Caring for children who have severe neurological impairment
Subtitle: a life with grace
By: Julie M. Hauer
Series: Johns Hopkins Press health book; Johns Hopkins Press health book
Publisher: The Johns Hopkins University Press
Published: 2013
Place of publication: Baltimore
Language: eng
Number of pages: 453
ISBN-13: 9781421409375
Subjects: Pediatric neurology
Description: This guide provides information to help parents increase their knowledge and improve their caregiving skills. In "Caring for Children Who Have Severe Neurological Impairment, " Dr. Julie M. Hauer advocates shared decision making between family caregivers and healthcare providers. She details aspects of medical care such as pain, sleep, feeding, and respiratory problems that will be particularly useful to parents. Tables and key points summarize discussions for clear, quick reference, while case studies and stories illustrate how different families approach decision making, communication, care plans, and informed consent.
Notes: Includes bibliographical references and index.
Table of contents: title: Caring for a child who has SNI : an overview; title: Impairment of the central nervous system : specific conditions; title: Treating pain and other distressing symptoms : an overview; title: Pain : evaluation and treatment; title: Gastrointestinal problems : retching, vomiting, feeding intolerance, and other problems; title: Respiratory problems : pneumonia, excessive secretions, and respiratory distress; title: Problems of the central nervous system : spasticity, dystonia, dysautonomia, seizures, and related problems; title: Changes from the expected : sleep, temperature, heart rate, sodium levels, puberty, growth, and nutrition; title: Decision making; title: Care at the end of life.