Saving Sarah
By: Janet Murnaghan
Edition: First edition.
Published: 2018
Language: eng
Number of pages: 246
ISBN-13: 9781250135285
Subjects: Cystic fibrosis in children; Biography; Family; Transplantation of organs, tissues, etc. in children; Families of the terminally ill; Parents of terminally ill children; Terminally ill children
Description: "When her daughter desperately needed a lung transplant to survive, Janet Murnaghan rallied against the outdated restrictions in healthcare that would limit her daughter's options. Sarah had been dying of cystic fibrosis since the day she was born. The disease quickly ravaged her lungs and little body bit-by-bit. Fragile and frail, she had only weeks to live, when her mom realized the reality of Sarah's situation: transplant laws, restricting access to lungs based on arbitrary age restrictions, meant Sarah's options were limited. The injustice of her daughter's fate spurred Janet to start a public battle against outdated health care regulations and a battle to save Sarah's life. Janet transformed her pain and desperation into a voice for Sarah and other kids using social media as her megaphone with friends and family as Sarah's warriors. How does a family navigate catastrophic illness and life in a hospital, while still maintaining a sense of normalcy? Saving Sarah is a story of hope and courage, and a mother's determination to never give up. It's also the story of how a family--Janet and her husband Fran have three other children, one adopted from Ghana--reacts and adjusts when one of its members is in ongoing crisis"--