Genetic data and the law
Subtitle: a critical perspective on privacy protection
By: Mark Taylor
Series: Cambridge bioethics and law
Publisher: Cambridge University Press
Published: 2012
Place of publication: Cambridge; New York
Language: eng
ISBN-13: 9781107007116
Subjects: Medical records; Law and legislation; Government policy; Access control; LAW / Medical Law & Legislation; Genetic engineering; Right of Privacy; Data protection; Human genetics; Medical genetics; Diagnosis; Human chromosome abnormalities; Biotechnology
Description: "Research using genetic data raises various concerns relating to privacy protection. Many of these concerns can also apply to research that uses other personal data, but not with the same implications for failure. The norms of exclusivity associated with a private life go beyond the current legal concept of personal data to include genetic data that relates to multiple identifiable individuals simultaneously and anonymous data that could be associated with any number of individuals in different, but reasonably foreseeable, contexts. It is the possibilities and implications of association that are significant, and these possibilities can only be assessed if one considers the interpretive potential of data. They are missed if one fixates upon its interpretive pedigree or misunderstands the meaning and significance of identification. This book demonstrates how the public interest in research using genetic data might be reconciled with the public interest in proper privacy protection"--
Table of contents: title: Machine generated contents note: 1. Introduction; 2. Privacy; 3. Genetic data; 4. The law; 5. Data in common; 6. Anonymity; 7. Human tissue; 8. Genetic discrimination; 9. Potential, promise and possibility.