The governance of genetic information
Subtitle: who decides?
By: [edited by] Heather Widdows, Caroline Mullen.
Contributors: Widdows, Heather, 1972-; Mullen, Caroline.
Series: Cambridge law, medicine, and ethics; Cambridge law, medicine, and ethics
Publisher: Cambridge University Press
Published: 2009
Place of publication: Cambridge; New York
Language: eng
ISBN-13: 9780521509916
Subjects: Genetic screening -- Moral and ethical aspects; Genetic screening -- Government policy; Privacy, Right of; Medical records -- Access control; Genetic Privacy -- ethics; Decision Making -- ethics; Genetic Privacy -- legislation & jurisprudence; Public Policy
Notes: Includes bibliographical references.
Table of contents: title: The medium and the message : tissue samples, genetic information, and data protection legislation / Neil C. Manson; title: Me, myself, i : against narcissism in the governance of genetic information / SØren Holm; title: Decisions, consent, and expectations of the individual / Caroline Mullen; title: Constructing communal models of governance : collectives of individuals or distinct ethical loci? / Heather Widdows; title: Rights, responsibility, and stewardship : beyond consent / Roger Brownsword; title: Who decides what? relational ethics, genetics and well-being / Sarah Wilson; title: Involving publics in biobank governance : moving beyond existing approaches / Kathryn G. Hunter and Graeme T. Laurie; title: Genetic information and public opinion / Andrew Edgar; title: Harmonisation and standardisation in ethics and governance : conceptual and practical challenges / Ruth Chadwick and Heather Strange.