Title: Saving Henry
Subtitle: A Mother's Journey
Description: This is a memoir of the author's struggle to save the life of her son Henry, who suffered from a rare childhood illness. Henry was born with a heart condition that was operable, but which proved to be a precursor for a rare, almost-always fatal illness: Fanconi anemia.
Subjects: Fanconi's Anemia, Fanconi Anemia, Family, Fanconi's anemia, Biography, Patients, Case studies, Treatment, Mothers and sons