Achieving justice in genomic translation
Subtitle: rethinking the pathway to benefit
By: edited by Wylie Burke ... [et al.].
Publisher: Oxford University Press
Published: 2011
Place of publication: Oxford; New York
Language: eng
Number of pages: 212
ISBN-13: 9780195390384
Subjects: Genomics; Moral and ethical aspects; Human genetics; Genetic Research; Genetic screening; Genetic Testing; Research; Genetic Predisposition to Disease; Translational Medical Research; Ethics; Bioethical Issues
Notes: Includes bibliographical references and index.
Table of contents: title: Making good on the promise of genetics : justice in translational science / Sara Goering, Suzanne Holland, and Kelly A. Edwards; title: The social, political, and economic underpinnings of biomedical research and development: a formidable status quo / Patricia Kuszler; title: The input-output problem: whose DNA do we study, and why does it matter? / Stephanie Malia Fullerton; title: The autism genetic resource exchange: changing pace, priorities, and roles in discovery science / Holly K. Tabor and Martine Lapp. Commentary on the discovery phase of research / Sara Goering, Suzanne Holland, and Kelly A. Edwards; title: Early assessment of translational opportunities / Patricia Deverka and David L. Veenstra; title: The power of knowledge: how carrier and prenatal screening altered the clinical goals of genetic testing / Nancy Press ... [et al.]. Commentary on the development phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards; title: Integrating genetic tests into clinical practice: the role of guidelines / Anne-Marie Laberge and Wylie Burke; title: Genomics and the health commons / Nora Henrikson and Wylie Burke; title: Commentary on the delivery phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards; title: The role of advocacy in newborn screening / Catharine Riley and Carolyn Watts; title: What outcomes? whose benefits? / Wylie Burke and Nancy Press. Commentary on the outcomes phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards; title: Bringing the best science to bear on youth suicide: why community perspectives matter / Rosalina James and Helene Starks.