Title: Raising a Rare Girl
Description: "The author's daughter was born with a very rare genetic syndrome and faced a daunting prognosis: she would be a fraction of normal size, have innumerable physical and mental difficulties and likely a shortened lifespan. Now, at age eight she is attending standard public school classes. This is the story of her family's journey"--
Subjects: New York Times reviewed, Parents of children with disabilities, Genetic disorders, Human chromosome abnormalities, Mothers and daughters, Children, diseases, Family, Mothers of children with disabilities, Biography, Wolf-Hirschhorn syndrome, Patients, Genetic disorders in children, FAMILY & RELATIONSHIPS, Children with Special Needs, BIOGRAPHY & AUTOBIOGRAPHY, Personal Memoirs, Families