Title: The still point of the turning world
Description: Like all mothers, Emily Rapp had big plans for her first and only son, Ronan. He would be smart, loyal, physically fearless, and level-headed, but fun. Then Ronan was diagnosed at nine months old with Tay-Sachs disease. Not expected to live beyond three, Ronan would be stalled at a developmental level of six months. In this story of a mother's journey through grief and beyond it, Rapp shares the wisdom to be gained from parenting without a future.
Subjects: Family relationships, Tay-Sachs disease, Patients, Terminally ill children, Biography, BIOGRAPHY & AUTOBIOGRAPHY / Personal Memoirs, Large type books
People: Emily Rapp