Disclosure dilemmas
Subtitle: ethics of genetic prognosis after the 'right to know/not to know' debate
By: [edited] by Christoph Rehmann-Sutter and Hansjakob Müller.
Contributors: Rehmann-Sutter, Christoph, 1959-; Müller, Hj.
Series: Medical law and ethics
Publisher: Ashgate Pub.
Published: 2009
Place of publication: Burlington, VT
Language: eng
ISBN-13: 9780754674511
Subjects: Genetic screening -- Law and legislation; Genetic counseling -- Law and legislation; Medical ethics
Notes: Includes bibliographical references and index.
Table of contents: title: The right to know and the right not to know, ten years on / Ruth Chadwick; title: Genetic counseling : placing the room in context / Barbara Katz Rothman; title: Genetic counselling : clinical settings and constraints / Hansjakob Müller; title: Prevention of harmful false diagnosis versus threat by disclosure of an inheritable disease : a medical case / David Winkler and Philippe Lyrer; title: Communication yes, but how and what : commentary to the case presented by David Winkler and Philippe Lyrer / Christoph Rehmann-Sutter; title: The need for an ethics of kinship : decision stories and patients' context / Rouven Porz; title: Testing for susceptibility genes : a cautionary tale / Margaret Lock; title: "If only I had (not) known that" about risk-individualisation, chance-specification, and the loss of certainty of not-knowing / Tjeerd Tymstra; title: Contribution to disclosure dilemmas in genetic counseling : the symbolic fallout of gene talk / Silja Samerski; title: Predictive genetic testing of adolescents at risk of inherited arrhythmic death / Jane Kaye, Michael Parker and Edward Blair; title: How legal frameworks construct patterns of liability in genetic counseling : an international perspective / Daniel Wied, Susanne Listl and Maximilian Seibl; title: Responsibility towards relatives / Michael Steel; title: Careful communication of "bad news" : the cancer experience / Wolf Langewitz; title: The responsibility of the truth-teller / Thomas Cerny; title: Practising informed choice : decision making and prenatal risk assessment : the Danish experience / Nete Schwennesen, Lene Koch and Mette Nordahl Svendsen; title: Receiving and interpreting information : a joint enterprise / Jackie Leach Scully; title: Without disclosure, no informed choice / Peter Miny; title: Allowing agency : an ethical model for communicating personal genetic information / Christoph Rehmann-Sutter.