End-of-life care for children and adults with intellectual and developmental disabilities
By: edited by Sandra L. Friedman and David T. Helm.
Contributors: Friedman, Sandra L.; Helm, David T.; American Association on Intellectual and Developmental Disabilities.
Publisher: American Association on Intellectual and Developmental Disabilities
Published: 2010
Place of publication: Washington, DC
Language: eng
ISBN-13: 9781935304074
Subjects: Terminal care; People with mental disabilities -- Care; Developmentally disabled -- Care; Mentally Disabled Persons; Terminal Care -- ethics; Adult; Bioethical Issues; Child
Notes: Includes bibliographical references and index.
Table of contents: title: Constructing a "good death" : historical and social frameworks / David T. Helm and Sandra L. Friedman; title: End-of-life policies and practices / Anne L. Botsford and Angela King; title: Ethical foundations and legal issues / Judith Levy and Maureen van Stone; title: Complex medical problems affecting life and life span in children / Sandra L. Friedman; title: Medical conditions in adults near the end of life / Marc T. Emmerich; title: Medical treatment and management at the end of life / Julie Hauer; title: Nutrition issues in end-of-life care / Sari Edelstein, Sharon Weston, and Vanessa Ludlow; title: Practical guide to health care decision making / Betsy B. Johnson; title: Do-not-resuscitate orders and redirection of treatment / Jeffrey P. Burns and Christine Mitchell; title: Ethical issues in the withdrawal of support : charting a course between Scylla and Charybdis / Peter J. Smith and John J. Hardt; title: Forgoing nutrition in infants and children with intellectual disabilities / Robert M. Veatch; title: The persistent vegetative state / David L. Coulter; title: Applying the dignity-conserving model / Zana M. Lutfiyya and Karen D. Schwartz; title: End of life through a cultural lens / Tawara Goode and Patricia Maloof; title: Spirituality issues and strategies : crisis and opportunity / William Gaventa; title: Struggling with grief and loss / Kenneth J. Doka; title: Use of person-centered planning for end-of-life decision making / Leigh Ann C. Kingsbury; title: Supports and resources for families of children with special health care needs / Lauren C. Berman and SoYun Kwan; title: Supports and resources for adults / Teresa A. Savage ... [et al.]; title: Palliative care and pain management : resources for direct care providers / Amy C. Stevens, Anne-Marie Barron, and Patricia N. Rissmiller.