The boy in the moon
Subtitle: a father's search for his disabled son
By: Ian Brown
Publisher: Random House Canada
Published: 2009
Place of publication: Toronto
Language: eng
Number of pages: 295
ISBN-13: 9780307357106
Subjects: Genetic disorders in children; Biography; Patients; Family relationships; Parents of children with disabilities; Fathers and sons; Maladies génétiques chez l'enfant; Biographies; Relations familiales; Parents d'enfants handicapés; Pères et fils; Inborn Genetic Diseases; Genetics; Disabled Children
Description: "Walker Brown was born with a genetic mutation so rare that doctors call it an orphan syndrome: perhaps 300 people around the world also live with it. Walker turns twelve in 2008, but he weighs only 54 pounds, is still in diapers, can't speak and needs to wear special cuffs on his arms so that he can't continually hit himself. "Sometimes watching him," Brown writes, "is like looking at the man in the moon - but you know there is actually no man there. But if Walker is so insubstantial, why does he feel so important? What is he trying to show me?" In a book that owes its beginnings to Brown's original Globe and Mail series, he sets out to answer that question, a journey that takes him into deeply touching and troubling territory."--Random House Canada website.
Notes: Includes bibliographical references.