Lok Sabha Question No. 1145 (UNSTARRED), answered on 2017-07-21
Subject: Sickle Cell Anaemia
Ministry: HEALTH AND FAMILY WELFARE
Asked by: CHANDRA PRAKASH JOSHI, CHANDU LAL SAHU, RAMSINH PATALYABHAI RATHWA

## GOVERNMENT OF INDIA MINISTRY OF HEALTH AND FAMILY WELFARE

## DEPARTMENT OF HEALTH AND FAMILY WELFARE

## LOK SABHA UNSTARRED QUESTION NO. 1145 TO BE ANSWERED ON 21 ST JULY, 2017

## SICKLE CELL ANAEMIA

## 1145. SHRI CHANDRA PRAKASH JOSHI: SHRI CHANDU LAL SAHU: SHRI RAMSINH RATHWA:

Will the Minister of HEALTH AND FAMILY WELFARE be pleased to state:

(a) whether a large number of people of the country are suffering from sickle cell anaemia and if so, the details thereof;

(b) whether the Government proposes toformulate a scheme to eradicate sickle cell anaemia and if so, the details thereof and the States/UTs included therein; and

(c) the details of efforts being carried out by the States to eradicate sickle cell anaemia at their own level and the assistance being provided by the Centre to them in last three years?

## ANSWER THE MINISTER OF STATE IN THE MINISTRY OF HEALTH AND FAMILY WELFARE

## (SMT. ANUPRIYA PATEL )

(a): The actual number of Sickle Cell Anaemia (SCA) patients is not known.  However, it been est imated from different studies that there are about 1.25 lakhs of Sickle Cell An patients in the country.

(b): Public Health is a state subject. However, under the National Health Mission (NHM), Ministry  has  prepared  and  issued  comprehensive  guidelines  for  Prevention  and  Control Haemoglobinopathies  (Thalassemia,  Sickle  cell  anaemia  and  other  variant  anaemia).  T G uidelines provide for screening of every pregnant woman during ANC, pre - marital Counselling at the college level and one time screening for variant anaemia for all children in class This initiative for  prevention  and  control  of  Haemoglobinopathies  ha s  been  initiated  in  22  States. Awareness programme son thalassemia are being conducted by several State Governments.

Further, the Rashtriya Bal Swasthya Kayakrama (RBSK) under NHM provides for early detection  and  treatment  of  Children  (from  0  to  18  years )  for  sickle  cell  anaemia,  Beta Thalassemia at the option of States/UTs.

(c): Indian  Council  of  Medical  Research  (ICMR)  has  helped  to  establish  the  diagnost facilities for prenatal diagnosis in some of the medical colleges in the States of Mah Gujarat,  Chhattisgarh  and  Madhya  Pradesh.  ICMR  has  also  started  a  Satellite  Centre Haemoglobinopathies  at  Chandrapur  in  Maharashtra  where  Sickle  Cell  Anaemia  is  a  majo problem under the leadership of National Institute of Immunohematology (Mumbai).The Centre aims to expand antenatal screening for Sickle Cell Anaemia and provide comprehensive cli care to children and adults with Sickle Cell Anaemia as well as undertake clinical tri National Blood Transfusion Council has also issued a direct ive that blood banks should provide blood/blood components free of cost of the patients of Thalassemia, Haemophilia, Sickle Anaemia and other blood dyscrasia (Blood Disease) requiring repeated blood transfusion. details of approvals given to State s for sickle cell in 2014 - 15  and  2015 - 16  under  NHM  is  at Annexure -I. The approvals given to States under NHM for aem globinopathies in 2016 - 17 is at Annexure -II. Funds released by Ministry of Tribal Affairs  to the state Governments un Special Cent ral Assistance to Tribal Sub Plan (SCA to TSP) and under Article 275(1) of Constitution of India for screening Sickle Cell Anaemia is at Annexure -III.

Details of efforts being carried out by the states to eradicate sickle cell anemi own l evel, with their own funds, are not available with the Government of India.

| Budget allocated to States for Blood Disorders (Sickle Cell)for the year 2014-15, 2015-16   | Budget allocated to States for Blood Disorders (Sickle Cell)for the year 2014-15, 2015-16   | Budget allocated to States for Blood Disorders (Sickle Cell)for the year 2014-15, 2015-16   | Budget allocated to States for Blood Disorders (Sickle Cell)for the year 2014-15, 2015-16   |
|---------------------------------------------------------------------------------------------|---------------------------------------------------------------------------------------------|---------------------------------------------------------------------------------------------|---------------------------------------------------------------------------------------------|
| S. No.                                                                                      | Year                                                                                        | Sickle Cell                                                                                 |                                                                                             |
| 1                                                                                           | 2014- 15                                                                                    | 25                                                                                          |                                                                                             |
| 1                                                                                           | 2015- 16                                                                                    |                                                                                             |                                                                                             |
| 1                                                                                           |                                                                                             | 531.15 556.15 237.62                                                                        |                                                                                             |
| 2                                                                                           | 2014- 15                                                                                    |                                                                                             |                                                                                             |
| 2                                                                                           | 2015- 16                                                                                    |                                                                                             |                                                                                             |
| 2                                                                                           |                                                                                             | 85.42 323.04 2152                                                                           |                                                                                             |
| 3                                                                                           | 2014- 15                                                                                    |                                                                                             |                                                                                             |
| 3                                                                                           | 2015- 16                                                                                    | 1064                                                                                        |                                                                                             |
| 3                                                                                           |                                                                                             | 3216                                                                                        |                                                                                             |
|                                                                                             | 2014- 15                                                                                    | 0                                                                                           |                                                                                             |
|                                                                                             | 2015- 16                                                                                    | 3.5                                                                                         |                                                                                             |
|                                                                                             |                                                                                             | 3.5                                                                                         |                                                                                             |

4

## Annexure-I

| Total Budget for Blood Disorders(including Thalassemia, Hemophilia &Sickle Cell) for the year 2016-17   | Total Budget for Blood Disorders(including Thalassemia, Hemophilia &Sickle Cell) for the year 2016-17   | Total Budget for Blood Disorders(including Thalassemia, Hemophilia &Sickle Cell) for the year 2016-17   |
|---------------------------------------------------------------------------------------------------------|---------------------------------------------------------------------------------------------------------|---------------------------------------------------------------------------------------------------------|
| S. No.                                                                                                  | State Name Andhra                                                                                       | Amount Approved (In Lakhs) 660                                                                          |
| 1 2                                                                                                     | Pradesh Gujarat                                                                                         |                                                                                                         |
| 3                                                                                                       |                                                                                                         | 982.13                                                                                                  |
|                                                                                                         | Maharashtra                                                                                             | 1384.781                                                                                                |
|                                                                                                         |                                                                                                         | 78.4                                                                                                    |
| 4                                                                                                       | Odissa                                                                                                  |                                                                                                         |
| 5                                                                                                       | Jharkhand Madhya Padesh Tripura                                                                         | 292.15 1139.5                                                                                           |
| 6 7 8                                                                                                   |                                                                                                         | 100                                                                                                     |
| 9                                                                                                       | Telangana Nagaland                                                                                      | 175.3965                                                                                                |
|                                                                                                         | Uttar pradesh                                                                                           | 0.84 680                                                                                                |
| 10                                                                                                      |                                                                                                         | 47.87                                                                                                   |
| 11 12                                                                                                   | kerela Jammu &kashmir                                                                                   | 20                                                                                                      |
|                                                                                                         |                                                                                                         | 4.78                                                                                                    |
| 13 14 15                                                                                                | Goa                                                                                                     |                                                                                                         |
|                                                                                                         | Himachal Pradesh &Nagar Haweli                                                                          | 7.51                                                                                                    |
| 16 17                                                                                                   | Dadar Tamil Nadu Rajasthan                                                                              | 7.52 230.76 346                                                                                         |
| 18                                                                                                      |                                                                                                         |                                                                                                         |
|                                                                                                         |                                                                                                         | 13.06 14.14                                                                                             |
|                                                                                                         | uttarakhand Pradesh                                                                                     |                                                                                                         |
| 19 20                                                                                                   | Arunachal Jharkhand West                                                                                | 293                                                                                                     |
|                                                                                                         | bengal                                                                                                  | 2217.03                                                                                                 |
| 21 22                                                                                                   | Karnataka                                                                                               | 540.5                                                                                                   |
|                                                                                                         | Total Budget                                                                                            | 9235.3675                                                                                               |

## Annexure-II

## Statement  showing  funds released for Sickle Cell Anemia under Art.275(1) & SCA to TSP For 2014-2015, 2015-2016 and 2016-2017

| S.NO.    | Name of State                      | Funds released for Sickle Cell Anemia   | Funds released for Sickle Cell Anemia   | Funds released for Sickle Cell Anemia   |
|----------|------------------------------------|-----------------------------------------|-----------------------------------------|-----------------------------------------|
| S.NO.    | Name of State                      | 2014-15 -                               | 2015-16 -                               | 2016-17                                 |
|          | Andhra Pradesh                     |                                         |                                         |                                         |
| 1        |                                    | -                                       | -                                       |                                         |
| 2 3      | Assam Arunachal Pradesh Bihar      | 100                                     | 150 -                                   | 10.00                                   |
| 4 5      |                                    | -                                       | -                                       |                                         |
|          | Chhattisagarh Goa                  | 249.6 -                                 | -                                       | 300.00                                  |
| 6        |                                    |                                         |                                         |                                         |
| 7        | Gujarat Pradesh                    | - -                                     | - 25                                    |                                         |
| 8 9      | Himachal Jammu& Kashamir Jharkhand | -                                       |                                         |                                         |
| 10       | Karnataka                          | 200 200                                 | -                                       |                                         |
|          |                                    | -                                       | -                                       |                                         |
| 11       |                                    |                                         | 51 23 -                                 |                                         |
| 12       | Kerala Meghalaya Mizoram           | 300                                     |                                         |                                         |
| 13       |                                    |                                         |                                         |                                         |
| 14       |                                    | -                                       | 80                                      |                                         |
| 15 16 17 | Maharashtra Madhya Pradesh Manipur | 100 1000                                | - 350 150                               |                                         |
|          |                                    | 200 50                                  |                                         |                                         |
|          | Nagaland                           |                                         |                                         |                                         |
| 18       |                                    |                                         | -                                       |                                         |
| 19 20    | Odisha Rajasthan Sikkim            | - 300                                   | 700 53.27 6.5                           |                                         |
|          |                                    |                                         | -                                       |                                         |
| 21 22 23 | Tamil Nadu                         | - - -                                   |                                         | 27.2.0 50.00                            |
|          | Tripura Telangana                  | 100                                     | 50 126.87 -                             |                                         |
| 24 25    | Uttrakhand Uttar                   | -                                       |                                         |                                         |
|          | Pradesh                            |                                         |                                         |                                         |
| 26 27    | West Bengal                        | 20 -                                    | - 250                                   |                                         |
|          | Total Rs.                          | 2819.6                                  | 2015.64                                 | 150.00 537.20                           |

(RS. IN LAKH)

## Annexure-III