support  to  retrieval  (Non -Transplant Organ Retrieval Centres) /Transplant Centres for maintenance of cadavers.

(c ): As  per  data  available  with  NOT TO  the  list  of  registered  transplant/retrieval Government hospitals is at Annexure.

(d) & (e): Yes. There is mismatch between demand and supply of various organs and tissue s for transplantation. The main reasons for mismatch are:

1. Poor Organ Donation R ate from deceased donors.
2. Poor Brain Stem Death Certification rate in registered hospitals.

| Govt. Hospital List - Registered with NOTTO as on 7 th March 2018   | Govt. Hospital List - Registered with NOTTO as on 7 th March 2018   | Govt. Hospital List - Registered with NOTTO as on 7 th March 2018   | Govt. Hospital List - Registered with NOTTO as on 7 th March 2018   | Govt. Hospital List - Registered with NOTTO as on 7 th March 2018   | Govt. Hospital List - Registered with NOTTO as on 7 th March 2018   | Govt. Hospital List - Registered with NOTTO as on 7 th March 2018   |
|---------------------------------------------------------------------|---------------------------------------------------------------------|---------------------------------------------------------------------|---------------------------------------------------------------------|---------------------------------------------------------------------|---------------------------------------------------------------------|---------------------------------------------------------------------|
| Sr. No.                                                             | Hospital Name                                                       | State                                                               | Transplant/Retrieval of Organ/ Tissue                               | Hospital Type                                                       | Transplant                                                          | Retrieval                                                           |
| 1.                                                                  | Gauhati Medical College Hospital                                    | Assam                                                               | Kidney                                                              | Government                                                          | Yes                                                                 | No                                                                  |
| 2.                                                                  | Army Hospital Research and Referral                                 | Delhi(UT)                                                           | Liver, Kidney, Cornea                                               | Government                                                          | Yes                                                                 | No                                                                  |
| 3.                                                                  | GB Pant Hospital                                                    | Delhi(UT)                                                           | Liver                                                               | Government                                                          | No                                                                  | Yes                                                                 |
| 4.                                                                  | PGIMER DR RML                                                       | Delhi(UT)                                                           | Kidney, Heart                                                       | Government                                                          | Yes                                                                 | No                                                                  |
| 5.                                                                  | Safdarjung Hospital                                                 | Delhi(UT)                                                           | Kidney                                                              | Government                                                          | Yes                                                                 | No                                                                  |
| 6.                                                                  | Goa Medical College                                                 | Goa                                                                 | Kidney                                                              | Government                                                          | Yes                                                                 | No                                                                  |
| 7.                                                                  | Institute of Kidney Diseases Research Centre                        | and Gujrat                                                          | Kidney, Liver                                                       | Government                                                          | Yes                                                                 | No                                                                  |
| 8.                                                                  | Government Medical College Trivendrum                               | Kerala                                                              | Kidney, Liver                                                       | Government                                                          | Yes                                                                 | No                                                                  |
| 9.                                                                  | Govt. Medical College Kottayam                                      | Kerala                                                              | Kidney, Heart, Lung, Cornea, Heart Valve                            | Government                                                          | Yes                                                                 | No                                                                  |
| 10.                                                                 | Westfort Hitech Hospital Ltd.                                       | Kerala                                                              | Kidney                                                              | Government                                                          | Yes                                                                 | No                                                                  |
| 11.                                                                 | Westfort Hitech Hospital Ltd.                                       | Kerala                                                              | Kidney                                                              | Government                                                          | Yes                                                                 | No                                                                  |
| 12.                                                                 | Command Hospital Pune                                               | Maharastra                                                          | Kidney                                                              | Government                                                          | Yes                                                                 | No                                                                  |
| 13.                                                                 | KEM Hospital Pune                                                   | Maharastra                                                          | Kidney, Liver                                                       | Government                                                          | Yes                                                                 | No                                                                  |
| 14.                                                                 | Lokmanya TilanMunicipal General Hospital Mumbai                     | Maharastra                                                          | Kidney                                                              | Government                                                          | Yes                                                                 | No                                                                  |
| 15.                                                                 | Civil Hospital Aizwal                                               | Mizoram                                                             | Cornea                                                              | Government                                                          | Yes                                                                 | No                                                                  |
| 16.                                                                 | IGGGH and PGI Puducherry                                            | Puducherry                                                          | Kidney, Cornea                                                      | Government                                                          | Yes                                                                 | No                                                                  |
| 17.                                                                 | GGS Medical College Faridkot                                        | Punjab                                                              | Cornea                                                              | Government                                                          | Yes                                                                 | No                                                                  |
| 18.                                                                 | Command Hospital Kolkata                                            | West Bengal                                                         | Kidney, Cornea                                                      | Government                                                          | Yes                                                                 | No                                                                  |
| 19.                                                                 | IPGMER and SSKM                                                     | West Bengal                                                         | Kidney                                                              | Government                                                          | Yes                                                                 | No                                                                  |